2020 Top-Rated Nonprofit

Mesothelioma Applied Research Foundation Inc

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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause.

The Foundation solicits and rigorously reviews applications, and then awards significant grants for research on the prevention, early detection, and treatment of mesothelioma. Through its website and literature, its direct communications, and its annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members, and physicians with hope, encouragement, and information. The Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.

Community Stories

156 Stories from Volunteers, Donors & Supporters

amt67 Client Served

Rating: 5

10/26/2022

The Mesothelioma Applied Research Foundation helped my wife and I navigate the complicated world of mesothelioma. The Foundation provided us invaluable support and information. My wife was able to connect with other patients for support and comfort. As a bereaved member of the community now, I am able to connect with other members who lost their loved ones, and just get it.

ClaudineB Client Served

Rating: 5

10/26/2022

My husband was diagnosed with peritoneal mesothelioma in 2016 and passed away in January 2019. Even though treatment wasn’t able to save his life, we never questioned whether we were making the right choices, thanks to the compassionate and expert guidance we received from the Mesothelioma Applied Research Foundation. By connecting me with other members of the bereaved community, who really understand what we went through, the foundation continues to ease my journey through the difficult world of meso.

kjamieson Volunteer

Rating: 5

10/26/2022

I'm so grateful for the Meso Foundation! As the only nonprofit dedicated to serving mesothelioma patients and their families, with this tough diagnosis and confusing course to manage afterwards, having the Meso Foundation as a resource is truly a gift. From the community aspects - so no one has to go this disease alone - to the research funding, advocacy, and overall support, I cannot recommend this foundation enough.

lisaleed Client Served

Rating: 5

10/24/2022

MARF is the best source for unbiased, current, research-based information on mesothelioma. If you are a patient or caregiver, you can find person-to-person support from an extensive meso community that includes medical professionals who can put you in contact with the help you need. Not underwritten by the legal community.

marthataniis Client Served

Rating: 5

10/24/2022

Without this foundation my husband would not be alive today. We continue to rely heavily on the advice of it and use the support resources regularly.

Previous Stories

Client Served

Rating: 5

08/23/2021

Without the Mesothelioma Applied Research Foundation my husband would not be alive today. We had no idea about this disease at his diagnosis and the foundation has helped guide us every step of the way.

Yllek General Member of the Public

Rating: 5

10/24/2022

Incredibly supportive and informative organization! As a patient, I am tremendously grateful for the team and all they do for patients and their families. I was completely lost after my diagnosis and Mesothelioma Applied Research Foundation has provided me with the knowledge, support, and direction I need to cope with this rare and scary disease. Because of this amazing organization and incredible team, I have hope again. Mesothelioma patients would be lost without them.

Nikke A. General Member of the Public

Rating: 5

07/03/2021

This organization has given us HOPE.

Mg husband was diagnosed with pleural mesothelioma in April 2021. After getting the diagnosis, we were
scared and trying desperately to find reliable information.

There is a huge amount of confusing information out there about mesothelioma- not to mention all the law firms clogging the google pages - and it feels impossible to find real, relatable stories and find other survivors and caregivers to talk with. The support groups have been amazing and so has everyone we have interacted with.

We are so incredibly grateful for this organization. They are life-giving.

pat.maholland Board Member

Rating: 5

07/02/2021

I came across this wonderful organization through the research of my wife when I was first diagnosed with pleural meso in Feb 18. Since that time I have met (virtually in this crazy world) some of the finest people I have ever met. You can’t explain what it means to belong to a group like this unless you are forced to join a group like this… but, man, does it help to know we are not fighting alone.

Kelly K.4 Client Served

Rating: 5

07/02/2021

All interactions with this foundation have been nothing short of amazing and a Godsend. Everyone is not only incredibly nice, but they go over and above to educate, help, and support. I cannot say enough good things about the Mesothelioma Applied Research Foundation and am grateful for them.

shinyshani Client Served

Rating: 5

07/02/2021

My Dad received his meso diagnosis over 10 years ago. The generally available information is frightening but the life-line we received was literally life-saving. The connections to doctors, other patients and caregivers and to researchers has created a family - brilliant, loving, caring.

This tiny organization punches SO far above its weight. Anything to raise its profile and reach so more persons can access these amazing resources to counteract the fear and give some comfort. And hope.

I cannot say enough, so I'll stop here.

cherylbruner Client Served

Rating: 5

07/02/2021

The Meso Foundation has been here for our family from the time of our Mom’s initial diagnosis in 2014 through the present. It is the ONLY organization of its kind in the U.S. for mesothelioma. Patient travel grants, advice, research, information on clinical trials, a peer group of patients and caregivers, and more. Every meso patient and caregiver should make contact with the Meso Foundation.

mkopier Donor

Rating: 5

10/29/2020

I have fundraised for this charity for a number of years and have attended their conferences. My company is a a donor to them as well. They are an amazing resources to those that have been affected my mesothelioma.

Bernie P. Client Served

Rating: 5

10/27/2020

My wife was diagnosed with pericardial mesothelioma in 2016.Not knowing where to turn and searching for help we stumbled onto the Mesothelioma Applied Research Foundation. They have been an incredible help to us,always available for us when we needed expert knowledge to help with the fight. Thanks Mary for all you and the foundation do.

Sherri L. S. Client Served

Rating: 5

10/26/2020

I am so grateful for the guidance and grant money I received after my 2017 diagnosis of mesothelioma. The foundation helped with the costs of my travel from Arkansas to Massachusetts to receive world class treatment at Tufts. I depend on them to keep me up to date on latest advances in treating this horrible and fairly rare cancer. I’m am also grateful for connecting with others living with and battling mesothelioma.

prollings General Member of the Public

Rating: 5

10/17/2020

I found this organization in June after my husband was diagnosed with mesothelioma. They are a great source of the most current information about the disease and treatment options. They support patients, caregivers and family members through their staff and peer support group calls. I have been impressed by their access to leading experts and the volunteers who help lead their efforts. I check in with them frequently as I know I will find good information and answers to my questions. The executive director, Mary Hersdorffer, is exceptionally helpful, knowledgeable, and accessible and was a great comfort to me when I needed it most.

gcourtney General Member of the Public

Rating: 5

10/15/2020

A diagnosis of peritoneal mesothelioma in 2012 stopped us in our tracks. We had no idea what to do, but an internet search quickly led us to the Meso Applied Research Foundation and its wonderful staff. With a single phone call, we had the support of an expert nurse practitioner & contact information for 3 specialists located within driving distance. Throughout an 8 year battle, the Meso Applied Research Foundation was a steadfast source of science-based information, help, comfort, reassurance, & hope. I don’t know what we’d have done without it.

oliviachung.16 General Member of the Public

Rating: 5

10/14/2020

MARF has been nothing short of supportive, informative and makes me feel part of a loving community I never thought I would belong to as a young patient with this cancer diagnosis. MARF will always have my respect in advocating for patient safety and awareness. Thank you for all you do!

kristinah General Member of the Public

Rating: 5

10/14/2020

My mom was diagnosed with mesothelioma a year ago. She has no known history of exposure to asbestos. She’s currently getting chemotherapy and overall feeling pretty well. I’m an RN and appreciate evidence based info and the Mesothelioma Applied Research Foundation has been a blessing. They’ve been a trusted source of information and I feel like we aren’t alone. This is a great nonprofit organization.

mcdzoo Client Served

Rating: 5

10/14/2020

Incredible patient and client support system. MesoTV is an amazing resource.

Julie Little K. Client Served

Rating: 5

10/14/2020

I find this foundation a great source of knowledge. It is great to hear firsthand from patients and caregivers and medical personnel about symptom, treatments and future developments regarding mesothelioma. My husband has just been diagnosed with stage 4 pleural mesothelioma and I have learned a lot from the Facebook group members.

JillW25 Volunteer

Rating: 5

10/14/2020

I am honored to host the Bruce A. Waite 5k annually, with proceeds going to the Mesothelioma Applied Research Foundation. In keeping with my Dad's legacy, we wanted to ensure that the recipient agency would be one of integrity, honesty, and a focus on helping others who have lost a loved one to mesothelioma. Since the inception of the race, I have had opportunity to become a volunteer for the Foundation, through a community board and MesoTV. The Meso Foundation works diligently for mesothelioma patients and families to assist in a myriad of ways (research grants, patient care, family support), always with the understanding that we are not alone in this journey.
Jill A. Waite

Previous Stories

Donor

Rating: 5

10/31/2019

The Mesothelioma Applied Research Foundation is the nonprofit to whom we donate the proceeds from the Bruce A. Waite 5k. As a daughter of a man who died from mesothelioma, I sought an agency who would help families navigate the horror of this diagnosis, and who is focused on research to eradicate this disease, so no other families have to endure what we did. MARF has integrity as an organization, and with each individual affiliated - employee, volunteer, etc.

buerkleyrose Board Member

Rating: 5

10/14/2020

This organization goes above and beyond for patients and families to not only provide resources and support, but also advocate and propel research forward for mesothelioma.

Maureen Corbett M. Client Served

Rating: 5

11/12/2019

Being diagnosed with Mesothelioma was the scariest thing that has ever happened to me. This foundation has been a lifeline for me. Not only do they give you so much information, they give you hope.

richard_3 Client Served

Rating: 5

11/04/2019

Wonderful organization that provides info and support for both patients and caregivers through all steps.

Previous Stories

Client Served

Rating: 5

07/15/2014

The Meso Foundation has helped me as a caregiver and my husband as a patient with peritoneal mesothelioma with information and support groups through Facebook, telephone calls, symposiums, etc. They also fund much needed research for a cure. They have become a lifeline and a new community for me. Everything is also done with the utmost integrity and humanity.

