2024 Top-Rated Nonprofit

Patient Advocate Foundation, Inc.

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Nonprofit Overview

Causes: Education, Educational Services, Health

Mission: Patient Advocate Foundation (PAF) is a national 501(c)3 non-profit organization, which provides case management services and financial aid to Americans with chronic, life-threatening and debilitating illnesses.

Community Stories

94 Stories from Volunteers, Donors & Supporters

1

nwilkins, Client Served

Rating: 5

09/07/2024

During my perilous moment, you were there! Thank you for listening, thank you for caring, thank you for the many resources that were truly a blessing during my time of need. Not only did the advocate give me information I discerned that from the bottom of her heart she was truly concerned about me and that made all the difference. God bless each of you for the work that you do.”

sergepd Client Served

Rating: 5

04/02/2025

I'm so grateful for the amazing supports and resources that Patient Advocate Foundation had provided to me this past year, during my cancer journey!
It is comforting to know there is a Foundation like Patient Advocate out there who is willing to assist people in such times of uncertainty, that you don't have to go through this alone!
Without this assistance, it would be very difficult for me to pay my insurance premium, dental insurance, my utilities, medications co-pay, Medications over the counter, doctor's copay and even buy foods. In general, this financial support gave me piece of mind and I was able to just concentrate on my treatment and the sides effects of the medications!
When I first contacted Patient Advocate Foundation for help, I was so impressed to learn of their commitment to providing the best quality services! I really admire the work staff are doing with this non profit Foundation, and their efforts to serve affected people like me, making a big difference.
Overall, the Patient Advocate Foundation has exceeded my expectations!
therefore, I have no reservation to recommend Patient Advocate Foundation to anyone in need of supports and resources.
Serge P 46

Marcia0921 Volunteer

Rating: 5

12/08/2024

I WAS UNABLE TO GET MY DISABILITY BENEFITS REACTIVATED AND A PAF REPRESENTATIVE GOT ON RHE LINE AND STRAIGHTEN EVERYTHING OUT AND NOW MY BENEFITS ARE SLAYEDTO BE RESTORED PRETTY SOON!!!!!!!

TReaves General Member of the Public

Rating: 5

10/15/2024

Patient Advocate Foundation is one of the most commendable, relevant, significantly-important safety net organizations in existence. Everyone sings their praises, and it's obvious why - PAF was created from the heart, for all the right reasons, with grit and passion, and it continues today in the names of over 1 million people they have supported through disease hardship.

1

Sanpaon Client Served

Rating: 5

09/25/2024

The service was prompt and friendly!
Very helpful in assisting us

1

laltimore1981 Client Served

Rating: 5

09/12/2024

July 2024, I started a new life changing medication to treat the disease I live with, Multiple Sclerosis. Excitement quickly changed to a nightmare of private insurance errors leaving me fearful and stressed! (All this when living with this disease that is enough on top of being a full time employee, Mom to my two little men, and wife to my super supportive husband).
I reached out to the National MS Society and found they had a relationship with PAF that could possibly support me. The same day my referral was sent over to the PAF (after proof of diagnosis). To my surprise, that next day I had a Welcome email from the PAF introducing me to my Case Manager: Wendy K. The email was letting me know to expect to hear from her within 3 business days and a few other suggestions of how to help her to support me by a brief explanation of what support I was needing. Wendy called me the next day (no 3 day wait for me!).
I reflect on my first call with her and here are some instant words that come to mind: She cared. She really cared about me. I was no longer alone. While Abby couldn’t help me directly, she found me a person that had my back! Wendy was quick to say that she was so sorry for what I was going through, that she had already met with her colleagues and wanted to let me know that while she couldn’t say what this issue would completely end with for a solution until we collected me information…she would be with me every step of the way!
Over the next few weeks, Wendy collected as much information to build a case for me. This included checking to see if I had received any billing from the pharmacy, wishing me a Happy Birthday, checking to make sure I received my second cycle of meds and everything was going well when the correct pharmacy and insurance filled my prescription, and also letting me know she was here for me when a bill did arrive. Once partnered with Wendy, I was no longer alone.
Truly, I do not know what I would have done without the MS Navigators and having this partnership with PAF. They are SO GOOD at their work. Living with Multiple Sclerosis is enough. There is no way I can be an expert at this situation which involved insurance companies, pharmacies, and messes that came along the way. The work the PAF does is IMPORTANT and needed for the MS Navigators to lean into. The National MS Society Mission Statement solidifies my point best: We will cure MS while empowering people affected by MS to live their best lives. For this nightmare I was facing, through the MS Societies partnership with the PAF, I was able to be empowered again and live my best life with my life changing medication being the primary focus.

1

sydneyarmaloo.com General Member of the Public

Rating: 5

09/12/2024

As PAF's video partner, we're truly inspired by the profound impact PAF has on both patients and caregivers.



Previous Stories
2

General Member of the Public

Rating: 5

08/04/2022

Patient Advocate Foundation is such a wonderful and necessary resource for so many patients. We have engaged in producing a significant number of video projects to help further awareness of all of the amazing services PAF provides.

Here is a video we collaborated with them on: https://fb.watch/eHvRU6lHiu/

1

toshiadunlap Client Served

Rating: 5

09/05/2024

I had the pleasure and benefit of working with case manager, Mr. Kenny Jacobs, to relieve me of the undue stress associated with being harassed and threatened with legal action for a prescription billing issue… His tireless efforts, professionalism, and due diligence were greatly assistive and beneficial to reducing my stress and in seeking justice. Without his assistance, this issue would have haunted me for an unreasonable length of time and been detrimental to my health. Thank you Mr. Jacobs and PAF for the critical work you do in our community and for the people.

2

mrosu59 Client Served

Rating: 5

09/05/2024

The Oklahoma Transportation Financial Aid Fund was a huge help in funding my transportation costs between OKC and Tulsa. The fund was a huge boost since my costs per day was about $35 per/day. Thanks again for the fund and hopefully it will be available to help other Oklahomans in the future.

2

jeanleo1210 General Member of the Public

Rating: 5

09/04/2024

“I am a Service Coordinator in an affordable housing community. I am currently working with a resident who has been denied medical care due to his inability to pay. Case manager Jackie has been extremely helpful with sending resources we can reach out to for help. Thank you!”

2

carriegeorgemd General Member of the Public

Rating: 5

09/04/2024

Navigating this new world is overwhelming and time-consuming. With Tammy’s guidance I learned the lingo and became prepared to better advocate for myself. To me that is the greatest gift.

1

Stevorino Client Served

Rating: 5

07/03/2024

“We all know the stress of cancer is overwhelming to say the least. My family is enduring much and the financial aspect is a huge burden. We thank God for PAF and the kind people who have chosen to work at helping others. The staff and the givers that make this possible are truly God-sent. Small miracles make this huge benefit possible. Thank you all & may God bless you!”

