Neuroendocrine Cancer Awareness Network Inc

I called NCAN not even knowing what to ask. Maryann was informative, clear, empathetic, and helped direct me in the right direction. I really appreciate the time and effort put into helping others!

My dx was 2013 & I had never heard of Neuroendocrine Cancer. Scared & frantically searching the internet I stumbled across NCAN. I was sent a free package of information. Forever grateful for giving me peace of mind at the most difficult time.

NCAN has been a blessing for us. So thankful we found them!

I have asked questions of this group for someone I know dealing with a neuroendocrime cancer and they have responded quickly with useable information. They are prompt in their responses and truly care for those they assist.

The Neuroendocrine Cancer Awareness Network (NCAN) has been a true lifeline for me and my wife since my diagnosis in April 2020. Facing neuroendocrine cancer was overwhelming, and we had no idea what to expect. NCAN provided the support, education, and guidance we desperately needed to navigate this difficult journey.

Their impact is truly life-changing. Beyond offering emotional support and educational resources, NCAN has deep connections with the top medical providers specializing in neuroendocrine cancer. Their guidance helped us find experts who understand the complexities of this disease—oncologists, surgeons, and specialists who are at the forefront of research and treatment. Having access to the right medical professionals made all the difference in my care, and I can confidently say that without NCAN’s direction, my outcome would have been far more uncertain.

NCAN doesn’t just provide information; they actively bridge the gap between patients and the best medical minds in the field. They ensure that no one has to face this diagnosis alone and empower patients with the knowledge and support necessary to make informed decisions.

If you or a loved one are facing neuroendocrine cancer, I cannot recommend NCAN highly enough. Their unwavering commitment to advocacy, education, and connection to top-tier medical professionals is invaluable.

I have been attending patient conferences the past two years. It is a wonderful way to educate yourself about NET in order to advocate for your care! Very y helpful informative and empowering. Thanks NCAN!

I was diagnosed with Stage IV grade 2 neuroendocrine cancer in 2024 and immediately realized that I would need a support group to get through. The information, community, and support from this community is amazing and I look forward to becoming more active.

Neuroendocrine Tumor Cancer is not a well know Cancer. While the Specialist are growing across the US, there is still a shortage of Doctors that truly understand this very complicated disease. NCAN has been bringing awareness for over 15 years. Their mission and passion for education and resources has been a valuable Organization to many.

I have known this charity for at least 15 years, and always found them to be extremely responsive to myself and everyone else who has ever reached out to them, day or night
When I was honored last year by a local organization, they told me that they wanted to make a contribution to any charity of my choice, and I chose this one because ofthe number of people it has saved by providing important information while dealing with this very rare cancer! It is so hard to find people as knowledgeable as those connected with this outstanding nonprofit, and certainly as caring!!!

Very helpful for when my mom was diagnosed. We felt lost. They were able to guide us and assist us in so many ways. We are forever grateful.

NCAN was a life saver to us when my mom was first diagnosed with Neuroendocrine cancer in 2018. Her diagnosis completely blindsided us. Our heads were still spinning when I reached out to NCAN online for information. A volunteer called me back quickly, providing reassurance and helpful information, including connecting me with a local volunteer, as well. Together, they helped us navigate additional testing, steered us toward additional resources, including seeking a second opinion with a NET specialist, and have provided numerous virtual and in person conferences and leaning opportunities. They remained a great source of support over the years to my mom and myself, as a caregiver. I will forever appreciate NCAN and the valuable resources and support they provide to the NET community.

I was introduced to NCAN very soon after my initial NET Cancer diagnosis in 2008. Maryann and Bob were incredibly helpful in educating me about NETs by sharing resources about the disease. This was crucial at that time, as NETs being a rare cancer meant there was limited information. In addition, they connected me with other NET patients, providing much needed camaraderie with those also living with the disease. Over the years we have attended a number of the patient conferences they sponsored, which helped empower us to be better advocates for our own care (in partnership with our medical team) and offered insight into new, promising therapies and treatments. I am very grateful for their help and support over these past 16 plus years!

There is not a day that goes by that i am not incredibly greatful for NCAN. If it were not for them I would have never been able to understand my cancer or be guided to a capable doctor that could properly manage my care. I owe them my life for i would still have been with a doctor that had no clue how to treat me and my disease would have taken my life.

Shortly after I received my diagnosis of Neuroendocrine Cancer I received a fantastic package of information from them that was so helpful. The Neuroendocrine Cancer Awareness Network provides timely support via phone calls, texts and excellent social media information. They provide valuable resources to the Neuroendocrine community.

NCAN was one of the first organizations I learned about after being diagnosed in April 2017 with NET. I was immediately invited to a one-day conference on nutrition/wellness for the disease and there I learned of all the resources the non-profit group has to offer. We soon planned a one-day conference in my home town, where I met others struggling to gain more information to help in recovery. At this conference, a half dozen experts made presentations and is where I heard about PRRT. A treatment that I had to advocate for with my oncologist, but soon was able to be medically approved. After a few months, I had tremendous results! Thank you to the NCAN organizers for making such a difference in my life while living with a rare cancer. Kathleen Cartland, Charleston SC, 10/8/24

This network has been an immense help as I navigate through my diagnosis. I am thankful for the information packet that was mailed to me and the pod casting is great. I’ve learned so much from it!

NETS Cancer Awareness Network has been great to me. It makes me not feel alone with my cancer fight.

For 21 years NCAN has been advocates and leaders in the NET community! They have guided thousands of patients through their journey!

The NCAN events are a great opportunity for patients to learn, network. They inspire hope & strength support ������

I've been working with NCAN for more than a decade and they never disappoint! So patient focused and provide a great resource for neuroendocrine cancer patients.

I was diagnosed with Neuroendocrine Cancer in 2008. It was bad enough to deal with the diagnosis but was more difficult deal with health professionals that did not know much of anything about my cancer. NCAN provided information I need to make informed decision and have hope. They also allowed me to meet health professionals that were more informed about Neuroendocrine Cancer. I can honestly say I may not of been here to write this review without NCAN. The service they provide is invaluable.

Incredibly knowledgeable and always willing to help anyone who needs it. Its a great org and the Wahmanns know everyone in the NET community that can help!

I am currently being tested for Neuroendocrine Cancer. I found the Neuroendocrine Cancer Awareness Network and am amazed at all the wonderful educational information I found there. Whatever I learn from these tests, I feel more prepared for whatever I learn from this testing. If the biomarker points to this, I know what to ask the doctors and have more knowledge about the types of treatment, surgeries, etc. They have a large number of videos highlighting conferences and their NETs Get Real conversations with specialists, and live streams and presentations. They offer support through support groups and a hotline, plus opportunities to receive updates. It's all been so helpful to me as I await the results of testing and possible diagnosis. I feel encouraged and less afraid.

NCAN has been an invaluable resource for me while dealing with this disease. Through NCAN I receive direct information, invitations to patient conferences, and am able to communicate with fellow patients. We are able to ask questions and find answers or referrals. And sometimes we can help someone else dealing with the disease.

I check the NCAN Facebook page multiple times a day to read and participate in discussions. Many are helpful to me personally.

The folks who manage NCAN are knowledgeable, caring, and are impacted by this disease personally. They understand and appreciate our fears and struggles like no one else can.

I don't know where many of us would be without NCAN to turn to.

NCAN does so much work to build community both locally and nationally for Neuroendocrine patients and their families. NCAN helps bring awareness to this unique cancer while supporting those affected by connecting them to others like them, leading experts in the field, and ongoing research. This organization has helped thousands to not walk this journey alone and is a vital resource for the neuroendocrine community.

NCAN Was there for us during the most difficult days when my mom was battling her endocrine cancer. We would reach out and get a real live person on the phone who understood what we were walking through and facing. There were so many resources made available for us to help us educate ourselves and find the right specialist for my mom. I cannot tell you how much of a difference this organization made in her life and quality of life.

I’ve been working with NCAN for the last 4 years. I’m with a radiopharmaceutical company that has been supporting Neuroendocrine testing / patients for 30 years. I have enjoyed working with the entire staff and founder. Terrific and passionate people who care about the patients and education. The NETs physicians who assist with NCAN are excellent , very knowledgeable and dedicated. The patients and caregivers are committed to learning all they can about NETs. I’m a big fan of NCAN ! ������

My son Brian was diagnosed with a rare and aggressive NET in Feb of this year. There is no oncologist with experience with this cancer where we live. I am so grateful that the founder of NETAwareness (Maryann Wahmann) put me in contact with a specialist in Miami..Dr. Chauhan at the Sylvester Cancer Ctr. Recently Brian's cancer began to grow and we neded advice as to what options were available for him. We are so grateful for Dr Chauhan's collaboration with Brian's oncologist and to the openness of Brian's oncologist to getting input from a specialist in this cancer. I will always owe a debt of gratitude to Maryann Wahmann and her help in connecting us with Dr Chauhan. Brian needed help quickly and Dr Chauhan's willingness to connect so quickly has made such a difference.

I am so grateful to Maryann and her advocacy network NCAN. I was diagnosed in September and was recommended to her by a relative whose wife lost her 15 year battle from this rare disease. Maryann immediately listened to my story and advised me to see a net specialist immediately. At that time I was seeing a regular oncologist but was searching for a second opinion. I was going to travel out of state, but Maryann recommended someone within an hour of my house. She is a wealth of knowledge, and very accessible. She and her husband are so dedicated to her network and are always promoting and bringing awareness to neuro endocrine cancer. Thank you for your kindness. We are all grateful for your dedication.

