Over 1.8 million nonprofits and charities for donors, volunteers and funders

2019 Top-Rated Nonprofit

Twin to Twin Transfusion Syndrome Foundation

2,377 pageviews

Add to Favorites

Share this Nonprofit

Donate

Nonprofit Overview

Causes: Health, Specifically Named Diseases, Specifically Named Diseases Research

Mission: An international nonprofit organization solely dedicated to providing lifesaving educational, emotional, and financial support for families, medical professionals, and other caregivers before, during and after a pregnancy diagnosed with twin to twin transfusion syndrome including TAPS, SIUGR and TRAP. Dedicated to saving the babies, improving their future health and care, furthering medical research, providing NICU, special needs and bereavement support, and keeping families together the way twins are meant to be.

Community Stories

90 Stories from Volunteers, Donors & Supporters

4nonprft

Professional with expertise in this field

Rating: 5

TTTSF is a does great work. I personally know of several families that they have helped. I have referred my patients to them. I totally recommend families experience TTTS contact them for help!

Daniel Pirela T.

Client Served

Rating: 5

You guys are a big angel to us and all
The people that need help with the babies under ttts situation

Review from Guidestar

Stephen M.5

Client Served

Rating: 5

Our identical twin girls Adria and Hazel were diagnosed with TTTS at our 20 week ultrasound. We were advised that we needed to act quickly in order to give our girls the best possible fighting chance. After processing the devastating news, we were quickly coordinating plans to travel out of state to Mayo Clinic to get the necessary laser ablation treatment we needed, working with Dr. Rodrigo Ruano and his team.

Through a mutual connection, we were referred to the TTTS Foundation shortly after the diagnosis. Upon reaching out to the foundation, were put into contact with great resources that included both emotional support, as well as financial support.

The foundation has better prepared us to navigate one of the most challenging situations we have ever experienced, and allowed us to focus on what is best for both Adria and Hazel. It has been a blessing not having to worry about the travel expenses that we incurred while seeking the necessary medical care we needed.

We will always be grateful for their work, compassion, and all they do to support other families dealing with this diagnosis! We are so thankful to have be referred and put in contact with them!

General Member of the Public

Rating: 5

Great organization who has helped countless families over the last 30 years. They offer sound advice for talking to your doctor about TTTS and amazing emotional support during confusing and stressful times.

Review from Guidestar

1 Terri90

Client Served

Rating: 5

Seventeen years ago, during the most precious time of my life, expecting identical twin girls, we were diagnosed with Twin to Twin Transfusion Syndrome. It seemed hopeless , until we were connected to The Twin to Twin Transfusion Foundation!
Mary Slamon and Dr. Julian De Lia, shared encouragement, and life saving information about TTTS. The months that followed were cherished and filled with faith and hope, because of the support from the TTTS Foundation.
My husband and I were equipped with knowledge to make the very best decisions in the course of my pregnancy with TTTS. The knowledge and education saved our twins lives. Our twins will be turning 17 in a few days! Every single day, since that diagnosis, we are grateful, for Mary's commitment to conquer and find a cure, save lives from TTTS.
We consider it a miracle that our twin daughters survived TTTS. We consider Mary from The TTTS Foundation to be our angel. We will support Mary and the foundation, future TTTS families, until there is a cure.

Review from Guidestar

Previous Stories
1

Client Served

Rating: 5

The Twin to Twin Transfusion Syndrome Foundation is far more than a foundation. The TTTS Foundation is literally HOPE, LIFE, COMFORT, EDUCATION, FAITH, WRAPPED IN EMPOWERING MOTHERS WITH LIFE SAVING INFORMATION AND SUPPORT, IN THE MIDST OF A HOPELESS DIAGNOSIS OF Twin to Twin Transfusion Syndrome. One constant, steady, loving, mighty yet ever so compassionate person that makes the Foundation unique .. set apart from others.. is Mary Slaman. She understands the desperation in the expecting mothers voice, when The TTTS Foundation phone rings, or an email arrives, or a prayer request comes in, or posting to the Foundations facebook pages. Mary has lived through TTTS, she knows all to well, how the Mom on the other end of that phone call feels, and how desperately that mom wants to save her twin babies from this uncertain disease. I know this to be true, as I am one of the mothers. 14 years ago, during what my husband and I thought was a perfectly healthy normal identical twin pregnancy.. I was diagnosed with TTTS at 19 weeks, during a doctor visit for an ultrasound. We were blessed beyond belief to be expecting identical twin girls, our 1st pregnancy and twins. The sudden diagnosis of TTTS simultaneously accompanied devastating information about TTTS hopeless choices , hopeless outcomes. We walked into that appointment elated to once again see our two precious babies on the monitor, life, precious life inside my womb.. to be told that these to babies were in a life threatening situation where both could pass and probably would, even with medical intervention. The doctors explained that we had the choice of terminating our entire pregnancy, or selectively terminate one to save the other. We told the doctors that terminating our pregnancy or selective termination was absolutely NOT AN OPTION AT ALL. We wanted to save our babies.. please help us to save our babies. The doctors went on to explain options that could possibly help and explained that time was critical, as most cases of TTTS, result in loss of one or both of the babies. A nurse in the office, hugged me and put a business card in my hand..for The TTTS Foundation. It hurts so deeply to even write about that experience in the doctor's office that day.. it is like a blur.. I just remember feeling completely numb.. almost not able to breathe.. melting into my husbands arms.. my husband whispering into my ear that everything will be ok.. He just held me and i had my arms wrapped around by stomach.. trying with all my might to protect my babies. It was like time stood still, everything changed in those moments. Little did I know at the time..that the business card in my hand ... was our saving grace. I called The TTTS Foundation. I spoke to Mary, whose comforting voice, her compassion , whose words of hope, in spite of her loss, gave my soul life, inspired me to rise above the diagnosis, equipped me with a plan to help save my precious daughters. Mary sent a package via overnight mail that contained absolutely every detail about Twin to Twin Transfusion Syndrome. My husband and I were not alone. Mary equipped us with power over Twin To Twin Transfusion Syndrome. TTTS was no longer hopeless, it was something we could face with confidence knowing we could do everything humanly possible to save our babies.. while relying on immense faith and prayer to surround us. Mary understood that I was a mother of twins... at that time of 19 weeks gestation .. for the rest of my pregnancy and for always. She knew the love I had for my babies.. the most instinctive desire to save my babies lives. Mary helped me overcome the fear of TTTS , through knowledge at each and every doctor appointment, ultrasound, and procedure. My twin daughters miraculously survived TTTS, thanks to THE TTTS Foundation. They were born at 28 weeks gestation, weighing only 2 pounds each. My husand and I were also prepared for the journey through NICU ,, thanks to The TTTS Foundation. Mary sent a wonderful NICU book to me, even before my daughters were born, to educate us on every aspect of premature birth. Mary has been a consent source of hope over the last 14 years. She is still a very important person in our lives.. We, as a family, have immense respect for Mary and her life long mission to save lives and until a cure is found for TTTS. The TTTS Foundation is so close to our hearts. and always will be.