1

jagman6566 Client Served

Rating: 5

03/01/2024

This is often an overlooked resource, and many people have never even heard of it. If you're fortunate enough to reside in an area covered by this program or if funding is available for your illness, seize the opportunity to access something that genuinely aids individuals like myself who grapple with monthly financial struggles. Having recently lost Medicaid coverage, which was covering my Medicare Premium, due to the passing of my spouse, I suddenly found myself above the threshold for assistance and now have to bear the burden of paying for my Medicare Premium along with the loss of their income. Life is already challenging, and tending to one's own well-being feels like a full-time occupation. When I share how effortless it was to enroll and file a claim, I, too, initially questioned its legitimacy because everything flowed seamlessly. Their customer support team is remarkably friendly and helpful, serving as a beacon of hope to those in need and without the resources to pay some of the costs that having insurance still brings. . Although I'm currently navigating tough times, I am confident that brighter days lie ahead. Nevertheless, I want to express my deep appreciation for organizations like PAF and Co-Pay Relief, who are truly incredible and provide invaluable assistance to people like me. Thank you!

dave1933 Volunteer

Rating: 4

10/12/2023

Hello my name is David Ruiz I am desperately seeking for emergency treatment for the past 8 months the primary doctors , cancer treatment centers , hospitals , refused to treat me , regardless if its urgent referrals , case management , social workers . Post acute centers , emergency , ICU's . Even assign with health coordination , it goes on and on , goes on and on . I don't want to DIE, please help me , no one seems to understand how crucial time is with my illnesses , there has to be a logical explanation . We're so I go with out them sending to square 1 ,they are not doing nothing at least I should have some sort of a medication to slow down the cancer , they don't want me on chemo therapy , why ,,allow me to tell you the illnesses I suffer with . Cancer in the kidney second stage , malignant , with a tumor bigger than golf ball about to or is already spreadet onto my vital organs . Congested heart failure with surrounding liquids making it hard to breath due to the lungs not having enough room to function . At one point they said it was enlarge . Telling me it's 29 percent active not enough for surgery . Sirrosis in the liver being diagnosed 2 and half years ago and up to this date no one has treated or told me what stage I am in . Along with extreme high blood pressure . People die with only one of these illnesses . The chances for me if survival are to the lowest . Why cause no one makes me feel like I'm on the right path . To add to this matter I been homeless for the past 9 months without no income SSI pending denying me for the second time . I had an RV with my only belongings I had . But now impounded and lost . No income I get food stamps but in the homeless community it's like cash so we don't only used them for food , also for security , clothing , personal hygiene , so they go by fast , maraculasly I had a homeowner that I work on his lawn , property . So allowed me to stay . Temporary till I get some sort of direction or guidance . Upto this point nothing . No one will take me for treatment . It's very much proofenvthat there is something wrong about all this . This is not how it should be I'm an American citizen . I see illegals with better care than this . Please I beg you to help me . I m starting to feel symptoms that I never felt .absolutely no healthy diet in the homeless community . Wene your hungry you will eat anything you can get to feed . No pain what's so ever up to this point cause the pain doctor treated me with discrimination . I had to let go my health coordinator cause I didn't feel she was coordinating me as I should be. No communication . What's going on please someone needs to direct me with urgency and last , I have no family my girlfriend left me cause she didn't want to take care of a dying man . Let along in her home . So she denied support . My only son that can possibly take care of me is in Mexico with no papers to enter the united states . I don't know how to start this process of obtaining a passport green card or at least a visit pass for him to know his father in person at same time attend to all these appointments I'm not very smart for all this administration .and to end this introduction of my story I am starting to have racing thoughts that I am going to die very slow and painful .I'm coming to a uncontrollable state of mine .coming to final conclusion of suicidal thoughts .so that i don't DIE in PAIN ". If you can help and I survived or I at least feel that I died fight to the fullest I will devote my blessed years .helping people that suffer in similar ways .God bless you.

rjansen Client Served

Rating: 5

09/01/2023


“My mother suffered from pulmonary hypertension, congestive heart failure, kidney disease, and an autoimmune disorder … Patient Advocate Foundation stepped in with co-pay relief, and our lovely mother lived a number of good, long, healthy years until her very last couple waning days. We are forever grateful.
Thank you.”

1

Siababy Client Served

Rating: 5

08/29/2023

I’d like to express my gratitude to Beth - case manager and Patient Advocate Foundation for making this happen.

Beth has been very helpful and patient during the process. She’s been following up with me for almost 3 months to finally get us approved for the fund.

Thank you PAF for this meaningful grant that helps people in need.

Once again, thank you for all your help.

1

Tessa Brown Client Served

Rating: 5

08/29/2023

“I would like to sincerely express my gratitude for the amazing work and dedication Wendy Kurtz has provided me … she recently helped me with travel assistance for a needed surgery, and she called and emailed during/after to make sure that I was okay. That is just one of the many circumstances that I have experienced where she was supportive, compassionate, professional, and helpful … her ability to work through difficult challenges and advocacy is impressive and shows exceptional critical thinking skills and a true dedication to your foundation. I'm grateful to have her as my case manager.”

1

shelby95lyn Client Served

Rating: 5

08/23/2023

I am a proud scholarship recipient from PAF! They were fantastic to work with and so supportive of my goals. I am now a family nurse practitioner thanks to their support!

1

jessa_s Client Served

Rating: 5

08/18/2023

This organization helped me with college costs and allowed me to become a nurse serving others the way I was cared for when I was sick with cancer. I feel so fortunate to have been a recipient of their scholarship and grateful to the donors for their support.

2

johnkontos Client Served

Rating: 5

07/27/2023

“The moment you noticed that you are approved by the PAF, it affects your mood so drastically, as we say it makes your day. I rushed to the Billing Dept. of (my) Florida Cancer Specialists and Research Institute to report the good news. Already, I was feeling better mentally and physically! I am so grateful to PAF foundation for their grant. Thanks so much.”
John Kontogiannis

Comments ( 1 )

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PAFpatient 08/08/2023

It was our privilege to assist!

camoye65 Client Served

Rating: 5

07/25/2023

I would like to say how thankful I am for this program because without it I wouldn’t be able to get my diabetes medication because I am on a fixed income and would have to go without it. Thank you for all the support and help your giving

Comments ( 1 )

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PAFpatient 08/08/2023

Thank you for allowing PAF to provide you with support!

sydney37 Client Served

Rating: 5

07/24/2023

I have had such a wonderful experience with PAF. Our case manager, Shauna, has been so helpful with assisting both of my parents. Navigating insurance and financial assistance eligibility can be super overwhelming. However, Shauna has walked us through every step. I can't say enough good things about PAF!

Comments ( 1 )

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PAFpatient 08/08/2023

We're grateful for this opportunity to serve. Thank you!