The team at NET cancer awareness are amazing!!! They are so knowledgeable and helpful and provides so much insight and knowledge to patients and families alike! The NET community is blessed to have them as a resource and be able to tap into all the amazing things that they do.

My husband and I attended the NCAN patient conference in Silver Spring MD this past weekend, and after everything I learned I realized I am at a very critical crossroads with my cancer and need a 2nd opinion from a specialist before my doctors proceed with the next treatment. This conference of patients, experts and supporters really woke me up to the fact that all NET patients (zebras) need to at least consult/visit a NET specialist sometime in their journey, and that short term and long term strategy must be applied to treatment plans for best chances at long term survival. At this conference not only did I get answers to my questions, but I had the opportunity to speak directly with a specialist/expert about my disease and gain invaluable advice regarding next steps on treatment. The whole event was fascinating to me, as the doctors explained different characteristics and treatments for the disease in terms that were understood by all of us not in the medical field. This conference has been a true turning point for me as I was scheduled by my own doctors to undergo a procedure that the experts/specialists did not recommend. Now my whole course of action has done a 180 degree turn, and I am seeking a second opinion by a specialist before moving forward with any treatment. There is no other place that I could have went where a team of experts converged to educated NET patients and willing answer questions. I also wanted to mention that the “family” atmosphere of the conference, the heartfelt preparations made to accommodate us zebras, and the words of NCAN founder Maryann Wahmann gave me hope again and determination to advocate and fight for myself and not give up. This conference has changed my life. Afterwards I contacted MaryAnn Wahmann (founder of NCAN) and she gave me great advice and set me in the right direction to obtain the 2nd opinion from a specialist that I desperately need.

My history- diagnosed 9 years ago with PNET stage 4, metastatic to liver, grade 2 well differentiated. I had a distal pancreatectomy with removal of spleen and gallbladder, and the surgeons rerouted blood flow in my liver so that it would grow in size, as my next surgery was to remove the complete right lobe of my liver as tumor’s burden was too much. This was in 2015. Over the years I have had 3-4 ablations (microwave and cryo) to my liver and surgery for bowel obstruction. In 2019 they resected my liver again due to numerous tumors, and they also found PNET tumors in my colon and removed them (partial colonectomy?) tumors in colon were now grade 3 well-differentiated ki67% 20.
After that I had another ablation or 2, and had been on CapTem for 2 years (have had lanreotide shots for forever). I took a break from chemo, and now there are numerous tumors in my liver, that were not there on my 10/22 scan. My doctor is suggesting Y90 treatment option, and have me scheduled for mapping on 4/4/23. I need an expert opinion on what my options are and the true risks, as currently my liver function is good and I know the risks of Y90.

I attended the 2022 Gala for Life and had the pleasure of meeting Maryann and Bob. I was so moved by the incredible work that this organization does to help people with Neuro Endocrine cancer. This group goes above and beyond to be a resource and to help everyone who needs them. I was both honored and moved to be even a small part for that one evening. The gala was fabulous, the food was amazing, the company was outstanding…and the seeing and understanding purpose behind the gala was powerful.

I have a friend who volunteers with this organization & that is how I learned of the disease. They have a wonderful website that points you in many directions: free info packets, financial help, clinical trials, & many other resources. They also have a podcast, YouTube channel, & hold events, all to share information & spread awareness. If you need help or know someone that needs help, finding their path to treatment, I would not hesitate to recommend this organization. I am now more informed.

I am not personally affected by neuroendocrine cancer but do know several people that are. From helping them maneuver their way through the scary medical world and connecting them with specialists , offering emotional support and education: the impact that NCAN has had on their journey has been tremendous.

I have been volunteering for this wonderful nonprofit for over 10 years. I have had the opportunity to attend several regional and national conferences, many walks and have attended over 13 Celebration of Life Gala's. Bob and Maryann Wahmann are wonderful people who have been working to help patients and care givers for 20 years. As a volunteer at the conferences I have seen so many people show up with fear and uncertainty about Net Cancer diagnosis and leave with hope and a plan to move forward! NCAN does a great job at helping people with Net Cancer get the information and help they need!!

I have been working for NCAN for 10+ years and have had a front row seat to the Wahmann family's passion and dedication to helping the NETs community. They work tirelessly throughout the year to give patients and caregivers the tools they need to advocate for themselves on their personal Neuroendocrine Cancer journey. It's been a pleasure and an honor to be a small part of what this organization does. If you need help with anything, they will be there for you. If they don't have the answer you need, they will find someone who does. When they say, "No one here fights alone", they mean it!

We are so grateful to NCAN for their tireless efforts and advocacy for NETs patients. After my husband was diagnosed with an inoperable tumor and was told to get his affairs in order, we went on a desperate search for help and second opinions which all ended up nowhere. After contacting hospitals, surgeons, Oncologists and getting no help, I called NCAN on a Saturday with not a lot of hope. They not only answered my call, but patiently listened and researched and gave me options to look into. One of those options (a NETs specialist group in another state) wound up saving my husband's life. My husband is now living with his NETs. We continue to support and follow NCAN as they l selflessly give their time and energy to help end NETs and provide information and support to patients and their families. We are forever grateful!

I am the Director of Clinical Research at the LSU Rare Cancer Program at East Jefferson General Hospital. I have had the pleasure of collaborating with NCAN on several patient-care improvement studies and find the support of this organization invaluable in my research. Additionally, our care team has been able to attend several NCAN conferences, which not only allow us to connect with the patients we serve, but continually learn from the feedback we receive from the patients who attend these meetings. Keep up the strong work, NCAN!

This group goes above and beyond to help caregivers of NET patients. The information and meetings, online or in person are invaluable support to those of us trying to navigate this disease for our loved ones.

We’ve been on quite the journey over the past couple of years getting our teenage daughter help for an array of unsettling symptoms. And we’ve felt relatively alone & on our own. When I asked a question in the NCAN Facebook group, I was so surprised by Maryann’s offer of help with a phone number to call. She & her daughter, Tricia, spent over an hour on the phone with me offering advice & genuine help. I’m so grateful for their help & feel relieved to have new friends to help us navigate our daughter’s care! I cannot recommend NCAN enough!!

I just found out I have NET in my ilium and liver so it’s been a rough couple of weeks, mostly not knowing anything about this rare cancer. Think it’s an early catch so my local docs are optimistic.
Although I’m not generally very proficient in social media, I decided to search FB to see what’s out there. Much to my joy, I found NCAN. Actually listened to a few podcasts, called the hotline today and MaryAnn called me immediately (Saturday am). You can imagine how impressive that is to have someone like her and Bob leading the way on such an important health topic, especially in todays health care environment where it’s easy to feel like a #.
I look forward to this journey and am hopeful that my outcome will be successful and long lasting like so many that share in this problem. With this group helping me and my family, I feel better already. Thanks x10 for all you do!

I am very thankful that NCAN exists. I was diagnosed 5 years ago with NETs in my illeum following a GI bleed. I had been asymptomatic leading up to the diagnosis. I had the area resected quickly after the diagnosis. I have been followed by a care team for 5 years, but the tests being done did not make sense to me - they had all been done prior to the resection and did not show any tumors. For the past 5 years I have been wondering if more should be done. Finally I met a fellow Zebra who told me about this group and gave me a number to call. She followed up with me and made sure I was going to call, it was very important to her. I am so glad she did because I received more information in that 30 minute phone call than I have from my doctors and my own research in the last five years. I was given the names of two specialists in my area, the scans to request, and answers about what to recommend to family members who are concerned for themselves. I can tell this is only the beginning of my relationship with NCAN but I am already so happy that I have found them. Thank you so much for your time!

My wife was diagnosed, by accident, with NETumors. She had severe NET symptoms for 6 months, but no doctors could diagnose. She was in the ER nearly a dozen times. During an urgent hysterectomy a tumor was discovered. The news rocked our world. We'd never even heard of NET.

Someone recommended we call NCAN. They were incredibly helpful in giving guidance & encouragement. They helped us find a trusted NET surgeon in our area, and got us off to a great start. Their help has been invaluable to us. We're deeply grateful.

This organization is an amazing must have for people with this disease. The support, knowledge and constant help is 150 percent there. Without it there would be a lot of scared, hopeless people, with it fears are calmed and hope is given. Can’t say enough good about this group.

I contacted NCAN after being recently diagnosed and had many questions. After speaking with them I had a better understanding of my situation as well as confidence that I am making the right decision concerning my treatment. I can’t thank them enough.

NCAN is a great source of accurate information and compassionate support for the entire NETs community. I’ve been a beneficiary of their support for over 10 years. Their regional and national conferences are professional, well run and a terrific resource for all NETs and medical professionals.
Many Hundreds of NETs patients are more informed and enjoying better lives due to NCANs efforts!

I have referred many people to this organization and they have been nothing short of wonderful. NCAN makes a tremendous difference in the lives of so many people who are scared, anxious, and desperate for help dealing with and understanding their cancer diagnosis.

