My Nonprofit Reviews

I have a rare form of Muscular Dystrophy called Late Onset Pompe Disease. There is no cure but there is a treatment, ERT, Enzyme Replacement Therapy. I get a bolus dose of the enzyme my body no longer makes every 2 weeks for life. This helps slow the destruction of muscle cells that would occur at a faster rate without my infusions.

It's expensive. Between the specialty pharmacy costs, the infusion costs, and then health insurance and the team of specialists that care for me (cardiology, pulmonary, PT, medical geneticists), it is not only very expensive but very time consuming.

Accessia Health helps financially. It is a tremendous relief to have their support. It is one less (very big important) thing I have to worry about. They help with copays to specialists and cover the cost of my health insurance premium up to a certain amount.

I am very grateful for their support!