1

bbreeger Donor

Rating: 5

07/06/2023

For over 15 years I have referred friends and coworkers to the services that PAF offers. In all instances, they have been able to guide them thru the maze of insurance bureaucracy and help them receive some positive results. The staff has been very professional and they always follow up with you to confirm that there is a closure to the case. It is nice to find an organization that really wants to help.

Comments ( 1 )

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PAFpatient 08/08/2023

Thank you for this kind feedback.

2

alwaysbecreating Advisor

Rating: 5

06/14/2023

Patient Advocate Foundation (PAF) makes such a big impact on a vulnerable portion of our population, people who find hardships on their healthcare journeys. Through working with PAF leadership on reports and marketing materials I witness firsthand the care they have for both their employees and the people they serve from the top down. This year, PAF put a major focus on health equity by releasing an Equity Value Statement that drives the Foundation towards eliminating barriers in healthcare and their workplace. They followed that statement up by investing in an online resource specifically developed for our Spanish-speaking population. I've had the opportunity to read and hear actual patient stories about the positive change PAF has brought to patients and their families in their times of need and am so proud to be associated with such an organization.

1

CFat74 Client Served

Rating: 5

06/14/2023

The Patient Advocate Foundation was a huge help to me. Thanks to their grant, I would not have been able to afford the expensive treatments for my cystic fibrosis, for which I am periodically hospitalized. Living on a fixed income is a real challenge with a disease, for which the drugs cost well in excess of $1,000 a month.

1

llaz General Member of the Public

Rating: 5

09/28/2022

I am so thankful for the foundation. I am unemployed due to long covid which has caused my rheumatoid arthritis to have major flare ups. The foundation has Blessed me with help with medication and insurance reimbursements.

cfmsdogmom General Member of the Public

Rating: 5

09/28/2022

My name is Amy Branham, n I live with cystic fibrosis n MS N had Thyroid cancer n take 75 pills a day . I live at Fairmont. WV n My docs told me I am the only ONE lives in the USA that lives with both. I am lucky to be alive. I am good I live each day to the fullest. N I used to work in the medical field. No kids I am a ARMYWIFE, Dog Mom. If anyone out there that reads my story contact me at bigirlwv30@yahoo.com. thank you
Amy Branham.

MsJudi General Member of the Public

Rating: 5

09/17/2022

Rebecca Biers was very helpful. She helped me negotiate my husband's hospital bills. She was so patient since we had to play phone tag many times. We were able to pay some off and are waiting to negotiate the others. I am much less stressed because of her help. I love this organization and will recommend it to everyone. She is also going to help my husband find insurance on the marketplace during open enrollment. Thank you so much for this service!!

1

sdhaddad Client Served

Rating: 5

09/14/2022

co-Pay has provided me with help to treat my MM with thnaks.

1

jtmac Client Served

Rating: 5

09/14/2022

“This financial aid from PAF has been a real blessing to me & my wife in taking care of so many expenses due to my heart valve surgery. The ease of the application process & the personal help I got when I called in was excellent! I am humbled & grateful & my heart is smiling from your thoughtfulness & gift. I will always treasure what you have done for myself and others.”
Pastor Jerry McClain

3

simmonslashell Client Served

Rating: 5

09/13/2022

“Rebecca was amazingly helpful and knowledgeable in this field. She was able to help me understand a lot about my case and finances. I truly appreciated the follow up phone calls she was so pleasant to speak with and very sweet. I wish I could give her 3 dozen roses. She's just that awesome. I appreciate the donna foundation for the financial assistance as well every little bit helps, and I have a lot of medical bills that I can barely afford to pay. I’m the only person working and trying to pay anything other than my household bills is very stressful. Treatment in my life is needed so that I can get better, but I also don't want to have to make a choice between treatment and feeding my family. Huge hugs to you all. Thanks again.”

1

Lukebk Client Served

Rating: 5

08/08/2022

PAF has allowed me to continue onto my dreams. After a life changing diagnoses, the medical bills stacked and my dream was dwindling. Being a recipient of this scholarship, I can proudly say my dreams are back on track. Everyone I interacted with was interested in me and my story which made me feel like I could do anything. Thank you PAF.

2

flatpretzel Client Served

Rating: 5

08/05/2022

Awesome nonprofit. I am a cancer survivor (brain cancer) trying to beat the odds and pursue a higher education despite adversity. PAF supported my education for two years, and I cannot thank them enough for their generosity!

Previous Stories
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Client Served

Rating: 5

06/16/2021

I am very thankful to the Patient Advocate Foundation for supporting my graduate studies (medical school). Their generous support has allowed me to focus on being a full time student and healthcare worker during this incredibly challenging year. I am grateful that Patient Advocate Foundation supports cancer survivors and students like me.

2

ChristyK13 General Member of the Public

Rating: 5

07/25/2022

Patient Advocate Foundation (PAF) is a remarkable non-profit organization. I have the honor of working with PAF and I get to see the impact stories from patients they serve. The case managers are devoted to each patient case they receive and work tirelessly to make sure the patient gets the medical care and financial support they need. PAF also offers digital and printed educational resources and materials, a Co-Pay Relief program and so much more.

2 deltasoul

deltasoul Client Served

Rating: 5

07/07/2022

Andrea is an angel! One month after I lost my job, I was diagnosed with breast cancer. I was terrified because my COBRA payments were being subsidized by my employer for three months. Had I not gone to PAF and Andrea, I would have had to go from paying $159/month for gold-level health insurance to $879/month. Andrea helped me receive $26,600 in assistance to cover premiums, co-pays, deductibles, and meds. I am sooooo grateful because I didn’t know what I was going to do. When I get back on my feet and get another job, I am going to pay it forward and donate to PAF!!!!

Comments ( 1 )

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PAFpatient 07/07/2022

Thank you for reaching out and allowing PAF to assist you. We're just a phone call away if you need help in the future!

1

loukheather06 Client Served

Rating: 5

07/07/2022


“Having an autoimmune disease is terrifying. Even though there is help with doctors, you still feel alone and scared of what the next right move is. Having an advocate helps with that unsure feeling of is this normal? It almost feels like you're their main concern in their life and they will research and try to help.”
-Heather Louk

Comments ( 1 )

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PAFpatient 07/07/2022

At PAF we believe that no patient should have to face a diagnosis alone. Thank you for this positive feedback.

1

dahjmt69 Client Served

Rating: 5

05/11/2022

I am VERY grateful for the financial support the Patient Advocate Foundation has provided for my medication for Multiple Sclerosis! There is no question that without their help I would not be able to take the medication prescribed by my doctor. What a wonderful, wonderful organization! Many blessings!

1

CarlJohn Client Served

Rating: 5

08/03/2021

PAF came to my aide and only continues to do so as I try to navigate through so much paperwork with insurance. My Advocate even calls and emails to check in with me. PAF provides a safe haven for when I am ready to call it quits!! Just to have my Advocate on the other line talking with people has really changed the tone to the voice on the other end of the line.