I'm a NET focused oncologist who has been working with NCAN for the last 10 years. I have seen the support they offer patients first hand and have seen them grow throughout this time. Even with the pandemic they managed to continue to offer the same level of support uninterrupted. They are truly a special organization and always happy to help out.
Robert Ramriez, DO, FACP

When neuroendocrine cancer hit the Wahman family, it resulted in an explosion... not the usual destructive kind...but the creation of a non-profit organization and website with dissemination of information about NETs , a help-line, and the coordination of recurring patient-oriented conferences which bring world-renowned experts to the patients who urgently need the up-to-date help in their battles against these orphan tumors.
Their incredible efforts have resulted in life-saving rescues of patients often struggling to stay afloat without the answers needed to diagnose and treat their rare cancers which often go undiagnosed for years because of physicians' lack of adequate knowledge about the patients' diseases. The results of NCAN's dissemination of knowledge has benefited not only the patients touched by these efforts but their health-care teams as well! NCAN's efforts are not only extraordinary... they are the gift that keeps giving, year after year!!
Jerome S Zacks MD
Associate Clinical Professor, Medicine/Cardiology
The Icahn Medical School at Mount Sinai

Founder and Medical Director
Carcinoid Heart Center
1120 Park Avenue
New York, NY 10128
201-647-8400 mobile
866-813-9297 fax

I am truly impressed and amazed with the incredible work that is done everyday by the nonprofit organization called Neuroendocrine Cancer Awareness Network (NCAN). Maryann and Bob Wahmann and their entire team put 100% of their time and effort into bringing awareness to this terrible disease. They have made it their mission to educate people and to raise the money that is necessary to fund research to find a cure. They provide comfort and guidance to those affected and give them and their families hope for their future. I feel honored to be able to support this great organization and their cause in any way possible. Linda Daulton, Long Island, NY

We met Bob and Maryann several years ago through a mutual friend as they relocated to South Carolina. They have become very dear friends, breaking bread frequently and sharing in life's story. Their incredible dedication and commitment to helping those with Neuroendocrine Cancer is inspiring. Simply reading testimonials of patience demonstrates the impact NCAN delivers.

I have known Bob for more then 50 years. I have yet to know a more dedicated, honest and caring individual. The leadership he and his wife, Maryann, also a patient, have given to this organization which they founded has brought it from a local NY non-profit to a nationally known leader in information about this little known condition. Through their efforts, many patients have found and received diagnosis and treatment they would not have otherwise found. It has been an honor to work with them and I hope their success continues informing and saving more patients.

Hi, my name is Leah. I was diagnosed with Neuroendocrine cancer in 2011 without even knowing anything was wrong with me. I was so surprised after having a hysterectomy that I had a tumor in my ileum. I started looking for information and it lead me to Maryanne and NCAN. I'm telling you best organization for patient information, support, help, direction and family like love. They are truly invested in the life of people. I'm so glad I connected early on in my diagnoses. I don't know where I would he without NCAN!!!!

Over 20 years ago I was diagnosed with Gastrinoma, a form of Neuroendocrine (NET) cancer and I came to know MaryAnn and Bob at the same time as they were just starting to advocate, educate and provide opportunity for peer support. They have taken their local New York efforts national (even international) since then, creating an incredibly valuable network aimed at educating and providing peer-support for those with NET and their caregivers; educating physicians and other healthcare providers; and advocating on behalf of the NET patients community including providing structure and support for local support groups allowing them to have their own educational programming, running a national conference for patients, caregivers and physicians, promoting communication among physicians and other health-related industries, and promoting research for these under-researched forms of cancer. I have seen them grow their efforts over the years and am very impressed, and GRATEFUL. The work of NCAN truly has helped to change the course of NET and people's lives. - Thank you!

I have had a front row seat to how NCAN empowers NET patients and their caregivers with the information, support and services they need to live their best lives with Neuroendocrine cancer for 12+ years. The entire Wahmann family is dedicated to NCAN’s mission of helping patients become better self advocates and raising awareness for this disease. And it’s been my pleasure and honor to help them.

Many years ago my mom was diagnosed with nets and said she had 6months to live by local,John Hopkins and a team in Jax fl thru a lot of prayer and late night on the internet we found ncan ! They lead us right to help and we where bless with 6 more years with my mom . They pointed us to the right doctors and with the knowledge Bob and Maryann the founder has on nets they we able to help with guidance on moms care as well as be a main support beam in our lives. We had plenty of emergency calls to ncan for guidance and they never failed . Because of the attitude willingness to help others and the sacrifices I have seen made by ncan putting the zebras and the family members first I knew I had to get involved. Out of all the volunteer work I have done this by far is hands down have such great people actually caring it so nice . I am so proud to to be part of the ncan family and am so thankful everyday for the great people for rally around ncan ,the founders and every single person passing out a info pack daily ! We are zebra strong.

Maryann and Bob who founded NCAN years ago are the real deal and have worked day and night to help NETs patients. When my wife Lynn was first diagnosed in April 2015, we discovered there was a patient directed NCAN conference 5 hours away where we could hear and meet many of the leading NETs experts from around the country. Being newly diagnosed, the information we received was invaluable. Since then, I formed a NETs patient group in Wisconsin and we have become a chapter of NCAN.

Oh my goodness! NCAN has helped me in SO many ways! First & foremost they helped educate me! I got the free information packet & joined the FB group. The kind support and having a safe place to go ask questions or maybe talk about symptoms etc is HUGE! Of course I talk with my net oncologist but NCAN gives me the support I need in between those appointments. I will be forever grateful to this group as I continue on my NET journey.

I cannot imagine not having this group. My mother was just diagnosed with NET in her lungs and after talking to the group and the admin, I realized my mom was seeing the wrong doctors and not being tested for the right things. I feel so fortunate to have found NCAN and I can't imagine going through this without them. Their advice and support is a gift like no other. I will be eternally grateful.

Our dealings with Neuroendocrine Cancer Awareness Network have been very informative since it's inception. Maryann and Bob Wahmann, who are the founding members, provide resources and educational information that are attuned to the latest developments in the neuroendocrine healthcare. This is accomplished through group meetings, state and national conferences, user friendly website - just to mention a few of the many services provided.
My husband is a patient with neuroendocrine disease diagnosed in 2005. We have used these resources many times through the years. They have provided personal support and guidance during difficult times. We are blessed to have a neuroendocrine community of people with shared experiences who we have befriended and could turn to in times of distress because of this organization.
For a rare cancer it is indeed so beneficial to have these tools provided by NCAN.
Thank you NCAN team!

When first Dx w lungNets back in 2009 I was uninformed and naively believed everything my oncologist and surgeon told me...my onco was great and explained NETs to me and answered all my questions; the surgeon basically said go live your life, I was good to go after my lobectomy. I continued w scans and bloodwork and on my 5th yr anniversary scan we found bronchial mets....at this time I knew I needed more help. I googled neuroendocrine cancer in Ohio and a Buckeye group came up...I attended my first support group meeting in Columbus in May 2014, met many NET patients and was overwhelmed with information. I was advised to contact NCAN.(Neuroendocrine Cancer Awareness Network). I did so and received brochures,a packet of educational info and learned of their Facebook site. From there I learned of more FB sites, other support groups and have always been able to have questions answered quickly by Maryann. The conferences and presentations are always full of great speakers with current and future treatments, meds, and trials. This is a worthwhile organization that helps so many newly diagnosed patients.

Going through for the years I have been is difficult. NCAN has been a great help in so many ways. I live in a rural area and not many doctors around me or people are familiar with NETs. Maryann and NCAN are available for support not just with giving resources but also to talk. Over the years even as she has been fighting this terrible cancer she has been there for me. Thank you. You are great!

I have worked with NCAN for over 10 years and can attest to the wonderful work they do to raise awareness and help educate patients and caregivers on current techniques for the diagnosis and management of NETs.

An awesome group with a wealth of information and resources. I’ve gained so much knowledge and received a lot of informative materials. Keep doing what you all are by sharing, caring and guiding.

This is a fantastic organization committed to NET patient care, education and support. Patients who have attended the conference speak highly of their experience and count NCAN as one of their blessings. As a medical provider I have learnt a lot about advocacy and the impact that empowering patients with knowledge can have. The dedication, hardwork and commitment from Maryann Wahmann and her team shows in every event, interaction and communication I have had.

NCAN (Neuroendocrine Cancer Awareness Network) has been a great organization for patients with neuroendocrine tumors (NETs). They have been for many years a great source of updated medical information about the most cut edge treatment options for NETs' patients. In addition they have a great interactive educational sessions with NET experts from around the country which definitely give patients a great opportunity to ask questions and to be educated about their disease. I highly recommend NCAN as a great patients advocate society for patients with NETs.

I was dx in 1999. A few years after NCAN started. They have been the best support through my journey. Keeping me up to date with all the latest information and giving support on those rough days. Very blessed to have NCAN support as I navigate this rare cancer.

We are so thankful for the NCAN, not only did I receive excellent information to review but also a very personal heartfelt conversation on personal experiences and suggestions on things we can do to help with my husband current unresolved issues after surgery. Such a wealth of information and Maryann is super sweet and very easy to talk to! Thanks again for all your help! ❤️

NCAN has been an absolute blessing for me and my family. Upon learning that my mother was diagnosed with a NET, this was the first place we were able to turn to for information and guidance. MaryAnn is INCREDIBLY knowledgeable and she truly cares about what's going on. She's easily accessible and gladly shares what she knows, and was able to direct us to the care of a specialist. THANK YOU THANK YOU THANK YOU!

NCAN is a 24/7 resource for NETs patients/family/friends that is selflessly run by Maryann and Bob Wahmann. The administrative overhead is minimal and every facet of this non-profit is geared to service for the patient!

As a 7+ year NETs patient, NCAN has been of inestimable value to me for information, referral and support.

Hi my name is Anita Lux. My sister was diagnosed with NETS on a Friday. Of course, we go straight to the internet, probably not a good idea. We has it set in our minds that she would live 5 years. Then I joined a facebook page and Maryann Wahmann reached out to mefrom the Neuroendocrine Cancer Awareness Network. From the beginning, Maryann was a true GOD SEND. She offered to meet with me and my brother in law via zoom immediately (on a Friday night). We met and I absorbed so much information and now have a support system. Yes, day 2, I woke up knowing I had a support system that we could depend on. We met with Maryann again via zoom early Saturday morning (she so graiously offered to do this so my sister could be inculded this time). So now, even before our oncology appointment, we feel we have been well informed. The feelings I had after our meetings were indescriable, knowing that we have the knowledgeable team and support system to go through our journey with us. We are now part of a TEAM! Thank you to Maryann!

