My Nonprofit Reviews

July 2024, I started a new life changing medication to treat the disease I live with, Multiple Sclerosis. Excitement quickly changed to a nightmare of private insurance errors leaving me fearful and stressed! (All this when living with this disease that is enough on top of being a full time employee, Mom to my two little men, and wife to my super supportive husband).
I reached out to the National MS Society and found they had a relationship with PAF that could possibly support me. The same day my referral was sent over to the PAF (after proof of diagnosis). To my surprise, that next day I had a Welcome email from the PAF introducing me to my Case Manager: Wendy K. The email was letting me know to expect to hear from her within 3 business days and a few other suggestions of how to help her to support me by a brief explanation of what support I was needing. Wendy called me the next day (no 3 day wait for me!).
I reflect on my first call with her and here are some instant words that come to mind: She cared. She really cared about me. I was no longer alone. While Abby couldn’t help me directly, she found me a person that had my back! Wendy was quick to say that she was so sorry for what I was going through, that she had already met with her colleagues and wanted to let me know that while she couldn’t say what this issue would completely end with for a solution until we collected me information…she would be with me every step of the way!
Over the next few weeks, Wendy collected as much information to build a case for me. This included checking to see if I had received any billing from the pharmacy, wishing me a Happy Birthday, checking to make sure I received my second cycle of meds and everything was going well when the correct pharmacy and insurance filled my prescription, and also letting me know she was here for me when a bill did arrive. Once partnered with Wendy, I was no longer alone.
Truly, I do not know what I would have done without the MS Navigators and having this partnership with PAF. They are SO GOOD at their work. Living with Multiple Sclerosis is enough. There is no way I can be an expert at this situation which involved insurance companies, pharmacies, and messes that came along the way. The work the PAF does is IMPORTANT and needed for the MS Navigators to lean into. The National MS Society Mission Statement solidifies my point best: We will cure MS while empowering people affected by MS to live their best lives. For this nightmare I was facing, through the MS Societies partnership with the PAF, I was able to be empowered again and live my best life with my life changing medication being the primary focus.