Volunteer

Rating: 5

My sons survived the Twin To Twin Transfusion Syndrome 16 years ago thanks to the knowledge of Mary and Dr.DeLia. They saved my sons life and I am forever grateful. Today I help educate women about Twin To Twin.

Review from Guidestar

Client Served

Rating: 5

Twin to twin transfusion syndrome has impacted four of the five babies I have carried. My first monodi pregnancy we tragically lost one of our daughters and have one survivor. She is beautiful but not a day goes by that I don’t think of her sister Cora and how wonderful it would have been to have them both here. I was connected to this organization through a support group joined as a result of this loss. As I write this review I am currently looking at my next set of monodi twin boys. They are 11weeks old and also were diagnosed with ttts. I reached out to this foundation the day after our diagnosis and without their guidance, encouragement, and various means of support, I truly don’t believe they would both be here. We were able to go to one of the top fetal clinics for ttts in the country and my boys are now healthy and beautiful. This foundation saves lives and brings hope support and comfort to so many. We could not be more grateful for this foundation!

Review from Guidestar

Micki Mills J.

Volunteer

Rating: 5

The TTTS Foundation did more than I could have ever imagined to help my daughter and her husband get through two of the most difficult pregnancies of their lives!
TTTS is a FABULOUS organization that truly helps parents in such difficult times. My daughter an identical twin had two identical twin pregnancies! Without a doubt TTTS helped in saving the lives of my twin grandsons and the gave enormous emotional support with my twin granddaughters. Thank you TTTS!
#HaileyandCora❤️ #HoustonandHarvey
#supportTTTSFoundation❣️❣️

Review from Guidestar

General Member of the Public

Rating: 5

An absolutely beautiful cause that helps so many. Please support these incredible people

General Member of the Public

Rating: 5

I cannot say enough about how grateful I am for this organization. Because of their generosity and desire to help families affected by TTTS, my dear friend was able to receive a surgery that ultimately saved her beautiful baby boys. This organization is incredible!

Review from Guidestar

General Member of the Public

Rating: 5

We couldn’t be more thankful for this organization! They assisted in making the arrangements for my twin sister to have a procedure done across the country saving the lives of both her twins. I now have two beautiful nephews. Two miracles.

Review from Guidestar

General Member of the Public

Rating: 5

So grateful for the unexpected help received from this organization by a friend who has had two pregnancies affected by this syndrome.

Review from Guidestar

Charlotte A.1

General Member of the Public

Rating: 5

This foundation absolutely, without question, saves lives. I cannot express how grateful I am for everything they did to help a beloved friend maintain a healthy pregnancy and made it possible that she could bring home two beautiful baby boys just this past week!!!

Review from Guidestar

Client Served

Rating: 5

Mary and the TTTS Foundation was extremely helpful and caring when my wife and I lost our twin boys 5 months ago. Mary put us in contact with some local families who had also experienced the same tragedy as us and just talking to other couples who know the pain of loss and were able to continue on and have multiple children after the fact has definitely been therapeutic. The foundation does great work to help with the grieving and let's you know that you're not alone.

