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2020 Top-Rated Nonprofit

Patient Advocate Foundation, Inc.

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Nonprofit Overview

Causes: Education, Educational Services, Health

Mission: Patient Advocate Foundation (PAF) is a national 501(c)3 non-profit organization which provides case management services and financial aid to Americans with chronic, life-threatening and debilitating illnesses.

Results: Total patients served by PAF as of 2018: 1,218,555

Target demographics: Provide direct case management services and financial assistance to Americans with chronic, life-threatening and debilitating diseases

Direct beneficiaries per year: 142,109 patients

Geographic areas served: All 50 states and US Territories

Programs: Case Management Services: Our professional patient advocates assist tens of thousands of patients each year, enabling them to connect with and maintain access to prescribed healthcare services, overcome insurance barriers, locate resources to support cost-of-living expenses, evaluate and identify insurance coverage and manage out-of-pocket expenses. Financial support programs: We provide small grants to patients for a broad range of needs as well as partner with other non-profit organizations to manage the administrative aspects of their financial assistance programs. These programs are designed to mitigate the burden of certain non-medical expenses, including transportation, housing, short-term lodging, utilities and nutritional needs Co-Pay Relief Program: Can provide direct financial assistance to qualified patients with co-payments, co-insurance or cost-sharing related to any therapeutic and supportive medications, generic or bioequivalent products prescribed to treat and/or manage the patient’s specific disease or condition covered by the fund. For a list of disease funds and eligibility requirements visit: www.copays.org Patient Education and Empowerment: This robust portfolio delivers actionable guidance and expert advice on practical healthcare access issues in a variety of engaging formats and includes materials relevant to healthcare intervention for all audiences, including patients, caregivers, healthcare professionals and those that are currently healthy. Health Equity & Community Engagement: Initiatives address the intersectionality of health with the social, financial and logistical challenges that impact a person’s ability to access healthcare and adhere to treatment recommendations, particularly in disparate and underserved communities.

Community Stories

44 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

“The help this foundation is making available to patients like me who have Multiple Myeloma is absolutely amazing. I don't know how I would have managed without your help in the past and recently with the Covid-19 grant. I am forever grateful - I can't thank you folks enough for all your help. I love you guys so much. Thank you, Thank you, Thank you.” Connie Wardlow

General Member of the Public

Rating: 5

My name is Siraj Belahouel, I am 19 years old, and I am in college. I have been diagnosed with cancer on March 20, 2020. During a time where the world was entering the phase of corona virus or most commonly know as COVID-19. It was almost 3 quarters towards the end of the school year. I was at school during that time. I was a healthy man with a bright future. I was also a soccer player so I was athletic and in good shape. Until I started experiencing cancer symptoms. The symptoms were fatigue, laziness, strong headaches, lack of appetite, and dizziness. I wasn’t real myself, my behavior started to change. I started dreading going to school and to work. I started sleeping in class because I used to be so fatigued. Even though I had slept 8 hours during the night. I was abnormal. Then one day my mom was giving me a haircut, as she was giving me the haircut she noticed two bumps on my head. Then she asked me “Siraj, did you fall on your head or did you get hit on the head?” I said “ no”. Then she said “then where did these two bumps come from?” I said “I don’t know” then we immediately went to the duke emergency room. They did an MRI of my skull and they found that there was a tumor. Under the pictures of the MRI it looked like it was meningioma benign tumor. So I had an operation on my skull where I had a big chunk of the tumor removed, which was about 15 cm of tumor. But they could not take everything out, because some of it was stuck to a vein in the brain and it was risky to take it out. After they took the pathology out they tested it and they found out that it was not a meningioma. It was a rare kind of spindle cell sarcoma. Spindle cells are aggressive cells that rapidly reproduce. I am the only one in the country with this type of cancer. So I had to go through cancer treatment. Which was a combination of radiation therapy and chemotherapy. It was 5 weeks of radiation and 6 months of chemotherapy. And we’re hoping we can kill the tumor with that. It’s been a long journey to this points. I had to endure a lot of hardships. I had to go through a 7 round chemotherapy treatment and right now I’m on the last round. Chemotherapy comes with bad symptoms like nausea, vomiting, mouth sores, and esophagus sores. It would be hard for me to eat and drink. After the 3rd round of chemotherapy I was also diagnosed with Corona. So I had to quarantine in my room for 15 days. And I had to experience corona symptoms with chemotherapy symptoms. So it was long hard journey. I had to deal with all the pain. It was a physical, emotional, and mental warfare. After the 3rd round of chemotherapy I had to experience a cycle of hypomania where I was acting crazy and abnormal. I started thinking about big projects like freeing Palestine, and helping poor countries get through their conflicts. I wasn’t thinking right. I was acting crazy. And now I’m at the end of the tunnel of all this. And I’m happy I got through this because this has taught me a valuable lesson, and that is “a fight is never a fight until there is resistance, until there is something to overcome”. I am overcoming this and after this fight nothing will ever stop me from accomplishing my goals. And that is the end of a great story. The story of a cancer champion.

