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2019 Top-Rated Nonprofit

Patient Advocate Foundation, Inc.

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Nonprofit Overview

Causes: Education, Educational Services, Health

Mission: Patient Advocate Foundation (PAF) is a national 501(c)3 non-profit organization which provides case management services and financial aid to Americans with chronic, life-threatening and debilitating illnesses.

Results: Total patients served by PAF as of 2018: 1,218,555

Target demographics: Provide direct case management services and financial assistance to Americans with chronic, life-threatening and debilitating diseases

Direct beneficiaries per year: 142,109 patients

Geographic areas served: All 50 states and US Territories

Programs: Case Management Services: Our professional patient advocates assist tens of thousands of patients each year, enabling them to connect with and maintain access to prescribed healthcare services, overcome insurance barriers, locate resources to support cost-of-living expenses, evaluate and identify insurance coverage and manage out-of-pocket expenses. Financial support programs: We provide small grants to patients for a broad range of needs as well as partner with other non-profit organizations to manage the administrative aspects of their financial assistance programs. These programs are designed to mitigate the burden of certain non-medical expenses, including transportation, housing, short-term lodging, utilities and nutritional needs Co-Pay Relief Program: Can provide direct financial assistance to qualified patients with co-payments, co-insurance or cost-sharing related to any therapeutic and supportive medications, generic or bioequivalent products prescribed to treat and/or manage the patient’s specific disease or condition covered by the fund. For a list of disease funds and eligibility requirements visit: www.copays.org Patient Education and Empowerment: This robust portfolio delivers actionable guidance and expert advice on practical healthcare access issues in a variety of engaging formats and includes materials relevant to healthcare intervention for all audiences, including patients, caregivers, healthcare professionals and those that are currently healthy. Health Equity & Community Engagement: Initiatives address the intersectionality of health with the social, financial and logistical challenges that impact a person’s ability to access healthcare and adhere to treatment recommendations, particularly in disparate and underserved communities.

Community Stories

31 Stories from Volunteers, Donors & Supporters

Susan F.3

Client Served

Rating: 5

Patient Advocate Foundation answered the phone when we had no idea where to turn for help. We didn't know how to navigate our son’s insurance coverage and he was in urgent need of a very specialized surgery that was only performed at a facility out of state. Our case manager stepped in and walked us through each claim and let us know all of our options. He then made many phone calls on our behalf to hospitals when things were billed incorrectly, resulting in a huge savings for our family. It was really nice to have an advocate in our corner!

Client Served

Rating: 5

Thank you so much for your compassion and for your help while I'm at my lowest. I'm a breast cancer patient who has been through 5 months of chemo, a mastectomy, and will soon begin several weeks of daily radiation. You all are truly beautiful people. I pray The Patient Advocate Foundation and all who work/volunteer there are blessed beyond measure for the good they do for others.

Client Served

Rating: 5

PAF/57243-18
“Wendy was amazing...I knew immediately that she knew what she was talking about and would be able to help me… She seemed very passionate about helping people who are unfairly billed for medical services that they didn’t owe for. I’m not sure what I would’ve done without her help… I was billed for over $50,000 worth of out of network bills that I didn’t owe from a stroke I had had… She assured me things would be OK and I immediately felt better after speaking with her… I ended up having to pay $12.00.... she literally saved me from having another stroke!!!! OMG!!! BEST ADVOCATE EVER!!!!! “

Client Served

Rating: 5

“I have been in a total panic, stress and depressive state not being able to afford the medications I need to live." Without your help I would be in serious troubles. It is sad to said but the truth is I had intended not to suffer with or from this illness but to end it. So, without your help I wouldn't be writing this. I don't know if this mean anything to anyone else but me. The stress of knowing what would happen without the medication was too much. The impact on my life is that I am still alive. You have given me more time to think about life. Thank you,

Client Served

Rating: 5

Thank you so much for the grant! You have no idea how much it helped me. I was also granted financial assistance through my oncology facility which is wonderful but to have some assistance with everyday expenses was extremely helpful. Your representatives were extremely nice and I recall being grateful to tears several times while talking to them. Not once was I ever made to feel like I was begging for assistance that I didn’t deserve, for that I am beyond thankful. Please accept my heartfelt thanks for your kindness!! ❤️❤️❤️

Volunteer

Rating: 5

Every interaction is a learning experience. Resources provided during PAF events allow me to exude a stronger voice of representation for patients in my community. Attached is a picture from 2007 Patient Congress Healthcare Exhibit. I am most grateful for the opportunity to network with individuals who are excited to share their stories as healthcare administrators and consumers.

