My Nonprofit Reviews

I had quadruplet daughters who were all on one placenta. When my ultrasounds showed that two of the girls were tending toward TTTS, my high-risk doctor told me I wouldn't be considered an eligible candidate for the laser ablation surgery by the surgeon in my region. If their TTTS progressed, at least one of my daughters would simply die. So I contacted the TTTS Foundation, desperate to see if there was any other way. And was there ever!

The director of the TTTS Foundation has incredible knowledge about this syndrome and spent an unbelievable amount of time learning about my pregnancy, going over my ultrasounds, advising me about how to advocate for myself to my doctors, and giving me advice about how to combat the syndrome. In pregnancies like mine, time moves very fast. Complications arise before viability, and preterm labor happens early. The absolute wealth of information provided to me by the TTTS foundation was something I would never have tracked down all on my own during my very short pregnancy. But because of the timely and thorough advice I received, I had an extremely successful pregnancy.

I did end up developing TTTS between two of my daughters. At the advice of the TTTS Foundation, I adopted an extremely high-protein diet with intense nutrient supplementation. At my next ultrasound after diagnosis, the syndrome was gone. The foundation also referred me to a doctor who was a specialist in high-order multiples, and I switched to his clinic for the remainder of my pregnancy. I had a very successful outcome, delivering past 30 weeks with my smallest baby weighing over two and a half pounds at birth. My babies were considered very healthy in the NICU, and they were considered to have had the best possible outcome.

I will never forget how the director of this foundation counseled me over the telephone late at night when I was overwhelmed by the exhaustion and risk of carrying four babies, lightheaded and out of breath. She shared her knowledge and wisdom with me when I was the most scared I have ever been, and she helped me make choices that ultimately saved my pregnancy. I credit the TTTS Foundation with saving my daughters' lives. Now they are home with us and giving us immense joy every day. I've attached a few pictures so you can see how beautiful they are.