General Member of the Public

Rating: 5

Patient Advocate Foundation (PAF) is a one-of-a-kind organization that I've had the opportunity to collaborate with. We've recently worked closely to design a virtual Facebook Live event to educate key stakeholders. I've seen firsthand the commitment PAF devotes to its patients through the meaningful educational content and collateral we've produced together.

Leia H.

Client Served

Rating: 5

PAF inspire others to keep fighting the good fight as they serve those in need. PAF renews hope to the hopeless and makes dreams come true for all patients and families. All the staff members are filled with joy and kindness and work hard to assist those they encounter.

1

Advisor

Rating: 5

My firm, Howell Creative Group has had the privilege of supporting Patient Advocate Foundation for almost ten years. We’ve partnered with PAF to develop meaningful public-facing digital and print collateral designed to educate multiple stakeholders and audiences about PAF’s mission. From leadership to staff, the PAF team supports patients and their families during - and after - times of health challenges. PAF is a strong, well run organization that has never lost sight of the need to approach each of their constituents as individuals, always tailoring their care with genuine compassion as well as superior expertise.

1 Shawn Wilson N.

Client Served

Rating: 5

As an enduring team member at PAF, I am aware of the organizations impactful mission and meaningful, personal approach to assistance. Although I had hoped my family would never need PAF’s services, we unpredictably found ourselves in need after my brother lost his battle with a chronic disease.

PAF’s Case Manager gracefully discussed the circumstances surrounding the loss with my sister in-law and dove in to help review EOB’s, find assistance with hospital bills, enroll children for survivor benefits, review policies and more. Knowing PAF was researching and assisting with things we never would have thought of, was such a pleasing comfort to me and the family.

I extend my heartfelt thanks to everyone at PAF for what they do daily to serve one patient at a time!

2

Client Served

Rating: 5

I am grateful to the Copay Relief Program of the Patient Advocate Foundation for the financial help we got during my wife's breast cancer treatment. Beside the money, that was also another evidence that we were not alone in this fight.
Thank you so much for your help and keep up your excellent work! All the best.

Susan F.3

Client Served

Rating: 5

PAF helped our family through an enormous amount of out of state medical bills. We were totally lost and not even sure who to ask for help or what to google. PAF walked us through it all and explained things so well. A wonderful ally!

Previous Stories
3

Client Served

Rating: 5

Patient Advocate Foundation answered the phone when we had no idea where to turn for help. We didn't know how to navigate our son’s insurance coverage and he was in urgent need of a very specialized surgery that was only performed at a facility out of state. Our case manager stepped in and walked us through each claim and let us know all of our options. He then made many phone calls on our behalf to hospitals when things were billed incorrectly, resulting in a huge savings for our family. It was really nice to have an advocate in our corner!

2

Client Served

Rating: 5

“Ms. Bridget at PAF was warm, caring and very sympathetic with hearing my concerns… She also was proactive with seeing if we needed any other services going forward. We all need a “Bridget” all of us are facing some sort of new adjustments in life and having people like her on the other end of that phone with a warm tone and compassionate heart can move you to your next blessing. God bless you and all that you do.”

