My Nonprofit Reviews

My daughter, Jahzara, was born with Goldenhar Syndrome. Her lower jaw does not grow at the same rate as the top and at birth this impacted her ability to feed and sleep. She had two major life-saving surgeries before she turned a year old. Thank goodness we were in a place, NYC, that has medical facilities and doctors familiar with this condition and how to treat it. And thank God for myFace welcoming me, a single mother, helping me know that I was not alone and that my baby was in the best hands possible. myFace not only made my daughter’s care possible, it became a loving family filled with support, celebration and endless possibilities.
It hurts my heart to think of children and families facing life in places that do not have myFace. I cannot imagine being a parent not knowing how to access the information, treatment and support necessary for my child to thrive. myFace is essential for the physical, mental, social and emotional well being of children, families and communities grappling to understand and treat facial difference.
Today Jahzara is 14 years old and is proud to be a person with a facial difference. She is grateful for the opportunities and community myFace provides, the lifelong relationships with doctors, care teams, myFace staff and other children and families she has come to know well and love. The support groups and various fun-filled activities throughout the year have greatly contributed to my daughter knowing and feeling her specialness beyond measure.
Last week we were blessed with the opportunity to attend a gala for the organization Positive Exposure, which we came to know through myFace and is a non-profit organization that works to redefine beauty by highlighting difference with photography and education. I shared a picture of Jahzara at the gala proudly standing next to a picture of herself years ago before all the extensive orthodontic work. Her glowing smile has so confidently always existed thanks to myFace.