My Nonprofit Reviews
Review for Mesothelioma Applied Research Foundation Inc, Alexandria, VA, USA
I was diagnosed with Pleural Mesothelioma in 2007 at the age of 31. I was told it was a deadly aggressive cancer. My doctors did not know alot about it and how to treat it. I was luckly sent to Memorial Sloan Kettering Cancer Center in NYC where I had a great surgeon. Then after surgery I became depressed and I felt alone with my disease. I was searching the web and came across the Mesothelioma Applied Research Foundation. I signed up to attend a symposium that they were having in Washington D.C. I felt so inspired after seeing all that everyone does in the foundation to raise awareness, find answers with doctors that are experts in the field. I was grateful to see what the scientists have been working on to find better treatment options for patients and their endless search to find a cure. I got to meet more patients then I thought existed. We are all a big family, I look forward to seeing them every year at the advocacy events and symposiums. Most of all I went from being angry to being empowered. I learned I alone can make a difference with advocacy and fundraising for the foundation. Its a wonderful needed support group that has amazing people working that really cares for us.
How would you describe the help you got from this organization?
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Review for The Next Step Fund, Inc., Cambridge, MA, USA
I am a young survivor diagnosed with plureal Mesothelioma. I atteneded a retreat through Next Step for young cancer survivors. I learned so much in the 3 days I was there. I was able to connect with others that were going through exactly what I was. I was dealing with an identity crisis. I was having a hard time reconnecting with my husband, having feelings of survivor guilt. I had no idea that these were common issues with other survivors. I was able to open up and share my feelings with people for the first time that knew exactly how I felt! I was able to listen and hear others share similar issues. The retreat also provided an atmosphere that was relaxing and enjoyable. I still keep in contact with friends I have made, and we can still continue to help each other get through difficult times. I also met a awesome friend that I visit and meet up with through out the year. This program is very much needed and so much appreciated!!
I've personally experienced the results of this organization in...
I have been able to change my anger into action. I have done more advocatcy and fundraising. I have shared my experience with other survivors and recommended the program. I was able to reach out to my roomate and let her know its ok to go to counceling and she did.
If I had to make changes to this organization, I would...
I would love to revisit the same retreat with the same young survivors for a reunion!