2

BradleyP Client Served

Rating: 5

07/07/2021

Having recently been diagnosed with a terminal, rapidly progressing disease and promoting my early retirement, my family and I were in dire need of my SSDI benefits under the new law S.578 (signed December 22, 2020). This new law waives the 5 month waiting period for people with ALS (Amyotrophic Lateral Sclerosis) My claim fell through the cracks and I was not processed under the new law. Bridget Williams worked diligently to help me receive my benefits immediately, thus, reversing the incorrect processing of my claim. Bridget spoke with myself and numerous folks at the SSA at the federal, state and local offices multiple times a week for numerous weeks in order to help me resolve the administrations’ mistake.
Thank you so much Bridget and Patients Advocate Foundation! These benefits are a blessing now.

1

Emasmom1 Client Served

Rating: 5

07/06/2021

My experience with Shauna was exceptional! She did not make me feel like a fool for not having paid a bill. Shauna was very professional in every way and she was very personable. When she called the places of business for both my daughter and I, she was professional with them as well. She truly cares about her patients and will do everything in her power to get the issue resolved. I'm thankful I came across the PAD foundation! They are very experienced and know their job well. I also made a friend for life. Shauna is certainly a keeper in my book because she went above and beyond my expectations! To me, that's a hard worker.

Love that girl to pieces and would really like to meet her someday to give a proper "Thank you".

1

Ann Liebhart F. Client Served

Rating: 5

07/06/2021

Working with Shauna Hatfield reduced the stress we felt over the cost of medications while living on a limited budget. Shauna is knowledgeable, personable and empathetic and definitely helped relieve the stress and anxiety we had dealing with expenses!

2

Elena E.2 Client Served

Rating: 5

06/17/2021

One of the hardest things about being a college student with disabilities is that it feels like you constantly have to prove that you can succeed in school, especially in a demanding path like pre-med. Not only does the PAF scholarship help me financially, but it reminds me everyday that someone believes in me and my goals. PAF’s support means the world to me and my family as well as the chronic illness community. I was lucky enough to speak at PAF’s event in February, 2019 as a scholarship recipient and the support for students like me was overwhelming. I’ve had a challenging undergrad so far because of my health and moments like the PAF event give me the support I need to keep going.

1

ParkerFritsch Client Served

Rating: 5

06/16/2021

This organization has been a tremendous help at getting me through my undergraduate education! Their scholarship and support network go above and beyond to make sure we have the tools needed to succeed. Without them I don't know if I would able to afford a college degree so I am incredibly appreciative of their role in helping me reach for my dreams!

Joe S.15 General Member of the Public

Rating: 5

06/09/2021

Leading up to my surgery I was under the impression that my insurance company had worked out all of the kinks with the hospital about the cost of the procedure and that basically I would have to pay just my premium. The total cost for my heart procedure was just over $174k. There was talk about a single case agreement which would allow me to pay at maximum $10k. We were prepared to work on monthly payments for that amount for sure.
After my surgery, we were thinking that both the insurance company and the hospital agreed to the single case agreement. Both parties were unable to come to a resolution. Fortunately, my wife found your organization and we teamed up with Brooke Flores. She was incredibly understanding and really deciphered the mess of codes and billing statements and explained how things worked in our favor and in the other two parties.
We felt less pressure at that point but knew the two parties couldn't (or wouldn't) figure out the single case agreement. Brooke helped chip away at our case and before we knew it, the hospital said we owed $36k. Obviously a lot of money but compare that to the price of a home, we'd take it. Fortunately, that amount was not what we settled on. Brooke took both the insurance company and the hospital to task and somehow was able to get that amount written off.
I was able to make single payment of just under $1,500 with her help. Our family was so elated that I still get teary eyed thinking about what a relief this process has been with Brooke's professionalism and tenacity (I am a little blurry-eyed right now). The stress and the unknown went away and it is all due to the help of Brooke. My heart has been healing well since my surgery but now my mind can rest too; thanks to Brooke.

1

Jem H. General Member of the Public

Rating: 5

06/08/2021


“This is an amazing organization. My mother-in-law would not be able to afford one of her key Multiple Myeloma drugs without the help of Patient Advocate Foundation. Also every time I call the customer service specialists are super friendly. Thank you to everyone who works there.”

Comments ( 1 )

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PAFpatient 07/07/2022

Thank you so much for your kind feedback! It is our pleasure to serve.

Jonny Imerman     CLOZTALK    ImermanAngels

Jonny Imerman CLOZTALK ImermanAngels Volunteer

Rating: 5

06/06/2021

GREAT mission, GREAT team! the CLOZTALK team is honored to call this org a partner & promote its good work!

CLOZTALK team
>> Jonny Imerman, co-founder

sunhealthforyou Advisor

Rating: 5

05/01/2021

I want to say that sunshine cures many ailments; please try it and see. Its almost to easy but do it for you not for me. xo

2 Living for a Cause

Living for a Cause Volunteer

Rating: 5

04/30/2021

I am writing on behalf of my friend Eileen Schuck, who was helped by this wonderful organization, the Patient Advocate Foundation. My dear friend Eileen was fighting a form of cancer, and upon my suggestion she reached out to the Patient Advocate Foundation. Her personal case worker was Sandra McAllister, a wonderful person who deserves a great deal of acclaim for her devotion to this cause.

Eileen needed help getting an application processed and approved by the compassionate care program at Bristol Myers Squibb. She needed immunotherapy medicine made by BMS as her next steps in treating her cancer. She was not successful on her own and her insurance refused to approve the medication. With the help of her case worker who called BMS and followed up on her application, she was approved, and received her immunotherapy medication. On a different occurrence, Eileen needed to find out who she could call at BMS to report on and talk to someone about the side effects she was having to the treatment. Brook Florens, another dedicated case worker, along with Eileen and myself on the phone, made a call and were able to be connected to correct person at BMS. This resulted in getting all of Eileen’s questions and concerns answered.

Eileen also needed financial aid, and because of her diagnosis, she was approved for a grant to help with past due bills. Eileen knew she could never afford her necessary medications. Her lack of knowledge on how to navigate the system with positive results caused her tremendous stress. Without the help of this professional, compassionate organization, patients like Eileen would continue to be forced to find their own way through a medical maze of uncertainties, denials of treatment, and financial anguish. I offer my deepest gratitude to the Patient Advocate Foundation for the heart and soul work that is being accomplished to help so many who need you.

