I am concerned about the reoccurrence of my Peritoneal Mesothelioma. Mesothelioma Applied Research Foundation has been an invaluable resource to me. They quickly pointed me to the right doctor and helped me set up the appointment. During the time when I am stressed and concerned, the Foundation has been a lifesaver and made this a much easier process for me. I sure wish I would have known about them when I was first diagnosed 10 years ago. My husband and I spend hours researching my cancer and who to see. They have the answers patients are looking for and gladly help though this stressful time. I am cannot say enough about their willingness to help. Thank you!
Mary and the entire team at MARF were monumental is helping my daughter find doctors and get support in order to travel to these doctors. Although she lost her battle almost two years ago at age 27, we still support MARF. Together we will find a cure! #curemeso
Diagnosed in 2010 with stage 4 mesothelioma, I faced a precarious and unknown future. The Mesothelioma Foundation provided me with guidance to physicians, centers, and treatment modalities of experience and excellence.
No other organization has the depth of knowledge coupled with the passion to support patients, their families, and critical research in the mesothelioma field.
I, and many of my peers, are alive; credit to MARF.
I have been associated with the Foundation for almost five years. I've been to their symposiums, done fundraisers, participated on their facebook groups and mentored other patients. The staff and board of this Foundation is top notch in my book. They keep things personal with all patients. We can call, meet with them or corrrespond by phone and email. Really a dedicated and caring group of people in my book. They have ceryainly helped me and I can say that I know many more patients who owe their lives to this organization. Bob Brittingham, 302-381-1292, email@example.com . Meso patient.
This is a fantastic organisation that is committed to finding a cure for mesothelioma ..In addition it provides support for patients and their families.They are a fantastic source of the most upto date information on treatment methods and ways of managing symptoms
I am so grateful this organisation exists it gives us hope for the future.
My dad was diagnosed with Mesathemioma in July 2014. This foundation helped a lot. I know my dad must talk them since he had curemeso magnet. I got involved when I decided to do my own charity event for them. My dad past away from mesothelioma 2 months ago and this nonprofit has been so supportive
What a great source for information and support. Everyone associated with it wants to help find a cure and help you and your family.
Most amazing foundation truely dedicated to research.
My mother was diagnosed with Mesothelioma in 2014. The Meso Foundation served so many roles for us over the last two years -- expert knowledge of doctors, trials, treatments, caregiving, and side effects. Mary's straightforward, compassionate conversations and friendship during Mom's end of life this summer during my time of need was invaluable and much appreciated.
I attended the October 7, 2016 Mesothelioma Symposium in Chicago as the 'caregiver' of a patient, my husband. I arrived alone, a bit apprehensive not knowing what to expect. The group was very welcoming, it was wonderful to realize there were many other patients and families struggling with the same disease and issues.
The agenda and experts were stellar, the Q & A portions moved right along, the lunch provided was outstanding.
I learned about the Facebook group, and now have additional resources to use in the future, because that's the one thing there is available to us, a FUTURE!
I would recommend the Mesothelioma Applied Research Foundation to anyone with an interest in the disease, as a parent, caregiver, or clinician.
I was diagnosed in 2009 and I have been on a long journey where the infomation on Mesothelioma is so swamped with bad news. I found MARF and although in the US and Im in the UK it was great to find other people in the same boat as myself. I found so much infomation and great to read about trials that although in the US soon came to the UK. We are all one family and we share so much.
I share the site and infomation with our Mesowarriors UK Groups on Social Media so a huge thankyou for all the hard work xx
I cannot thank the staff at MARF enough. When my father was diagnosed with mesothelioma, we had no one to turn to at the hospital. No one was answering questions, no one was giving us resources. Then, we found MARF. My father only lived two months after his diagnosis but without the help of MARF, those two months would have been more chaotic and uncomfortable than I could ever have imagined. Thank you for being there and thank you for you support. Here is a photo of our family at our first Miles for Meso this summer, two months after my dad passed away.
I've spent over 30 years in litigation arising from asbestos. In those years, this group stands alone - by far - as the top group advocating for scientific research and providing educational, emotional and financial support for patients and their caregivers. No other group has - or will have - the knowledge, compassion and tenacity of Mary, Melinda and the entire team.
MARF is the only place to go for Mesothelioma information. The money goes to research to help understand this very rare form of cancer. God Bless them and the work they do!
I stumbled upon this foundation in my research for patient assistance when my husband was diagnosed with Mesothelioma a year ago. The foundation provides both financial and educational assistance for patients and their loved ones. Their executive director, Mary Hesdorffer, RN is incredibly knowledgeable and helpful in advising and educating patients about the different clinical trials available for treatment of Mesothelioma. She is dedicated to helping patients getting the help they need and has been incredible helpful to us. I highly recommend this foundation.
The Mesothelioma Applied Research Foundation brings together patients, physicians, policymakers, caregivers, researchers, the bereaved, donors, and activists in a community whose goals are the alleviation of suffering in current patients, the advancement of medical knowledge that can move us toward new treatments and perhaps a cure, the increase of awareness about the disease and the ubiquitous nature of its cause (asbestos), the constant and sophisticated support for the families who support the patients, and the necessary political advocacy to further funding to accomplish all of the former. It is a non-profit, alone in its field. The professionals running the Foundation are tireless, selfless, and indispensable.
I, like so many of my peers, am alive in no small part because of how these people live their lives.
Meso Foundation has been awesome support to my family. My husband was diagnosed with Meso in 2014 and has undergone several types of treatments. The volunteers and staff at the foundation have been helpful in directing us to other options as well as supporting us emotionally through connecting us to others who have been through this.
Mesothelioma Applied Research Foundation Inc Is THE organization that drives awareness, fund raising for research, and life saving guidance for and about the deadly asbestos- caused cancer- mesothelioma. The Foundations symposia are the resource for both scientists and patients and their families. This is truly a life changing organization. It has made it possible for me to continue to live with hope.
Mary Hesdorfer and the entire group have provided tremendous help and support to me as a mesothelioma patient. This support has potentially saved my life and has helped me look into every treatment option, including very current advances in research.
Cure Meso helped me understand my second "Moms" condition. It helped me understand the complexities of this disease and helped me feel connected with others who were going through the same. It helped spread the word about Meso by ordering and wearing the "curemeso" blue braclets. More awareness needs to be made an more research needs to be done and MARF is doing just that. Forever grateful for this nonprofit!!!