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Mesothelioma Applied Research Foundation Inc

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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause.

The Foundation solicits and rigorously reviews applications, and then awards significant grants for research on the prevention, early detection, and treatment of mesothelioma. Through its website and literature, its direct communications, and its annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members, and physicians with hope, encouragement, and information. The Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.

Programs: The Mesothelioma Applied Research Foundation (also known as the Meso Foundation) is the only 501(c)3 nonprofit organization dedicated to eradicating mesothelioma and easing the suffering caused by this cancer. It does so by focusing on four main program areas: • RESEARCH: Funding and support of the highest level of peer-reviewed mesothelioma research; • EDUCATION: Educating patients, their families, risk populations, and the public at large about mesothelioma; • SUPPORT: Providing patient support services; • ADVOCACY: Advocating Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer-reviewed scientific research to establish life-saving treatments for mesothelioma. To date, the Foundation has directly awarded over $8.7 million and, through its advocacy efforts, has directed another $8.9 million to promising mesothelioma research.

Community Stories

150 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

Without the Mesothelioma Applied Research Foundation my husband would not be alive today. We had no idea about this disease at his diagnosis and the foundation has helped guide us every step of the way.

Nikke A.

General Member of the Public

Rating: 5

This organization has given us HOPE.

Mg husband was diagnosed with pleural mesothelioma in April 2021. After getting the diagnosis, we were
scared and trying desperately to find reliable information.

There is a huge amount of confusing information out there about mesothelioma- not to mention all the law firms clogging the google pages - and it feels impossible to find real, relatable stories and find other survivors and caregivers to talk with. The support groups have been amazing and so has everyone we have interacted with.

We are so incredibly grateful for this organization. They are life-giving.

Board Member

Rating: 5

I came across this wonderful organization through the research of my wife when I was first diagnosed with pleural meso in Feb 18. Since that time I have met (virtually in this crazy world) some of the finest people I have ever met. You can’t explain what it means to belong to a group like this unless you are forced to join a group like this… but, man, does it help to know we are not fighting alone.

Kelly K.4

Client Served

Rating: 5

All interactions with this foundation have been nothing short of amazing and a Godsend. Everyone is not only incredibly nice, but they go over and above to educate, help, and support. I cannot say enough good things about the Mesothelioma Applied Research Foundation and am grateful for them.

Client Served

Rating: 5

My Dad received his meso diagnosis over 10 years ago. The generally available information is frightening but the life-line we received was literally life-saving. The connections to doctors, other patients and caregivers and to researchers has created a family - brilliant, loving, caring.

This tiny organization punches SO far above its weight. Anything to raise its profile and reach so more persons can access these amazing resources to counteract the fear and give some comfort. And hope.

I cannot say enough, so I'll stop here.

Client Served

Rating: 5

The Meso Foundation has been here for our family from the time of our Mom’s initial diagnosis in 2014 through the present. It is the ONLY organization of its kind in the U.S. for mesothelioma. Patient travel grants, advice, research, information on clinical trials, a peer group of patients and caregivers, and more. Every meso patient and caregiver should make contact with the Meso Foundation.

Donor

Rating: 5

I have fundraised for this charity for a number of years and have attended their conferences. My company is a a donor to them as well. They are an amazing resources to those that have been affected my mesothelioma.

Bernie P.

Client Served

Rating: 5

My wife was diagnosed with pericardial mesothelioma in 2016.Not knowing where to turn and searching for help we stumbled onto the Mesothelioma Applied Research Foundation. They have been an incredible help to us,always available for us when we needed expert knowledge to help with the fight. Thanks Mary for all you and the foundation do.

Sherri L. S.

Client Served

Rating: 5

I am so grateful for the guidance and grant money I received after my 2017 diagnosis of mesothelioma. The foundation helped with the costs of my travel from Arkansas to Massachusetts to receive world class treatment at Tufts. I depend on them to keep me up to date on latest advances in treating this horrible and fairly rare cancer. I’m am also grateful for connecting with others living with and battling mesothelioma.

General Member of the Public

Rating: 5

I found this organization in June after my husband was diagnosed with mesothelioma. They are a great source of the most current information about the disease and treatment options. They support patients, caregivers and family members through their staff and peer support group calls. I have been impressed by their access to leading experts and the volunteers who help lead their efforts. I check in with them frequently as I know I will find good information and answers to my questions. The executive director, Mary Hersdorffer, is exceptionally helpful, knowledgeable, and accessible and was a great comfort to me when I needed it most.

