Wonderful organization! Love the efforts to create awareness about craniofacial differences.
I am a mom of a cleft lip + palate affected child and knowing my kid has access to the resources that non-profits like mYface offers makes my mama heart a little more at ease...
As a family we are always learning about how to better support my child in every way and it's nice to know my child and us as a family have the support from myFace and that we are not alone in this journey!
This summer I had the opportunity to invite a couple of individuals from the leadership team to be guest speakers in a virtual lunch and learn that my office hosted to learn about myFace and craniofacial differences. It was a wonderful experience and was honored with the willingness to be guest speakers and help me share with my work team. It was priceless to be able to share and create awareness. I appreciate all you do!
Thank you
Our son Mason was born with a cleft lip and palate and has been a patient of NYU ever since. Before Mason was even born myFace provided much needed support to our family. We love myFace and have experienced firsthand their positive impact and ability to transform lives!
Our 17 year old son was born with Pierre Robin Sequence and he has been a patient of myFace (NFFR) ever since. myFace has been instrumental in supporting our family through all his surgeries and other care. I’m not sure how we would have made it through everything within them!
My daughter, Jahzara, was born with Goldenhar Syndrome. Her lower jaw does not grow at the same rate as the top and at birth this impacted her ability to feed and sleep. She had two major life-saving surgeries before she turned a year old. Thank goodness we were in a place, NYC, that has medical facilities and doctors familiar with this condition and how to treat it. And thank God for myFace welcoming me, a single mother, helping me know that I was not alone and that my baby was in the best hands possible. myFace not only made my daughter’s care possible, it became a loving family filled with support, celebration and endless possibilities.
It hurts my heart to think of children and families facing life in places that do not have myFace. I cannot imagine being a parent not knowing how to access the information, treatment and support necessary for my child to thrive. myFace is essential for the physical, mental, social and emotional well being of children, families and communities grappling to understand and treat facial difference.
Today Jahzara is 14 years old and is proud to be a person with a facial difference. She is grateful for the opportunities and community myFace provides, the lifelong relationships with doctors, care teams, myFace staff and other children and families she has come to know well and love. The support groups and various fun-filled activities throughout the year have greatly contributed to my daughter knowing and feeling her specialness beyond measure.
Last week we were blessed with the opportunity to attend a gala for the organization Positive Exposure, which we came to know through myFace and is a non-profit organization that works to redefine beauty by highlighting difference with photography and education. I shared a picture of Jahzara at the gala proudly standing next to a picture of herself years ago before all the extensive orthodontic work. Her glowing smile has so confidently always existed thanks to myFace.
MyFace is important to my family. My identical twin girls were treated at NY Langone Medical Center. Luckily we learned about MyFace where we turned for much needed support. The girls participated in numerous events which offered social and emotional support. MyFace made them feel a part of something really big and important. They are a bright light when times may feel dark.
myFace is a wonderful organization that is dedicated to providing resources for individuals with craniofacial differences and their families. I was born with Treacher Collins, Cleft Palate and deafness and underwent many reconstructive surgeries. However, I only learned about myFace two years ago when my sister, Sarah Cooper (yes the comedian best known for her Trump impersonations) introduced me to this organization. Sarah has been actively involved with myFace. I've had such a positive learning experience with myFace and I hope to get more involved with this organization. Frankly, I wish I there were organizations like myFace when I was growing up because the support that myFace provides is so critical to the craniofacial community.
My experience with this nonprofit has been nothing but excellence. I love this organization because they go above and beyond to help kids with all different types of craniofacial differences from all different walks of life. I, myself have been born with a craniofacial difference known as Apert Syndrome. Being very young, my parents and I did not know where to turn when it came to proving me with the proper care that I needed from such a young age. We had found MyFace and it was like a huge weight had been lifted off our shoulders as we have been blessed with so many wonderful and outstanding medical personnel and have been guided in the right direction. Now I am thriving as a 25 year old and loved getting the chance to help out the organization with so many of the popular events and group activities that they sponsor. I think that MyFace is something that works for people because it gives them hope and it offers them a sense of relief when parents are dealing with their child having a difference that makes them stand out more than any other typical child who wasn't born with a difference. I think that MyFace helps to shine a certain light on people and helps them to know that it is ok to ask for help when they do not know where to turn or how to handle the obstacle that is right in front of them. I think that this organization provides a real safety net for parents who are looking to give their children a better outlook on life and an even greater opportunity to have a life that they deserve. Nobody gets to choose how they were born or what kind of difference they were born with. Life doesn't always give you the outcome that you want or hope for but this organization does give you the chance to have that outcome that you want and to live a life that you rightfully deserve as any other human being. Finally, I love this organization and all the work that they do each and every day to make sure that kids with different differences are being helped and given the proper treatments that they need.
My daughter was born with a cleft lip and botch in her gum. She has received all of her treatment at NYU. Her surgeon stressed the importance of staying involved. It has been through myFace that my daughter has found her voice. So she can help others get the same care she could get! I’m
It was an honor and a privilege to volunteer with my company, S&P Global, for this year's annual Races for Faces charity walk. Our disabilities and working parents People Resource Groups supported logistics for the event, with great coordination and partnership from myFace leaders and organizers. For many volunteers, this event was educational, as they learned about the intricacies of craniofacial disorders, so this activity provided great awareness and consciousness-raising for our employees.
My son Nicholas was born in China with a cleft lip and palate. MyFace has been there for us- supporting our family and helping us. I cannot tell you how many kids events, parent support groups, family holiday parties we have attended. They have always been a part of our family and I will always be grateful to MyFace for being Nicholas and my suppport system. Nicholas just started college and still is very connected to MyFace. As a single mom, I don’t know what I would have done without them!
MyFace is an extraordinary organization. Their main mission is to help children born with facial differences navigate growing up in a judgmental world.
They have programs segmented by age and also run support groups for parents.
If you have a question, the MyFace Team is fabulous resource to provide guidance.
myFace does wonders for the craniofacial community serving those with facial differences and their families. They truly make a difference to so many and it has been a privilege to watch them grow into such a fantastic organization!
As a Mom to an adult with a cleft lip and board member, I have seen first-hand the impact of this organization both to they serve and the public awareness they raise in the craniofacial community.
I have loved being a part of the MyFace adult support group both in person & on Zoom. The inspiration & encouragement from everyone has been very helpful as I navigate adulthood with a craniofacial difference. I have also enjoyed the many special events, gatherings & most recently podcasts! So grateful for MyFace staff, board members, volunteers, advocates, families & donors. God bless you all to continue this great movement!!
The most amazing community and team!! I have the honor and pleasure working along side myFace to bring more awareness and kindness to this world.
As a craniofacial patient myface has been an excellent resource for medical info and referrals. Most importantly their adult patient support group has lead to many deep friendships.
myFace is an amazing organization that helps so many children and adults with cleft and craniofacial conditions so that they know they are not alone on the journey. I am proud to be a part of the myFace community!