1

Client Served

Rating: 5

Life can change in a moment’s notice and throw you into a whirlwind of emotions in a short time when you are diagnosed with CANCER. This battle started two years ago to my husband, and it is still a battle he is fighting today. His numbers should be zero, but they are not yet. Each time he goes for blood work I hold my breath and pray.

I remember sitting in the Doctor’s office, when the Dr. entered the room and sat down in his chair and said, well it is cancer (just like that). I was scared for my husband!

We were not sure what to do next or even sure where to go or what to expect. Shock sat in, and I felt frozen. I remember leaving the office, but I do not remember a word the Doctor had said. I called my friend to tell her about it, and she told me to contact Patient Advocate Foundation. I thought “no” we have insurance and his Doctor will tell us what we need to know. When we went to the Dr. it was not so easy…

I knew we needed more answers and turned to Patient Advocate Foundation for help. When I spoke with a representative of Patient Advocate Foundation, I could not believe how quickly they were able to assist us. They provided educational information about his diagnosis, as well as patient support programs. We felt like we were more prepared for dealing with the CANCER. The information they gave us helped us to understand the treatment process and what to expect during the process. They sent us so many wonderful pamphlets filled with information and answers to questions we should ask about and answers to things we had not even thought about.

Cancer is so scary! The help we received was amazing. The follow up conversations were invaluable. Patient Advocate Foundation was a God Send, and the folks who answer those phones are Angels. God Bless them all.

I LOVE Patient Advocate Foundation and all who are involved with it. Amazing people!

-Becki

Anita R.1

Client Served

Rating: 5

The Covid virus created an unprecedented situation which has made it very hard to clearly understand what my furloughed husband’s right to FMLA protection is. The uncertainty about which action to take was creating great added stress to his recent cancer diagnosis. The patient advocate agent I spoke with took the time to understand my husband’s personal situation and clearly cared. While she personally did not know the answer she escalated our query. She got back to me within hours with a very clear cut answer explaining what his rights are in this unprecedented situation created by Covid. Knowing how to proceed has lifted the stress from our shoulders and allowed us to concentrate on his treatment and getting well. Until reaching out to the Patient Advocate Foundation all other organizations contacted had given us equivocal answers that left us with the same doubts and fears about what to do! I can’t praise the Patient Advocate Foundation and its people enough and I thank them from the bottom of my heart for their caring concern, thoroughness and excellent, informed help.
-Denise

Client Served

Rating: 5

“I would like to thank PAF and my case worker Ms. Sandra for her assistance. She explained every program I was eligible for in detail. She was so helpful and her response to help me was very quick with a follow-up call as well.”

Client Served

Rating: 5

I am nearing the end of the last semester of my first year of college in a few weeks. I just wanted to thank the Patient Advocate Foundation for all your help and generosity as it has helped me get by this year successfully. Throughout my first year of college, I have discovered new passions, hobbies, obtained research opportunities, and made new friends that all could not have been possible without the generosity of the Patient Advocate Foundation. I cannot thank you enough for all that you have done for me and my future!

Client Served

Rating: 5

Thank you so much for your compassion and for your help while I'm at my lowest. I'm a breast cancer patient who has been through 5 months of chemo, a mastectomy, and will soon begin several weeks of daily radiation. You all are truly beautiful people. I pray The Patient Advocate Foundation and all who work/volunteer there are blessed beyond measure for the good they do for others.

1

Client Served

Rating: 5

PAF/57243-18
“Wendy was amazing...I knew immediately that she knew what she was talking about and would be able to help me… She seemed very passionate about helping people who are unfairly billed for medical services that they didn’t owe for. I’m not sure what I would’ve done without her help… I was billed for over $50,000 worth of out of network bills that I didn’t owe from a stroke I had had… She assured me things would be OK and I immediately felt better after speaking with her… I ended up having to pay $12.00.... she literally saved me from having another stroke!!!! OMG!!! BEST ADVOCATE EVER!!!!! “

1

Client Served

Rating: 5

“I have been in a total panic, stress and depressive state not being able to afford the medications I need to live." Without your help I would be in serious troubles. It is sad to said but the truth is I had intended not to suffer with or from this illness but to end it. So, without your help I wouldn't be writing this. I don't know if this mean anything to anyone else but me. The stress of knowing what would happen without the medication was too much. The impact on my life is that I am still alive. You have given me more time to think about life. Thank you,