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Darci Garnett D. Donor

Rating: 5

10/31/2019

This community of people gave me hope, insight, a shoulder and education on my mesothelioma diagnosis. They helped my family and myself with questions and locations. They are here to save lives and find a cure!

1

Sherrie1125 Client Served

Rating: 5

10/31/2019

Being a 11 year survivor from advanced stages of Mesothelioma I can say without hesitation that this organization is one of the top ever in all areas.
The leaders are not only extremely knowledgeable in this disease and direct each of us to the best care possible but the compassion is unmeasurable.
They help each of us in many ways, and the financial help when one feels they just can’t make that specialist appointment but know it’s so necessary.
I could write a million words about this organization but I’ll stop here and just say one word “ Remarkable “

Carla A.2 General Member of the Public

Rating: 5

10/31/2019

This foundation has helped me immensely. I have pleural mesothelioma and have learned a lot from this foundation. Thank you!

kquigley General Member of the Public

Rating: 5

10/31/2019

I am new in this journey with my dad who was diagnosed with pleural byphasic Mesothelioma. Mary has been nothing short of amazing in helping me navigate this journey.

Sue R.1 Client Served

Rating: 5

10/31/2019

The Mesothelioma Applied Research Foundation has been an invaluable help to my husband and to me, as his caregiver. They are excellent stewards of their funds and their resources and knowledge helped us immensely as we journeyed through this awful disease. I highly recommend them as a resource for those who have been diagnosed with mesothelioma.

Marcella B. Professional with expertise in this field

Rating: 5

10/21/2019

A great organization truly dedicated to help mesothelioma research with fundraising activity and people affected by mesothelioma providing all the info useful to deal with this disease.

Tasha Russell C. Client Served

Rating: 5

07/20/2019

Incredible organization that truly helps people. The money is being used wisely towards research and finding a cure for Mesothelioma. As a 11 year survivor I can tell you that this is the greatest resource that I have found. The staff is fantastic and the group of people are so helpful. I only wish I had known about them sooner. This is a very wise investment of donation money. They are the real deal!

Previous Stories

Client Served

Rating: 5

01/11/2019

I am concerned about the reoccurrence of my Peritoneal Mesothelioma. Mesothelioma Applied Research Foundation has been an invaluable resource to me. They quickly pointed me to the right doctor and helped me set up the appointment. During the time when I am stressed and concerned, the Foundation has been a lifesaver and made this a much easier process for me. I sure wish I would have known about them when I was first diagnosed 10 years ago. My husband and I spend hours researching my cancer and who to see. They have the answers patients are looking for and gladly help though this stressful time. I am cannot say enough about their willingness to help. Thank you!

Mary M.12 Client Served

Rating: 5

07/16/2019

I learned about MARF 6 1/2 years ago soon after my diagnosis. My friend requested the free books and information after seeing the advertisement on television. She brought me the books and information, which answered many of the questions stirring in our minds. It gave a number to call for contact with a nurse practitioner well schooled in the latest treatments and where to find them. She put me in touch with someone who had been treated and willing to share her personal story with me. It was a great way to learn that there was hope for me and others. The nurse also confirmed for me that the cancer center I was considering was appropriate for treating Mesothelioma. I have enjoyed the educational conferences where you are able to learn the latest stats of treatments and guidance to additional new methods. You are able to meet physicians and nurses from different treatment centers you may have considered visiting. I love knowing that I can call the nurse practitioner who will give me unbiased information , and points me in the direction of choices.

Writer Client Served

Rating: 5

07/15/2019

This is the most amazing non-profit for mesothelioma research and patient support. There are not a lot of treatments available for this rare cancer. Because it is so rare, those with the disease (like me) need as much support as possible. Those working for the foundation have literally helped save my life. I’m forever indebted and grateful.

Previous Stories
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Client Served

Rating: 5

10/30/2015

Mary Hesdorfer and the entire group have provided tremendous help and support to me as a mesothelioma patient. This support has potentially saved my life and has helped me look into every treatment option, including very current advances in research.

lisaduke Donor

Rating: 5

07/15/2019

My grandfather and his best friend died of meso, an asbestos related cancer. It is relatively common in places with large military populations. But the general public understands little about this disease and people have few places to turn to for good information on treatment options and a community of fellow warriors. This fine organization provides guidance for people with this lethal disease and funds research, organizes conferences, puts together support groups, lobbies for a patient registry and other much-needed services. Without MARF, thousands of people would struggle alone with a fatal disease that is understood by few doctors, let alone lay people. I have attended their conferences to learn about the advances in the war against meso and am astonished that the director of the foundation, Mary Hesdorffer, personally fields calls from patients desperate for information and support. I can’t say enough good things about MARF.

Blayne Reggio M. Client Served

Rating: 5

07/15/2019

Until I found the Mesothelioma Applied Research Foundation, I was floundering in a sea of misinformation skewed by legal ads all jumbled into pages and pages of internet search results, it was so overwhelming to me at the very time when I was desperate for information, support and education.. I was broken from the news that my husband was now a victim of this deadly disease. This foundation provided me the guidance in getting him the best care, the education I needed to pick the right providers, it put me in touch with survivors and caregivers and gave me a safe place to express my fears and concerns, the ability to ask all of the questions as a caregiver so I could be my best ..and understand from both ends of the spectrum what this disease process does to a family, and to the loved ones we are watching fight for their lives. I can't speak highly enough of how invaluable an advocate Mary Hesdorfer is for all of us affected by this horrific disease, from her clinical excellence in practice to knowledge of treatment options and clinical trials, to being a friend who is there for you when you're falling apart and can't find your way through the maze of medical care. Thank you Mary, for your dedication, the creation of this foundation, and what you have accomplished in getting awareness and improved treatment for those fighting Meso. By advocating for us in the fight for funding for improved treatment.. We would be lost without Mesothelioma Applied Research Foundation and the resources is has provided for us personally and for everyone In the battle of survival against Mesothelioma. Blayne Minogue, Suffern NY

whoopdaddy Donor

Rating: 5

04/25/2019

This nonprofit does so much for people with mesothelioma, both patients and caregivers. They are so patient-focused and offer endless treatment resources and support groups. All of the information shared with this group is private (they don't resell your name, etc.). It's all about the patients here, which is so wonderful. The caring individuals associated with this foundation give people support, hope and roadmap for a bright future. I donate regularly as I know my money is going to a great place and will be used to help patients and fund research for a cure.

Ellen B.1 Client Served

Rating: 5

12/11/2018

Mary and the entire team at MARF were monumental is helping my daughter find doctors and get support in order to travel to these doctors. Although she lost her battle almost two years ago at age 27, we still support MARF. Together we will find a cure! #curemeso

Forever_Grateful Client Served

Rating: 5

12/03/2018

Diagnosed in 2010 with stage 4 mesothelioma, I faced a precarious and unknown future. The Mesothelioma Foundation provided me with guidance to physicians, centers, and treatment modalities of experience and excellence.
No other organization has the depth of knowledge coupled with the passion to support patients, their families, and critical research in the mesothelioma field.
I, and many of my peers, are alive; credit to MARF.

Writer Client Served

Rating: 5

09/10/2017

I have been associated with the Foundation for almost five years. I've been to their symposiums, done fundraisers, participated on their facebook groups and mentored other patients. The staff and board of this Foundation is top notch in my book. They keep things personal with all patients. We can call, meet with them or corrrespond by phone and email. Really a dedicated and caring group of people in my book. They have ceryainly helped me and I can say that I know many more patients who owe their lives to this organization. Bob Brittingham, 302-381-1292, bobbrittsemail@gmail.com . Meso patient.

Writer Client Served

Rating: 5

08/22/2017

This is a fantastic organisation that is committed to finding a cure for mesothelioma ..In addition it provides support for patients and their families.They are a fantastic source of the most upto date information on treatment methods and ways of managing symptoms

I am so grateful this organisation exists it gives us hope for the future.

2

Ashley185 General Member of the Public

Rating: 5

10/27/2016

My dad was diagnosed with Mesathemioma in July 2014. This foundation helped a lot. I know my dad must talk them since he had curemeso magnet. I got involved when I decided to do my own charity event for them. My dad past away from mesothelioma 2 months ago and this nonprofit has been so supportive

2

MoringaMan General Member of the Public

Rating: 5

10/25/2016

What a great source for information and support. Everyone associated with it wants to help find a cure and help you and your family.

1

Writer Client Served

Rating: 5

10/22/2016

Most amazing foundation truely dedicated to research.

1

Cheryl180 Client Served

Rating: 5

10/22/2016

My mother was diagnosed with Mesothelioma in 2014. The Meso Foundation served so many roles for us over the last two years -- expert knowledge of doctors, trials, treatments, caregiving, and side effects. Mary's straightforward, compassionate conversations and friendship during Mom's end of life this summer during my time of need was invaluable and much appreciated.

2

stew3219 Client Served

Rating: 5

10/22/2016

I attended the October 7, 2016 Mesothelioma Symposium in Chicago as the 'caregiver' of a patient, my husband. I arrived alone, a bit apprehensive not knowing what to expect. The group was very welcoming, it was wonderful to realize there were many other patients and families struggling with the same disease and issues.

The agenda and experts were stellar, the Q & A portions moved right along, the lunch provided was outstanding.
I learned about the Facebook group, and now have additional resources to use in the future, because that's the one thing there is available to us, a FUTURE!

I would recommend the Mesothelioma Applied Research Foundation to anyone with an interest in the disease, as a parent, caregiver, or clinician.

