My Nonprofit Reviews
one lung
Review for Mesothelioma Applied Research Foundation Inc, Alexandria, VA, USA
I was diagnosed with Pleural Mesothelioma in 2007 at the age of 31. I was told it was a deadly aggressive cancer. My doctors did not know alot about it and how to treat it. I was luckly sent to Memorial Sloan Kettering Cancer Center in NYC where I had a great surgeon. Then after surgery I became depressed and I felt alone with my disease. I was searching the web and came across the Mesothelioma Applied Research Foundation. I signed up to attend a symposium that they were having in Washington D.C. I felt so inspired after seeing all that everyone does in the foundation to raise awareness, find answers with doctors that are experts in the field. I was grateful to see what the scientists have been working on to find better treatment options for patients and their endless search to find a cure. I got to meet more patients then I thought existed. We are all a big family, I look forward to seeing them every year at the advocacy events and symposiums. Most of all I went from being angry to being empowered. I learned I alone can make a difference with advocacy and fundraising for the foundation. Its a wonderful needed support group that has amazing people working that really cares for us.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
Review for The Next Step Fund, Inc., Cambridge, MA, USA
I am a young survivor diagnosed with plureal Mesothelioma. I atteneded a retreat through Next Step for young cancer survivors. I learned so much in the 3 days I was there. I was able to connect with others that were going through exactly what I was. I was dealing with an identity crisis. I was having a hard time reconnecting with my husband, having feelings of survivor guilt. I had no idea that these were common issues with other survivors. I was able to open up and share my feelings with people for the first time that knew exactly how I felt! I was able to listen and hear others share similar issues. The retreat also provided an atmosphere that was relaxing and enjoyable. I still keep in contact with friends I have made, and we can still continue to help each other get through difficult times. I also met a awesome friend that I visit and meet up with through out the year. This program is very much needed and so much appreciated!!
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I've personally experienced the results of this organization in...
I have been able to change my anger into action. I have done more advocatcy and fundraising. I have shared my experience with other survivors and recommended the program. I was able to reach out to my roomate and let her know its ok to go to counceling and she did.
If I had to make changes to this organization, I would...
I would love to revisit the same retreat with the same young survivors for a reunion!