General Member of the Public

Rating: 5

A diagnosis of peritoneal mesothelioma in 2012 stopped us in our tracks. We had no idea what to do, but an internet search quickly led us to the Meso Applied Research Foundation and its wonderful staff. With a single phone call, we had the support of an expert nurse practitioner & contact information for 3 specialists located within driving distance. Throughout an 8 year battle, the Meso Applied Research Foundation was a steadfast source of science-based information, help, comfort, reassurance, & hope. I don’t know what we’d have done without it.

General Member of the Public

Rating: 5

MARF has been nothing short of supportive, informative and makes me feel part of a loving community I never thought I would belong to as a young patient with this cancer diagnosis. MARF will always have my respect in advocating for patient safety and awareness. Thank you for all you do!

General Member of the Public

Rating: 5

My mom was diagnosed with mesothelioma a year ago. She has no known history of exposure to asbestos. She’s currently getting chemotherapy and overall feeling pretty well. I’m an RN and appreciate evidence based info and the Mesothelioma Applied Research Foundation has been a blessing. They’ve been a trusted source of information and I feel like we aren’t alone. This is a great nonprofit organization.

Client Served

Rating: 5

Incredible patient and client support system. MesoTV is an amazing resource.

Julie Little K.

Client Served

Rating: 5

I find this foundation a great source of knowledge. It is great to hear firsthand from patients and caregivers and medical personnel about symptom, treatments and future developments regarding mesothelioma. My husband has just been diagnosed with stage 4 pleural mesothelioma and I have learned a lot from the Facebook group members.

Volunteer

Rating: 5

I am honored to host the Bruce A. Waite 5k annually, with proceeds going to the Mesothelioma Applied Research Foundation. In keeping with my Dad's legacy, we wanted to ensure that the recipient agency would be one of integrity, honesty, and a focus on helping others who have lost a loved one to mesothelioma. Since the inception of the race, I have had opportunity to become a volunteer for the Foundation, through a community board and MesoTV. The Meso Foundation works diligently for mesothelioma patients and families to assist in a myriad of ways (research grants, patient care, family support), always with the understanding that we are not alone in this journey.
Jill A. Waite

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Donor

Rating: 5

The Mesothelioma Applied Research Foundation is the nonprofit to whom we donate the proceeds from the Bruce A. Waite 5k. As a daughter of a man who died from mesothelioma, I sought an agency who would help families navigate the horror of this diagnosis, and who is focused on research to eradicate this disease, so no other families have to endure what we did. MARF has integrity as an organization, and with each individual affiliated - employee, volunteer, etc.

Board Member

Rating: 5

This organization goes above and beyond for patients and families to not only provide resources and support, but also advocate and propel research forward for mesothelioma.

Maureen Corbett M.

Client Served

Rating: 5

Being diagnosed with Mesothelioma was the scariest thing that has ever happened to me. This foundation has been a lifeline for me. Not only do they give you so much information, they give you hope.

richard_3

Client Served

Rating: 5

Wonderful organization that provides info and support for both patients and caregivers through all steps.

Previous Stories

Client Served

Rating: 5

The Meso Foundation has helped me as a caregiver and my husband as a patient with peritoneal mesothelioma with information and support groups through Facebook, telephone calls, symposiums, etc. They also fund much needed research for a cure. They have become a lifeline and a new community for me. Everything is also done with the utmost integrity and humanity.

Read more
Darci Garnett D.

Donor

Rating: 5

This community of people gave me hope, insight, a shoulder and education on my mesothelioma diagnosis. They helped my family and myself with questions and locations. They are here to save lives and find a cure!

1

Client Served

Rating: 5

Being a 11 year survivor from advanced stages of Mesothelioma I can say without hesitation that this organization is one of the top ever in all areas.
The leaders are not only extremely knowledgeable in this disease and direct each of us to the best care possible but the compassion is unmeasurable.
They help each of us in many ways, and the financial help when one feels they just can’t make that specialist appointment but know it’s so necessary.
I could write a million words about this organization but I’ll stop here and just say one word “ Remarkable “

Carla A.2

General Member of the Public

Rating: 5

This foundation has helped me immensely. I have pleural mesothelioma and have learned a lot from this foundation. Thank you!

General Member of the Public

Rating: 5

I am new in this journey with my dad who was diagnosed with pleural byphasic Mesothelioma. Mary has been nothing short of amazing in helping me navigate this journey.