2

Mavis N. General Member of the Public

Rating: 5

10/22/2016

I was diagnosed in 2009 and I have been on a long journey where the infomation on Mesothelioma is so swamped with bad news. I found MARF and although in the US and Im in the UK it was great to find other people in the same boat as myself. I found so much infomation and great to read about trials that although in the US soon came to the UK. We are all one family and we share so much.
I share the site and infomation with our Mesowarriors UK Groups on Social Media so a huge thankyou for all the hard work xx

2

sherirettig General Member of the Public

Rating: 5

10/21/2016

I cannot thank the staff at MARF enough. When my father was diagnosed with mesothelioma, we had no one to turn to at the hospital. No one was answering questions, no one was giving us resources. Then, we found MARF. My father only lived two months after his diagnosis but without the help of MARF, those two months would have been more chaotic and uncomfortable than I could ever have imagined. Thank you for being there and thank you for you support. Here is a photo of our family at our first Miles for Meso this summer, two months after my dad passed away.

2

Kirk4 Professional with expertise in this field

Rating: 5

10/20/2016

I've spent over 30 years in litigation arising from asbestos. In those years, this group stands alone - by far - as the top group advocating for scientific research and providing educational, emotional and financial support for patients and their caregivers. No other group has - or will have - the knowledge, compassion and tenacity of Mary, Melinda and the entire team.

2

Writer Client Served

Rating: 5

10/15/2016

MARF is the only place to go for Mesothelioma information. The money goes to research to help understand this very rare form of cancer. God Bless them and the work they do!

1

mvosmft Client Served

Rating: 5

10/13/2016

I stumbled upon this foundation in my research for patient assistance when my husband was diagnosed with Mesothelioma a year ago. The foundation provides both financial and educational assistance for patients and their loved ones. Their executive director, Mary Hesdorffer, RN is incredibly knowledgeable and helpful in advising and educating patients about the different clinical trials available for treatment of Mesothelioma. She is dedicated to helping patients getting the help they need and has been incredible helpful to us. I highly recommend this foundation.

1

Writer Client Served

Rating: 5

10/13/2016

The Mesothelioma Applied Research Foundation brings together patients, physicians, policymakers, caregivers, researchers, the bereaved, donors, and activists in a community whose goals are the alleviation of suffering in current patients, the advancement of medical knowledge that can move us toward new treatments and perhaps a cure, the increase of awareness about the disease and the ubiquitous nature of its cause (asbestos), the constant and sophisticated support for the families who support the patients, and the necessary political advocacy to further funding to accomplish all of the former. It is a non-profit, alone in its field. The professionals running the Foundation are tireless, selfless, and indispensable.
I, like so many of my peers, am alive in no small part because of how these people live their lives.

1

Beth182 Client Served

Rating: 5

10/13/2016

Meso Foundation has been awesome support to my family. My husband was diagnosed with Meso in 2014 and has undergone several types of treatments. The volunteers and staff at the foundation have been helpful in directing us to other options as well as supporting us emotionally through connecting us to others who have been through this.

3

Raya B. Client Served

Rating: 5

10/30/2015

Mesothelioma Applied Research Foundation Inc Is THE organization that drives awareness, fund raising for research, and life saving guidance for and about the deadly asbestos- caused cancer- mesothelioma. The Foundations symposia are the resource for both scientists and patients and their families. This is truly a life changing organization. It has made it possible for me to continue to live with hope.

3

Writer General Member of the Public

Rating: 5

10/29/2015

Cure Meso helped me understand my second "Moms" condition. It helped me understand the complexities of this disease and helped me feel connected with others who were going through the same. It helped spread the word about Meso by ordering and wearing the "curemeso" blue braclets. More awareness needs to be made an more research needs to be done and MARF is doing just that. Forever grateful for this nonprofit!!!

6

JoAnn16 General Member of the Public

Rating: 5

10/29/2015

Did wonders for my friend who has now been free of the disease for 9 years. The research grants, patient and caregiver support, and wealth of information is second to none along with the small staff that keeps it's wheels oiled looking for better treatments and a cure.

2

Writer Client Served

Rating: 5

10/29/2015

A great resource and support for mesothelioma patients and their families.

4

Writer Client Served

Rating: 5

10/29/2015

The Mesothelioma Research Foundation was an incredible source of hope and knowledge for me when I was diagnosed in 2007. They helped my husband get me to the right doctors and gave us support and the ability to interact with others who were going through the same situation. Over the last 8 years I have been able to use their wealth of knowledge to help me whenever I have questions or concerns. They have created a community for patients and caregivers that is essential when dealing with this disease.

3

Hanneruth Donor

Rating: 5

10/29/2015

The Meso Foundation and its dedicated staff gave our family courage when we needed it the most - to help us through our son Adam's peritoneal mesothelioma, and to help Adam see that he was not alone with this awful illness. Every penny given to the Foundation has resulted in better treatments and hope for thousands of patients and their families. Survival rates are up, and the network supported by the Foundation allows patients and family members to access medical experts and promising treatments, and allows researchers to move forward. Thank you, Meso Foundation.

2

Writer Client Served

Rating: 5

10/29/2015

The Meso Foundation is one of a kind, literally. This wonderful non-profit serves many needs of the meso patients and their caregivers. From travel grants to the latest medical trials and research, our meso journey would not have been the same without this wonderful group of knowledgeable, compassionate people.

3

Writer Client Served

Rating: 5

10/29/2015

When I was told to contact the Mesothelioma Foundation after my husbands diagnosis I was apprehensive. Not sure if this was going to be another secretly fueled Lawyer website. I did call but was still unsure. There were so many questions about the disease and treatment. As well as the immediate unknown about how our life was going to change without an income.
It was only after I contacted another family that also had just been diagnosed with Mesothelioma and heard their first hand account of how the foundation had answered all the unknowns that I made my second call to the foundation.
And after that second call and over the next two years the foundation guided us through surgery, recovery, chemo, radiation by giving us the tools to make informed descisions. In addition, with the support (closed and private) groups online I could always ask another family a question and receive a firsthand opinion from someone or from many who have walked that mile in my shoes. The online support groups were the day to day support that helped me as a caregiver get through the best days and the worst days of my husbands treatment. As someone once told me "it's the worst way to meet the best people". I hold the Mesothelioma Applied Research Foundation in the highest esteem. The help and guidance we received was like being embraced by a family and guided by angels every step of the way.

1

Writer General Member of the Public

Rating: 5

10/29/2015

It keeps us all up to date on the latest information on mesothelioma.

2

Stacey51 Client Served

Rating: 5

10/29/2015

My father passed away from mesothelioma eight years ago. When he was diagnosed, it was almost impossible to find quality information about the disease or doctors who were experts, let alone familiar with this "orphan" form of cancer. Our entire family was extremely frightened, confused and had no idea how to help my dad cope with the journey which lay ahead of him By chance, my sister came across the name of the Foundation and spoke with Chris Hahn (who was there at the time) and later, Mary Hesdorffer. These individuals along with others, helped us to make sense of the available medical treatment (no cure) at the time, and gave us referrals to oncologists (and hospital programs) who were extremely experienced and who helped my father put up the most valiant fight he could and retain his dignity until the day he passed away. My dad (a Navy veteran and former Brooklyn Navy Yard employee) was put in touch with others battling the disease for information, support and friendship. The caregivers' support board and Mary were always available to answer questions and offer kind words in our time of need. I honestly do not know what we would have done without being able to turn to the Mesothelioma Applied Research Foundation and its incredible team of volunteers.









2

Writer General Member of the Public

Rating: 5

10/29/2015

I lost my beloved husband to mesothelioma 4/10/09 and found this site after his death. I am so gratified to find people actively working to find cures, give advice and encouragement and raise funds etc. for those suffering as we did. Mesothelioma is a killer and an awful way to die. Anything that can be done to help eradicate this terrible disease and to help those suffering from it is a good thing. Please keep up the good work.

2

Writer General Member of the Public

Rating: 5

10/29/2015

Cure Meso. Org. This organization helps get information to those who are in need of medications and Who need assistance in helping others with this horrible disease

2

olewarhorse Client Served

Rating: 5

10/29/2015

Totally run by professionals who work with Mesothelioma patients and families by educating and supporting them. There is no organization with better medical knowledge of this disease. Their nurse practioner knows and has contact with every mesotheioma specialist and is constantly up-to-date on newest clinical trials.

Previous Stories
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Client Served

Rating: 5

08/08/2014

I volunteer to help others overcome living with Mesothelioma. This organization helped save my life, it's the least I can do to help it help other patients and community.

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3

Writer Client Served

Rating: 5

10/29/2015

The Mesothelioma Applied Research Foundation deserves a huge amount of credit for the fact that my husband is alive today.

In 2012, my husband was diagnosed with peritoneal mesothelioma. It was difficult to find resources because it's an exceptionally rare disease, and we needed someone with experience who could treat it in the abdomen -- unlike most meso patients who need treatment in the lungs. There are very few experienced surgeons in the U.S. for peritoneal mesothelioma, and it was daunting to wade through the internet to find one because even though we live in one of the largest cities in the country, there wasn't a single oncologist in town who specialized in treating peritoneal meso.

The Mesothelioma Applied Research Foundation not only helped us to find experienced onocological surgeons, but provided guidance and counsel. My husband's cancer didn't image on CT scans (it was found in the pathology after his appendix was removed), so moving forward with the drastic treatment of HIPEC--the standard of care for peritoneal meso--was scary. I can't imagine having done it without the experience, wisdom, and guidance of Mary Hefsdorffer at the Foundation.

After my husband's HIPEC surgery, there were tons of life-threatening complications. It has been and continues to be a rough road, but the Foundation has provided education and emotional support. They have helped us to attend conferences where we've learned first hand from doctors, researches, survivors and bereaved about this disease.