Client Served

Rating: 5

My wife and I to our joy found out we were expecting identical twin boys in April, 2018. We were overcome with joy and happiness and started to plan for not one, but 2 little boys. We thought the pregnancy was going smoothly until we were sent for a scan with an MFM doctor who diagnosed us with TTTS and SIUGR. We had no idea about this disease and what it had in store for us. The fact that we were based in Thailand made things even more complicated. I tried to find out as much information as possible about TTTS and SIUGR while we were waiting to see a specialist doctor in Bangkok who we were told would be able to perform surgery to help the TTTS. The next day, after a scan by this doctor we were sent to a waiting room where we were joined 5 minutes later by a team of doctors who said the only surgery they would perform was surgery to terminate our weaker little boy who was a few weeks behind his brother in growth. We didn’t know what to do at that point as while we instinctively did not want to kill our little boy, we were told that his twin will never make it. Furthermore, we were told that my wife, who was around 18 weeks pregnant at the time was about to give birth almost immediately and that both babies would not make it. It is difficult to put into words what happened next because there are simply no words we can use to express our thanks and gratitude that we found an angel in Mary Slaman from The Twin to Twin Transfusion Syndrome Foundation TTTS. There was no professor, no doctor, no hospital and no person who we spoke to (and we spoke to a lot) who had as much experience, as much knowledge, as many resources and a big heart like Mary Slaman. We took all the advice we could from Mary and now, in October, 2018 our babies are side by side in NICU in Bangkok fighting hard but getting there. They were born at 29 weeks and are now 32 weeks old. Mary has been an inspiration to us, always there to answer our questions, always there to provide support, always there to help us get through the darkest of days and we owe so much, just so much to Mary Slaman and The Twin to Twin Transfusion Syndrome Foundation TTTS. We would not be here today and neither would our boys if it were not for all of Mary’s hard work that she puts into The Twin to Twin Transfusion Syndrome Foundation TTTS. Thank-you Mary

Client Served

Rating: 5

While I wish I had no reason to know what this foundation supports, my husband and I have a front row seat. Our twins were diagnosed with stage 2 TTTS at 23 weeks and while we moved as quickly as possible to surgically intervene, it wasn’t quick enough. We lost our donor baby and we’re absolutely devastated. I reached out to the TTTS foundation and Mary quickly responded and added me to a support group with parents who had also lost a baby. This group saved me. I was able to ask questions I couldn’t bare to ask anyone else, mourn, grieve, and just be surrounded by others who know the pain we are going through. This foundation does amazing things for s group not many people know exist. I feel as though I’m only getting started in learning about this terrible disease, but im thankful to have the foundation to turn to.

Lisa Signorile Z.

Client Served

Rating: 5

I am forever grateful to Mary Salman and the TTTS foundation for guiding me during my difficult journey and helping me bring my boys into this world. We were diagnosed with TTTS at 27 weeks. I flew to Florida and had a lifesaving surgery performed by Dr.Quintero. The information And support I received from the foundation and Mary were essential in my babies survival. Peter was born at 2.6 lbs and Maurice 1.6. Both in heart and kidney failure after 51 and 93 days in the nicu are here and doing amazing. Thank you will never be enough. You can read more of our journey at www.peterandmaurice.blog

General Member of the Public

Rating: 5

I am in the UK and currently going through a TTTS pregnancy. I was really struggling and being driven crazy with worry and not being able to find any answers or help, then i came across a few posts from people mentioning Mary at the TTTS foundation, i googled it and eventhough it was in the US i decided i would email. I can honestly say its the best thing i’ve done, the support, knowledge and advice Mary has given me even from thousands of miles away has been incredible and i wouldn’t be getting through all this as well as i am without her. My girls have been up and down so many times and it has been and still is an absolute emotional rollercoaster, however Marys emails always keep me positive and i am convinced her advice on extra protein and horizontal rest is what has saved my girls from progressing to needing laser ablation so far. I still have a while to go but each day i feel more hopeful that my girls will be just fine and a big part of that is down to Marys help.

Stephanie G.3

Client Served

Rating: 5

21 years ago I was a terrified 19 year old girl who had just previously learned I was pregnant with twins, and in less than a month of time, learned that they were fighting to live inside the womb. It’s truly sad to think that the womb is supposed to protect and nourish a life until it’s ready to survive on its own, and for my little girls and so many others like them, they were having to fight for survival in the one place they should have been the safest. In the whirlwind of medical procedures and getting insurance companies to cover the costs, there were a few godsends for me and one of them was Mary Slaman and the TTTS Foundation. Not only did she handle many arrangements for surgery and procedures, but she found the time to call me personally to reassure me I wasn’t alone, that everything happening wasn’t my fault, and that there was someone there to help. It was the most terrifying and most painful thing in my life, and it still is to this day and most likely always will be. My twins, Summer and Taylor fought for life valiantly every step of the way, but the effects of TTTS were too much for their little bodies to overcome, and sadly they passed away. They would be 21 years old today. For all of the memories of them and our fight, good or bad, I will always be forever grateful for Mary and her foundation’s aid throughout all of it.

Donor

Rating: 5

In March of 2017, my brother and his wife received the devastating news that their twins were diagnosed with Twin to Twin Transfusion Syndrome... this was the start of a very difficult journey for them and unfortunately lead to the heart breaking loss of my beautiful nieces, Ava & Emma. The diagnosis of TTTS and the weeks to come were scary and confusing to my family and we didn’t know how to best support my brother and his wife. I knew we needed to better understand what we were dealing with and inevitably provide the grieving parents with resources and support beyond what I could offer. I stumbled across the TTTS foundation and asked to join their group, which led to an immediate response from the founder, Mary Slaman. She was beyond kind, resourceful, and responsive at a time we all needed it most. Mary and the foundation were a huge help in understanding TTTS and offered the support and resources my family needed. My brother and sister in law found much of their healing this past year through the foundation. Just this past April, they hosted a 5k fundraiser in memory of Ava and Emma. They wanted to honor their girls, give back to the TTTS foundation and hope to help others struggling with Twin to Twin Transfusion Syndrome. We are so grateful to have found Mary and her foundation - a light that was provided during a very dark time. Thank you Mary!