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Sbelahouel2020 General Member of the Public

Rating: 5

09/15/2020

My name is Siraj Belahouel, I am 19 years old, and I am in college. I have been diagnosed with cancer on March 20, 2020. During a time where the world was entering the phase of corona virus or most commonly know as COVID-19. It was almost 3 quarters towards the end of the school year. I was at school during that time. I was a healthy man with a bright future. I was also a soccer player so I was athletic and in good shape. Until I started experiencing cancer symptoms. The symptoms were fatigue, laziness, strong headaches, lack of appetite, and dizziness. I wasn’t real myself, my behavior started to change. I started dreading going to school and to work. I started sleeping in class because I used to be so fatigued. Even though I had slept 8 hours during the night. I was abnormal. Then one day my mom was giving me a haircut, as she was giving me the haircut she noticed two bumps on my head. Then she asked me “Siraj, did you fall on your head or did you get hit on the head?” I said “ no”. Then she said “then where did these two bumps come from?” I said “I don’t know” then we immediately went to the duke emergency room. They did an MRI of my skull and they found that there was a tumor. Under the pictures of the MRI it looked like it was meningioma benign tumor. So I had an operation on my skull where I had a big chunk of the tumor removed, which was about 15 cm of tumor. But they could not take everything out, because some of it was stuck to a vein in the brain and it was risky to take it out. After they took the pathology out they tested it and they found out that it was not a meningioma. It was a rare kind of spindle cell sarcoma. Spindle cells are aggressive cells that rapidly reproduce. I am the only one in the country with this type of cancer. So I had to go through cancer treatment. Which was a combination of radiation therapy and chemotherapy. It was 5 weeks of radiation and 6 months of chemotherapy. And we’re hoping we can kill the tumor with that. It’s been a long journey to this points. I had to endure a lot of hardships. I had to go through a 7 round chemotherapy treatment and right now I’m on the last round. Chemotherapy comes with bad symptoms like nausea, vomiting, mouth sores, and esophagus sores. It would be hard for me to eat and drink. After the 3rd round of chemotherapy I was also diagnosed with Corona. So I had to quarantine in my room for 15 days. And I had to experience corona symptoms with chemotherapy symptoms. So it was long hard journey. I had to deal with all the pain. It was a physical, emotional, and mental warfare. After the 3rd round of chemotherapy I had to experience a cycle of hypomania where I was acting crazy and abnormal. I started thinking about big projects like freeing Palestine, and helping poor countries get through their conflicts. I wasn’t thinking right. I was acting crazy. And now I’m at the end of the tunnel of all this. And I’m happy I got through this because this has taught me a valuable lesson, and that is “a fight is never a fight until there is resistance, until there is something to overcome”. I am overcoming this and after this fight nothing will ever stop me from accomplishing my goals. And that is the end of a great story. The story of a cancer champion.

kingproductions General Member of the Public

Rating: 5

08/14/2020

Patient Advocate Foundation (PAF) is a one-of-a-kind organization that I've had the opportunity to collaborate with. We've recently worked closely to design a virtual Facebook Live event to educate key stakeholders. I've seen firsthand the commitment PAF devotes to its patients through the meaningful educational content and collateral we've produced together.

1

Leia H. Client Served

Rating: 5

07/20/2020

PAF inspire others to keep fighting the good fight as they serve those in need. PAF renews hope to the hopeless and makes dreams come true for all patients and families. All the staff members are filled with joy and kindness and work hard to assist those they encounter.

1

KathyHowell Advisor

Rating: 5

07/20/2020

My firm, Howell Creative Group has had the privilege of supporting Patient Advocate Foundation for almost ten years. We’ve partnered with PAF to develop meaningful public-facing digital and print collateral designed to educate multiple stakeholders and audiences about PAF’s mission. From leadership to staff, the PAF team supports patients and their families during - and after - times of health challenges. PAF is a strong, well run organization that has never lost sight of the need to approach each of their constituents as individuals, always tailoring their care with genuine compassion as well as superior expertise.

1

Shawn Wilson N. Client Served

Rating: 5

07/08/2020

As an enduring team member at PAF, I am aware of the organizations impactful mission and meaningful, personal approach to assistance. Although I had hoped my family would never need PAF’s services, we unpredictably found ourselves in need after my brother lost his battle with a chronic disease.

PAF’s Case Manager gracefully discussed the circumstances surrounding the loss with my sister in-law and dove in to help review EOB’s, find assistance with hospital bills, enroll children for survivor benefits, review policies and more. Knowing PAF was researching and assisting with things we never would have thought of, was such a pleasing comfort to me and the family.

I extend my heartfelt thanks to everyone at PAF for what they do daily to serve one patient at a time!

2

rhebmann Client Served

Rating: 5

07/07/2020

I am grateful to the Copay Relief Program of the Patient Advocate Foundation for the financial help we got during my wife's breast cancer treatment. Beside the money, that was also another evidence that we were not alone in this fight.
Thank you so much for your help and keep up your excellent work! All the best.

1

Susan F.3 Client Served

Rating: 5

07/03/2020

PAF helped our family through an enormous amount of out of state medical bills. We were totally lost and not even sure who to ask for help or what to google. PAF walked us through it all and explained things so well. A wonderful ally!

Previous Stories
3

Client Served

Rating: 5

06/06/2019

Patient Advocate Foundation answered the phone when we had no idea where to turn for help. We didn't know how to navigate our son’s insurance coverage and he was in urgent need of a very specialized surgery that was only performed at a facility out of state. Our case manager stepped in and walked us through each claim and let us know all of our options. He then made many phone calls on our behalf to hospitals when things were billed incorrectly, resulting in a huge savings for our family. It was really nice to have an advocate in our corner!

2

Denisequi45 Client Served

Rating: 5

07/01/2020

“Ms. Bridget at PAF was warm, caring and very sympathetic with hearing my concerns… She also was proactive with seeing if we needed any other services going forward. We all need a “Bridget” all of us are facing some sort of new adjustments in life and having people like her on the other end of that phone with a warm tone and compassionate heart can move you to your next blessing. God bless you and all that you do.”

1

becki61 Client Served

Rating: 5

07/01/2020

Life can change in a moment’s notice and throw you into a whirlwind of emotions in a short time when you are diagnosed with CANCER. This battle started two years ago to my husband, and it is still a battle he is fighting today. His numbers should be zero, but they are not yet. Each time he goes for blood work I hold my breath and pray.

I remember sitting in the Doctor’s office, when the Dr. entered the room and sat down in his chair and said, well it is cancer (just like that). I was scared for my husband!

We were not sure what to do next or even sure where to go or what to expect. Shock sat in, and I felt frozen. I remember leaving the office, but I do not remember a word the Doctor had said. I called my friend to tell her about it, and she told me to contact Patient Advocate Foundation. I thought “no” we have insurance and his Doctor will tell us what we need to know. When we went to the Dr. it was not so easy…

I knew we needed more answers and turned to Patient Advocate Foundation for help. When I spoke with a representative of Patient Advocate Foundation, I could not believe how quickly they were able to assist us. They provided educational information about his diagnosis, as well as patient support programs. We felt like we were more prepared for dealing with the CANCER. The information they gave us helped us to understand the treatment process and what to expect during the process. They sent us so many wonderful pamphlets filled with information and answers to questions we should ask about and answers to things we had not even thought about.