The Mesothelioma Applied Research Foundation has had an incredibly profound impact on my life. I'm forever grateful for everything they do!

2

Writer Client Served

Rating: 5

10/29/2015

The Mesolthelioma Applied Research Foundation is nothing short of wonderful in dealing with patients dealing with this disease and their caregivers. They are ALWAYS available to answer questions and are in the know on everything about this disease, whether it is related to doctors, drugs, clinical trials, etc.. I would, without a doubt, direct anybody facing this disease their way.

2

jadewebmaster Donor

Rating: 5

10/29/2015

I have several friends who are either battling mesothelioma, have a loved one who is (or who died from it), or are health care providers to meso patients. From them, I have learned that the Meso Foundation is the kind of nonprofit all others should strive to emulate! Its leaders are eminently ethical and professional in their operation of the foundation and stewardship of its funds -- and they provide absolutely priceless support to meso patients and caregivers. More than one of my friends have told me the Meso Foundation is the first place that gave them hope for effective treatment of their cancer, rather than just bad news. The Foundation stays on top of -- and helps fund -- the latest treatments for mesothelioma, and connects patients and families with expert doctors and nurses who are using these treatments. As a result, my friends who have the disease are alive today! The Meso Foundation also does a wonderful job of bringing patients and caregivers together in their yearly Symposium...and one of the truly healing and bonding experiences that has developed at this event is a band! They call themselves the Meso Fighters Band, and I wrote a blog post about them here. Please forgive the shameless plug...only including the link because it is absolutely an example of what makes the Meso Foundation, and all associated with it, exceptional: http://www.jcsmusicsbest.blogspot.com/2015/08/we-will-rock-you-meso-fighters-band.html

2

Robin82 Client Served

Rating: 5

10/29/2015

In the fall of 2007 my fiancee Brian was diagnosed with mesothelioma. Needless to say were were devastated. This being a rare cancer, we knew we had to seek out a Dr and hospital who dealt with this cancer on a regular basis to give Brian his best chance of survival.
I had read about Mesothelioma Applied Research Foundation (MARF) in a nursing journal only 1 month prior to Brian's diagnosis. I did not realize at the time how serendipitous that was. I found that article and contacted them. I spoke with the nurse practitioner, Mary, who ultimately helped guide us all the way through the 2 years of treatment with where to find resources and physicians, advice for chemotherapy related issues, and even just listening a time or 2. I believe in my heart that Brian would not have had those 2 years had it not been for this organization and their expertise, guidance, and knowledge of leading experts in this field. Thank you so much for all you do.

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Client Served

Rating: 5

10/04/2013

My fiancee Brian Holton was diagnosed with pleural mesothelioma in October of 2006. As one might imagine, we were devastated and did not know where to turn as the oncologist Brian had initially seen had no idea what to do with him. It took him 4 weeks to get around to ordering a biopsy for Brian. Fortunately one of my co-workers had seen a current article about mesothelioma in a medical journal and the Mesothelioma Applied Research Foundation (MARF) was featured in this article. It had contact information for Mary Hesdorffer RN, NP and I contacted her straight away.

Mary called me back the next day and spoke to me at length about mesothelioma and what our next steps should be. She put us in touch with the experts at New York-Presbyterian Hospital where there were doctors and nurses who dealt with this rare cancer on a regular basis. Over the next several months of chemotherapy Brian's tumor shrunk by 60%. However within that first year Brian's health insurance no longer allowed him to seek treatment out of state and again Mary Hesdorffer, through MARF, assisted us in finding a capable doctor. Also through MARF I was able to connect with other patients and caregivers going through the same thing we were which was a blessing for us.

As Brian's cancer progressed the local oncologist ran out of options for Brian. I got in touch with MARF, and Mary again put us in touch with a researcher at the National Cancer Institute, a division of the National Institute of Health, who specialized in mesothelioma. We went for treatment for several months until finally Brian succumbed to mesothelioma in 2008.

I believe that the two additional years Brian survived after his diagnosis, and they were good/happy years for us, was possible because of the expertise and help of this wonderful organization.

1

Heather232 Donor

Rating: 5

10/29/2015

Incredible peer support for a rare disease that doesn't have a lot of support elsewhere. The foundation helps the entire family, not just the patient. The funding they have provided for research has truly made a differenced in the world of mesothelioma treatment. i'm proud to continually spread the word and raise money for this foundation, as I know it will be used for research.

2

Writer Client Served

Rating: 5

10/29/2015

When I was first diagnosed with Mesothelioma, the Mesothelioma Applied Research Foundation was there for me, and continues to stand with me every step of the way. I cannot put into words the knowledge and support I have obtained from this agency.

2

Flora W. Client Served

Rating: 5

10/29/2015

I don't know what we would have done without this organization when we discovered we needed help with this diagnosis. The support, education, and expertise is invaluable and has been a constant thread of hope when hope was hard to find. I thank God for this organization and do everything I can to let people know about it because REAL help with Meso is so hard to find. This is a charitable organization with true grit heart, compassion and up to the moment expertise.

1

Writer General Member of the Public

Rating: 5

10/29/2015

When my mother was diagnosed with mesothelioma we got most of our information and guidance from MARF. My mother did not live very long after the diagnosis but I am thankful for the help we received from MARF.

2

serabr Client Served

Rating: 5

10/29/2015

I have mesothelioma. I have survived post-diagnosis (more than 5 years) because I have had access to and care by some of the most expert medical personnel who are dedicated to not only treatment, but also developing new medicines to beat this disease. I found those doctors and nurses because the Mesothelioma Applied Research Foundation made the connection for me. Simply put, MARF is one of the primary reasons I am alive.

Moreover, the Foundation was and is instrumental in promoting and funding the research that may allow me, and my peers, to continue to hold back and defeat meso. Additionally, it offers support tailored to patients, to caregivers and family members, and to the bereaved. The Foundation also has created systems for peer-to-peer discussions and contact among those groups, which let the affected know they are not alone, and spread information on shared experiences, what works, what doesn't, and other items that save time and reduce stress for patients or caregivers.

The Foundation stands alone as THE nonprofit organization dedicated to aiding patients in receiving care, funding peer-reviewed research into new treatments and drugs, educating patients, physicians, and those at risk of developing the disease, spreading awareness of the disease and its causes, and advocating tirelessly in Congress and the DoD for funding for research.

This is an outstanding organization.

In full disclosure, several years after the Foundation started helping me find appropriate treatments, I was pleased to accept an invitation to join the Board of Directors. This review system only allows designating one relationship with the organization, and I have received far greater benefit as a "Client Served" than I will ever be able to repay as a "Board Member".

3

Mike162 Client Served

Rating: 5

10/29/2015

This nonprofit is essential to all who suffer from Mesothelioma. I unfortunately have this disease and might not be alive if it wasn't for them. After my initial diagnosis they helped me weed through all of the misinformation out there and helped point me to the surgeon who has since made it so that I currently show no evidence of disease. Also once my surgeon left his practice to go somewhere else, they helped me find a suitable location to have my follow up exams that was much less stressful to get to.

3

Writer Client Served

Rating: 5

10/29/2015

The Mesothelioma Applied Research Foundation is an amazing group dedicated to helping meso patients and their caretakers around the world. The staff is so genuine and caring. They go above and beyond to help patients like me find the best treatments available. They assist with travel when needed. They're experts in the field and therefore have a plethora of knowledge to share. MARF works to bring patients together for networking and support. They're always quick to share breakthrough information related to cancer and mesothelioma. The Foundation truly cares for the wellbeing of every single patient. Their support has helped me through the various stages of my disease and I'm forever grateful for it.

3 Ivana

Ivana Volunteer

Rating: 5

10/25/2015

Great organization that helps patients and families affected by mesothelioma to find right treatment. Also sponsors several grants for research and over 90% donated funds goes into research

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Volunteer

Rating: 5

08/08/2014

The ONLY organization related to mesothelioma that helps patients, caregivers find the right path.
When I was diagnosed in 2009, Mary was the only person who called me and asked how can we help you? What is you plan? who is your doctor/ you team?
Since then I have enormous respect and love for all the people working for MARF.
Plus, this is the only organization that connects all of us somehow related to Mesothelioma. With organizing Symposiums and events, the Meso family comes together - patients, caregivers, widowers, doctors, nurses... can be found in the same room.... where all questions can be asked and answered; happy news and worries shared with people who understand.

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1

becich Board Member

Rating: 5

08/14/2014

Gr8 organization very dedicated to the patients and families it serves!!!

1

Darcy Client Served

Rating: 5

08/13/2014

MARF is an organization that saves lives every day!!! They support patients, caregivers, provide education and most importantly they bring the Meso community together!!!

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2

Client Served

Rating: 5

07/24/2009

MARF is THE key Meso resource to patients, caregivers and the scientific community! It is there to help, guide, educate and provide support and research resources!!!

1

Rossana E. General Member of the Public

Rating: 5

08/11/2014

The meso foundation was there for my family from day one. They helped us find the best doctors we could for my father and helped us feel at ease. Many of the members have become close friends of ours. We will continue to support them and go to their fundraising events!

1

Kathi11 Client Served

Rating: 5

08/07/2014

My sister was diagnosed with peritoneal mesothelioma and died seven months later. She was 45 years old, never worked with or around asbestos. We really don't know her true exposure. We had so many questions and found that MARF was the BEST source of information, help, and caring at a time when all else felt lost. I continue to follow them as I want remain informed and continue to help spread the word about mesothelioma so lives can be saved and no one will have to bury their loved ones. Asbestos kills!