Sue R.1

Client Served

Rating: 5

The Mesothelioma Applied Research Foundation has been an invaluable help to my husband and to me, as his caregiver. They are excellent stewards of their funds and their resources and knowledge helped us immensely as we journeyed through this awful disease. I highly recommend them as a resource for those who have been diagnosed with mesothelioma.

Marcella B.

Professional with expertise in this field

Rating: 5

A great organization truly dedicated to help mesothelioma research with fundraising activity and people affected by mesothelioma providing all the info useful to deal with this disease.

Tasha Russell C.

Client Served

Rating: 5

Incredible organization that truly helps people. The money is being used wisely towards research and finding a cure for Mesothelioma. As a 11 year survivor I can tell you that this is the greatest resource that I have found. The staff is fantastic and the group of people are so helpful. I only wish I had known about them sooner. This is a very wise investment of donation money. They are the real deal!

Previous Stories

Client Served

Rating: 5

I am concerned about the reoccurrence of my Peritoneal Mesothelioma. Mesothelioma Applied Research Foundation has been an invaluable resource to me. They quickly pointed me to the right doctor and helped me set up the appointment. During the time when I am stressed and concerned, the Foundation has been a lifesaver and made this a much easier process for me. I sure wish I would have known about them when I was first diagnosed 10 years ago. My husband and I spend hours researching my cancer and who to see. They have the answers patients are looking for and gladly help though this stressful time. I am cannot say enough about their willingness to help. Thank you!

Mary M.12

Client Served

Rating: 5

I learned about MARF 6 1/2 years ago soon after my diagnosis. My friend requested the free books and information after seeing the advertisement on television. She brought me the books and information, which answered many of the questions stirring in our minds. It gave a number to call for contact with a nurse practitioner well schooled in the latest treatments and where to find them. She put me in touch with someone who had been treated and willing to share her personal story with me. It was a great way to learn that there was hope for me and others. The nurse also confirmed for me that the cancer center I was considering was appropriate for treating Mesothelioma. I have enjoyed the educational conferences where you are able to learn the latest stats of treatments and guidance to additional new methods. You are able to meet physicians and nurses from different treatment centers you may have considered visiting. I love knowing that I can call the nurse practitioner who will give me unbiased information , and points me in the direction of choices.

Writer

Client Served

Rating: 5

This is the most amazing non-profit for mesothelioma research and patient support. There are not a lot of treatments available for this rare cancer. Because it is so rare, those with the disease (like me) need as much support as possible. Those working for the foundation have literally helped save my life. I’m forever indebted and grateful.

Previous Stories
3

Client Served

Rating: 5

Mary Hesdorfer and the entire group have provided tremendous help and support to me as a mesothelioma patient. This support has potentially saved my life and has helped me look into every treatment option, including very current advances in research.

Donor

Rating: 5

My grandfather and his best friend died of meso, an asbestos related cancer. It is relatively common in places with large military populations. But the general public understands little about this disease and people have few places to turn to for good information on treatment options and a community of fellow warriors. This fine organization provides guidance for people with this lethal disease and funds research, organizes conferences, puts together support groups, lobbies for a patient registry and other much-needed services. Without MARF, thousands of people would struggle alone with a fatal disease that is understood by few doctors, let alone lay people. I have attended their conferences to learn about the advances in the war against meso and am astonished that the director of the foundation, Mary Hesdorffer, personally fields calls from patients desperate for information and support. I can’t say enough good things about MARF.

Blayne Reggio M.

Client Served

Rating: 5

Until I found the Mesothelioma Applied Research Foundation, I was floundering in a sea of misinformation skewed by legal ads all jumbled into pages and pages of internet search results, it was so overwhelming to me at the very time when I was desperate for information, support and education.. I was broken from the news that my husband was now a victim of this deadly disease. This foundation provided me the guidance in getting him the best care, the education I needed to pick the right providers, it put me in touch with survivors and caregivers and gave me a safe place to express my fears and concerns, the ability to ask all of the questions as a caregiver so I could be my best ..and understand from both ends of the spectrum what this disease process does to a family, and to the loved ones we are watching fight for their lives. I can't speak highly enough of how invaluable an advocate Mary Hesdorfer is for all of us affected by this horrific disease, from her clinical excellence in practice to knowledge of treatment options and clinical trials, to being a friend who is there for you when you're falling apart and can't find your way through the maze of medical care. Thank you Mary, for your dedication, the creation of this foundation, and what you have accomplished in getting awareness and improved treatment for those fighting Meso. By advocating for us in the fight for funding for improved treatment.. We would be lost without Mesothelioma Applied Research Foundation and the resources is has provided for us personally and for everyone In the battle of survival against Mesothelioma. Blayne Minogue, Suffern NY