1

Client Served

Rating: 5

Thank you so much for the grant! You have no idea how much it helped me. I was also granted financial assistance through my oncology facility which is wonderful but to have some assistance with everyday expenses was extremely helpful. Your representatives were extremely nice and I recall being grateful to tears several times while talking to them. Not once was I ever made to feel like I was begging for assistance that I didn’t deserve, for that I am beyond thankful. Please accept my heartfelt thanks for your kindness!! ❤️❤️❤️

1

Volunteer

Rating: 5

Every interaction is a learning experience. Resources provided during PAF events allow me to exude a stronger voice of representation for patients in my community. Attached is a picture from 2007 Patient Congress Healthcare Exhibit. I am most grateful for the opportunity to network with individuals who are excited to share their stories as healthcare administrators and consumers.

2

Client Served

Rating: 5

These are some "unsung heroes!" The Patient Advocate Foundation rep was a huge help; tactfully and knowledgeably appealing to my insurance provider to reconsider their decision to decline coverage of my costly hospital visit.
Without the help of a kind and brilliant PAF team member, I would've had no clue as to how to approach this dilemma. Their efforts, insights, and experience proved to be incredibly helpful, and I am extremely grateful!!!

Sincerely,
Steve Carlisle

1 Wyvonia Woods H.

Volunteer

Rating: 5

I was introduced to Patient Advocate Foundation by an energetic speaker in a meeting about collaborative efforts to make a difference in 2016. I signed up as a volunteer and then my family had a devastating crisis experience. In October 2017, my husband developed pulmonary overload and subsequent complications that required dialysis for end stage Kidney disease. I was impressed that I was assigned a case manager to help me navigate his care and needs. I was referred to our local resources and I continue be a part of the PAF community as a volunteer and also a recipient of navigated care for my husband.

1

Client Served

Rating: 5

PAF guided us through an insurance nightmare. The stress level was unbelievable. Our PAF Case Manager, Tammy Niece guided us through it as well as the care my husband was seeking for life-saving treatment. Talking with her, was always empathetic and caring. Within a 3 month period, PAF had resolved the insane issue with our insurance company. Today, my husband has celebrated his 1 year anniversary of being in remission from stage 4 cancer. When we saw his CT scan, initially thought it was bad news. We had never seen a clean scan, ever, in over 20 years. To have insurance reversed their decision and my husband to be in remission from cancer we had been told there were no more treatments available. PAF CHANGED OUR LIVES FOREVER! Tammy our case manager is an earth angel. We will always feel a heap of gratitude towards PAF! THANK YOU!
- Tom and Liz

1

Client Served

Rating: 5

I owe so much to the Patient Advocate Foundation. After undergoing a bone marrow transplant as a teen, money was tight. Years of medical bills kept my family from being able to save money for college. PAF's "Scholarships for Survivors" Program has enabled me to pursue my dream of becoming a nurse so I can pay forward what I have been given. PAF has helped me and countless other college students who have dealt with life-threatening illnesses through this program. The staff at PAF go above and beyond and are always ready to help in anyway they can. They are there for patients when they have no one else to turn to. I am truly grateful for all that PAF does for patients in need and for students like myself. -C. Newsom

1

Client Served

Rating: 5

My first year of veterinary school was a lot less stressful thanks to Patient Advocate Foundation. This past year I moved to a new state, got through a very heavy curriculum, and managed my chronic illness, all while being away from family and friends. My career choice requires me to incur in a lot of debt, and my schedule makes it impossible for me to work throughout my schooling. To top it all off, I have to budget for additional expenses for treatments and medications. I am extremely grateful to Patient Advocate Foundation because I was able to cover the cost associated with living with my chronic illness, which gave me the time and peace of mind to focus on my education. They have been wonderful throughout the whole process, and I cannot thank them enough!
Sincerely,
Natalia Amaral

1

Client Served

Rating: 5

"Without the assistance received from PAF's CO-PAY RELIEF I would not have been able to afford the medication necessary to fight the Multiple Myeloma and to maintain the remission status I have achieved. I am in remission after having a stem cell transplant in November 2018 and remain on a maintenance drug. Because of the continued assistance provided by CO-PAY RELIEF my life is almost back to normal. Thank you for the assistance you make available. It can make a difference between life and death for many patients. "

1

Client Served

Rating: 5

The assistance received from this program is completely beneficial for my medical bills as well as prescriptions. Without this programs assistance I would have had to sell my home to be able to pay my medical bills.