It will wake: You’re so young you will heal up quickly. Plus Carcinoid once removed , it is never a problem later. Well, That Lie made everything change. 2004 my appendix blew in The surgeons hand. And she said it was messy. She found a rare tumor called a carcinoid tumor, she said it’s not a big deal we will do a right colon hemicolectomy I was 22 years old. No one knew anything about Carcinoid, yet alone a Syndrome? A few years down the road I became very ill. My family doctor knew I had Carcinoid Syndrome, but the other doctors believed it was in my head. Or I had something else. I didn’t and don’t show in my scans at all. My left lung they found is a scar tissue not from asthma but of this cancer. I needed more information. I looked so hard but then I found the NCAN the true “Hope for NET Cancer Patients, it does start here.” It really does. All you have to do is Ask, and that answer will be given. Or it will be found. There are so many Facts, Answers, and Real People who will listen to you at any moment in need. I have learned so much, and the help that I have gotten. I know that I’m in amazing hands when my doctors say to me “I’ve never heard of that symptom.” I can go and get ahold of NCAN, explain the issue, and there will be some sort or answer. Since our cancer is so Rare and so Uneducated, they are helping us by having a mission to not let us slip through the cracks. You can tell this is their passion. They get 5 Stars all the way. Laura Robinson-Marsh

I was diagnosed April of 2014 with a neuroendocrine tumor of the ilium. My local oncologist referred me to a NET specialist at Mount Sinai Hospital in NYC, Dr Richard Warner. I went to my first appointment with so many questions about this rare cancer. There wasn't alot of information out there at that time. Dr Warner answered all of my questions and also suggested I go to a NET conference that was being held later that month in NJ. That was the first time I met Maryann and Bob. I learned so much at that conference. The most important thing was I was not alone. My husband and I have since participated in many NCAN confrences and events.
Maryann and Bob have done so much for the NET community like spreading awareness,education and Netspiration with Maryann just to name a few.
I'm so grateful that I went to that conference and met Maryann and Bob. They have helped me through this ongoing journey.

NCAN is a national organization that helps Neuroendocrine Tumor patients navigate through their disease journey. They provide support for these patients by hosting national conferences, local/regional/national support groups, and patient events. They engage in virtual communication and offer daily inspirational podcasts regarding life with NETS. Maryann and Bob are one of a kind. They care for these support group members as if they are their own family and provide resources and a helping hand. They have dedicated their lives to the mission and let NET patients know that they are not alone.

Maryann and Bob at NCAN have been a great resource for educating patients with neuroendocrine tumors! They have been a pleasure to work with.

The NCAN team does their very best to keep patients and their families informed about NET, as well as offering advice and resources. They mail materials, host educational events, provide inspirational content, and spend hours on the phone answering questions and connecting people to the help they need. NCAN has also established a network of support groups around the country to make education and support accessible, especially in areas that are underserved by medical experts.

My family has volunteered with this nonprofit for years in many different capacities. We have seen them grow year after year. We have helped out at the walk in Nassau county, New York. We have helped out in many different ways at the annual Gala also in New York. We saw first hand how hard the Wahmann family works at the national conference and many other events. I have attended a different non profit conference that has been around longer and has more $(different disease) and was so disappointed with how poorly it was run compared to ncan!!
Naively I thought it would be run as well and as smoothly as Ncan. Maryannn,Bob and family work and travel to help spread the word about this disease and how to fight it. Getting information out is something they have been doing for years. Coordinating with drs, drug companies and patients is something they are passionate about. Getting funding for nonprofits is an uphill battle especially for lesser known ones but this hasn't stopped them . They do this day in and day out. They do this not just for themselves but all patients and families that this disease has affected.
We are proud to help them in any way we can.

I have learned more from this resource than I did from the hospital staff. Their support helped get me through rough times. Always educational.

My wife has Neuroendocrine Cancer and while searching for information on her cancer she became involved with Neuroendocrine Cancer Awareness Network. She began to discuss lab tests, scans and other tests for patients which were not available in our area. She discussed different treatments and wondered if they could help her cope and feel better. Truthfully, I listened but privately didn't know what to expect.

In the fall of 2014, we attended a National Conference hosted by NCAN. At the conference, as we met other patients and caregivers, I watched my wife come back to life. I realized we both needed this outlet for education and support.

We have continued to be involved with NCAN and attend as many functions as possible. We participate in a monthly NCAN support meeting for our in state patients. Several caregivers attend the meetings and we are able to share within the group or privately. Everyone encourages the other members, celebrating the good times and supporting each othef during the bad days.

I look forwarc to the conferences and educational seminars where we attend the educational sessions, make new friends and reunite with old friends. NCAN is very beneficial to NET patients and plays a vital role in the life of the patient and their caregiver.

There are no words to adequately express my gratitude and appreciation for Neuroendocrine Cancer Awareness Network (NCAN) and for everything they do to bring awareness, hope and education to the NET cancer community. Under the tutelage of Maryann and Bob Wahman NCAN has touched and impacted the lives of NET Cancer patients in ways that far exceeds other organizations.

NCAN, makes every effort to educate and encourage NET Cancer patients and their families. Upon contacting NCAN the patient or caregiver receives a ' NCAN New Patient Package' which helps the patient to better understand NET Cancer and how to navigate the NET Cancer journey. NCAN provides hope where there was none.

NCAN hosts National Conferences and Regional Seminars in which acclaimed NET Cancer Specialists present topics on treatments, surgeries and nutrition. During these events the patients have the opportunity to ask questions and often receive valuable information to share with their local doctors. Also, the patients have the opportunity to meet other NET Cancer patients and create strong friendships. This may be the only time a NET Cancer patient meets a fellow patient.

NCAN, keeps the costs associated with attending the events to a minimum. Neuroendocrine Cancer is an expensive cancer to treat and many patients have lost or given up their jobs as they are too sick and fatigued to work. In addition, NCAN posts many presentations on-line in order that as many patients as possible have ever access to the material.

Many NET Cancer patients are told, 'NET Cancer is the best cancer to have.' I can't agree with that statement but I irrevocably state that 'NCAN is the best Nonprofit group for NET Cancer.

NCAN has helped my family and many others! They are vital in our cancer community.

NCAN is a true patient advocacy group that is comprised of all volunteers, many of who have this rare form of cancer. The founder of the group is a patient who has taken up the cause to brings awareness of the disease not only to the patients but to the medical field. Because of their efforts there are now more doctors and pharmaceutical firms are focusing on the disease.

Nine months after my Neuroendocrine Cancer diagnosis, I attended my first NCAN regional conference. That day was a defining moment in my new life as a cancer patient. The presentations and the professionals were exceptional, but it was the experience of meeting others who shared my rare diagnosis that allowed me to believe in my future again. Bob and Maryann have devoted more than a decade of their lives to bringing awareness of Neuroendocrine Cancer to a very poorly acknowledged group of cancer patients. Their efforts to educate medical professionals and patients are a direct link to the high quality of care I now receive. I am eagerly anticipating my third NCAN conference in September 2019.
Thank you, Anne Dabbs

NCAN provided valuable information to my mom and I to help guide us to the right specialist. They have provided support, encouragement and a sense of unity that I can not begin to explain. I am forever grateful to NCAN.

When my world of cancer became dark and dreary NCAN was a blessing in my sea of suffering. They were like a guiding lantern lighting up my life and saving me from additional strife.

I was diagnosed with a PNET 12/2017. I have never heard of Neuroendocrine Cancer prior to this. I get online and start to Google, I came across NCAN's website and requested a patient pack be sent to me. It was so informative and I quickly learned a lot of information. I then spoke to Maryann a few times with questions. In March of this year I got to meet Maryann & Bob along with the rest of the NCAN leaders and I have to say it was the best feeling I have had in a long time. Everyone is so wonderful and the support they have for patients and caregivers is above and beyond. I am so happy that I found another family and great support system.

When I was initially diagnosed in 2012, and subsequently had my Whipple, Mary Ann was very positive, and encouraging. I have called on her a few times and she had been able to answer the question I had or refer me to someone that could. Thank you Mary Ann.

Toba

I was just recently diagnosed with this cancer and would love to know who to speak to about it. I can’t find any info on th web about this. Who do you talk to to get a the information you have? I’m 33 years old and want to have a better understanding of my cancer. Neuroendocrine cervical carcinoma. I was told it’s rare and they want to treat it like lung cancer. Still trying to figure out how to reach out to people here to talk and get info. Help please:)
I live in Nashville TN. Not sure why it says NC

Words cannot express my deep love and gratitude for NCAN. They care immensely for the community, make it their priority to help others in all ways possible, put on amazingly educating conferences that change people’s lives and so much more. Being a part of these conferences have been vital in keeping my husband alive and well. We are so fortunate to now be a part of it as well as have gained so much from all they do for the NET community. I am in awe and inspired daily by them!

As a patient and a support group leader, I am blessed to have our group as a member of NCAN. Before I learned about NCAN I had a local independent support group that fell apart when I had personal health issues. With the help and support of NCAN we now have a local group that will be sustainable because of the invaluable information, training and support we receive.

