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greatscottkc

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1 reviews

Review for Angelman Syndrome Foundation, Aurora, IL, USA

Rating: 5 stars  

The ASF has been fantastic from day one! After our child's diagnosis, we were unsure of next steps, and Angelman Syndrome is so rare that we didn't know anyone else dealing with the disorder. I found ASF online and was embraced by a community that quickly became my family. The Angelman Syndrome Foundation reached out to us immediately, provided a listening ear, advised us of available support, and were instrumental in getting our child seen at an AS clinic. The support provided to families is invaluable and we would be lost without them! Thank you for championing our loved ones!

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