Previous Stories
1

Client Served

Rating: 5

"I've been dealing with breast cancer since July. Fortunately for me, when it seemed I would be overwhelmed with the paperwork, my PAF case manager got in touch with me -- words just cannot describe ALL he did. You have to understand before he got involved I did not have the time to take care of my health, I was too busy fighting with insurance companies. My insurer at one point approved a hospital stay for me, and after the fact denied coverage!!! Then the hospital sent me a bill for $66,000!!! Then 12 different doctors started sending their bills. I was so overwhelmed and was undergoing chemotherapy at the time. My case manager stepped in, and after dozens and dozens of phone calls and emails. I don't know how he did it, but the insurance company paid the $66,000 bill, and most of the doctors were also paid. What a relief-I was not in this fight alone, there are people - not just my case manager - but an entire organization out there that cared about me. Thank you so very much!” Barbara

2 Judy131

Client Served

Rating: 5

PAF saved my life. I was underinsured with a $25K cap when I was diagnosed with breast cancer. PAF helped me negotiate bills with medical providers so I ended up with very little medical debt. Thank you PAF.
J S Hodges

1 Wendy109

Client Served

Rating: 4

As a chronic pain sufferer due to trigeminal neuralgia, type two, the best treatment as far is medical ( meaning expensive pharmaceuticals). This nonprofit organization really stepped up and helped me at a time of great need! Actually, the need is ongoing but the area of pain was fully subscribed; now I see it is not listed as an area of service. How distressing if understandable given the controversy whipped up over pain medication! At any rate, this nonprofit is first class!

2

Client Served

Rating: 5

In the summer of 2011 I was diagnosed with Breast Cancer and underwent surgery. I then had to face the daunting prospect of "chemo" with the worry of cost above my Medicare Advantage plan. I applied to Patient Advocate Foundation for co-pay assistance. The process was fast, efficient, smooth and culminated in a 12 month grant to aid in my treatment.

It was great to be able to focus on the medical aspects of my condition with out the additional worry of finance! My experience with this caring foundation was very positive.

Thank You,

Marvelle Smith

Review from CharityNavigator

1

Client Served

Rating: 5

I was the recipient of generous financial assistance from Patient Advocate Foundation (PAF) in the treatment of osteoporosis. My prescription medication was a very expensive daily injection medication over a two-year period. I was awarded $3,000 by PAF for each of those years. The staff at PAF handled the payment of invoices directly in an efficient manner was always most kind in my contacts with them. I am truly impressed with the services of PAF and will always be grateful for their assistance.

Review from CharityNavigator

1

Client Served

Rating: 5

April 18, 2013

I am, most sincerely, just one of the “many” Presidents of Patient Advocate Foundation, and Cheryl Nowell Fan Club.. In addition to walking me through my first bout with Colon Cancer bills and medical confusion, PAF (through Cheryl Nowell) also helped me a second time through the same after my treatments for small bowel cancer. What PAF did for me, was to take the confusing state of mind that I or anyone else would be in after such medical trauma, and help it make to make some sense. The end result, from BOTH times, was that ALL of my medical bills (except one) were written off. This state does not just happen---it is through incredibly diligent work and a caring heart, which PAF exhibited to the nth degree—and way beyond. I cannot possible put into mere words the gratitude I feel for this organization, which helps ALL people through different kinds of “medical and mental” trauma. I most highly recommend PAF to anyone who needs a sincerely caring voice and heart on the other end of the telephone, during such confusing and trying times. Thank You PAF! All of you are WONDERFUL!!