1

Donor

Rating: 5

On April 17, 2017, my husband and I gave birth to two beautiful twin girls, Ava Rose and Emma Linn. Sadly, they both passed away a few hours later due to complications from TTTS. A few weeks prior to their passing, my family got in touch with Mary Slaman, the founder of the TTTS Foundation; Mary provided us with much needed education, support, and comfort during an extremely scary and difficult time. After our girls passed, we received a beautiful bereavement care package, filled with informational booklets, TTTS pamphlets, coping resources, mementos, among many other things. It was a wonderful gesture of kindness from someone we had never even met. Over the weeks and months after our girls' passing, Mary often kept in touch with us, offering us support and comfort. The TTTS Facebook page was a source of information and solidarity with other families who had gone through our similar situation.

The TTTS Foundation works tirelessly to inform the public about what exactly TTTS is, and how to help women and families with twins and higher multiples handle TTTS. There are warning signs to pay attention to, and steps to take with your healthcare professionals once you are diagnosed with TTTS that every family should be made aware of. The TTTS Foundation provides critical information on where to go throughout the country if you need specialized medical treatment to help your twins or higher multiples survive. I just wish my husband and I knew about this Foundation sooner.

The TTTS Foundation cares deeply about every single family that gets diagnosed with this disease, and offers so much support in a variety of ways, whether that's through personalized phone calls, social media support, mailed resources, etc. All of these efforts take time and money to fund, which is why they need our support.

I have been invested in this Foundation and would love to see more awareness generated so families with twins or higher multiples can get the help they need, when they need it.

I am attaching some of my photos of the 5K I organized this past April to raise money for the TTTS Foundation. It's called the "Love Blooms 5K" and it was held in my hometown of Melrose, MA. It was a huge success and I hope to be able to continue my fundraising efforts next year for this wonderful organization.

The TTTS Foundation deserves 5 stars and so much more!

Vicki Stacey C.

Client Served

Rating: 5

25 years ago, I was surprised and overwhelmed to learn that I was expecting twins. All seemed to be going well, except that the doctors became someone concerned at 6-7 months in my pregnancy. I soon learned that they were concerned because it appeared
Twin B ( Matthew) growth seemed to be slowing and he was much smaller that
Twin A -( Daniel). They started performing test after test, monitoring me and the babies and were at that time unsure what was happening. They placed me in the hospital on Thanksgiving day of 1992 and mentioned that it appeared Matthew had passed and that I would probably go into preterm labor at 28 weeks, or that the deceased baby would pass blood clots to me/and possibly to Daniel, which could take both our lives, or that Daniel could end up with CP or blind if my body could not break down the blood clots. I was in the hospital for 2.5 weeks with no sign of preterm labor. I began preparing myself, asking lots of questions about what to expect, what to watch for and never stopped searching for answers. I read a lot of articles with the help of nurses who brought me information on Twin to Twin Transfusion was very rare at that time. That is when I read an article about Mary and her experience, fortunately there was a number for her in the article. I called her, we talked for several hours, and learned at that time that we both had a Matthew. I cried openly as she told me her story, I asked questions and she answered them. I kept in touch with her now for over 25 years and I hope that she knows just how much she helped me when I had no one else to talk to. She sent me information, articles and we have not lost contact. Once released I went to the clinic for a follow up and the student resident told me that he heard two heartbeats, which I became hysterical and asked for my doctor who came back in and did a sonogram to show me that Matthew was indeed deceased. The turmoil and loss set in again. I went through several blood tests, monitoring sessions, constant dr appts ofter 2 - 3 times week. On February 2nd they did a amio to see if Daniels lungs were mature enough to deliver ( NO NOT YET) as my body was fighting to break down the clots and very worried about both of our lives.. On February 11 -14th they tried inducing, nothing worked, I became very stressed and told them that GOD would watch over us and that when he felt the time was right, I would deliver both at the same time, they sent me home for 24 hours, brought me back at Midnight on the 14th during a snow storm and started the process again, 48 hours later, at 12:33pm and 12:34pm, I delivered both my babies without any family with me, I remember the tears flowing heavily as I delivered Daniel and soon followed by Matthew. The room was quiet and flowing with so many doctors and I heard Daniel's first cry.....I kept all of this to myself and later called Mary to talk to her and cried while telling her. I then had the opportunity to see both of the boys , hold them both, and then fill out the paperwork and plan a funeral and the whirlwind of emotions, both joy and saddness that filled my life, the emptiness of losing a baby, the love of my 2 boys at home and a newborn. I will never forget this experience, I will never forget the support and love that I felt from Mary, that I was not alone, and that it was ok to think about Matthew, love Matthew, and never forget him. 25 years later, I look at his things, remember holding both my boys, and then the time of answering everyones questions, and that everytime I walked into a room, it became very quiet. Just remember if you are dealing with Twin to Twin Transfusion, please know it is ok to cry, it is ok at be sad, it is ok to talk about both the babies, it is ok to grieve, it is not easy, but stay strong and believe that GOD has a special plan. You are much stronger than you believe, that is what Mary taught me. Love you always Mary and thank you for always being here for me before, during and everyday.

Jamie Greene S.

General Member of the Public

Rating: 5

Every woman thinking about having a baby should be told about the TTTS Foundation on the chance they may become pregnant with identical twins and would need the valuable, life saving information available on the website. We unfortunately lost our beloved son Finley to TTTS before we knew of the foundation. After we lost Finley and took to the Internet for information, we found the TTTS Foundation. Mary immediately returned our email with much needed care and condolences. She sent us a beautiful bereavement package and has been there anytime we needed even still today, two years later. I honestly feel if we had known of the foundation from the beginning of our pregnancy our Finley would still be alive. I cannot stress enough that every woman pregnant with twins or multiples needs to be informed about the TTTS Foundation and it's website tttsfoundation.org.