1

dan'swife Client Served

Rating: 5

08/07/2014

My hubby was diagnosed in 2006 and at that time we did not know anyone who had had this cancer.....I found The Meso Foundation ...then MARF on line, and it became my resource for everything.....info.... counsel.... comfort ...... and courage !! They are truly a heaven sent group..... My hubby died in 2007 and I have been pleased to see they have continued to be a beacon to those affected by mesothelioma !!

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Client Served

Rating: 5

07/12/2009

As a caregiver I found MARF to be invaluable ! They are able to give expert medical advice, info on the latest treatments and where they are available, emotional support for patients and caregivers, funding for research for the development of a cure, and a community of folks that are working diligently to change the laws that govern the use of asbestos.I am not sure what I would have done with out them but I do know that we made it educated and supported because of MARF!

1

Richard85 Client Served

Rating: 5

07/15/2014

As a 7 plus year survivor the Meso Foundation has been the go to place for everything meso related. It's prime directive is to fund much needed research. Available research funding puts Meso at the bottom of the list, so the funds provided by the Meso Foundation act as seed grants for proof of concept. It has funded over $8 million to date. Results from several of those grants have been awarded major funding by the DOD and other organizations. The Meso Foundation also provides patient and caregiver support 24/7, as well as having it's hand on the pulse of all the meso treatment centers and available treatment trials. A no brainer, the go to place.

1

shellysbelieiving Client Served

Rating: 5

07/14/2014

My husband was given 6 months to live after being diagnosised with peritoneal mesothelioma. This was in 1998. Thankfully we found a trial in NY and he survived 11 years. It was after the first or second year that the Meso Foundation opened it doors and we found them on the internet. They immediately began to give us the support we so disperately needed. They knew about about the disease and offered us hope. We began going to symposiums and meeting many other patients and caregivers. Craig began giving others hope as he continued to beat the odds and live a strong productive life. I found my niche in fundraising for the Foundation. It empowered us against a monster. The Foundation helps people get the help they need and provides much more than information. They provide support of other patients and that is priceless.

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1

Volunteer

Rating: 5

07/13/2009

I have had the privilage of working with people at the Mesothelioma Applied Research Foundation (MARF) since it began. It has literally helped to save hundreds of lives by giving not only hope but by actually giving advice to patients who are fighting an orphan disease. Most, if not all patients are told there is nothing that can be done for them when the are diagosised with this horrific cancer and given about 6 months to live. MARF not only given them HOPE but also helps with "scholoships" to help patients that don't have the means to get to their first doctors appointment. There are only a handful of specialiest that treat this disease and MARF raises more awareness and funding than government ever has. Having just lost my husband this past April to mesothelioma, I can tell that the MARF organization is an organization that is not only needed but is a lifeline for many that have no place else to turn. shellysbelieving

1

saka Client Served

Rating: 5

10/31/2013

The Meso Foundation has been an incredible support in my life. In 2009, my mom was diagnosed with Mesothelioma. She passed away 2 years later when I was 24 years old. She was the third person in her family to die from Mesothelimoa, and also not the last. Her sister, my Aunt passed away a year later in 2012.

Mesothelioma is a cancer that has literally destroyed my family. It can often be an isolating disease. Few people have heard of it, even fewer know what it truly is. The Foundation has been there for my family in every way, for my mom & aunt who were patients, for me as a loved one and now as a bereaved.

1

Sarabi Client Served

Rating: 5

10/31/2013

This nonprofit was instrumental in its early days as families like ours watched a loved one suffer so much before death. Whenever I called there was a friendly person to provide advice. Our loved one has been gone for 11 years now. However, this nonprofit is still helping others in so many new ways! We continue to support their efforts for a health issue that is so devastating. This organization is top notch!

1

Denise72 Client Served

Rating: 5

10/30/2013

When my father was diagnosed with mesothelioma we had no idea where to turn. I stayed up researching on the internet through the night, fighting my way through the law firm sites to try to get REAL help! Within 36 hours I was on the phone with MARF. It was a Sunday afternoon when Mary Hesdorffer answered the phone. That same Sunday, she had us on the phone with the top thorasic surgeon at New York University Medical Center in Manhattan. By Tuesday, my dad was in his office and Friday he was conducting a surgical biopsy.

This organization is the real deal! They have been there for us from the diagnosis and even now. The mission is to help patients and their loved ones to advocate, fight, survive and live well with mesothelioma. Of course, they also want to find a cure so pivotal research is funded.

My dad was with us for 20 months after his diagnosis. All of my initial research said that we would be lucky to get six months. There is not a doubt in my mind that we would not have had all of that time had we not found MARF. Even now that my father is no longer here, Mary and the foundation are still there trying to support us in our grief and loss. My mom calls Mary her angel: for without that support it would have been impossible to carry on.

1

Laura Baker Volunteer

Rating: 5

10/30/2013

I have family members & thousands of families are in the US Asbestos Exposure Health Emergency of Libby, Montana. In seeking Life Saving Medical Treatment for my family, I called the National Cancer Institute (NCI), and explained my families health situations. The NCI informed me that there are Zero Designated Cancer Treatment Centers in the Whole State of Montana, and Referred me to the Mesothelioma Applied Research Foundation aka CureMeso. This said everything to me, that CureMeso is the Best.
To this day, I'm still working with Mary Hesdorffer at CureMeso, in obtaining help for my family members, and appreciate all the time and effort she has given to my family members. Asbestos exposure not only affects the Lungs, it also affects other vital organs of the body. My brother Diagnosed by Dr. Brad Black of Libby CARD Clinic, has had to have a Kidney removed, and his wife is in Double Kidney Failure, so not only am I appreciative of CureMeso, but also The Kidney Foundation and UHCancerCenter whom also is now working with my family to save their lives. I appreciate all whom are helping to save the lives of my family members, and others with Asbestos Related Diseases.

1

Kristy11 General Member of the Public

Rating: 5

10/30/2013

I subscribed to this foundation after my beautiful Mum was diagnosed with Meso last year. It gives me hope & feels like there's a whole community of people who care out there as I read their regular social media updates. They are always extremely positive & do a great job of updating us all on trials & research from all over the world.

1

Missy13 Volunteer

Rating: 5

10/30/2013

This non profit organization has helped so many others. Whether you are fighting for your life, caring for a loved one, lost a loved one or want to support research, the great people at mesothelioma applied research can help guide, direct and comfort you in your personal journey!

1

Ruth39 General Member of the Public

Rating: 4

10/30/2013

My husband is a stage 4 Mesothelioma patient and this site has helped us both greatly.

1

bsf18 Client Served

Rating: 5

10/30/2013

When my husband was diagnosed with meso in March of 2006, we knew nothing--what it meant, where to go for treatment, etc. The resources we found here were enourmously helpful, and so were the boards/forums. The support and comfort we received there cannot be quantified. Although my husband passed in 2008, I continue to keep up with the research. No one should have to die from meso--it's preventable, if ONLY we could get asbestos banned--but in the meantime, the research MARF funds goes a long way to helping find viable treatments, if not a cure.

1

Sam and Judith Client Served

Rating: 5

10/17/2013

My husband was diagnosed in June 2012, we were devastated with the diagnosis of Mesothelioma and really needed someone who was in our shoes to walk through this with. We inquired at the hospital if there was a support group for this cancer and that evening we received a call from a patient who was willing to talk about their experience with Mesothelioma. In that conversation we were introduced to MARF and were invited to participate in a private group atmosphere. This place of comfort took on so many different roles in our fight. At first it was a place to ask and receive answers from our peers, it included an opportunity to have private conversations with people you relate to and share a common mind set. Then it was our lifeline to ask and understand medical issues so foreign to us in the beginning. Finally, it was our research link to our persistent stretch for a cure. It is a non profit research foundation that only wants a cure and it is given freely. Privacy and Respect

1 NW Outreach Ministries

NW Outreach Ministries General Member of the Public

Rating: 5

10/09/2013

My husband, John, was diagnosed with peritoneal mesothelioma a year ago. We frantically searched for help, but it seemed there was no place to find information or support for this rare type of cancer. So when we found MARF online it was God-sent! Mary was so encouraging! She was kind with a wealth of knowledge. She added us to a survivors and caregivers support group - an ongoing blessing! We were moved from fear to hope as knowledge gained from MARF's research helped us navigate to the best possible treatment options. John had a 14 hr. surgery with the only dr. in our area having the expertise to perform it. Today John is doing very well! Only those that have walked this road know what is needed for survival. We are grateful to the MARF staff for all they do to fight this terrible disease and their mission to find a cure for mesothelioma, including grants for clinical trials.

1

Sandy Client Served

Rating: 5

10/05/2013

When my husband was diagnosised with Mesothelioma naturally fear set in . But somehow I/we found
Our way to MARF. This nonprofit is a godsend! They are not associated with any attorney's. The volunteers
Who call & talk with you, help you find the best care possible for your love ones. They are awesome people. The staff at MARF are always willing to help you. The caregivers support groups are super . I can go on & on. Simply put they saved me. Thank you to all the staff especially, Mary H...

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Volunteer

Rating: 5

07/21/2009

MARF is an awesome organization that truly cares about the patient as well as the care givers. They work really hard along with their members to get the word out regarding this orphaned disease and the research money it so badly needs to find a cure! If it was not for MARF I'm not sure how I would have survived these past 3 years! My husband was diagnosised on 8/31/06 and the foundation and it's resources have been terrific!!!!

2

Dr. Lee M. Krug Professional with expertise in this field

Rating: 5

10/05/2013

I am a medical oncologist who treats a large number of patients with mesothelioma. From a physician's point of view, perhaps the most important aspect of the organization is the grant support they provide to fund research. Too few grant opportunities are available for this uncommon disease, yet MARF has been a consistent source of funding over the years for the top, scientifically peer reviewed projects in mesothelioma. Equally important, though, is, the tremendous emotional and educational support that MARF provides to my patients. I give each of my mesothelioma patients information about the foundation, and everyone who contacts them has benefited. I have been involved with MARF for about 10 years, and have seen dramatic change in organization over that time. The foundation has clearly established itself as the leading advocacy, educational, and scientific organization fighting this disease.