Donor

Rating: 5

This nonprofit does so much for people with mesothelioma, both patients and caregivers. They are so patient-focused and offer endless treatment resources and support groups. All of the information shared with this group is private (they don't resell your name, etc.). It's all about the patients here, which is so wonderful. The caring individuals associated with this foundation give people support, hope and roadmap for a bright future. I donate regularly as I know my money is going to a great place and will be used to help patients and fund research for a cure.

Ellen B.1

Client Served

Rating: 5

Mary and the entire team at MARF were monumental is helping my daughter find doctors and get support in order to travel to these doctors. Although she lost her battle almost two years ago at age 27, we still support MARF. Together we will find a cure! #curemeso

Client Served

Rating: 5

Diagnosed in 2010 with stage 4 mesothelioma, I faced a precarious and unknown future. The Mesothelioma Foundation provided me with guidance to physicians, centers, and treatment modalities of experience and excellence.
No other organization has the depth of knowledge coupled with the passion to support patients, their families, and critical research in the mesothelioma field.
I, and many of my peers, are alive; credit to MARF.

Client Served

Rating: 5

I have been associated with the Foundation for almost five years. I've been to their symposiums, done fundraisers, participated on their facebook groups and mentored other patients. The staff and board of this Foundation is top notch in my book. They keep things personal with all patients. We can call, meet with them or corrrespond by phone and email. Really a dedicated and caring group of people in my book. They have ceryainly helped me and I can say that I know many more patients who owe their lives to this organization. Bob Brittingham, 302-381-1292, bobbrittsemail@gmail.com . Meso patient.

Client Served

Rating: 5

This is a fantastic organisation that is committed to finding a cure for mesothelioma ..In addition it provides support for patients and their families.They are a fantastic source of the most upto date information on treatment methods and ways of managing symptoms

I am so grateful this organisation exists it gives us hope for the future.

2 Ashley185

General Member of the Public

Rating: 5

My dad was diagnosed with Mesathemioma in July 2014. This foundation helped a lot. I know my dad must talk them since he had curemeso magnet. I got involved when I decided to do my own charity event for them. My dad past away from mesothelioma 2 months ago and this nonprofit has been so supportive

2

General Member of the Public

Rating: 5

What a great source for information and support. Everyone associated with it wants to help find a cure and help you and your family.

1

Client Served

Rating: 5

Most amazing foundation truely dedicated to research.

1 Cheryl180

Client Served

Rating: 5

My mother was diagnosed with Mesothelioma in 2014. The Meso Foundation served so many roles for us over the last two years -- expert knowledge of doctors, trials, treatments, caregiving, and side effects. Mary's straightforward, compassionate conversations and friendship during Mom's end of life this summer during my time of need was invaluable and much appreciated.

2

Client Served

Rating: 5

I attended the October 7, 2016 Mesothelioma Symposium in Chicago as the 'caregiver' of a patient, my husband. I arrived alone, a bit apprehensive not knowing what to expect. The group was very welcoming, it was wonderful to realize there were many other patients and families struggling with the same disease and issues.

The agenda and experts were stellar, the Q & A portions moved right along, the lunch provided was outstanding.
I learned about the Facebook group, and now have additional resources to use in the future, because that's the one thing there is available to us, a FUTURE!

I would recommend the Mesothelioma Applied Research Foundation to anyone with an interest in the disease, as a parent, caregiver, or clinician.

2 Mavis N.

General Member of the Public

Rating: 5

I was diagnosed in 2009 and I have been on a long journey where the infomation on Mesothelioma is so swamped with bad news. I found MARF and although in the US and Im in the UK it was great to find other people in the same boat as myself. I found so much infomation and great to read about trials that although in the US soon came to the UK. We are all one family and we share so much.
I share the site and infomation with our Mesowarriors UK Groups on Social Media so a huge thankyou for all the hard work xx

2

General Member of the Public

Rating: 5

I cannot thank the staff at MARF enough. When my father was diagnosed with mesothelioma, we had no one to turn to at the hospital. No one was answering questions, no one was giving us resources. Then, we found MARF. My father only lived two months after his diagnosis but without the help of MARF, those two months would have been more chaotic and uncomfortable than I could ever have imagined. Thank you for being there and thank you for you support. Here is a photo of our family at our first Miles for Meso this summer, two months after my dad passed away.