1

Client Served

Rating: 5

These are some "unsung heroes!" The Patient Advocate Foundation rep was a huge help; tactfully and knowledgeably appealing to my insurance provider to reconsider their decision to decline coverage of my costly hospital visit.
Without the help of a kind and brilliant PAF team member, I would've had no clue as to how to approach this dilemma. Their efforts, insights, and experience proved to be incredibly helpful, and I am extremely grateful!!!

Sincerely,
Steve Carlisle

Wyvonia Woods H.

Volunteer

Rating: 5

I was introduced to Patient Advocate Foundation by an energetic speaker in a meeting about collaborative efforts to make a difference in 2016. I signed up as a volunteer and then my family had a devastating crisis experience. In October 2017, my husband developed pulmonary overload and subsequent complications that required dialysis for end stage Kidney disease. I was impressed that I was assigned a case manager to help me navigate his care and needs. I was referred to our local resources and I continue be a part of the PAF community as a volunteer and also a recipient of navigated care for my husband.

Client Served

Rating: 5

PAF guided us through an insurance nightmare. The stress level was unbelievable. Our PAF Case Manager, Tammy Niece guided us through it as well as the care my husband was seeking for life-saving treatment. Talking with her, was always empathetic and caring. Within a 3 month period, PAF had resolved the insane issue with our insurance company. Today, my husband has celebrated his 1 year anniversary of being in remission from stage 4 cancer. When we saw his CT scan, initially thought it was bad news. We had never seen a clean scan, ever, in over 20 years. To have insurance reversed their decision and my husband to be in remission from cancer we had been told there were no more treatments available. PAF CHANGED OUR LIVES FOREVER! Tammy our case manager is an earth angel. We will always feel a heap of gratitude towards PAF! THANK YOU!
- Tom and Liz

Client Served

Rating: 5

I owe so much to the Patient Advocate Foundation. After undergoing a bone marrow transplant as a teen, money was tight. Years of medical bills kept my family from being able to save money for college. PAF's "Scholarships for Survivors" Program has enabled me to pursue my dream of becoming a nurse so I can pay forward what I have been given. PAF has helped me and countless other college students who have dealt with life-threatening illnesses through this program. The staff at PAF go above and beyond and are always ready to help in anyway they can. They are there for patients when they have no one else to turn to. I am truly grateful for all that PAF does for patients in need and for students like myself. -C. Newsom

Client Served

Rating: 5

My first year of veterinary school was a lot less stressful thanks to Patient Advocate Foundation. This past year I moved to a new state, got through a very heavy curriculum, and managed my chronic illness, all while being away from family and friends. My career choice requires me to incur in a lot of debt, and my schedule makes it impossible for me to work throughout my schooling. To top it all off, I have to budget for additional expenses for treatments and medications. I am extremely grateful to Patient Advocate Foundation because I was able to cover the cost associated with living with my chronic illness, which gave me the time and peace of mind to focus on my education. They have been wonderful throughout the whole process, and I cannot thank them enough!
Sincerely,
Natalia Amaral

Client Served

Rating: 5

"Without the assistance received from PAF's CO-PAY RELIEF I would not have been able to afford the medication necessary to fight the Multiple Myeloma and to maintain the remission status I have achieved. I am in remission after having a stem cell transplant in November 2018 and remain on a maintenance drug. Because of the continued assistance provided by CO-PAY RELIEF my life is almost back to normal. Thank you for the assistance you make available. It can make a difference between life and death for many patients. "

Client Served

Rating: 5

The assistance received from this program is completely beneficial for my medical bills as well as prescriptions. Without this programs assistance I would have had to sell my home to be able to pay my medical bills.