Vicky N.2

General Member of the Public

Rating: 5

Absolutely wonderful charity -my family have very much felt the love and support

Client Served

Rating: 5

In August of 2004 our babies were diagnosed with TTTS. I searched the Internet for more information about the disease and happened upon the TTTS website. I contacted Mary and with in 2 days, a wonderful packet of information was shipped to me. A week after being diagnosed, I went into preterm labor at 22 weeks and we lost both of our girls. I contacted Mary again, and she sent out a bereavement packet with incredibly helpful information.

In August of 2017 I found out that we were once again having mono-di twins. I cried at the ultrasound fearing that this set would develop TTTS and succumb to the same fate. I called Mary and she spent 45 minutes on the phone providing as much information about preventing TTTS as she could. She also got me in touch with Dr. DeLia, who is an invaluable resource.

I felt so supported and cared for throughout my entire pregnancy. Mary would often message me to check up and see how things were going. On January 14, two healthy baby girls (Sierra and Charlotte) were born. Without Mary's support and guidance, I doubt the outcome would have been as successful as it was. The TTTS is an invaluable nonprofit that provides resources and support for those struggling to fight TTTS. I'm so grateful that she founded this wonderful organization!

2

Donor

Rating: 5

Mary was wonderful support after the loss of one of my twins . When you go through something like this you want to talk to someone who knows your pain. Mary knew my pain. She confortd me and taught me how to turn my grief into helping other family's . My suriviving son and our family now do a fundraiser every year and donate it to the foundation

Client Served

Rating: 5

The Twin to Twin Transfusion Syndrome Foundation and Mary Slaman were such an encouragement to us during our TTTS Journey. Our twins were diagnosed with Stage 3 TTTS at 15 1/2 weeks gestation. We had a laser surgery at 17 weeks. The foundation helped alleviate some of our financial burden during our 19 day stay away from home. Since our delivery, Mary has continued to offer support and encouragement to my family and many others. We are truly thankful for all that foundation does to support families going through this terrible disease.

Client Served

Rating: 5

Finding out that my sister was pregnant with identical twins was such an incredible feeling and then finding out about TTTS was frightening. We did not know what to expect. Our whole family was there to support her but without knowing much about TTTS it was hard. Through this foundation, my sister had incredible resources and amazing people to support her, console her, and guide her through her pregnancy and surgery and up until today. It has been over 2 years since my niece was born and my sister still keeps in touch and has made lifelong friends. Thank you for being there for my sister, brother in law and niece when they needed you the most.

Client Served

Rating: 5

One of my closest friends has two happy and healthy TTTS survivors thanks to the help and support offered through this foundation! Such a rarely mentioned disease deserves all the awareness it can get and this foundation is on its way to achieving just that!

Client Served

Rating: 5

When my daughter was diagnosed we had never even heard of this disease but thanks to Mary and all the angels at the TTS foundation we were able to get education and support! We will forever be greatful!

Client Served

Rating: 5

An amazing source of support for families enduring TTTS!

Client Served

Rating: 5

The TTTS foundation helped my wife and I get through our battle with TTTS. They provide support and advice to our family throughout the entire pregnancy. It would have been much harder to go through something like this without them being there.

Client Served

Rating: 5

I remember when we were first diagnosed with TTTS. It was a total shock. I immediately reached out to Mary at the foundation. She was an amazing support and i couldn't thank her enough. She gave me a sense of hope and comfort. She was also a shoulder to cry on. Along with that an amazing resource. I have met amazing people and owe alot to Mary and the foundation. I have made great friendships through this foundation and will be forever grateful

3

Client Served

Rating: 5

Mary is absolutely amazing in all that she does for TTTS awareness and in helping families during their most trying times. From encouraging words to bereavement services, she goes above and beyond for everyone who reaches out to the foundation. I honestly don't know how I would have made it through my TTTS pregnancy without this foundation's support and guidance.

Volunteer

Rating: 5

The TTTS Foundation has been a cornerstone in the life of my family and so many others. When my twin sister, Ryanna, passed away unexpectedly due to TTTS, the foundation provided my parents with crucial education and support. Throughout my childhood and young adulthood, I have been inspired by the foundation's endurance, empathy, and activism. This is an organization whose mission was born from the heart, that operates out of passion, and lives to serve. Through its tireless work, the TTTS Foundation hopes to stop TTTS and I will always support that.

1 Sonia12

Client Served

Rating: 5

Let me start by saying how grateful I'm with Mary and this wonderful organization. I started doing some research about twin to twin transfusion syndrome right after my OBGYN confirm the identical twin pregnancy. My Doctor of 6 years was not so pleased with the news, she said it was going to be a really bumpy pregnancy, that she did not expected me to do well, she mentioned the possible complications such as twin to twin transfussion syndrome. I decided to do some research on my own when I found the wonderful website that the foundation had created, later I decided to call Mary. At first, I was expecting to just leave a message and receive a call back days later; to my surprise Mary answered the phone right away, at the time I was very sad, I was crying. This was our first pregnancy and was confused and very sad for the babies. She was so wonderful and hopeful, she gave me encouragement, her calming voice was just what I needed to hear at that moment, she made me feel that there was hope for our babies. She has been there for us. She is available when we need her the most. Her website organization is full of important information. I just cant say enough about what a blessing she has been in my life and my families. I love her organization. I feel she really answered Gods calling when she decided to create this foundation. Unfortunately, our baby girls died, and we are devastated right now. Mary is been a wonderful support through all of our nightmare.
I completely recommend her organization, from the bottom of my heart. In this day and age is hard to find good, loving people. Sometimes its is amazing to come across someone that can be like family to a complete stranger. That is how Mary treats people. GOD BLESS YOU MARY! I will be creating a video shortly.

