My Nonprofit Reviews

I found the organization in 2009 when I attended a support group meeting. I was touched by the grassroots effort to bring support for those affected by Chiari and Syringomyelia. The annual conference is by far the best event for patients, caregivers and researchers to be able to mingle and discuss these conditions and the latest in treatment options. Being able to have conversations with the leading experts and to meet others with similar experiences is invaluable. ASAP just had their 35 conference and they really live their mission. ASAP is also partnering in research for these conditions. They have funded their own research as well as supported other organizations with their research funding. What is good for the community is important to the leadership at ASAP.