My Nonprofit Reviews

Betsyanne1949
Review for PAN Foundation, Washington, DC, USA
After several trips to eye specialists, the ER and other doctors, I was finally referred to a Neurologist in Savannah, GA. (I live in Bluffton, SC). I had a few MRIs and a massive amount of blood tests. The diagnosis was finally in…Myasthenia Gravis. I was a little familiar with it because my cousin actually passed away from it. Of course, my nerves were getting the better part of me. With my mind racing, my droopy eyelids hindering my sight and my slurring speech, I asked the Neurologist, “Is it always fatal?” He explained that each case is different and I could live with MG for a long time. (I reminded him that I was 75) Then vanity took over and I questioned if the slurring, droopy eyes and aching muscles would dissipate and that’s when he told me about how beneficial Vyvgart infusions would be for me. The next thing I know, a liaison from Vyvgart called and filled me in on procedure and told me I would have to call an infusion center closest to my home. When she finally told me what my out of pocket cost would be, I was devastated and told her so. That’s when she suggested we have a conference call with a representative from the Pan Foundation. Both ladies were phenomenal and I could finally take some deep breaths. I applied for financial aid and was immediately approved because I met the criteria. Between my insurance and the Pan Foundation , the only payment I had was my co-pay for each of the 4 infusions in the cycle. I have gone through 2 cycles and it has helped immensely. I will be receiving a 3rd cycle at the end of this month (Feb. 2025). The Pan Foundation has been a God-sent financial resource for me and I’m sure for many others who suffer from various debilitating diseases with an extremely high cost of medicine to alleviate the effects of their respective maladies. Thank you from the bottom of my heart, Pan Foundation. ❤️