Client Served

Rating: 5

At 20 wks I was told We were stage 2 TTTS . I had never heard of it and scared when the dr said I needed to see a specialist would have me set up to receive a call when to see one. Little did I know how serious this was but before I got home from the dr I received a call from the Hospital in Houston TX wanting me there the next day at 8am! Stunned and not knowing how I would get there since I had been off work and didn't have the money to go this foundation immediately went into action and made it possible for me to get from MS to Texas the next morning and not have to worry about a place to stay it was all arranged! Ms Mary spent many long calls talking me through things and keeping me sane! This was suppose to be a consultation but after their scans and Dr's checked me it was determined we was almost stage 3 and I was offered termination as my 1st option because the risks were high to lose both . I chose to go ahead with surgery and within the hour I was prepped heading to surgery to attemp to save 1 the other baby wasn't gonna make it the odds were so low! After surgery we all were shocked both twins had survived surgery but was given 24 hours after surgery to know if both babies would survive the surgery ... The surgery took almost 2 liters of fluid and closed 10 vessels but both my babies survived! I can't thank this organization enough because with the help I would not have been able to save my twins! My boys were born 33 weeks stayed almost 4 weeks in NICU but are healthy babies with NO health problems!

Volunteer

Rating: 5

Every single year this foundation raises awareness about TTTS at the Twins Days Festival. In 2014, My Twin and I were the princesses at the festival and got the privilege to help out at the booth. I loved helping reach out to others and give them information on TTTS. As well as talking to families that have gone threw it. My Twin and I are survivors of TTTs and knowing this organization is in place will only make the world of Twins a better place.

Client Served

Rating: 5

The Twin to Twin Transfusion Foundation has been a great resource to our family. While we did not know our twins had TTTS until birth, and were lucky that both survived, the TTTS Foubdation still provided great information so that we could better understand the syndrome and explain it to our girls. Mary works tirelessly to serve families and for that I am thankful.

Jody Z.

Client Served

Rating: 5

We were so blessed to have The Twin to Twin Transfusion Syndrome Foundation available to help, guide and support us through this season in our life.We can not say enough about Mary, Terry and the doctors who took the time to speak with me while I was in the hospital helping me advocate Our care. The prayers, the books that were sent, the phone calls were such a blessing THANK YOU!!!!

Renzo D.

Client Served

Rating: 5

Our babies were diagnosed with TTS on a Friday, we were told to be in Seattle for surgery by the following Monday, our 4 day stay turned into 12 days, our head nurse referred us to the TTS foundation, they provided us with hotel stay for the 12 days we were there but also with a support group that we desperately needed. Not knowing much about this condition was scary. Thankfully they were there to help us and have helped so many other parents and twins in need. Thank you.

Volunteer

Rating: 5

The Twin to Twin Transfusion Syndrome Foundation is a wonderful organization. They help so many people with the information that they send out. I am doing my gold award project for Girl Scouts making packages that the Foundation send out to people. The packages will have things to help the families but also stuff for the twins. I am so great full that I have got to work with Mary, she is most kind person I have ever met.

1

Client Served

Rating: 5

The TTTS Foundation is amazing!! They helped me and my family when I was at my most vulnerable state being pregnant with twins, afraid and confused. The foundation gave me knowledge, resources (financial, emotional,etc.) and support of every kind. I would not have been able to handle all I did without the TTTS Foundtion and Mary Slaman! I am so grateful for them!!!!

1

Client Served

Rating: 5

There are not enough words to describe how Mary and the TTTS foundation has helped me through the loss of my twins Robert and Christopher . I lost my twins in 2013 to stage 3 TTTS after having laser surgery. Sadly, I was not treated properly by my doctors which delayed my treatments. I unfortunately found out about the foundation when the disease became very bad and progressed with extreme speed. As I was getting tests done to save my babies Mary spoke with my family members explaining TTTS and comforting them. She spoke with me for over an hour when I lost my first twin Christopher . She cried with me, encouraged me and shared her own personal Experience with TTTS and the loss of her son Steven . After I lost my boys the TTTS foundation sent me bereavement material , personal notes ways to remember and honor my sons. Mary knew that I needed to spread awareness about TTTS as this helped me grieve . She set up an opportunity for my husband and I to speak at a medical conference to share our story and encourage doctors to monitor their identical twin patients more closely . This experience was so healing for us . She has kept in touch with me through the almost four years. The Facebook page she has set up for TTTS parents of loss has been my lifeline in hard times. I have cried and grown with the members on it. Losing Robert and Christopher was devastating . My heart will always ache for them . the TTTS foundation has been my hope and light through T his difficult and life changing loss . Thank you Mary , Matthew and all others at the foundation for your love and support.

1

Client Served

Rating: 5

At a time where I did not k no w where to turn TTTS foundation was there for me. I have friends, family, church but Mary and this foundation knew what I was going through and had the words and information that I needed when I needed it. I don't know if my twin girls would be here today if it was not for this foundation. I knew to rest and take protein shakes which I feel helped me tremendously.

1

Client Served

Rating: 5

I live in Thailand and when I was diagnosed with TTTS I was very overwhelmed and had limited local resources. I reached out to Mary Slaman and the TTTS foundation and she was there for me 24 hours a day, sharing her resources and knowledge and pointing me in the direction of experts who could help me. If I had a question at 2am her time she often still wrote back within minutes. I ended up having laser surgery and, sadly, one baby did not survive, and while I grappled with grief and confusion, Mary was there to offer empathy and caring support. She sent a giant package chalk full of materials and gifts to help with my grieving process. This is a truly superlative non-profit that combines loving compassion with a host of useful knowledge and resources to assist parents during one of the most trying, overwhelming and traumatic moments in life. I don't know how we could have gotten through it without Mary. Five stars!