2

Don B77 Board Member

Rating: 5

10/05/2013

My son was diagnosed with mesothelioma in December 2006, and died in September 2009. Between his diagnosis and his death he sought information on the nature of the disease and possible treatment options. The most useful, honest and unfiltered information he received was from personnel and contacts at the Mesothelioma Advanced Research Foundation. My son contacted the Foundation numerous times for advice on potential treatments and clinical trials, and relied on them for important guidance. He came to believe they were the preeminent source of this information, and they provided this information with a caring attitude and strong psychological support as well.
As I began to learn about the Foundation, it was apparent to me that their stated focus of guiding the patient victims and providing funds for research was more than an altruistic goal. They really live that mission. As a result I have joined the Board of Directors and committed my time as well as monetary resources to their very worthy efforts.

1

Eric51 Volunteer

Rating: 5

10/04/2013

I came into contact with MARF in January of 2009 and started to volunteer in September 2012. This is a group of people who care about the whole person, not just the diagnosis, or the part of the body with Meso. They care about you and your family and all those affected by the diagnosis. And they offer support to each one. And unlike other Meso organizations, they are not a front for a law firm whose real interest is is getting you to sign on with them so they can get part of your money. This is THE go to place for the most current information on treatment and trial, for details on advocacy and legislation, and for people coming together in love and support. Read the other reviews! There is no finer organization. And I simply would not volunteer my time with any other organization.

2

lka_ Professional with expertise in this field

Rating: 5

11/08/2012

I had heard about the MARF for a number of years and was impressed by what I had read. However, in recent months I have been privileged to meet some of the key staff at MARF and was truly overwhelmed by their compassion and expertise. At the MARF conference in July 2012, there was an enormous amount of support for sufferers and carers as well as the opportunity for closed sessions where people could speak openly about their own situation. There are many people who talk big and deliver little but MARF IS THE REAL DEAL!

2

one lung Client Served

Rating: 5

10/17/2012

I was diagnosed with Pleural Mesothelioma in 2007 at the age of 31. I was told it was a deadly aggressive cancer. My doctors did not know alot about it and how to treat it. I was luckly sent to Memorial Sloan Kettering Cancer Center in NYC where I had a great surgeon. Then after surgery I became depressed and I felt alone with my disease. I was searching the web and came across the Mesothelioma Applied Research Foundation. I signed up to attend a symposium that they were having in Washington D.C. I felt so inspired after seeing all that everyone does in the foundation to raise awareness, find answers with doctors that are experts in the field. I was grateful to see what the scientists have been working on to find better treatment options for patients and their endless search to find a cure. I got to meet more patients then I thought existed. We are all a big family, I look forward to seeing them every year at the advocacy events and symposiums. Most of all I went from being angry to being empowered. I learned I alone can make a difference with advocacy and fundraising for the foundation. Its a wonderful needed support group that has amazing people working that really cares for us.

3

Diane General Member of the Public

Rating: 5

07/30/2009

Where do you turn when you've diagnosed with a deadly disease you can't even pronounce? The Mesothelioma Applied Research Foundation Inc., helped by dear childhood friend by providing her and her family with up-to-date research materials, treatment options, an incredible support system and hope.

2

Wendy Board Member

Rating: 5

07/24/2009

My husband was diagnosed December 31, 2001 with meso at the young age of 39. We were told the same by our local physician, get your affairs in order, travel to Europe etc....you have 6 to 8 months to live. I immediately hit the internet that New Year's Eve night and located the Meso Foundation. Left them a message and received a call from Chris Hahn, the Executive Director that January 2, 2002. I contribute that initial contact to my husbands' survial of 5 years. He succumbed to the disease December 21, 2006 at the age of 44. The outstanding caring, knowledge, assistance this foundation has given my family is beyond words. My heartfelt thank you and gratitude to this wonderful organization.

2

kimbabbles General Member of the Public

Rating: 5

07/24/2009

After a 2 week stay in the hospital, my husband was diagnosed w/pleural meso in March of 2008. He was only 51. The pulmonologist told us to go home & get our affairs in order. Of course, we didn't do that but started on a chemo regimen with a local oncologist. It has been 16 months & we've had our ups & downs with this horrific disease. The day of the diagnosis, I got on the internet & found MARF. After looking at other sites, MARF was the most informative & personable site & so started our relationship with staff, victims, volunteers, widows, caregivers and world of information to help in our fight with meso. Everyone is so caring & compassionate because they too, have been touched by this disease on a personal level. Most importantly this foundation has given us hope.

1

ujungnelius Board Member

Rating: 5

07/24/2009

The Mesothelioma Applied Research Foundation (MARF) or Meso Foundation as it is commonly known looks after the interest of patients and families that are victims of this deadly but preventable disease. As there is virtually no research funded by the government or by any other groups the available treatment arsenal hasn’t changed much over the last 30 years contrary to the progress seen in eg Breast, Colorectal, Non-Hodgkin’s lymphoma, and Multiple Myeloma to mention just a few malignant diseases that have seen the impact of newer treatment modalities. The other side of Mesothelioma is the money, due to the asbestosis litigation which makes every patient a potential gold mine for those few law firms that are selected to represent the patient. Thus, there is a lot of advertisement from respectable and less respectable trial attorneys trying to attract a potential client. For a person with a newly diagnosed deadly malignant disease, with a name you can hardly pronounce, it’s not an easy task to navigate the turbulent waters of the excessive but not always necessary information flow. No wonder patients and families feel lost and confused in a time of significant stress and chock. MARF was founded to be a non-biased support group, initially helping patients with the information flow, supporting patients who can ill afford to travel for a consultation with the few and far apart clinical experts, supporting the family in difficult times and not least trying to find money for the much needed basic and clinical research, compensating for all the lost ground that the years of neglect and ignorance has caused. The Meso Foundation has as it’s ultimate long term goal to find the tools that will cure the disease and to work with other organizations to find ways to eradicate this preventable disease. As an Oncologist, Clinical Research Physician and Scientist working within the Meso Foundation finding a way to make the public, the medical community and the “government” aware and engaged in taking on the fight against Mesothelioma and reaching out to the many patients and families that are victims of this deadly but preventable malignant disease to help and support them is a noble and important task. I call on you to help me/us in doing the same, we are long overdue with dealing with this disease and you can make the difference.

4

Hanne Mintz Board Member

Rating: 5

07/24/2009

My son was diagnosed with peritoneal mesothelioma 10 years ago, sadly before the Meso Foundation was established for the sole purpose of funding research to find treatment and a cure for this asbestos induced cancer. I have seen the progress over the past years in the ability of patients to fight off mesothelioma for longer and longer periods of time, all thanks to the Foundation's great generosity in funding promising research for treatment and a cure - its only mission. Please help the Meso Foundation end this disease by giving generously. It is too late for my son, but future victims will thank you.

2

jccgundlach Client Served

Rating: 5

07/23/2009

I fully credit the Foundation with saving my life. I was diagnosed with peritoneal mesothelioma in August 2006, and was told by my local physicians that I should get my affairs in order. I found the Meso Foundation and they led me to a specialist, and I will be celebrating my 3 year survival anniversary soon. their work in research and advocacy in this field is unmatched. I am honored to be affiliated with them.

1

russ_w Client Served

Rating: 5

07/23/2009

My grandfather was diagnosed with mesothelioma in 2007. I found the Meso Foundation by accident through a Google search. I was so lucky. From day one, the Meso Foundation provided me and my family with loving support, advice on multiple treatment options for my grandfather, and a community that simply inspired our entire family. Without their outpouring of love and support (to a total stranger nonetheless), there is no way I could endured the process of trying to help my grandfather get well while caring for him the best I could in the process. The Meso Foundation is first class all the way. It's too bad this site only provides five star ranking. They truly deserve at least 100 stars!

1

jtdennett Client Served

Rating: 5

07/23/2009

My diagnosis of mesothelioma was a shocker. Trolling the internet for information turned up MARF--a source not only of information but also of hope. Even though I had been to a major cancer center for a second opinion, I had been offered nothing but symptom treatment. MARF showed me the way to one of the few medical centers that actually treat mesothelioma. The staff has been extraordinarily supportive and the organization's work continues to offer hope.

1

Doncrit Donor

Rating: 5

07/22/2009

This is a great foundation with purpose. It has helped many families that are going through an unbelievably tough time. Trying to provide answers, where there are none. Trying to provide solutions, where they are needed. They have played a very influential role in members of my families lives. We all appreciate everything they have done.

1

omml2000 General Member of the Public

Rating: 5

07/21/2009

The Mesothelioma Applied Research Foundation is a remarkable non-profit organization that truly helps and cares about patients and care-givers. My mother was diagnosed with pleural meso about a year ago and we have found so many resources and information from MARF. We have utilized the resident nurse, Mary Herdorffer, with her plethora of information on doctors, medicinal information, and overall treatment options. She is available via phone or email basically every day of the week for patients to access for questions or data. My father and I attended the International Mesothelioma Symposium, which MARF has organized for the past few years, in Washington D.C. and received so much information, contacts, and feeling of hope! We were able to travel to Capitol Hill and voice our stories and ask for help with research funding, awareness, and support in banning asbestos legislation to our state's representatives. We learned valuable information from the top researchers and doctors from around the world who focus on this disease. I plan to attend this Symposium year after year, and I vow to stay involved with the foundation because it creates hope for a cure for this terrible disease. It funds research grants, is in the process of making September 26 a Mesothelioma Awareness Day nation-wide, and helps thousands of people.