Cancer is so scary! The help we received was amazing. The follow up conversations were invaluable. Patient Advocate Foundation was a God Send, and the folks who answer those phones are Angels. God Bless them all.

I LOVE Patient Advocate Foundation and all who are involved with it. Amazing people!

-Becki

Anita R.1 Client Served

Rating: 5

06/30/2020

The Covid virus created an unprecedented situation which has made it very hard to clearly understand what my furloughed husband’s right to FMLA protection is. The uncertainty about which action to take was creating great added stress to his recent cancer diagnosis. The patient advocate agent I spoke with took the time to understand my husband’s personal situation and clearly cared. While she personally did not know the answer she escalated our query. She got back to me within hours with a very clear cut answer explaining what his rights are in this unprecedented situation created by Covid. Knowing how to proceed has lifted the stress from our shoulders and allowed us to concentrate on his treatment and getting well. Until reaching out to the Patient Advocate Foundation all other organizations contacted had given us equivocal answers that left us with the same doubts and fears about what to do! I can’t praise the Patient Advocate Foundation and its people enough and I thank them from the bottom of my heart for their caring concern, thoroughness and excellent, informed help.
-Denise

Rconcetta Client Served

Rating: 5

06/16/2020

“The help this foundation is making available to patients like me who have Multiple Myeloma is absolutely amazing. I don't know how I would have managed without your help in the past and recently with the Covid-19 grant. I am forever grateful - I can't thank you folks enough for all your help. I love you guys so much. Thank you, Thank you, Thank you.” Connie Wardlow

051168YW Client Served

Rating: 5

06/10/2020

“I would like to thank PAF and my case worker Ms. Sandra for her assistance. She explained every program I was eligible for in detail. She was so helpful and her response to help me was very quick with a follow-up call as well.”

1

wesam112 Client Served

Rating: 5

06/09/2020

I am nearing the end of the last semester of my first year of college in a few weeks. I just wanted to thank the Patient Advocate Foundation for all your help and generosity as it has helped me get by this year successfully. Throughout my first year of college, I have discovered new passions, hobbies, obtained research opportunities, and made new friends that all could not have been possible without the generosity of the Patient Advocate Foundation. I cannot thank you enough for all that you have done for me and my future!

bethy2347 Client Served

Rating: 5

07/12/2019

Thank you so much for your compassion and for your help while I'm at my lowest. I'm a breast cancer patient who has been through 5 months of chemo, a mastectomy, and will soon begin several weeks of daily radiation. You all are truly beautiful people. I pray The Patient Advocate Foundation and all who work/volunteer there are blessed beyond measure for the good they do for others.

2

pmyers9602 Client Served

Rating: 5

07/03/2019

PAF/57243-18
“Wendy was amazing...I knew immediately that she knew what she was talking about and would be able to help me… She seemed very passionate about helping people who are unfairly billed for medical services that they didn’t owe for. I’m not sure what I would’ve done without her help… I was billed for over $50,000 worth of out of network bills that I didn’t owe from a stroke I had had… She assured me things would be OK and I immediately felt better after speaking with her… I ended up having to pay $12.00.... she literally saved me from having another stroke!!!! OMG!!! BEST ADVOCATE EVER!!!!! “

1

Dre77021 Client Served

Rating: 5

06/25/2019

“I have been in a total panic, stress and depressive state not being able to afford the medications I need to live." Without your help I would be in serious troubles. It is sad to said but the truth is I had intended not to suffer with or from this illness but to end it. So, without your help I wouldn't be writing this. I don't know if this mean anything to anyone else but me. The stress of knowing what would happen without the medication was too much. The impact on my life is that I am still alive. You have given me more time to think about life. Thank you,

1

phpaf Client Served

Rating: 5

06/25/2019

Thank you so much for the grant! You have no idea how much it helped me. I was also granted financial assistance through my oncology facility which is wonderful but to have some assistance with everyday expenses was extremely helpful. Your representatives were extremely nice and I recall being grateful to tears several times while talking to them. Not once was I ever made to feel like I was begging for assistance that I didn’t deserve, for that I am beyond thankful. Please accept my heartfelt thanks for your kindness!! ❤️❤️❤️

2

itsmebridavis Volunteer

Rating: 5

06/25/2019

Every interaction is a learning experience. Resources provided during PAF events allow me to exude a stronger voice of representation for patients in my community. Attached is a picture from 2007 Patient Congress Healthcare Exhibit. I am most grateful for the opportunity to network with individuals who are excited to share their stories as healthcare administrators and consumers.

2

lunartrax Client Served

Rating: 5

06/21/2019

These are some "unsung heroes!" The Patient Advocate Foundation rep was a huge help; tactfully and knowledgeably appealing to my insurance provider to reconsider their decision to decline coverage of my costly hospital visit.
Without the help of a kind and brilliant PAF team member, I would've had no clue as to how to approach this dilemma. Their efforts, insights, and experience proved to be incredibly helpful, and I am extremely grateful!!!

Sincerely,
Steve Carlisle

1

Wyvonia Woods H. Volunteer

Rating: 5

06/20/2019

I was introduced to Patient Advocate Foundation by an energetic speaker in a meeting about collaborative efforts to make a difference in 2016. I signed up as a volunteer and then my family had a devastating crisis experience. In October 2017, my husband developed pulmonary overload and subsequent complications that required dialysis for end stage Kidney disease. I was impressed that I was assigned a case manager to help me navigate his care and needs. I was referred to our local resources and I continue be a part of the PAF community as a volunteer and also a recipient of navigated care for my husband.

2

Tom-Liz Client Served

Rating: 5

06/13/2019

PAF guided us through an insurance nightmare. The stress level was unbelievable. Our PAF Case Manager, Tammy Niece guided us through it as well as the care my husband was seeking for life-saving treatment. Talking with her, was always empathetic and caring. Within a 3 month period, PAF had resolved the insane issue with our insurance company. Today, my husband has celebrated his 1 year anniversary of being in remission from stage 4 cancer. When we saw his CT scan, initially thought it was bad news. We had never seen a clean scan, ever, in over 20 years. To have insurance reversed their decision and my husband to be in remission from cancer we had been told there were no more treatments available. PAF CHANGED OUR LIVES FOREVER! Tammy our case manager is an earth angel. We will always feel a heap of gratitude towards PAF! THANK YOU!
- Tom and Liz

2

CNewsom Client Served

Rating: 5

06/10/2019

I owe so much to the Patient Advocate Foundation. After undergoing a bone marrow transplant as a teen, money was tight. Years of medical bills kept my family from being able to save money for college. PAF's "Scholarships for Survivors" Program has enabled me to pursue my dream of becoming a nurse so I can pay forward what I have been given. PAF has helped me and countless other college students who have dealt with life-threatening illnesses through this program. The staff at PAF go above and beyond and are always ready to help in anyway they can. They are there for patients when they have no one else to turn to. I am truly grateful for all that PAF does for patients in need and for students like myself. -C. Newsom