I had the opportunity to attend NCAN's Chapter Leadership Training last week (04/13 - 04/15). It was an outstanding meeting in which I learned so much about the structure of a successful meeting. Most importantly, I gathered important leadership skills which I will utilize within our local group.

The agenda was well presented and followed by the speakers, presenters, patients and caegivers. The facilitator, Rick, kept the meeting running smoothly and adhered to the allotted time frame for each segment with breaks for meals. The sessions began and ended on schedule which requires skill when people are asking questions and sharing input. Rick managed to include everyone and each participant had the opportunity to be involved.

The presenters were very well prepared and knowledgeable in their area of expertise. As a patient, I am thirsty for information about Neuroendrocrine Cancer, a complex disease which is hard to detect, and treat. It is wonderful people, such as the speakers and presenters who participated in the meeting, that keep us informed and encouraged.

The meeting crystallized the importance NCAN plays in so many patients well being. Maryann and Bob Wahmann, the staff and volunteers are relentless in their passion to bring awareness to NET Cancer and to assist patients and caregivers on their NET journey.

The knowledge and skills I garnered at the meeting will be utilized to conduct our local chapter of NCAN support program and meetings in an empathic, knowledgeable and proffessional manner. The knowledge will be utilized to better meet each members needs and identify ways we can be of service.

Thank you to everyone that helped in making the meeting a success.
A special thanks to; Maryann, Bob, Patrice, Rick, Dr. WANG, Leigh Ann, presenters and all sponsors.

Paula Hurt
TN Chapter (NCAN)

First time attending the NCAN conference. This is for chapter leaders. I have learned so much about myself, other people facing this cancer. Knowledge, tools, friendships. Amazing. Thank you Maryann, Bob, Patrice and Rick for taking me under your wing and tackle this cancer with awareness and love. Incredible Dr. Wang as well. He is a hero. Thank you again. Danielle

I attended the national patient conference 2 years ago when looking for answers and direction with a lack of such anywhere else. The information presented was invaluable and has led me in pursuit of not only obtaining the best care I can get for myself, but the ability to extend to others I come in contact with who may be looking for the same. Mad love and admiration for the founders and those involved in this foundation!

In April 2013 I had exploratory surgery and diagnosed with stage 4 Neuroendocrine Cancer with primary small bowel and multiple mets. I was told if I had" to have cancer this was the best to have". I started searching for information ( being a nurse for 39 years I needed to educate myself). I came across the NCAN website. This website was so informative, educational and had lists of NET specialist. I did attend a National Conference and plan to go again in September. I give many thanks to NCAN for this opportunity to continue to be educated. So important for Zebras in fighting this cancer! The staff has always been helpful and kind to me.

Professionalism at it’s finest. Maryann, Bob and the rest of the board are always thinking of the patients first and how they can make Neuroendocrine Cancer better known in the medical community as well as the public. What a great cause!

NCAN has been a lifesaver for me by educating me about my rare cancer and its treatments. Cancer is scary enough but I feel empowered by the knowledge that I have gained to have an informed conversation with the many doctors who treat me and the new treatments they offer. I am amazed at the high quality programs that they offer to patients, caregivers, and healthcare providers with minimal costs to participate. I am also deeply thankful for the many friends I have met through NCAN.

The folks at the Neuroendocrine Network are always very helpful. They provide much needed information and counseling on this rare disease. The conferences are invaluable for patients and caregivers.

My mom was a Zebra (carcinoid patient) this organization has helped us empower ourselves to reach out and find the best possible treatment options and has provided support second to none. I hate to think where we would be with out the amazing conferences they organize. Thank you!

After over 7 years of struggling with this dreadful disease and exhaustive searches for the right medical care NCAN came to the rescue. I attended one of their sponsored presentations in another state and within weeks found the best medical team I’ve ever encountered. I now have the care I need, that I can afford and a game plan for my future. I am no longer battling this disease alone. Forever indebted to this organization and the tireless, caring people who run it.

NCAN is an awesome nonprofit organization! The Neuroendocrine Cancer community doesnt receive funds from the American Cancer Society as the more common cancers do. So, it's phenomenal that NCAN spreads awareness for the medical community, patients, and caregivers through fundraisers, conventions, etc. Thank you Mary Ann and Bob for all that you do.

I was dx with stage 4 Neuroendocrine Cancer Jan. 2013. Having a long family history of cancer (none Net) I felt lost and hopeless. I had never heard of Neuroendocrine and frantically searched the internet. I stumbled across NCAN & reached out to Maryann who sent me a package full of helpful information. I sincerely thank NCAN & Maryann for giving hope to the hopeless!

Hi Maryann, I'm a nurse who works in adult oncology. I had a patient last night who found his way to us and a very important surgery because of you. I wanted to thank you for what you do and for the ginormous amount of hope and happiness you have brought to this man and his family's life. He was crying tears of joy for the way you changed the path of his life.
Thank you for what you do

The NCAN provides a very unique support for the many patients with neuroendocrine tumors (NETs). When diagnosed with a rare tumor such as a NET, good and unbiased information is hard to find. NCAN organizes outstanding patient-oriented conferences of excellent quality.

Wonderful information that was informative. Education for Neuroendocrine Cancer that is so much needed. I received my free packet in a very timely manner and refer to it often. Cannot thank this awareness network enough!

I was first introduced to this organization by my BF who was diagnosed with this form of cancer. Despite being a health care professional I had never heard of this cancer nor its prognosis. I read the educational material and became involved with some of the websites and Facebook pages dedicated to this disease. I was very impressed with the sharing of medical providers treating this condition as well as the ability of members to openly share their disease process and ask others with this disease what treatment options they had experienced as well as what worked for them and what did not. My BF was very active in this community and well known by many for her educational push to learn more about this disease and share her education with fellow members. She attended the national conferences and was a spokesperson for this organization involving as many people as possible about Neuroedocrine Carcer Awareness. The disease took her last summer but through this network she left many to carry on where she left off.

I was diagnosed with a lung carcinoid in 2014 from an incidental lung x-ray for another surgery. While recovering I was searching for support & found NCAN. I am very grateful to Maryann & Bob Wahman for starting this organization. I was able to learn more about this disease as well as meet alot of wonderful people.

Sharon Heuser

It is an honor to be able to work with and support Neuroendocrine Cancer Awareness Network (NCAN) founder and Executive Director Maryann and Bob Wahmann in their outreach efforts to the NET cancer community. Since Maryann’s diagnosis in 2001, the Wahmanns have devoted their lives to supporting thousands of patients in this rare disease community, annually hosting four regional patient education conferences and holding a national conference biennially. They are constantly striving to expand the information channels they use to reach patients throughout the country—making printed materials available to the 15-plus local patient support groups across the country, holding regular leadership training programs for local leaders, hosting an active online presence through their website and blog – with several thousand visitors monthly – and being available 9 AM to 9 PM 7 days a week for calls which come in from patients around the world. Our experience in working with NCAN can be summarized in a quote by famed anthropologist and humanist Margaret Mead: “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has.”

NCAN provides neuroendocrine cancer patients and caregivers with accessible education and resources to assist with their care. In addition to providing personal assistance over the phone and through mailings of information, they host regional education meetings around the US, featuring expert physicians. They are among the most proactive patient support groups, ensuring that patients can have access to resources and education even if they live far away from major metro centers. The heads of this group are patients themselves and they have been bringing awareness and education to this underserved community for more than 10 years.

I've been a part of several awareness networks and peripherally involved with many more Cancer groups, and NCAN is easily at the top of my list. From the top down the people I've met and the resources they offer patients and families is remarkable. And it's constantly being updated, refreshed and adjusted to fit the needs of Neuroendocrine Cancer patients and families. I like that they go to their network to see what the members need, rather than the other way around. Every person I've had contact with in the network--from patients, to the organizers, doctors, speakers and conference attendees-- has been warm, friendly and helpful. Just what you're looking for in tough times. I'm positive this attitude starts and spreads from the top, from the organizers Maryann & Bob. Thankfully there are people (and networks) like this in the world.

I have worked with NCAN for over 12 years. They are dedicated and committed to help raise awareness and educate patients and healthcare providers throughout the United States. Over the years, there have been significant advances in diagnostic and therapeutic options for patients with advanced neuroendocrine tumors (NETs). Therefore NCAN has expanded their organization to bring this new information to the NET community. As the treatment landscape changes, NCAN is determined to create programs to address the ever changing needs of patients and assure medical professionals are properly trained to manage patients with these rare diseases.

A diagnosis of neuroendocrine cancer can be a bewildering experience. NCAN provides a wealth of information. The organization makes conferences possible. Bob and Maryann are like family. They add a personal touch, being there when help is needed. Just knowing that NCAN exists makes the experience of having this cancer manageable. If I leave a message, it is promptly answered. I am treated with courtesy and kindness. It is a blessing to have this oasis while dealing with a complex cancer.

I had a library neuroendocrine awareness display in my town on and Maryann sent me very helpful information as handouts. Last year, I was refused the drug Afinitor by my insurance company and my first call went to Maryann and Bob and they listened and offered suggestions. I've also been to two conferences sponsored by NCAN and it empowered me to know more about my disease.

I was diagnosed on my 45th birthday 2005, and didn't know where to start.
Got appt with Dr Warner for April ,2 mos away...what to do with 2 months?
Went online and discovered Carcinoid Cancer Network, and got information to start my journey.
Am now a volunteer counselor at NCAN, as I truly believe the help of this organization needs be available to anyone who receives a diagnosis of neuroendocrine cancer.
I know, having reached out to new members, NCAN is doing great things.