1

June Volunteer

Rating: 5

07/19/2009

I attended the Mesothelioma Applied Research Foundations Symposium in Washington DC in June 2009. I was impressed by the dedication of all involved. The Symposium was for patients, caregivers, doctors and researchers. Whatever the persons involvement, they were there with their whole heart. I was surprised to see so many people who have lost loved ones to Mesothelioma still so involved in the Foundation. It speaks alot to their dedication to finding a cure for meso. I was there as a volunteer and I know I will continue to help the Foundation in their fight to help ban asbestos and help to fund research to find a cure.

1

Sandy Robeson Client Served

Rating: 5

07/18/2009

The doctors told my family that my father had about 6 months to live, and that he should get his affairs in order. When it seemed like all hope was shattered, I stumbled upon the Mesothelioma Applied Research Foundation. Their supportive staff helped my family to find specialists, learn about clinical trials, connect with others battling this cancer, and most importantly this foundation gave us hope.

1

YAnnHall@aol.com Client Served

Rating: 5

07/17/2009

The Mesothelioma Applied Research Foundation is THE source for mesothelioma awareness, medical guidance and other support for anyone impacted by mesothelioma. Mesothelioma awareness and research for better treatments and a cure are desperately needed, and only MARF can meet these needs. MARF is also attempting to establish September 26 as an annual Mesothelioma Awareness Day and assists individuals who are working with their state legislators for state recognition of this date. My 39-year-old son died of mesothelioma in 2006, and MARF continues wto support me and my efforts to promote mesothelioma awareness in his memory.

1

Jillbean General Member of the Public

Rating: 5

07/17/2009

Amazing group of people. The support they have given our family is overwhelming. They are advocates for patients and continue to fight for a cure and legislation to end this disease. My uncle lived 10 years with this disease. During that time MARF became a part of his daily life. He touched others with the disease thru MARF and gave them support. Hi wife also became part of MARF. She went from organizing school fund raiders to becoming a leader in national fund raising for MARF. She also supports patients and their families today. MARF helps those that are given a diagnosis that to many is a mystery.

1

Michele Jacobs Client Served

Rating: 5

07/17/2009

MARF has been a tremendously helpful resource for our family. When my mother was diagnosed with mesothelioma, we had no idea what it was or knew anything about the disease. Now we have a network of people for support, info on the latest developments, and lots of hope.

1

laurierousse General Member of the Public

Rating: 5

07/16/2009

I believe that MARF has truly helped my family members deal with the tragic news of having cancer in a way that I admire. The organization has helped them become members of a community of hope in a time when hope isn't easy to come by.

1

grannyree General Member of the Public

Rating: 5

07/16/2009

When my husband was diagnosed with Mesothelioma, we knew nothing about this disease.Even after his lung was removed until his death 8 months later, we knew very little.After I found MARF,I realized how many people are diagnosed with meso each year.I also found out about major treatments available for patients and tons of support for patients and the families. I have hope that one day with the work that is done by this non-profit organization [ Marf]and the funding for research that a cure will be found.

1

ricklemrickle General Member of the Public

Rating: 5

07/15/2009

this is a great organization that has helped by friend Bonnie Anderson to be here for her grandaughter. thank you

1

klingermstn Client Served

Rating: 5

07/15/2009

MARF has been a life line for me with its wealth of information, caring and resourceful staff, and a wonderful community, a “family” of supporters on its website. My husband of 47 years died after courageous one year battle with mesothelioma, a cancer caused by asbestos. He had worked directly with asbestos some 40 years before and at various times since. That is one of the hardest parts to understand......that it could be in your system so long before anything surfaces. I wish whole heartily that there was some magic solution that would erase this whole meso mess, but there isn’t.....YET!!! Someday there will be a solution, there will be a cure.....I HAVE TO BELIEVE THAT!!!. And all those who have gone before, in some way or other, have helped with the research, the trials, etc, each little bit of knowledge gained will contribute towards that solution, that cure. I HAVE TO BELEIVE THAT!!!! MARF has been hard at work trying to reach that goal by researching for a cure, for treatment options, for better and earlier ways to detect meso, and most importantly for banning asbestos usage. With more funding, so much more can be done to reach this goal.

1

rita.l General Member of the Public

Rating: 5

07/14/2009

When my father was diagnosed with Mesothelioma in October 2008, not knowing anything on the disease, I quickly began researching on the internet, which led me to MARF. I cannot say enough about MARF. I would give it 1 million stars if I could. Their website is the greatest resource for anyone seeking information on the disease or just moral support. Not only does their website provide an astounding amount of information on the disease, their boards connected my family and I to others who were once in our shoes, providing us with support and guidance. Additionally, Mary Hersdorffer, the medical liason, provided more help than imagineable. She connected us to medical resources we didn't even know existed! I credit her and the site's promptness in contacting my family to part of why my dad is still alive and fighting today. The site has provided inspiration, understanding, and hope to my family, as I'm sure with others as well. I don't know what we would have done had we not found MARF. Thank you from the bottoms of all our hearts!

2

adele General Member of the Public

Rating: 1

07/14/2009

it is okay but there is another california foundation that seems to do more and has higher visibility.....can't remember the name but they have high profile people to make their case

1

B & D Bendix Client Served

Rating: 5

07/14/2009

Our son was diagnosed with Mesothelioma two and one-half years ago. Since there are only approximately 300 cases annually of the type of meso from which he suffers, it is known in the medical community as an "orphan disease". This designation has been applied because it receives very little funding from the typical sources to help find a cure. Additionally, information about treatment options is hard to find. The resources of M.A.R.F. have assisted us to locate the limited number of medical doctors in the United States that have expertise in treating the disease. It is one of the most valuable services offered because of the scarcity of information. In addition, the Foundation solicits private money for research and lobbies Congress to provide public funding as well. M.A.R.F. has a very small staff that is able to make a substantial impact. They plan and conduct an annual symposium attended by 300+ people in which the leading physicians present the most recent advancements in treatment and survivors share their stories. The staff is very efficient and able to offer services well beyond the limited resources provided to them.

1

leather-n-lacey Client Served

Rating: 5

07/14/2009

i was diagnosed with mesothelioma in dec. 2005. i was 23. my mother found MARF one day while researching my illness. all through my treatment she kept telling me about this organization and their website. she kept telling me about all the other patients, and caregivers, and family members. she also kept learning about new clinical trials and facts about mesothelioma. then she joined as a volunteer so she could help find a cure. so once i was feeling better, i checked out MARF's website. i am so glad i did! i learned so much about my disease. stuff my doctors didnt know. i met wonderful people who have become a huge part of my life and fight against cancer. and i too have become a volunteer. i want to make a difference. i want asbestos banned and i want funding for research. so does MARF. they work so hard for the victims and their families. the patients are givin hope, when its needed most. the staff knows each person and their case personally and knows you on a first name basis. i can truly say they have become part of my family! i dont know what i'd do without MARF!

1

normarae99 General Member of the Public

Rating: 5

07/14/2009

My Uncle Mike died of mesothelioma and my mother found MARF and told me about it. They help patients and their familes learn about mesothelioma, connect them to resources, have wonderful support in their online community, have a team of researchers and doctors who work tirelessly to try to improve treatment and find a cure, and are always there when a victim of meso, or their family needs them, or when a loved one of someone who has lost the battle needs them. They are an excellent organization and so deserving of every award available

1

hoping1 General Member of the Public

Rating: 5

07/14/2009

When my husband was diagnosed with mesothelioma in Jan 1997 and told to go home and die."which is what he did 5 months later," we knew absolutely nothing about this disease. Or about the evil of asbestos. The heartbreak it was to cause for so many families. And the shame of it all is because there are still many places where this product still is in existence, the killing will go on and on for a long, long time. Thank you for the Mesothelioma Applied Research Foundation Inc for being there for so many people. I just wish we had had a place to go to in 1997 for the help you give so many people. There was no where here in New Zealand, Deidre vanGerven

1

mbw1942 General Member of the Public

Rating: 5

07/13/2009

MARF is responsible for helping to keep my friend Bonnie alive. She was diagnosed with meso 7 years ago and is still alive today. She credits this foundation with many good things and because she is STILL alive today, so do I.

1

jeannie Client Served

Rating: 5

07/13/2009

To suffer with cancer is a difficult task at best; to suffer alone is unconscionable. My husband was struck with mesothelioma in September of 2007. Internet searches for information about mesothelioma were dismal at best until I happened upon MARF. It’s difficult for me to see MARF as an organization but rather a group of people who are truly passionate about helping those afflicted with mesothelioma as well as their caregivers, families, and medical personnel associated with this disease. MARF not only offers much needed information about meso in a straightforward, easy to understand manner, they offer hope. And as anyone associated with cancer will tell you, we should all be allowed hope. The folks at MARF are quick to return phone calls, knowledgeable with answers and work diligently to support and fund research that may one day offer a cure for this terrible cancer.

