My Nonprofit Reviews

Thank you to MaryAnn and Robert at the helm of the NCAN organization. My spouse Barb was dx in Aug 2019 with NET of small bowel. This was after 5 years of unexplained bowel obstructions. A resection of the small bowel held the NET at bay until May 2022. The NET came back with a vengeance scattered throughout her liver. One month ago, after 8 months of dealing with the terrible side effect diarrhea bloating I contacted NCAN for help. After several phone calls and emails our daily dietary regime was tweaked to 4-6 small meals and the introduction of Enterade. The NCAN website is a wealth of info. The library of video conferences is helping us navigate this NET Adventure. It is a wonderful wealth of knowledge that you can access 24/7 that not only provides guidance but hope that you are not alone. That these ups and downs are “normal”. That it is a process to find out what works for you. Thank you NCAN. We look forward to a long relationship with you. Sincerely Robin Mignella (Spouse). Barb Sion the NET Adventurer