This nonprofit is desperately needed. Neuroendocrine cancer is becoming more known, but over the past 10 years, so few doctors knew how to deal with NCAN patients. Thanks to the information provided by this non-profit, patients can now help their doctors navigate this difficult and rare disease. Thanks NCAN!

Wonderful organization that goes above and beyond in education on NET!!!

What a blessing! Maryann at NCAN reached out to me when I joined a Facebook group for Carcinoid peeps like me. I was diagnosed just two days ago. She made it very easy to reach back and that meant a lot as I was feeling quite scared. After talking with her for ten minutes I had learned just what I needed to know to begin this journey and had a printout of what tests I should be sure my Dr. ran. I will be forever grateful to NCAN and Maryann for her kind, caring help.

I have been to two of the NET conferences organized and performed by the Neuroendocrine Cancer Awareness Network, Inc. This group is amazingly and self-sacrificing in its mission to promote awareness of NET cancer and to stand by the side of the patient with information, kindness and dare I say Love. The group has a wall on Facebook where almost any question will find an accurate answer. I have deep feelings of gratitude for this group and the people who started it. I have met all of them personally and would be unable to express my thankfulness for the time and energy that they expend for the NET community. THANK YOU NCAN.

Some of the most dedicated people I have ever had the pleasure to meet!

When I was first diagnosed, NCAN sent me a huge packet of info and offered to provide anything else I needed. For someone with a rare disease, this was a Godsend. They are amazing!

My wife has been a NET survivor for 14 years. It wasn't until we found NCAN, that the world fealt a bit smaller, and the information became more clear.
Their work has pushed patient information to levels we couldn't have imagined 14 years ago.

This organization has helped so many people deal with this rare cancer. I have seen first hand how helpful the founder, Maryanne Wahmann has been to numerous patients. Thank you for this organization that has helped so many.

Three years ago after being diagnosed with NETS, I began to research my disease on the Web and came across NCAN. I called MaryAnn and she was very helpful. She immediately sent me information and told me of their upcoming conference in Michigan. Within 2 weeks my wife and I drove from Florida to Michigan and received helpful information and met other NET patients. Since then we have attended several more of their conferences. NCAN, MaryAnn and her husband Bob are great and we are very appreciative of their organization.

I was dx in 2012 from a colonoscopy!! This foundation helped me very much!! I am a stroke survivor and cannot attend conferences or even donate but they sent me a packet with tons of information that has helped me thru my journey with this Cancer!! I really appreciate all they do for us !! We learn from them & I try to talk about this type cancer to anyone who will listen!! The regular Cancer society just sent a page of info on this where as this org. sent a big packet with CDs & info on what tests we should have to how to talk to others about our Cancer!! Thank You for all you do for us!!!!

When I became unhappy with the quality of care and lack of knowledge from my former Dr, I blindly chose a NET organization to contact to see if they could recommend a better choice. When I called, Maryann was actually on the road on the way to a nice vacation! Within minutes, I received a call back and was given quite a few names to choose from. I also got an info packet and that became my go-to since I was still relatively newly diagnosed! NCAN has been an almost endless source of info and they do so much for the Zebra community because THEY REALLY CARE!!!! I cannot thank them enough for getting me on the right track to managing this new normal I deal with every day. Had it not been for them, I honestly would've most likely stopped seeing a Dr altogether!!

I was diagnosed with the "Ah Ha,...that's what's been wrong with me for years disease", NET Cancer, in April 2015. I was so confused with the little information provided on the Internet and physicians' knowledge. Then I found NCAN, and they sent me information at no cost to me. They provided contacts and materials that helped me understand more about NET Cancer, and pathways that are available to meet during my lifelong journey.

Very helpful, provides lots of support and education. They have worked very hard to share information and resources. The conferences they develop are outstanding.

Thanks for all your hard work and help.

When I called, I never in a million years would have believed the care with which my questions were answered. I was directed to the best physicians and facilities and I truly believe that without them, I wouldn't be alive to type this today. Highly recommended.

Founder of this foundation back on 2003 and became the non profit in 2004. It has been a great pleasure to work with our family and team to help thousands through the years! We will continue to serve the Neuroendocrine and Carcinoid community through many avenues such as our toll free support line, conferences, information packets, and the support of research when funding is available!

The founders/leaders of this group never stop. They never stop getting educated, educating, conferencing, answering phonecalls from scared patients, planning informational conferences, informing doctors, working with drug companies, traveling to get and give information, and so much more. They are unsung heroes, respected and admired by so many.

I was diagnosed in 2008 and had surgery in January of 2009. While recovering from surgery I looked up Carcinoid and found CCAN (now NCAN) and called the 800 number. The next day, I received a large package with all sorts of information about this rare cancer and its treatment.

I was also invited to the support group meetings, which where coincidentally held in my home town. Over the years I have stayed with this support group and attended many conferences run by NCAN. This enabled me to learn about my condition and anticipate future needs and treatment options before my condition warranted it. I especially love that the conferences are targeted to doctors as well as patients and they bring in the top doctors in the field to present the latest information so that patients and their physicians can understand what is different about this cancer and how it is treated.

I also must mention that Bob and Maryann Wahmann, who tirelessly run the organization are the warmest, most amazing people I have met. Whether friend or stranger, they will go to great lengths to make sure that each patient/client receives exactly the help that they need.

My cousin was diagnosed back in 2005, and he continues his fight today. The family is always searching for any information they can gather and always coming up with a few new questions, so it is wonderful to know that they found someone like MaryAnn which has been such a help with information, guidance and support.

They don't answer emails and they block patients from their forum site without explaining why.

This is a great group that sponsors conferences and gives patients information. They also help out as a patient advocate for people in need of that type of care. All of the information is useful and can alter the way a patient treats their disease. I am a patient and have been to several of NCAN's conferences. They are well run and a great way to meet other patients and see the doctors who treat this disease. I'd highly recommend a new neuroendocrine cancer patient get involved with this group.

The free info packet gave me much more detailed and accurate info than my oncologist. It almost certainly saved my life. I am very grateful this organization exists.

Carcinoid is such an orphan disease that not many patients nor their physicians know much about it. As a result, diagnosis is always delayed for years. Worst of all, once the diagnosis is made, the treatment offered by the treating physician is often outdated and passive. For years, the fight for carcinoid has been uncoordinated, disorganized, dysfunctional and extremely ineffective. Patients suffered from lack of correct information or receiving outdated wrong information. Physicians who are interested and specializes in the field also suffered due to the lack of forum to express and educate patients or each other. Maryann, Bob and the whole family has made such a dramatic improvement for patients and carcinoid specialists as a whole by different means through the nonprofit organization CCAN, which they established and are absolutely devoted to. Throughout the years, CAAN has provided patients with support, information, and guidance by a 24/7 phone consoling, printed teaching material, and educational videos on an individual bases. On a grand scale, CCAN organizes regional and national patient conferences by gathering leading experts in the field to provide patients with an in-depth overview of their disease and the available updated treatments. In addition to help patients, CCAN also supports physicians who are interested in this orphan disease with funding for research and educational process. More importantly, they are always there for physicians who are interested and devoted to carcinoid treatment. MaryAnn, Bob and their family has been the most important ally’s for us who are committed to the tough fight against this intriguing disease. CCAN has an undeniable contribution of the progress made in the fight against carcinoid in this country and North America! The Wahmann’s family entitled the recognitions for their efforts/contribution and CCAN deserves all the financial support and funding from our generous general public. Yi-Zarn Wang DDS., PC., MD., FACS. Professor of Surgery, LSUHSC-New Orleans.

I was diagnosed in June 2013 after having surgery for an unrelated issue. My carcinoid was found during surgery. I spent 15 months doing the wait and see approach that my oncologist recommended. I had a sister-in-law that was going to Sloan- Kettering and she talked to her doctors about my situation. They did not recommend the wait and see and gave her several internet sites to research. I found CCAN and they where awesome. At the same time they where sponsoring a conference and I signed up for that. They had the best doctors in the nation speaking at this conference. I gained so much knowledge from this conference. It changed my life and I am now proactive and have the tools and guidance I need. This is truly a "Nonprofit" They send out a wonderful packet of information to those patients that contact them. All phone calls are returned any time of the day or night. Great organization. Thanks, Teresa

I was newly diagnosed in June 2014. I was able to attend a conference put together by this wonderful organization in September. I was absolutely amazed by the amount of information I was able to gather. My husband and I were very impressed by the gifted speakers and the flawless execution of the daily events. This was done over a course of 3 days. I cannot imagine the work that must have gone into this event. We left with a better understanding of my disease, a plan for treatment and, as a bonus, many new friends. A big thank you to these lovely people who work tirelessly for all of us. I am so very grateful!

This nonprofit keeps me informed daily on my cancer and treatments. Without them I would be lost of any information about this rare cancer.

MaryAnn has done wonders to increase the knowledge both of patients, caretakers and the medical profession in general of Nets, the proper treatment,etc. she tirelessly organizes conferences, talks to anyone who calls her and is an inspiration to Carcinoid patients because of the way she has handled her own battles with the disease

I was diagnosed with Carcinoid Cancer 2013. I had my surgery December 6 2013 to remove the prime location that it started at. I was lost on what step to take next. I went to three doctors that gave me different answers. I'm so thankful I found Maryann who also lives in Long Island and attended one of her meetings at Long Island Jewish Hospital. She gave me all the information I needed and led me on the right path on choosing my next step. Maryann has kept in touch with me since I spoke to her. She has given me more information than the doctors have! I'm no longer scared and feel safe that i can ask Maryann any question and know she will have an answer. I love the Zebra bracelets :)

The individuals that run the Carcinoid Cancer Awareness Network, Inc. (CCAN) are amazing, talented, and compassionate. The level of assistance they provide to patients of this rare disease goes well beyond expectation. How many groups do you know that you can call day or night, 7 days a week? In addition to one-on-one counseling, they show their sophisticated organization skills by holding dozens of conferences to bring the relevant parties together. They helped organize the first ever lung carcinoid conference, including bringing the world's top expert on this disease to the US from Europe. Imagine, prior to the year 2013, there had never been such a gathering. Further, they show their dedication to helping to find a cure by raising funds for doctors and researchers. Individuals who contact CCAN can have confidence that they will be given accurate and timely information to obtain the best prognosis possible.