1

Lizzag@aol.com Client Served

Rating: 5

07/13/2009

When my husband of thirty-eight years was diagnosed with mesothelioma back in 2000, we were told by the first doctor we went to that he had approximately six months to live. Though that doctor didn't say, "Go home and die," he wanted to operate and he'd had only twelve meso patients before my husband -- none of whom lived more than a month or two past the surgery. Someone told us that the Mesothelioma Applied Research Foundation had a packet of information about the disease and meso doctors. We got that packet, learned there was more to fighting meso than letting a doctor with no experience practice on a loved one -- that there was a chance to lengthen my husband's life even if meso couldn't be cured. We got four years of being together instead of six months thanks to information about Dr. Sugarbaker and other doctors we found through the Mesothelioma Applied Research Foundation. There was even helpful advice on dealing with "ambulance-chasing lawyers" and on avoiding scammers -- interesting because it was founded by a lawyer whose father, I believe, had contracted meso. The Foundation has come a long way in the last nine years. I see it connecting people into a network of assistance with all manner of questions that meso victims and their families have to deal with. MARF responds to real needs! (Bec Gilbert)

16

Tom Ski Client Served

Rating: 5

07/13/2009

The Mesothelioma Applied Research Foundation has been and remains an important organization in my fight with mesothelioma. Upon receiving my diagnosis in July of 2007, my wife and I were in a state of chaos. Definitive information about this disease, its treatment and contact with another person who was fighting this battle was non existent for us until we found the Foundation. Within 24 hours of placing a call to the 800 phone number, we received a call from a staff nurse who was willing to spend time answering all of our questions. The additional resources provided by the Foundation did, and continue to provide support and information for us. This is truly a deserving, client centered, organization which should be supported in any way possible.

16

DKMargie Client Served

Rating: 5

07/13/2009

The Mesothelioma Applied Research Foundation, was extremely helpful during my husbands battle with Mesothelioma cancer. I was heartbroken after my husbands diagnosis and went searching for some info. about this cancer that I had never heard of. From my first contact with MARF I was introduced to a nurse who listened to all my questions and then answered them one by one. She put me in touch with a Mesothelioma patient in my area and I was able to meet this person, hear about her treatments and make informed decisions. I have developed a strong bond with this wonderful lady. I was able to take my husband to see several doctors that are experts in Mesothelioma because of the information I had attained. This saved us precious time. We met the best doctors on the East coast and we were able to make the most informed decisions on treatments, because this cancer has no cure each doctor has a different theory on treatment. I believe with out the help of MARF, my husband would have never survived for the 17 months he did. Most patients are given a 6-9 month life expectancy. MARF is heavly involved in getting the laws in the United States changed so everyday people will not be exposed to asbestos. Exposure to the deadly mineral is the main cause of Mesothelioma. Once Mesothelioma has taken a hold it is a terrible painful death. Ithink this is a wonderful Foundation and in much need of public exposure.

18

Phleggrs Client Served

Rating: 5

07/13/2009

MARF has been a wonderfully supportive organization, providing links between patients and doctors, researchers, and other patients as well as information on the latest research into the treatments and causes of mesothelioma. Patients with this rare disease often have little local access to information, and this is the one organization with links throughout the country that can provide help that is often not available through doctors and hospitals. MARF also lobbies for legislation to eliminate the danger of asbestos, which still exists, despite the widespread notion that it has been removed.

20

hotpurple5 General Member of the Public

Rating: 5

07/13/2009

It was by accident that I found Mesothelioma Applied Research Foundation, (MARF) actually. My brother was sick many years and had been repeatedly misdiagnosed and sent home every time he went to the doctor or hospital begging for help, pleading for more tests. He told me he thought he was dying. He was right. Michael died in a hospital clinic, and wasn't diagnosed until his autopsy. The coroner described his lungs as "just a mess..." It was after his death that I found MARF while trying to learn everything I could about mesothelioma, and to become an advocate to fight the fight my brother couldn't win. I don't know what I would do without my beloved friends and the wonderful staff at MARF! The sincere love, support, wealth of information and resources, and the advocacy one finds at MARF is almost unbelievable, and has helped me through the devastation of losing my brother. The victims themselves, the loved ones of those fighting, the loved ones of the warriors who have passed away from this horrible disease...we all find love, strength, support and lasting friendships within each other. It is sad indeed that we must come together from the tragedy of mesothelioma, but without MARF, many of us would not have the strength we have to fight for a total ban on asbestos, for mesothelioma funding to support research so that improved treatments and a cure can be found, ongoing treatment, support for the meso warriors and their families, and information resources. They have been a godsend to me!

21

lomarty Client Served

Rating: 5

07/12/2009

As the caretaker of a meso patient, I found this site to be a God-send. I received hope, encouragement and the name of a meso specialist that I could take my husband to for a second opinion. During the course of his illness I received hope and encouragement by the patients and caregivers on the MARF discussion board. I shared our experiences, hope and knowledge gained bcz of the disease, and used that to encourage others and also at times to vent the grief that was welling up within me - by trying to end entries on a lighter or laughable note. My husbands 27-month long battle with meso ended just 3-1/2 weeks ago.

1

Mifox1956 General Member of the Public

Rating: 5

07/12/2009

Until I found the Mesothelioma Applied Research Foundation, My wife and I had no hope in the treatment of her peritoneal mesothelioma. The information that was available through MARF was a lifesaver in that they were able to give us a direction and purpose in our battle, giving us above all else, HOPE that was not available to us anywhere.

20

janlaughs Volunteer

Rating: 5

07/12/2009

Mesothelioma has affected a dear friend of mine. Knowing about this disease, where it comes from, how we as Americans can stop others from being diagnosed and hopefully finding a cure. . . . has changed my life significantly. Julie Gunlach, a Mesothelioma "diagnosee" loves life more than almost any other person I know. She is an intelligent, loving, beautiful, courageous, brave, mother, daughter, sister, wife and wonderful friend. She deserves a cure as does everyone else diagnosed with this disease and everyone else in the future diagnosed.

18

janet g Volunteer

Rating: 5

07/11/2009

MARF brings patients & families from the dark pit of no knowledge about a diagnosis of mesothelioma into the light of hope & treatment! Most patients diagnosed with meso are told there's no effective treatment available. There is & MARF has the connections to it! They have a talented, tuely caring nurse/practioner to work with patients & their families. The best specialists for this terrible cancer can be found through MARF. My daughter is a survivor & I am now a volunteer offering support where & how ever I can. I also advocate for awareness about asbestos & mesothelioma. The MARF staff genuinely care for their cause & the people they help. They do a great job of funding research to find better treatments &, hopefully a cure. The on-line community formed on the MARF web site really care for each other & offer hope, support, knowledge, comfort, & love. Everyone with a horrific illness like meso should be so lucky as those who find this foundation! Whether or not my cancer recurs I will continue to work as a volunteer & stay connected to my MARF "family".

18

bharrison Client Served

Rating: 5

07/11/2009

When my 48 year-od husband was diagnosed with this disease, I was told he only had two years to live, MARF provided me with the information I needed to give him a shot at a cure. Their MESO Community Blog is an invaluable method of support for people dealing with this very rare and unique form cancer. This foundation works tirelessly to educate the public about this disease and to pass laws to decrease the number of people who continue to be exposed to asbestos.

1

June Volunteer

Rating: 5

07/11/2009

In 2002, I was at what I thought was the peak of my life. I was a 52 year old nurse with a great career. I was weeks away from marrying the love of my life, and we had just bought our dream home together. I was physically active, an avid hiker, biker, snorkeler and free diver, and my fiancee and I looked forward to traveling the world together. My happiness was boundless. The only problem was a nagging cold that I couldn't seem to get rid of - my doctor felt antibiotics would do the trick, but took a chest xray "just in case". That xray was the key to a nightmare whose name was malignant pleural mesothelioma, a lethal type of cancer. My professional training, my doctors, and every thing I read on the Internet told me I was doomed to die within months - maybe a year if I was lucky. I have never felt so alone or so afraid, or so without hope. I could not stop crying. But then I found MARF - the Mesothelioma Foundation, and a small light began to shine in all the darkness that surrounded me. Here were people who gave me hope, information on treatment options that could help me, and put me in contact with other patients like myself. And they stayed with me, every step of the way, cheering me on and telling me not to give up. That was over 7 years ago. It has not been an easy road to travel, but I have never had to travel it alone - not for an instant. My fiance stuck with me (and became my husband) and so did the people at MARF. The clinical information they provided never failed to help me identify cutting edge treatments that gave me a fighting chance to live. Their unwavering support and encouragement saw me through the rough spots. They buoyed my spirits by sharing both my highs and my lows with unconditional compassion. Without this organization, I am certain I would have curled up into a terrified ball, given up, and died. I will never be able to adequately describe what they gave me: they gave me HOPE, the sweetest gift there is. They gave me back my life.

1

Lisamariemlt General Member of the Public

Rating: 5

07/10/2009

my parents home was insulated with asbestos. My mother was badly burnt when trying to clean it and her breathing has been difficult for year. No one would agree it was dangerous, no one would agree that it was the cause of all the issues. We knew better, their home was rebuilt from brick to drywall, to rid of this from the home. There needs to be a cure, we need to find that to help those who suffer.

1

zalewsk2 Volunteer

Rating: 5

07/10/2009

In January 2009, my Grampy was diagnosed with Mesothelioma, an awful cancer caused by asbestos. I had seen the commercials on tv about Meso but really did not know or understand it. We were told he had 5 months and left with no options and little hope. I decided to take to the internet. I stumbled upon the MARF website and it was a miracle. I learned about Meso and learned that there is some hope. I signed up for a book "100 Questions and Answers" and received it in about a week. The book was free and after I read it, I passed it on to my Grampy. He had more hope after reading that book than he did since he was disgnosed. My family has been passing the book on and it is on the 8th person now (with 20 to go). After signing up on the website, a nurse called to make sure I was getting the answers I needed. I genuinely felt like I was no longer alone, struggling for answers. As a young adult, I am a member of facebook. MARF has a page and I got to contribute by helping them raise money by adding friends. In a little over 3 months their members have increased by over 20,000! MARF is a great foundation helping to spread the world that Mesothelioma is an awful disease but one that can be fought! They have given me an opportunity to help, comfort and most importantly, they have given my Grampy hope.

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