1

Volunteer

Rating: 5

Mary, and the TTTS Foundation, held our hands as first time parents to expectant twin girls who were gravely ill from the effects of TTTS beginning at 19 weeks gestation. The TTTS Foundation spent countless hours and guidance to help us make the best choices and provide us with knowledge of how and who to seek to help our girls. Sadly at 24 weeks gestation, our recipient baby died from complications of TTTS. Both girls were delivered at 27 weeks gestation, with our survivor sustaining multiple brain injuries due to blood clots passed from her twin sister. There are no adequate words to express the grief we had as parents loosing a baby, and on top of that loss, grieving the loss of a "normal" child. The TTTS Foundation has been a HUGE part of our lives as parents from the very day TTTS was diagnosed to this day nearly 22 years later. Knowing that we had the knowledge, love, and dedication to our girls from the TTTS Foundation has helped us have a sense of peace and acceptance of the outcome of our twins because we knew we were informed and did all we could for our girls. Without the TTTS Foundation, and Mary Slaman the President and Founder, I don't think we could have been able to cope as well as we have through the many physical challenges our survivor has faced. We are forever grateful to this nonprofit organization and all the compassion it encompasses from the beginning to diagnosis, to the pray team, the support we received from death of a baby, and onto the support we have gained from the special needs support system with our daughter. The TTTS Foundation does not stop helping those to delivery, it is a life time support of hope, guidance, and encouragement.

1 Ray_34

Client Served

Rating: 5

We lost a daughter to TTTS over 21 years ago, and our surviving daughter has severe complications as a result. From the first we had heard of TTTS as a diagnosis through today, the Twin to Twin transfusion syndrome foundation has been an invaluable resource of information, advice, and care for our family.

1 Sarah343

Donor

Rating: 5

My twin boys are TTTS survivors born at 30 wks 5 days. I had laser surgery at 18 wks gestation at stage 4. Lawsyn & Landyce are my living miracles, & I'm so grateful to have them with me today. The TTTS Foundation is such a great cause, & the founder, Mary Slaman has been such a huge blessing to so many families such as mine. I didn't find the Foundation till after my ordeal, however, I have seen so many others get the help & support they needed from Mary & her Foundation. She gives hope & relief to all the TTTS families, & there isn't anything the Foundation won't do in order to help save your pregnancy, or to even help you grieve. Mary has been through it herself, & because of her graciousness, many others are able to have a chance. I like to give back to the Foundation whenever I can, & to help others just as her. The TTTS Foundation needs all the support it can get due to the rarity of the cause, but with the mortality rate as high as it is with this disease, it's just as important.

1

Client Served

Rating: 5

My husband and I are new parents to healthy twin boys thanks to the twin to twin transfusion syndrome foundation. We received a plethora of information and resources that helped us choose the best options for our family. TTTS foundation helped us get to the best doctors. I don't know what we would've done without them.

1 Amanda167

Client Served

Rating: 5

I stumbled upon this site after I found out I was having twins. I thought to myself how sad it is for these people who suffered through such a horrible disease. Then around 20 weeks, I started to "balloon" and went in for a checkup to find that I too had TTTS. I was distraught, saddened, and felt helpless for my unborn babies. I found the site again and read it ALL. I found the checklist,the questions to ask your doctor, and the symptoms I might endure. I felt it prepared me for the unexpected and gave me a profound sense of hope and courage to fight TTTS! Thank you to this foundation. You do so much for others,you are MORE than deserving of more exposure! Give others hope to continue to care for the unborn!
The Chase Family
(Twins that were helped through the knowledge of the foundation: Cody James and Christian Wilson- born at 33weeks due to complications of TTTS in 2012, now thriving 2 year olds)

Client Served

Rating: 5

TTTS foundation was god sent for us. After two miscarriages, my husband and I were very excited about our third pregnancy for our first child and we were super excited when we learned that we were going to have twins. However, it was short lived as I was diagnosed with TTTS during the 16th week. We were shattered. Doctors didn't know what options we had and they went to the extent of discussing the option to abort. It was one of the darkest day in our lives as we just didn't know what options we had. Then we found Mary & TTTS. No exaggeration here at all, she spent 3 hours on the phone with my husband and I explaining what TTTS is and what options we have. It changed the course. With help from TTTS every step of the way, I got surgery done from Dr. De Lia during the 18th week. Our twins boys will be 5 soon. Happy, healthy & full of energy.This wouldn't have been possible without TTTS and Mary. Simply the best support system you can find for TTTS. They are great and we are for ever in debt for the joy they brought to our lives.

Candi O.

Client Served

Rating: 5

My sons were born at 30 weeks from a TTTS pregnancy. Everything I learned about TTTS, I learned from the Foundation. The Foundation does a fantastic job of supporting families and helping them through all stages of TTTS. It's information helped me be prepared for the possibility that one or both of my sons would have special needs (one did), and it gave me a community of people to talk to and work with. Mary Slaman, the director, is amazing and I cannot say enough good things about her.

