Our child was diagnosed with Angelman Syndrome in 2020, and the ASF has been with us every step of the way. From answering frantic questions from parents of newly diagnosed children, setting up AS specific clinics across the country, or just being there to celebrate every hard-earned milestone, the ASF takes care of the entire family
Angelman Syndrome Foundation is a fantastic non profit that provides care, counseling and research to help those living with Angelman Syndrome and their families.
I can’t say enough good things about the Angelman Syndrome Foundation! From the moment my daughter got diagnosed Amanda and her team has been there to guide us through this new journey with compassion and knowledge. It is such a wonderful community of people and I am so thankful for all that they do for our angels and us as a family.
Asf has be a light of hope and community of support and a fresh breath of air, I remember feeling so alone and not having anyone to relate or understand and then we found Asf and it made our lives more normal we weren’t alone family like us but the resources and support is unbelievable truly grateful ☺️
The Angelman Syndrome Foundation is my absolute favorite nonprofit. My husband and I had never heard the words “Angelman syndrome” until we received our daughter’s diagnosis in Dec. 2020. We were frozen in fear until he found Angelman.org and started showing me photos and videos from the “accomplishments of individuals” page. From then we heard from the incredible CEO, Amanda Moore, who called me and let me know that things were going to be okay and my daughter was going to have a good life. My family of six feels incredibly fortunate to have received conference scholarships from the ASF, and we are happy to fundraise every year for the ASF during May. I am one of the local walk coordinators, and love raising money for such a worthwhile organization.
The Angelman Syndrome Foundation is an amazing nonprofit helping those with Angelman Syndrome and assisting families and caregivers. Greyson's Grand Adventure and our community are so proud to be a part of this awesome team!
The ASF is hands down the best nonprofit with the most loving, caring and tirelessly CEO that works hard to ensure each family's needs are heard and tended to. The staff and volunteers under her umbrella are amazing and quick to step up when needed for their role.
My family has greatly benefitted from the ASF for nearly 35 years. There simply could not be a better non-profit foundation. Our 43 year-old daughter has Angelman Syndrome and has had her many needs met by this amazing organization. Biennial conference held all over the country have educated us and have provided us with invaluable bonding experiences with other families who share our challenging life. Besides funding critical research projects for the past three decades to find a cure for this neurogenetic disorder, the ASF is continually offering support for our precious angels and their families, such as: funding counseling, educational specialists, and other vital resources, funding numerous ASF Clinics spread across the country and overseas; funding adaptive bikes, communication devices, and more; and is there 24/7 for any need an Angelman individual/family might have. The CEO, Amanda Moore is the hardest working leader there is and is loved and respected by all. The ASF staff is exceptional and each person has a deep passion for serving others. The ASF is a trustworthy and transparent foundation and is truly a model non-profit organization. It well-deserves the highest of rankings!
This foundation is true to it's mission and provides individuals with Angelman syndrome and their families with the resources and support they need for their loved ones journey.
The Angelman Syndrome Foundation is an incredible organization that has truly made a life-changing impact on so many families, including my own. Their dedication to advancing research, providing vital family support, and raising awareness for Angelman syndrome is nothing short of extraordinary.
From funding groundbreaking scientific studies to helping families navigate the complexities of this rare genetic disorder, the Foundation is a beacon of hope in the Angelman community. Their tireless efforts to build specialized clinics, offer resources, and advocate for better care and treatments show just how deeply they care about the individuals and families they serve.
The community they’ve built is also remarkable. Whether through local walks, advocacy events, or online support groups, you never feel alone in your journey with Angelman syndrome. Their passion, commitment, and compassion are unmatched.
The Angelman Syndrome Foundation is an organization that is truly changing lives, and I cannot recommend supporting them enough!
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The ASF has been incredibly helpful to our family. From offering free counseling at a time when I needed it the most with my daughter going through intense surgeries and health problems to sending her gifts and making sure we were taken care of. Anytime we have been going through a hard time the CEO, Amanda, is looking for ways to help. While I wish we did not deal with Angelman syndrome, I could not be more grateful to the ASF for supporting families walking this path.
The Angelman Syndrome community would not be what it is today without the Angelman Syndrome Foundation! ASF support all families who have loved ones living with AS and they go above and beyond! From care packages, offering free counseling services for families, providing the ASF fund twice a year to those in need, to holding a huge family conference every other year (and helping families with room and board if needed). The ASF feels like family because they truly care about all AS families and want to better the daily lives of our AS individuals as much as they can!