Sincerely from the bottom of my heart,
Bonnie West

Review from CharityNavigator

1

Client Served

Rating: 5

I would recommend the Co-Pay Relief program because it’s a quick, simplified process with a staff that truly cares. When you are sick and down you don’t need nor can you deal with the stress of the huge financial burden our medical system throws and you. It’s really nice to work with a group of professionals who make you feel like you are a part of their family and really want to help. I am grateful to the PAF/Co-Pay Relief Program and the staff who have given me a chance to finish my treatment. I am also grateful for the donors who support this program which helped me and has helped so many others. Thank you all very much for your excellent work and for being such kind and caring people.

1

Client Served

Rating: 5

Try to understand the feeling and dismay when you are informed that the problem you are facing has no cure and that a certain program, if successful,will prolong your life. Then, you discover the costs of this program, knowing that you do not have the funds nor are able to raise the necessary funds to begin the program.
That is what happened to me 3 months ago.
Fortunately for me, I was able to access information on my PC and discovered Patient Advocate Foundation and their helpful and compassionate people who really cared. The Foundation has been so very helpful and because of their decision to help, I am being treated and improving.
Without the Foundation's help, I would not be able to receive the necessary treatments and my life expectancy would be cut short, and I would not be able to write this review.

Review from CharityNavigator

1

Client Served

Rating: 5

After I was diagnosed with Multiple Myeloma in 2008 I began to pay my huge co-pays for medications. It became unbearable. I was introduced to PAF by my PCP and filled application. The Co-Pay Assistance Program helped me to stay on. With cancer treatment so expensive I could not survive without the help of PAF. I greatly appreciate their help and hope they will continue to provide assistance to cancer survivors. Victor Sloosky, Ashton, MD

Review from CharityNavigator

1 Debbie85

Client Served

Rating: 5

I am a 54 year old breast cancer survivor. PAF really saved me at the hospital. The co-pays were crazy and thanks to PAF I can hold my head up high because I paid off Virtua Hospital Voorhess, NJ. I don't know what I could have done without them but the professionalism of the staff was a big help since I paid with them directly. Thank you to all who got me through the taxotere and carboplatin (the chemo that makes you lose your hair). Better days are coming since my hair is growing back now. Since PAF absorbed the costs after Medicare which I pay myself, I am not losing anything. Thank you friends. Sincerely, Debbie Kidd-Beswick.

Review from CharityNavigator

1

Client Served

Rating: 5

My wife was diagnosed with gastrointestinal stromal tumor (a rare form of sarcoma) in September of 2009. We belonged to an employer sponsored health maintenance organization (HMO) which has very strict rules about going out of network. It became evident that the expertise available within the HMO was insufficient to treat my wife's type of cancer. Only a handful of experts in treating this type of cancer were available, all requiring travel to get to. In July of 2010 my wife and I attended a support group function and Patient Advocate Foundation had a couselor and display at the meeting. It was here that I met Laurel, a counselor with the Patient Advocate Foundation. Laurel took me under her wing and provided every assistance I would need to fight the HMO for a referral outside of the HMO network.

When I made the initial request on behalf of my wife for a referral, the request was denied. We had to go through the entire appeals process and were denied each time, which I am told, happens with some frequency. In my state, after the appeals process with the insurance company is exhausted, there can be an appeal for an external review. When I requested the external review, the HMO capitulated and granted the referral to the ouside expert.

Laurel was behind me 100% and provided letters and backing to whether the appeals process with the HMO. Without the assistance and encouragement of the Patient Advocate Foundation, and specifically our wonderful counselor, Laurel, we may have never been granted the referral.

I know that the Patient Advocate Foundation helps out in many areas to support and advocate for paients as they struggle for treatment, payment assistance and approvals. Having been through this, I can tell you that it is very important to have someone help you advocate just to get noticed in the medical/insurance system.

I highly recommend Patient Advocate Foundation. My wife and I had a successful outcome with their assistance. I believe they will go to great lengths to provide any assistance they can and is within their means to provide.

Review from CharityNavigator

1 Kimberly P.

Client Served

Rating: 5

I started my initial contact with the Patient Advocate Foundation in November of 2011 when I found out that I needed to have a surgery for a gastrointestinal issue. I am without insurance and have been for quite some time and the surgery that I needed to have was done by a doctor almost 3 hours away. The surgery was very expensive and in my initial contacts with the hospital and the company who makes the device that I needed to get to have the surgery I failed at getting financial assistance approval.