This organization made it possible to have the first conference for lung carcinoid patients. It was so helpful because information for us is very scarce and the best specialists were brought in.

Hello, This organization is amazing. They were so helpful to me. They sent me very imformative information in the mail along with very educational DVDs to watch regarding neuroendocrine cancer. I'm very thankful for them.

The packet of information I received has been the greatest help In battling this cancer. I have taking copies to all my local doctors to insure proper care. With out it they didn't know how to treat this cancer. It's the first place a newly diagnosed person should go for information.

Those of us with Carcinoid Cancer know how hard it is to get correct info and to be diagnosed. Even after we are diagnosed, most doctors do not know how to treat us. With all of this going against us, CCAN is there to get us correct info and to let us know which doctors know how to treat this rate disease. They are just available to talk if that is what we need.

This non profit organization is the best!!

What can I say about CCAN, is that first hand Maryanne, Founder of CCAN has changed my life along with the treatment regimen I am now receiving. She has also has helped my children, siblings. cousins, as well as the Carcinoid community, since I am of the rare breed with a family history of Carcinoid. Maryanne directed and urged me forward to attend my first CCAN meeting in Indiana a year ago, in order to learn, investigate and find the correct path of where to be directed with my own personal care. I am truly grateful for her and CCAN's direction. My cancer care now has the correct coarse of action to keep me as well as possible. Thank You, Maryanne!...... Thank You CCAN!

My husband was diagnosed with small intestine NET two months ago. We attended the CCAN conference in Michigan a few weeks ago. Even though the information was overwhelming and sobering, we felt far better prepared to face this new reality. The information on the CCAN website has helped us to know what kind of medical help that we need. We are so thankful for this amazing resource!!

The information and education I have received from CCAN has been truly life saving. I had little to no access to resources in my medical community about Carcinoid Cancer of the lung. I am a survivor because I connected with the right people at the right time. CCAN deserves every honor and award for the invaluable support they provide to Carcinoid Cancer patients and our families. God bless them and their outstanding work.
Icela Gonzalez,
San Diego, CA

I have been working with the CCAN organization for many, many years. The educational services and information they provide to patients and caregivers is invaluable. They should be commended for the work they do and the countless hours of their time they give! I would not hestitate to donate funding to support this wonderful organization. Continue the great work Maryann and Robert! You are truly inspirational.

I can't say enough good things about CCAN. They are dedicated to the increased awareness of neuroendocrine and carcinoid and going beyond the normal call of duty to help people. They are an amazing resource and an amazing family. I am honored to call them colleagues and friends. Together we will help people all around the country learn to take control of their cancer!

It was in 2009, 4 yrs after my husbands dx, I learned about CCAN. Many things regarding follow up, I was not aware of, such as labs, scans etc. the organization has been such a tremendous help, not only to us, but many others. We have been to several conferences both regional and national. I know at any given time if, I have a question or concern I can pick up the phone and call Maryann! CCAN "ROCKS"

After diagnosis, on the operating table, with a lung carcinoid tumor I was told it was not really cancer, it was out and go and enjoy my life. While in substantial post- operative pain for many months, I had to ask to see an oncologist and pour over the Internet to find out information and help. CCAN was a wonderful source of information and led to other ways to contact the carcinoid community, providing much needed advice ( it is cancer!) and how I should be followed from now on. Recently, I was lucky to be able to attend the world's first patient lung carcinoid conference at Vanderbilt University TN and hear talks from one of the very few Us experts and the world expert on this disease. it also made all the difference to be in a room of people who 'get it' , when faced with a rare disease. This event would not have been possible without the hard work, organization and support of the wonderful people at CCAN. They are doing a fantastic job, Thank You!

I am forever grateful for the many services of CCAN! After being diagnosed with Carcinoid CA in January, I began researching online to learn as much as possible about my cancer that most people have never heard of. The greatest "hit" that I made while "Googling" was CCAN. I did a request for information and in a few days received an amazing package full of information, DVDs and most importantly a DVD of a presentation by Eric Liu, MD of Vanderbilt-Ingram Medical Center. I do have a local oncologist who is currently treating me and he is very excited to learn about Dr. Liu.

There was also a schedule of many CCAN events and I went to the recent conference in NYC which CCAN organized. I learned so much but was particularly impressed with Dr. Eric Liu, Maryann and Robert Wahmann.

Maryann Wahmann and her organization are responsible for me attending this life-changing event. I am now a patient of Dr. Liu and will be traveling to Nashville for treatment and surgery by him.

This is an exceptional organization and people can contribute to it knowing that their contribution will be used wisely to help Carcinoid Cancer patients.

As a 3 year NET patient, I was not aware that I should have been followed more by my doctors. Through CCAN's awarness network and the programs they provide, I learned that I should have been more closely followed by my oncologist.
I am now in the process of getting the medical follow through that I should have been receiving for the past 3 years. This is truly a life changing event for me and it wouldn't have been possible without CCAN and the wonderful work they do and provide. They made me realize that I am in charge of my medical care1
Thank you so much for all you do!
Ronda Bogani Ayala, RN

When I was first diagnosed with carcinoid cancer, my oncologist told me there was nothing to be done but an injection once a month, then maybe clinical trials when that quit helping. I was reluctant to search the internet and pick up false hope chasing windmills and fake cures. But, I finally decided I had to turn to the internet, because I was getting no information about the disease from my doctor. I found CCAN, requested their information packet, watched videos from the conferences they put together. I was amazed at just how much more could be done to help me than what I had been told. And I have sought out that help. I am so very grateful to CCAN for all they do.

THE CARCINOID CANCER AWARENESS NETWORK helps change lives of those living with carcinoid cancer. They help to educate, motivate, and emotionally support patients and their families. My experience with the carcinoid awareness network has been nothing but positive. They have help me to find doctors better understand my diagnosis. They've also help me to communicate with other people but the same diagnosis and find support.

I walk every year for this cause as a dear friend of mine suffers from this disease and CCAN has helped so many people. You hear it constantly from everyone at all the fund raisers on how CCAN helped them through a crisis and their kindness is never ending. It needs help in getting the word out to more people as this is a rare cancer that most people don't even know about yet.

When I was diagnosed with a rare cancer, there was very little information found on the Internet . Thanks to CCAN I found referrals to doctors the knew the diese as well as good information on treatment. They are always available to help with any questions. They also help organize a conference for patience to learn more about this horrible cancer.

This cancer is such a rare kind that it is hard to find up tp date information on new research. CCAN helps to provide such information. It also provides contacts with others who have the same cancer. The national conference sponsored by CCAN was very informative and worthwhile attending.

After many years of not having anywhere to turn, or real information on carcinoid cancer/nets. I found the CCAN and i got all the real information about my cancer, that not only myself but my drs could refer to. LIFE SAVERS... sums it up

CCAN was there for me when I was first diagnosed with carcinoid cancer. They actually answered the telephone in person and spoke with me about where to find additional information and how to research treatment options. They continue to serve the carcinoid community and do an outstanding job.Thanks to CCAN. Lesley C

I just attended the CCAN Conference in New Orleans and this was the first time I have personally met anyone from this dedicated group , although I had heard about their work from my oncologist. What a first impression they made and they kinda messed up because they must have thought they had already knew me. At least that is the way I felt after the first hour or so. They were terrific! And , I could not believe some of these individuals stories concerning Carcinoid. I found out some were patients like myself , at all stages of this life sapping disease, but they were mostly , I believe just concerned activists, family members and dedicated workers in the field trying to do their utmost to help support anyone that needed that support after getting a diagnosis. I learned that Carcinoid patients , more correctly called NET Patients or Neuro Endocrine Tumor Patients are self described ZEBRAS ( our distinguishing logo)- Another shade from all those who suffer in all too many cases -terminal cancer. Not many people especially doctors and researchers even know we are "out there" . Our zebra stripes camoflauge us in the shadows of the effort to find a cure for cancer. And often that more common cancer research does'nt help us directly. These dedicated workers in CCAN are out there spreading the word and educating individuals like me on how to simply use all the resorces out there and each other to stay alive . It can be easily seen how dedicated and selfless CCAN is in doing this VITAL work. Please support them in any way you can . If you are a foundation, a medical facility doing research or a Medical School I urge you to look for any way you can help. I feel truly grateful for what I learned last weeik and for all the materials and speakers that had to be gathered together for such an event. I don't feel so much alone now. Please help in any way you can -just ask CCAN they know.

My 43 year old husband was diagnosed this April (2012). Shock, saddness, and sprinkle on top that it is a cancer that no one I know has heard about. The great thing about CCAN is they fill the void when someone needs help now.... not in a week but just a phone call away. All weekend every day... they answer the call... They deserve to be recognized for all the wonderful work they do... I would gush even more but my husband is in the hospital and I am working on little sleep.

When I was first diagnosed I had no idea what this type of cancer was and what to expect. From this group the information was complete and the people were guenuine in the caring nd desire to fil me in and answer all my questions. Without them I would have blindly followed care plans made by medical personnel unfamiliar with the disease and would be far worse off than I could ever imagine. It's been almost 2 years since I first sought their advice and they ae still thee when I need them. They are the best!