Previous Stories

Client Served

Rating: 5

"I've been dealing with breast cancer since July. Fortunately for me, when it seemed I would be overwhelmed with the paperwork, my PAF case manager got in touch with me -- words just cannot describe ALL he did. You have to understand before he got involved I did not have the time to take care of my health, I was too busy fighting with insurance companies. My insurer at one point approved a hospital stay for me, and after the fact denied coverage!!! Then the hospital sent me a bill for $66,000!!! Then 12 different doctors started sending their bills. I was so overwhelmed and was undergoing chemotherapy at the time. My case manager stepped in, and after dozens and dozens of phone calls and emails. I don't know how he did it, but the insurance company paid the $66,000 bill, and most of the doctors were also paid. What a relief-I was not in this fight alone, there are people - not just my case manager - but an entire organization out there that cared about me. Thank you so very much!” Barbara

1 Judy131

Client Served

Rating: 5

PAF saved my life. I was underinsured with a $25K cap when I was diagnosed with breast cancer. PAF helped me negotiate bills with medical providers so I ended up with very little medical debt. Thank you PAF.
J S Hodges

Wendy109

Client Served

Rating: 4

As a chronic pain sufferer due to trigeminal neuralgia, type two, the best treatment as far is medical ( meaning expensive pharmaceuticals). This nonprofit organization really stepped up and helped me at a time of great need! Actually, the need is ongoing but the area of pain was fully subscribed; now I see it is not listed as an area of service. How distressing if understandable given the controversy whipped up over pain medication! At any rate, this nonprofit is first class!

1

Client Served

Rating: 5

In the summer of 2011 I was diagnosed with Breast Cancer and underwent surgery. I then had to face the daunting prospect of "chemo" with the worry of cost above my Medicare Advantage plan. I applied to Patient Advocate Foundation for co-pay assistance. The process was fast, efficient, smooth and culminated in a 12 month grant to aid in my treatment.

It was great to be able to focus on the medical aspects of my condition with out the additional worry of finance! My experience with this caring foundation was very positive.

Thank You,

Marvelle Smith

Review from CharityNavigator

Client Served

Rating: 5

I was the recipient of generous financial assistance from Patient Advocate Foundation (PAF) in the treatment of osteoporosis. My prescription medication was a very expensive daily injection medication over a two-year period. I was awarded $3,000 by PAF for each of those years. The staff at PAF handled the payment of invoices directly in an efficient manner was always most kind in my contacts with them. I am truly impressed with the services of PAF and will always be grateful for their assistance.

Review from CharityNavigator

Client Served

Rating: 5

April 18, 2013

I am, most sincerely, just one of the “many” Presidents of Patient Advocate Foundation, and Cheryl Nowell Fan Club.. In addition to walking me through my first bout with Colon Cancer bills and medical confusion, PAF (through Cheryl Nowell) also helped me a second time through the same after my treatments for small bowel cancer. What PAF did for me, was to take the confusing state of mind that I or anyone else would be in after such medical trauma, and help it make to make some sense. The end result, from BOTH times, was that ALL of my medical bills (except one) were written off. This state does not just happen---it is through incredibly diligent work and a caring heart, which PAF exhibited to the nth degree—and way beyond. I cannot possible put into mere words the gratitude I feel for this organization, which helps ALL people through different kinds of “medical and mental” trauma. I most highly recommend PAF to anyone who needs a sincerely caring voice and heart on the other end of the telephone, during such confusing and trying times. Thank You PAF! All of you are WONDERFUL!!

Sincerely from the bottom of my heart,
Bonnie West

Review from CharityNavigator

Client Served

Rating: 5

I would recommend the Co-Pay Relief program because it’s a quick, simplified process with a staff that truly cares. When you are sick and down you don’t need nor can you deal with the stress of the huge financial burden our medical system throws and you. It’s really nice to work with a group of professionals who make you feel like you are a part of their family and really want to help. I am grateful to the PAF/Co-Pay Relief Program and the staff who have given me a chance to finish my treatment. I am also grateful for the donors who support this program which helped me and has helped so many others. Thank you all very much for your excellent work and for being such kind and caring people.

Client Served

Rating: 5

Try to understand the feeling and dismay when you are informed that the problem you are facing has no cure and that a certain program, if successful,will prolong your life. Then, you discover the costs of this program, knowing that you do not have the funds nor are able to raise the necessary funds to begin the program.
That is what happened to me 3 months ago.
Fortunately for me, I was able to access information on my PC and discovered Patient Advocate Foundation and their helpful and compassionate people who really cared. The Foundation has been so very helpful and because of their decision to help, I am being treated and improving.
Without the Foundation's help, I would not be able to receive the necessary treatments and my life expectancy would be cut short, and I would not be able to write this review.

Review from CharityNavigator