After an online search for patient services I stumbled upon PAF and was able to get a case manager within a week. The case managers communication was always consistent and when communication was needed with an outside person she was always on conference with me, it made it much easier to deal with.

It took almost a year with phone calls between us and the hospital, my doctor and the company who makes the device, but I was finally able to have the surgery. Prior to the surgery, my case manager was able to assist me with finding transportation and housing. I owe everything to PAF for sticking with me through this long process that seemed like would never get resolved and for following up with me to make sure everything was good to go.

Review from CharityNavigator

1

Client Served

Rating: 4

My name is Patricia Adkins and I am 27 year old cancer survivor! Last year (2012) I became a client with PAF after I was diagnosed with a rare cancer. My case manager , Tanya Walker was and still is fabulous!!! Tanya and I share a special bond in that we are both nurses. I knew that the person on the other end of the phone truly understood what I was going through. Tanya helped me navigate through the ever changing insurance world, checking on claims to see what their status was, and she explained what would happen next, as far as what I would have to pay once everything settled out and how long it may take for claims to actually finish filing. A year later I can say without a doubt I couldn't have done it without her. It was so comforting to know that I had someone else in my corner paying attention to all the "yucky" stuff so I could focus on recovery! Thanks Tanya! you rock!

Review from CharityNavigator

1

Volunteer

Rating: 5

I am a patient volunteer with the Patient Advocate Foundation and do guest speaking on occasion. If it were not for PAF, I would not be able to do so. I have been in the battle against cancer since 1999 and in 2006 came up against my most challenging battle. I am currently fighting Stage IV Colon Cancer and found myself getting deeper and deeper in debt with patient copays until I came in contact with the Patient Advocate Foundation.
Their patient assistance program has been very helpful in my battle against cancer, as it gives me one less thing to worry about. If I had to keep worrying about the terrible debt of copays, I would have given up my fight 4 years ago. Thanks to the Patient Advocate Foundation, I can continue my battle, and still receive assistance with my copays.

Review from CharityNavigator

3

General Member of the Public

Rating: 1

My wife is a cancer patient incurring monthly medical costs, excluding the physicians's charge, in the amount of $8,000. or more on average. We live on Social Security benefits and have no pension income. We have very minimal 401 K income.
All during 2012, we were of the belief that Co-Pay Relief would provide assistance toward some of the medical expenses based upon contact with them by mail, telephone, and personal contact at the doctor's office with their representative. At one point we were assured that there was $5,000. "in her account".
She has now (3/12/2013) received a letter stating that, "your award has been rescinded and your account has been closed at this time". The reason given was that "there had not been any activity on your account in 120-Days despite our attempts to encourage expenditure submissions". The truth of the matter is that the monthly payment we make, via check, is given directly to Co-Pay Reliefs' employee at the doctor's office.
We are told that on August 8, 2013, we could re-apply in that same letter.

I begin to question the legitimacy of this charity!

These are the most evasive and duplicitous people with whom I ever dealt.

Robert Niersbach

Review from CharityNavigator

4 sethm

Client Served

Rating: 1

I applied for copay assistance from this organization by following all of the instructions that were provided. I tried numerous times to get a hold of them, but their phone lines were either closed or nobody answered. I sent a few emails that were never acknowledged, then I receive a notice explaining that the fund I applied for was full. This seems like some sort of scheme as the average person can't get through the process and they wont return my calls or emails. Looks like I am not the only one having this problem.

Review from CharityNavigator

2

Client Served

Rating: 1

I have had a similar experience to the previous review. I submitted an application, sent in required documents, then waited to hear back. No one contacted me for a month, so I called in. The lines are always busy, and any emails I send asking about my application status are not returned. This agency really needs to polish up its communication with patients.

4 Mary234

Client Served

Rating: 1

I have been trying to contact the representative I was assigned to for several weeks. When I call he is never available. I asked to be assigned to another person and was treated rudely.

Review from CharityNavigator