I proudly support this charity and am pleased to be a volunteer in this organization. They strive to provide much needed information to patients with this disease and also to those treating them. They provide all kinds of assistance to support groups across the country and also sponsor much needed and valuable patient education conferences to help increase awareness and promote understanding of Carcinoid and neuroendocrine cancers.

For those of us in the Carcinoid Cancer/NET community it has often been difficult to find information and support. However, Carcinoid Cancer Awareness Network (CCAN) and Maryann & Bob Wahmann have made it their priority to provide this to us. They have dedicated their time and much more to bring mini seminars to regions across the United States, they have used their 501c status to receive grants and funds from sponsors for numerous patient/caregiver conferences, and they have made available informational literature to help us educate ourselves & others about this chronic disease. As a support group leader, CCAN has also made available to me numerous promotional items such as Zebra pins, Carcinoid/NET bracelets, and stuffed zebras along with educational brochures. These have been wonderful to have for my support group meetings. CCAN also sponsors numerous fundraisers and awareness (as their name suggests) activites. Education & awareness of Carcinoid/NET is the key and CCAN plays a hyge role in making that happen.

CCAN has been a great source for information and support in the past. They have always been prompt and thorough in any requests I have made. They are truly working to increase awareness and early detection of this disease!

We count on them to send the info we need to educate doctors and newly diagnosed patients in our local support groups. (This is a disease called "rare" which is clearly much more prevalent and usually misdiagnosed for decades up to and including death. Educating MDs will save lives and educating patients will change imminent death to a long life with a manageable chronic disease.)

I'm a carcinoid patient, stag 4, and have been helped by information provided in the mail, and information on a telephone conference with experts speaking about our cancers. I'm very thankful for all the information and help I got from this group.

i was diagnosed 10/2009 and the local doctors where I live didn't seem to have enough knowledge on Carcinoid Cancer. They gave me approx. 6 months. Maryann at the Carcinoid Cancer Awareness Network sent me the information I needed to understand this disease, educate my local doctor and know that all hope was not lost. Thru the network I found a Carcinoid specialist/team that is helping me.

This organization stepped up with a donation of bracelets, pins and literature to help with our last support group meeting. Everyone was astounded at the volume of information and dedication that MaryAn and her team have for our cause..Carcinoid! We love and charish them!

Carcinoid Cancer Awareness Network is truly a godsend! My doctor called and told me I had Carcinoid cancer and not much else! I googled it and found this amazing website. It has an easy to navigate layout with pertinent up-to-date information. I was feeling hopeless and confused until I found the information I needed to understand my disease.

This charity has done a remarkable job of ensuring that conferences take place regularly - - both international and regional - - on the rare neuroendocrine cancers, including carcinoid. CCAN has also stepped in to help new local support groups get started and have the resources to continue - and to help publicize these rare cancers by marketing relevant pins (with zebra emblems) and other materials contributing to publicity and public education. I speak from experience as a family member of someone with carcinoid disease who has also tried to further education and publicity.

My brother in law has Carcinoid Cancer and this year I put on a fundraiser to raise money and awareness. Maryann with the Carcinoid Cancer Awareness Network got me everything I needed to help get the word out. I still keep the brochues in my businesses the the Carolina's. We need more people as dedicated to helping people understand and deal with like they are going through like Maryann with the Carcinoid Cancer Awareness Network.

Cancer support providing information and education for families and patients with carcinoid cancer.

CCAN truly provides critical life changing and life-saving help for patients with carcinoid cancer. Neural endocrine tumors (NETs) is a relatively unknown cancer and many local physicians dont know much about its treatment. my daughter was diagnosed with carcinoid cancer about 4 years ago, had her right lung removed, and still had residual cancer. CCAN helped us survive this ordeal by linking us with other patients and family members (and even the few doctors who specialize in carcinoid cancer) where we could find information, guidance, experience, and hope. CCAN sponsors conferences that are incredibly valuable to keep patients and their families updated on the current advances in treatment. through CCAN we were able to connect with the right doctor who recommended the right treatment that has resulted in my daughter having "no evidence of disease" now. we have seen many other patients with NETs on CCAN chatpages who have no idea what to do and who are able to get the information they need to save their lives. CCAN is priceless!!!

This nonprofit organization is run by a wonderful person that is unbelievably committed to the her cause. Maryann Wahmann spends so much time focused upon increasing the awareness of Carcinoid Cancer and goes far beyond what one would expect for any patient that seek education. A truly worthy cause.

CCAN is a great organazation that has helped both patients and their families deal with this illeness and the effect it can cause both mentally, physically and emotionally on every memeber of the family, including the patient and the famiy members too. It's nice to have people who can relate and listen and give advice and guide in the right direction. What a wonderful organazation!

Up until 3 years ago, I had never heard of Carcinoid Cancer...I have since had the pleasure of becoming close friends of the Wahmann Family, and have had the priveledge of being part of the CCAN experience....Watching Maryann and Bob spend time with Patients, families and doctors, Making people aware of not only the Disease itself, but the treatments available, who to call, what drugs to try has been such a rewarding experience for me to watch from an outside position The World needs to know about this disease, and CCAN is the organization to get it done!

After being diagnosed a year ago with carcinoid cancer I felt helpless and alone. I spent countless hours researching my disease. During this frantic time I decided a support group would probably serve me well and I went to a meeting in N. Bellmore and met Maryann Wahman. I found the meeting very informative and open to questions from its members. I knew it was where I was supposed to be while on my journey. Maryann is always there when you need her and certainly a fantastic "support" team leader. I thank her from the bottom of my heart.

CCAN was there when all the other Carcinoid foundations did not answer the phone on a holiday. Maryann and her husband were a godsend. They spent a hour on the phone with me on Christmas day 2008. I was having a rough day dealing with my recent DX. But they talked to me and calm me down, They told me to call anytime and they would help me with my journey,
I will continue to suport them anyway I can.

CCAN provides the most current education about the diagnosis and treatment of carcinoid/NET cancers for both physicians and patients, consistently providing top notch physicians and educators. They also provide unparalleled support to patient support groups and brought a conference to our region at the request of our local support group.
CCAN is among the top patient advocacy groups in the nation.
I've benefited from them as a patient from attending their conferences and from watching their conferences and webinars on line. They have also provided support to our local patient group. I can't say enough about the good they do in the carcinoid/NET community.

CCAN is one the the most up to date and extensive soureces of information on neuroendocrine tumors in the USA . These individuals serve as a day to day source of comfort, information and physician referrals for individuals with these rare tumors. In additioin CCAN is the sponsor or co-sponsor of regional and national conferences that are geared to educate those individuals with these rare tumors

Wonderful organization. Very informative and helpful information. Being such a rare disease, we need all the help we can get as patients. I read each and every word they print. My hats off to them.

Truly, I cannot say enough about the generosity, kindness, and helpfulness of this organization. When I was first diagnosed with this rare cancer, I called and spoke to Maryann Wahman for over an hour. She was, and has remained, an advocate for Carcinoid patients, while being a patient herself. She and her husband and family run the entire organization, and take calls, plan events, run a support group, and keep up to date on the latest information. They always have time to help somehow. They help with referrals to carcinoid specialists, have information on procedures and medications, and can get people in touch with each other to help. I cannot thank them enough.

Carcinoid Cancer Awareness Network is an invaluable resource for folks dealing with carcinoid or neuroendocrine cancers. They have provided one on one assistance to survivors and caregivers and in addition have supported other support groups during their start-up by providing great information and advice. Their role in in organizing and posting videos of conferences held across the country has allowed patients and their families access to information they might never have gotten otherwise. As carcinoid and neuroendocrine tumors are rare cancers, survivors and caregivers can feel very isolated. It is fantastic to get connected with other survivors and caregivers, support groups and most importantly those medical experts in the field that can get the survivors on track with a management plan that can lead to a high quality, productive life for folks with this disease. CCAN also serves as the patient liason to the NANETS (North American Neuroendocrine Tumor Society) and has been one of the founding partners in the recently organized world wide NET awareness group that has instituted and promoted Worldwide NET Cancer Awareness Day. Hopefully, the awareness that is the mission of this organization will lead to more doctors looking for NETs in their patients, more research dollars for a cure for NETs and more young doctors choosing a specialty in this field to give NET patients in the furture a brighter tomorrow. The service CCAN provides is invaluable to the NET community! Kudos for all you do!

I know one of the founders of this organization from high school. Much to my surprise the husband of a colleague at work has this specific (and rare) cancer. There are no coincidences. That CCAN came into my life so that I could pass on the information to my colleague has meant so much

CCAN , was able to give this family the information they needed to make difficult decisions about their future.

I have participated in the Walk and the Gala this past year. Bob and Maryann are so warm, knowledgeable and supportive. The outreach they do with the public, corporations and hospitals is invaluable.

I have a very dear friend that has this disease and seen how much good this organization has been for her. The commitment and help that is given from this organization is amazing! The kindness, caring and love that is offered when they are helping you is wonderful. I can't say enough about this organization and all the help they give to those that need it and on educating everyone about this rare known cancer.
I started walking last year for the cause and will continue every year in the future for as long as I can.

My mother passed away at 57 years old from Carcinoid Cancer. We had never even heard of this type of cancer. CCAN has been a very informative nonprofit organization that has equipped me with the knowledge and ability to share about this deadly disease. They are doing wonderful things and need any support they can get!

They were so supportive and helful.
They really cared about what I was going through.