Ashley117

Client Served

Rating: 5

When I was told my twin girls had TTTS I was terrified and clueless. Mary showed me support and provided education about this devastating news. I was put in contact with other moms going through the same journey. Without this support I don't know what I would've done. When my donor twin Violet didn't survive the surgery, the foundation provided unwavering support and grace. When my survivor, Valerie, was born at 25 weeks they did no less. Mary always made sure I had the materials and support I needed. At the darkest and lowest points in my life, the TTTS foundation provided hope, education, and choices.

Client Served

Rating: 5

The TTTS Foundation was the best discovery I made during my pregnancy and I truly believe is one of the biggest reasons that I am still pregnant with healthy Triplets, and about to give birth in the next few weeks.
I live in NYC where there is some of the best care in the world, and my specialists advised me of potential issues with the identical twins I was carrying. However it wasn't until I discovered the TTTS Foundation website where I was truly able to understand the disease, the possibilities, the treatments and the outcomes. Upon being diagnosed with TTTS at 14 weeks, Mary was the first person I called.
As the leader of this organization, she is kind, patient, generous, positive, caring and just has so much knowledge to share, which helped my husband and I (and ultimately our 3 babies) get through this difficult time. If it wasn't for Mary I would not have known very much about the disease or the treatments. My doctors were constantly impressed with my understanding and decisions and I can only thank Mary for giivng me the information & support to help save my babies.
My husband and I are eternally grateful and we plan to do all that we can personally to help the TTTS Foundation, and other families, in the future.

Client Served

Rating: 5

I am currently 28 weeks pregnant with identical twin girls. Our doctor began educating us early on, that in less than 20% of identical twin pregnancies, there is a chance that the twins can develop a condition called Twin-to-Twin Transfusion Syndrome (TTTS). Essentially, this is an unequal share of the placenta, undetected or un-diagnosed can be fatal to one or both babies. At 14 weeks, we were referred to a maternal fetal medical doctor for bi-monthly sonograms to ensure the babies are healthy and not at risk of TTTS. At my 18-week sonogram, my maternal fetal medical doctor saw some alarming differences with the twins compared to previous scans and he quickly referred us to specialists in Houston, Texas, for further examination and evaluation.

After 4 weeks of sonograms, echo-cardiograms, evaluations and expert opinions, I am finally released back to my home. I have maintained stability in Stage 1 of TTTS. This condition can progress very quickly, or it could actually maintain in Stage 1, or can actually correct itself in less than 10% of cases. I continue to see local specialists to monitor the babies.

Without the help of the TTTS Foundation, we would not have had the additional support and education to act fast for the continuous monitoring of our identical twins.

Client Served

Rating: 5

Mary with the TTTS foundation helped me not just financially,but for my emotional needs. The support from this foundation is extremely helpful with education and resources for this disease . I don't think I could have made it through if not for Mary and the TTTS foundation, I will forever be grateful!

Heather195

Client Served

Rating: 5

The TTTS Foundation has been nothing short of a miracle in our life. We have just got in contact with this foundation and the support and love that this organization represents is incomparable.

Client Served

Rating: 5

Last year this time I was in a high risk pregnancy. I was carrying quadruplets and two of the babies were at risk for twin to twin transfuson syndrome. This foundation and the leaders and volunteers provided insight, education, care, and compassion throughout my entire pregnancy as well as after the babies were born.

Jackie V.

Client Served

Rating: 5

Words cannot describe how thankful we are for Mary and the TTTS Foundation. Mary helped save our girls lives, that is something that we will never be able to repay her for. Mary was extremely informative, a wonderful support for this horrible disease. We talked nearly everyday during my pregnancy after diagnosis. Mary and the foundation made it possible for us to travel from Michigsn to Florida to see the doctor that we knew would save our girls lives. The work that Mary does is from the heart, she is a godsend and will continue to help Mothers and help save their children. We are forever grateful and will continue to support this amazing organization!:)

Thank you so much Mary!

Ryan53

Client Served

Rating: 5

The foundation was more than helpful! Without this foundation we don't know if we would have our baby girls with us today! I will never be able to thank you enough!

Shann E.

General Member of the Public

Rating: 5

When I first found out I had either TTTS or SIUGR, I searched the Internet frantically for information. I was lucky enough to find the Twin to Twin Transfusion Syndrome Foundation's Website. I called the number and left a message. I thought a volunteer or representative would call me back, but Mary, the founder, called me back herself. She was an amazing support throughout my entire pregnancy. She also helped put me in touch with Dr. Julian De Lia, who is an amazing man and doctor. He is the doctor that invented the laser surgery that is used to treat TTTS.

Anytime I had questions or was upset, Mary was there to support me and my babies. She always lifted me up when I felt hopeless.

She is a wonderful, caring person, and I would highly recommend this organization. She played a great part in saving my twins' lives.

1 Rachel70

General Member of the Public

Rating: 5

We were given no hope, told to terminate one baby in order to save his brother. We found the TTTS Foundation online and made an immedidiate phone call and spoke with Mary. Mary gave us hope, helped us find a doctor who would do his best to save both our babies and guided us through the rest of our pregnancy. We delivered 2 healthy babies, all because this woman wouldn't give up on us! Mary has devoted her life to saving babies and deserves so much more credit and money that she gets! She is always putting others first!

Stephanie79

Client Served

Rating: 5

The Foundation is an outstanding organization. I have always worked in the non-profit sector and I have never seen an organization so clearly focus and work toward their mission. I am also impressed by the multitude of people that receive personal care from this small organization. When we were going through TTTS the Foundation was our only hope. My twins would not be here today if it wasn't for the support, information and the work of the Foundation. I was a client served, I have volunteered and have given money to this organization. I will continue to volunteer and donate to this organization so that families and doctors can get the support and information they need to fight this disease.