1

namaralm Client Served

Rating: 5

06/06/2019

My first year of veterinary school was a lot less stressful thanks to Patient Advocate Foundation. This past year I moved to a new state, got through a very heavy curriculum, and managed my chronic illness, all while being away from family and friends. My career choice requires me to incur in a lot of debt, and my schedule makes it impossible for me to work throughout my schooling. To top it all off, I have to budget for additional expenses for treatments and medications. I am extremely grateful to Patient Advocate Foundation because I was able to cover the cost associated with living with my chronic illness, which gave me the time and peace of mind to focus on my education. They have been wonderful throughout the whole process, and I cannot thank them enough!
Sincerely,
Natalia Amaral

1

424Persimmon Client Served

Rating: 5

06/06/2019

"Without the assistance received from PAF's CO-PAY RELIEF I would not have been able to afford the medication necessary to fight the Multiple Myeloma and to maintain the remission status I have achieved. I am in remission after having a stem cell transplant in November 2018 and remain on a maintenance drug. Because of the continued assistance provided by CO-PAY RELIEF my life is almost back to normal. Thank you for the assistance you make available. It can make a difference between life and death for many patients. "

1

PAFpatient Client Served

Rating: 5

06/05/2019

The assistance received from this program is completely beneficial for my medical bills as well as prescriptions. Without this programs assistance I would have had to sell my home to be able to pay my medical bills.

Previous Stories
1

Client Served

Rating: 5

03/15/2017

"I've been dealing with breast cancer since July. Fortunately for me, when it seemed I would be overwhelmed with the paperwork, my PAF case manager got in touch with me -- words just cannot describe ALL he did. You have to understand before he got involved I did not have the time to take care of my health, I was too busy fighting with insurance companies. My insurer at one point approved a hospital stay for me, and after the fact denied coverage!!! Then the hospital sent me a bill for $66,000!!! Then 12 different doctors started sending their bills. I was so overwhelmed and was undergoing chemotherapy at the time. My case manager stepped in, and after dozens and dozens of phone calls and emails. I don't know how he did it, but the insurance company paid the $66,000 bill, and most of the doctors were also paid. What a relief-I was not in this fight alone, there are people - not just my case manager - but an entire organization out there that cared about me. Thank you so very much!” Barbara

2

Judy131 Client Served

Rating: 5

11/01/2014

PAF saved my life. I was underinsured with a $25K cap when I was diagnosed with breast cancer. PAF helped me negotiate bills with medical providers so I ended up with very little medical debt. Thank you PAF.
J S Hodges

2

Wendy109 Client Served

Rating: 4

10/27/2014

As a chronic pain sufferer due to trigeminal neuralgia, type two, the best treatment as far is medical ( meaning expensive pharmaceuticals). This nonprofit organization really stepped up and helped me at a time of great need! Actually, the need is ongoing but the area of pain was fully subscribed; now I see it is not listed as an area of service. How distressing if understandable given the controversy whipped up over pain medication! At any rate, this nonprofit is first class!

2

darmarsmith Client Served

Rating: 5

05/01/2013

In the summer of 2011 I was diagnosed with Breast Cancer and underwent surgery. I then had to face the daunting prospect of "chemo" with the worry of cost above my Medicare Advantage plan. I applied to Patient Advocate Foundation for co-pay assistance. The process was fast, efficient, smooth and culminated in a 12 month grant to aid in my treatment.

It was great to be able to focus on the medical aspects of my condition with out the additional worry of finance! My experience with this caring foundation was very positive.

Thank You,

Marvelle Smith

Review from CharityNavigator

2

Barbara Powell Client Served

Rating: 5

04/24/2013

I was the recipient of generous financial assistance from Patient Advocate Foundation (PAF) in the treatment of osteoporosis. My prescription medication was a very expensive daily injection medication over a two-year period. I was awarded $3,000 by PAF for each of those years. The staff at PAF handled the payment of invoices directly in an efficient manner was always most kind in my contacts with them. I am truly impressed with the services of PAF and will always be grateful for their assistance.

Review from CharityNavigator

1

Bonnie West Client Served

Rating: 5

04/22/2013

April 18, 2013

I am, most sincerely, just one of the “many” Presidents of Patient Advocate Foundation, and Cheryl Nowell Fan Club.. In addition to walking me through my first bout with Colon Cancer bills and medical confusion, PAF (through Cheryl Nowell) also helped me a second time through the same after my treatments for small bowel cancer. What PAF did for me, was to take the confusing state of mind that I or anyone else would be in after such medical trauma, and help it make to make some sense. The end result, from BOTH times, was that ALL of my medical bills (except one) were written off. This state does not just happen---it is through incredibly diligent work and a caring heart, which PAF exhibited to the nth degree—and way beyond. I cannot possible put into mere words the gratitude I feel for this organization, which helps ALL people through different kinds of “medical and mental” trauma. I most highly recommend PAF to anyone who needs a sincerely caring voice and heart on the other end of the telephone, during such confusing and trying times. Thank You PAF! All of you are WONDERFUL!!

Sincerely from the bottom of my heart,
Bonnie West

Review from CharityNavigator

1

Harleyw13 Client Served

Rating: 5

04/18/2013

I would recommend the Co-Pay Relief program because it’s a quick, simplified process with a staff that truly cares. When you are sick and down you don’t need nor can you deal with the stress of the huge financial burden our medical system throws and you. It’s really nice to work with a group of professionals who make you feel like you are a part of their family and really want to help. I am grateful to the PAF/Co-Pay Relief Program and the staff who have given me a chance to finish my treatment. I am also grateful for the donors who support this program which helped me and has helped so many others. Thank you all very much for your excellent work and for being such kind and caring people.

1

sunegret Client Served

Rating: 5

04/17/2013

Try to understand the feeling and dismay when you are informed that the problem you are facing has no cure and that a certain program, if successful,will prolong your life. Then, you discover the costs of this program, knowing that you do not have the funds nor are able to raise the necessary funds to begin the program.
That is what happened to me 3 months ago.
Fortunately for me, I was able to access information on my PC and discovered Patient Advocate Foundation and their helpful and compassionate people who really cared. The Foundation has been so very helpful and because of their decision to help, I am being treated and improving.
Without the Foundation's help, I would not be able to receive the necessary treatments and my life expectancy would be cut short, and I would not be able to write this review.