2 Kirk4

Professional with expertise in this field

Rating: 5

I've spent over 30 years in litigation arising from asbestos. In those years, this group stands alone - by far - as the top group advocating for scientific research and providing educational, emotional and financial support for patients and their caregivers. No other group has - or will have - the knowledge, compassion and tenacity of Mary, Melinda and the entire team.

2

Client Served

Rating: 5

MARF is the only place to go for Mesothelioma information. The money goes to research to help understand this very rare form of cancer. God Bless them and the work they do!

1

Client Served

Rating: 5

I stumbled upon this foundation in my research for patient assistance when my husband was diagnosed with Mesothelioma a year ago. The foundation provides both financial and educational assistance for patients and their loved ones. Their executive director, Mary Hesdorffer, RN is incredibly knowledgeable and helpful in advising and educating patients about the different clinical trials available for treatment of Mesothelioma. She is dedicated to helping patients getting the help they need and has been incredible helpful to us. I highly recommend this foundation.

1

Client Served

Rating: 5

The Mesothelioma Applied Research Foundation brings together patients, physicians, policymakers, caregivers, researchers, the bereaved, donors, and activists in a community whose goals are the alleviation of suffering in current patients, the advancement of medical knowledge that can move us toward new treatments and perhaps a cure, the increase of awareness about the disease and the ubiquitous nature of its cause (asbestos), the constant and sophisticated support for the families who support the patients, and the necessary political advocacy to further funding to accomplish all of the former. It is a non-profit, alone in its field. The professionals running the Foundation are tireless, selfless, and indispensable.
I, like so many of my peers, am alive in no small part because of how these people live their lives.

1 Beth182

Client Served

Rating: 5

Meso Foundation has been awesome support to my family. My husband was diagnosed with Meso in 2014 and has undergone several types of treatments. The volunteers and staff at the foundation have been helpful in directing us to other options as well as supporting us emotionally through connecting us to others who have been through this.

3 Raya B.

Client Served

Rating: 5

Mesothelioma Applied Research Foundation Inc Is THE organization that drives awareness, fund raising for research, and life saving guidance for and about the deadly asbestos- caused cancer- mesothelioma. The Foundations symposia are the resource for both scientists and patients and their families. This is truly a life changing organization. It has made it possible for me to continue to live with hope.

3

General Member of the Public

Rating: 5

Cure Meso helped me understand my second "Moms" condition. It helped me understand the complexities of this disease and helped me feel connected with others who were going through the same. It helped spread the word about Meso by ordering and wearing the "curemeso" blue braclets. More awareness needs to be made an more research needs to be done and MARF is doing just that. Forever grateful for this nonprofit!!!

6 JoAnn16

General Member of the Public

Rating: 5

Did wonders for my friend who has now been free of the disease for 9 years. The research grants, patient and caregiver support, and wealth of information is second to none along with the small staff that keeps it's wheels oiled looking for better treatments and a cure.

2

Client Served

Rating: 5

A great resource and support for mesothelioma patients and their families.

4

Client Served

Rating: 5

The Mesothelioma Research Foundation was an incredible source of hope and knowledge for me when I was diagnosed in 2007. They helped my husband get me to the right doctors and gave us support and the ability to interact with others who were going through the same situation. Over the last 8 years I have been able to use their wealth of knowledge to help me whenever I have questions or concerns. They have created a community for patients and caregivers that is essential when dealing with this disease.

3 Hanneruth

Donor

Rating: 5

The Meso Foundation and its dedicated staff gave our family courage when we needed it the most - to help us through our son Adam's peritoneal mesothelioma, and to help Adam see that he was not alone with this awful illness. Every penny given to the Foundation has resulted in better treatments and hope for thousands of patients and their families. Survival rates are up, and the network supported by the Foundation allows patients and family members to access medical experts and promising treatments, and allows researchers to move forward. Thank you, Meso Foundation.

2

Client Served

Rating: 5

The Meso Foundation is one of a kind, literally. This wonderful non-profit serves many needs of the meso patients and their caregivers. From travel grants to the latest medical trials and research, our meso journey would not have been the same without this wonderful group of knowledgeable, compassionate people.