The Angelman syndrome foundation has not only brought me hope but it has brought a peice of mind to my life.
ASF is a wonderful nonprofit that advocates for patients and their families. ASF always asks what they can do for us. I've had nothing but good experiences with them since getting my son's diagnosis 5 years ago.
The ASF had always been such a wonderful form of support from the time of diagnosis all the way through any bumps on the road. They help us to navigate anything we may need and they also put us in touch with the top specialists whenever our specialists cannot figure out something with our child with AS.
Excellent organization focused on the immediate needs of the AS community. Seriously can not say enough about this organization!
Upon diagnosis 12 years ago ASF was there to support and connected me with other families. ASF continues to support families with grants, access to ASF clinics and family conferences. ASF is working hard in the scientific realm to support and find treatments for individuals with AS as they fund research and clinical trials.
I've been working with the Angelman Syndrome Foundation since 1996. They have done an outstanding job of supporting the AS community and advancing the development of cutting-edge treatments.
The ASF has been instrumental in working with our family and child with AS. If it was not for the ASF I do not know where our journey would have taken us! We appreciate the clinics, conferences, and networking with families. Truly the most outstanding nonprofit serving Angelman Syndrome.
The ASF has been instrumental in processing our daughter’s diagnosis. The support we have received from this organization and the community it has created has been invaluable. Our daughter has also been the a recipient of a scholarship from their family fund to receive adaptive equipment that has changed her ability to socialize.
The kindness and empathy we were shown by this organization upon diagnosis was greatly comforting. As we struggled to overcome the emotional impact of our child's diagnosis, we began to explore the mission and resources available through the ASF. They have helped us secure equipment for our son, advocated on our behalf with insurance companies and provided great input that ensures our child will get the best education and therapy possible. They have directly contributed to research projects that have gone on to directly impact the lives of patients and caregivers.
When we first received our child's diagnosis of AS, we were filled with uncertainty and questions about how to best support and understand their unique needs. At that moment, the Angelman Syndrome Foundation (ASF) became a beacon of hope, knowledge, and support for us.
The resources provided by ASF have been an invaluable lifeline, offering us valuable information about AS, its characteristics, and available treatment options. Through the ASF website, educational materials, and online forums, we have gained insights that have empowered us to be proactive advocates for our child's well-being.
One aspect that has made a remarkable difference in our lives is the strong and supportive community ASF has fostered. Connecting with other families facing similar challenges through ASF events and local support groups has been transformative. The friendships we've formed have not only provided emotional support during difficult times but have also given us a network of individuals who truly understand the unique joys and struggles of raising a child with AS.
ASF's commitment to research and the advancement of knowledge about AS has given us hope for a brighter future. We are inspired by the dedication of researchers and professionals working tirelessly to unravel the mysteries of AS, seeking better treatments and potential cures. Being part of a community that actively contributes to research efforts fills us with a sense of purpose and a shared vision of progress.
The ASF conferences and events have been invaluable opportunities for us to learn from experts in the field, participate in informative workshops, and stay up-to-date with the latest advancements in AS research and therapies. Each conference has been a chance for us to come together as a family and gain new insights that positively impact our lives.
Lastly, I would like to extend our deepest appreciation for the ASF's ongoing efforts in raising awareness about Angelman Syndrome. Through public awareness campaigns and advocacy initiatives, ASF is helping to create a more inclusive and compassionate world for individuals with AS, one where their unique abilities are celebrated and understood.
In conclusion, the Angelman Syndrome Foundation has become an integral part of our lives, providing guidance, support, and a sense of belonging that has strengthened our family's resolve. We are forever grateful for the impact your organization has had on our journey with Angelman Syndrome.
The ASF has been fantastic from day one! After our child's diagnosis, we were unsure of next steps, and Angelman Syndrome is so rare that we didn't know anyone else dealing with the disorder. I found ASF online and was embraced by a community that quickly became my family. The Angelman Syndrome Foundation reached out to us immediately, provided a listening ear, advised us of available support, and were instrumental in getting our child seen at an AS clinic. The support provided to families is invaluable and we would be lost without them! Thank you for championing our loved ones!
Fast vive us the strengh to get up everything Day. They are looking for a cure for our children and they have given a hope for all of us.
They Rock! They have given Millions of Dollars in research money to finding a cure and enhancing the lives of Individuals with AS. Whenever I have a problem I can call them and find support. I've been participating in their walks and they are a blast, plus they do lots of good for the entire AS Community!