Review from CharityNavigator

1

orajhu Client Served

Rating: 5

04/17/2013

After I was diagnosed with Multiple Myeloma in 2008 I began to pay my huge co-pays for medications. It became unbearable. I was introduced to PAF by my PCP and filled application. The Co-Pay Assistance Program helped me to stay on. With cancer treatment so expensive I could not survive without the help of PAF. I greatly appreciate their help and hope they will continue to provide assistance to cancer survivors. Victor Sloosky, Ashton, MD

Review from CharityNavigator

1

Debbie85 Client Served

Rating: 5

04/17/2013

I am a 54 year old breast cancer survivor. PAF really saved me at the hospital. The co-pays were crazy and thanks to PAF I can hold my head up high because I paid off Virtua Hospital Voorhess, NJ. I don't know what I could have done without them but the professionalism of the staff was a big help since I paid with them directly. Thank you to all who got me through the taxotere and carboplatin (the chemo that makes you lose your hair). Better days are coming since my hair is growing back now. Since PAF absorbed the costs after Medicare which I pay myself, I am not losing anything. Thank you friends. Sincerely, Debbie Kidd-Beswick.

Review from CharityNavigator

1

Kenneth Brecko Client Served

Rating: 5

04/02/2013

My wife was diagnosed with gastrointestinal stromal tumor (a rare form of sarcoma) in September of 2009. We belonged to an employer sponsored health maintenance organization (HMO) which has very strict rules about going out of network. It became evident that the expertise available within the HMO was insufficient to treat my wife's type of cancer. Only a handful of experts in treating this type of cancer were available, all requiring travel to get to. In July of 2010 my wife and I attended a support group function and Patient Advocate Foundation had a couselor and display at the meeting. It was here that I met Laurel, a counselor with the Patient Advocate Foundation. Laurel took me under her wing and provided every assistance I would need to fight the HMO for a referral outside of the HMO network.

When I made the initial request on behalf of my wife for a referral, the request was denied. We had to go through the entire appeals process and were denied each time, which I am told, happens with some frequency. In my state, after the appeals process with the insurance company is exhausted, there can be an appeal for an external review. When I requested the external review, the HMO capitulated and granted the referral to the ouside expert.

Laurel was behind me 100% and provided letters and backing to whether the appeals process with the HMO. Without the assistance and encouragement of the Patient Advocate Foundation, and specifically our wonderful counselor, Laurel, we may have never been granted the referral.

I know that the Patient Advocate Foundation helps out in many areas to support and advocate for paients as they struggle for treatment, payment assistance and approvals. Having been through this, I can tell you that it is very important to have someone help you advocate just to get noticed in the medical/insurance system.

I highly recommend Patient Advocate Foundation. My wife and I had a successful outcome with their assistance. I believe they will go to great lengths to provide any assistance they can and is within their means to provide.

Review from CharityNavigator

1

Kimberly P. Client Served

Rating: 5

04/01/2013

I started my initial contact with the Patient Advocate Foundation in November of 2011 when I found out that I needed to have a surgery for a gastrointestinal issue. I am without insurance and have been for quite some time and the surgery that I needed to have was done by a doctor almost 3 hours away. The surgery was very expensive and in my initial contacts with the hospital and the company who makes the device that I needed to get to have the surgery I failed at getting financial assistance approval.

After an online search for patient services I stumbled upon PAF and was able to get a case manager within a week. The case managers communication was always consistent and when communication was needed with an outside person she was always on conference with me, it made it much easier to deal with.

It took almost a year with phone calls between us and the hospital, my doctor and the company who makes the device, but I was finally able to have the surgery. Prior to the surgery, my case manager was able to assist me with finding transportation and housing. I owe everything to PAF for sticking with me through this long process that seemed like would never get resolved and for following up with me to make sure everything was good to go.

Review from CharityNavigator

1

patricia adkins Client Served

Rating: 4

04/01/2013

My name is Patricia Adkins and I am 27 year old cancer survivor! Last year (2012) I became a client with PAF after I was diagnosed with a rare cancer. My case manager , Tanya Walker was and still is fabulous!!! Tanya and I share a special bond in that we are both nurses. I knew that the person on the other end of the phone truly understood what I was going through. Tanya helped me navigate through the ever changing insurance world, checking on claims to see what their status was, and she explained what would happen next, as far as what I would have to pay once everything settled out and how long it may take for claims to actually finish filing. A year later I can say without a doubt I couldn't have done it without her. It was so comforting to know that I had someone else in my corner paying attention to all the "yucky" stuff so I could focus on recovery! Thanks Tanya! you rock!

Review from CharityNavigator

1

csjones58 Volunteer

Rating: 5

04/01/2013

I am a patient volunteer with the Patient Advocate Foundation and do guest speaking on occasion. If it were not for PAF, I would not be able to do so. I have been in the battle against cancer since 1999 and in 2006 came up against my most challenging battle. I am currently fighting Stage IV Colon Cancer and found myself getting deeper and deeper in debt with patient copays until I came in contact with the Patient Advocate Foundation.
Their patient assistance program has been very helpful in my battle against cancer, as it gives me one less thing to worry about. If I had to keep worrying about the terrible debt of copays, I would have given up my fight 4 years ago. Thanks to the Patient Advocate Foundation, I can continue my battle, and still receive assistance with my copays.

Review from CharityNavigator

3

bobbach911 General Member of the Public

Rating: 1

03/18/2013

My wife is a cancer patient incurring monthly medical costs, excluding the physicians's charge, in the amount of $8,000. or more on average. We live on Social Security benefits and have no pension income. We have very minimal 401 K income.
All during 2012, we were of the belief that Co-Pay Relief would provide assistance toward some of the medical expenses based upon contact with them by mail, telephone, and personal contact at the doctor's office with their representative. At one point we were assured that there was $5,000. "in her account".
She has now (3/12/2013) received a letter stating that, "your award has been rescinded and your account has been closed at this time". The reason given was that "there had not been any activity on your account in 120-Days despite our attempts to encourage expenditure submissions". The truth of the matter is that the monthly payment we make, via check, is given directly to Co-Pay Reliefs' employee at the doctor's office.
We are told that on August 8, 2013, we could re-apply in that same letter.

I begin to question the legitimacy of this charity!

These are the most evasive and duplicitous people with whom I ever dealt.

Robert Niersbach

Review from CharityNavigator

4 sethm

sethm Client Served

Rating: 1

02/25/2013

I applied for copay assistance from this organization by following all of the instructions that were provided. I tried numerous times to get a hold of them, but their phone lines were either closed or nobody answered. I sent a few emails that were never acknowledged, then I receive a notice explaining that the fund I applied for was full. This seems like some sort of scheme as the average person can't get through the process and they wont return my calls or emails. Looks like I am not the only one having this problem.

Review from CharityNavigator

3

corvaad Client Served

Rating: 1

06/25/2012

I have had a similar experience to the previous review. I submitted an application, sent in required documents, then waited to hear back. No one contacted me for a month, so I called in. The lines are always busy, and any emails I send asking about my application status are not returned. This agency really needs to polish up its communication with patients.

5

Mary234 Client Served

Rating: 1

08/18/2011

I have been trying to contact the representative I was assigned to for several weeks. When I call he is never available. I asked to be assigned to another person and was treated rudely.

Review from CharityNavigator

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