My Nonprofit Reviews

At the age of 43 I was diagnosed with Waldenstroms Disease. I was told that although it is a rare cancer it grows very slowly and it could be years before I needed treatment. So very blessed with an oncologist from Fox Chase Cancer Center in Philadelphia, he told me he would like me to consult with a Doctor who only treats Waldenstroms Disease, at Dana Farber Cancer Center in Boston.
In 2010 it was necessary for me to begin my first round of chemo, with additional treatment in 2018 & 2019.
Twenty eight years later, my husband and I make the trip to Dana Farber several times a year.
In the early part of 2022, I became quite ill. I spent seven days in the hospital diagnosed with Covid and Sepsis. After spending almost 3 months on the couch unable to recover, we again traveled to Dana Farber. After Ct/pt scans, MRI’s, bone marrow aspiration and a lumbar punch, it was discovered that I developed Bing Neel Syndrome a rare spin off from Waldenstroms that affects the Central Nervous System. So rare I am considered one in one million to develop this disease. I am on an oral chemo med that has worked wonders. Yes it has its drawbacks, especially brusing, but I am still here. Thankful and grateful that I live to enjoy life watching my grandchildren grow and living life with my husband for over 50 years. PAM has assisted with my medication as well as travel expenses. Their personal are always personable and caring. So thankful for all there help…