My Nonprofit Reviews

stephensb1947
Review for Accessia Health, Midlothian, VA, USA
In the late 1990's, my loving wife was diagnosed with with Fabry disease, along with progessive MS. As to Fabrys, it was passed to my wife, and two younger brothers, while another brother and sister weren't.
My wife passed Fabry down to our son and daughter. We were blessed to learn about PSI, now Accessia Health, from our Genetics Doctor, and inquired about how it could help us financially. We were able to apply for premium assistance, and all were accepted. Financially, I'm unsure as to how I could have coped without it's benefit. Although my wife has since passed, I was able to have her for fifty years, five months, and two days, as I retired at 63 to be her full time caregiver for 10 years. Without Accessia Health, this wouldn't have been possible.
Today, my son, who participated in the clinical trials at Mt. Siani before the FDA approved Fabrazyme, gets his bi-weekly infusion at home every two weeks, and a monthly health insurance premium of $655./month, which is promptly reimbursed by Accessia Health. My daughter is a school teacher, and her premiums are much less, but also promptly reimbursed.
I can't express enough my feelings how my family was sparred a financial hardship due to the financial assistance programs from Accessia Health.
Thank you so much for sharing. Your story matters, and if you are willing to send your contact info to accessiahealth@gmail.com, we would love to connect with you and capture more of your story to inspire others.