3

Client Served

Rating: 5

When I was told to contact the Mesothelioma Foundation after my husbands diagnosis I was apprehensive. Not sure if this was going to be another secretly fueled Lawyer website. I did call but was still unsure. There were so many questions about the disease and treatment. As well as the immediate unknown about how our life was going to change without an income.
It was only after I contacted another family that also had just been diagnosed with Mesothelioma and heard their first hand account of how the foundation had answered all the unknowns that I made my second call to the foundation.
And after that second call and over the next two years the foundation guided us through surgery, recovery, chemo, radiation by giving us the tools to make informed descisions. In addition, with the support (closed and private) groups online I could always ask another family a question and receive a firsthand opinion from someone or from many who have walked that mile in my shoes. The online support groups were the day to day support that helped me as a caregiver get through the best days and the worst days of my husbands treatment. As someone once told me "it's the worst way to meet the best people". I hold the Mesothelioma Applied Research Foundation in the highest esteem. The help and guidance we received was like being embraced by a family and guided by angels every step of the way.

1

General Member of the Public

Rating: 5

It keeps us all up to date on the latest information on mesothelioma.

2 Stacey51

Client Served

Rating: 5

My father passed away from mesothelioma eight years ago. When he was diagnosed, it was almost impossible to find quality information about the disease or doctors who were experts, let alone familiar with this "orphan" form of cancer. Our entire family was extremely frightened, confused and had no idea how to help my dad cope with the journey which lay ahead of him By chance, my sister came across the name of the Foundation and spoke with Chris Hahn (who was there at the time) and later, Mary Hesdorffer. These individuals along with others, helped us to make sense of the available medical treatment (no cure) at the time, and gave us referrals to oncologists (and hospital programs) who were extremely experienced and who helped my father put up the most valiant fight he could and retain his dignity until the day he passed away. My dad (a Navy veteran and former Brooklyn Navy Yard employee) was put in touch with others battling the disease for information, support and friendship. The caregivers' support board and Mary were always available to answer questions and offer kind words in our time of need. I honestly do not know what we would have done without being able to turn to the Mesothelioma Applied Research Foundation and its incredible team of volunteers.









2

General Member of the Public

Rating: 5

I lost my beloved husband to mesothelioma 4/10/09 and found this site after his death. I am so gratified to find people actively working to find cures, give advice and encouragement and raise funds etc. for those suffering as we did. Mesothelioma is a killer and an awful way to die. Anything that can be done to help eradicate this terrible disease and to help those suffering from it is a good thing. Please keep up the good work.

2

General Member of the Public

Rating: 5

Cure Meso. Org. This organization helps get information to those who are in need of medications and Who need assistance in helping others with this horrible disease

2

Client Served

Rating: 5

Totally run by professionals who work with Mesothelioma patients and families by educating and supporting them. There is no organization with better medical knowledge of this disease. Their nurse practioner knows and has contact with every mesotheioma specialist and is constantly up-to-date on newest clinical trials.

Previous Stories
3

Client Served

Rating: 5

I volunteer to help others overcome living with Mesothelioma. This organization helped save my life, it's the least I can do to help it help other patients and community.

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3

Client Served

Rating: 5

The Mesothelioma Applied Research Foundation deserves a huge amount of credit for the fact that my husband is alive today.

In 2012, my husband was diagnosed with peritoneal mesothelioma. It was difficult to find resources because it's an exceptionally rare disease, and we needed someone with experience who could treat it in the abdomen -- unlike most meso patients who need treatment in the lungs. There are very few experienced surgeons in the U.S. for peritoneal mesothelioma, and it was daunting to wade through the internet to find one because even though we live in one of the largest cities in the country, there wasn't a single oncologist in town who specialized in treating peritoneal meso.

The Mesothelioma Applied Research Foundation not only helped us to find experienced onocological surgeons, but provided guidance and counsel. My husband's cancer didn't image on CT scans (it was found in the pathology after his appendix was removed), so moving forward with the drastic treatment of HIPEC--the standard of care for peritoneal meso--was scary. I can't imagine having done it without the experience, wisdom, and guidance of Mary Hefsdorffer at the Foundation.

After my husband's HIPEC surgery, there were tons of life-threatening complications. It has been and continues to be a rough road, but the Foundation has provided education and emotional support. They have helped us to attend conferences where we've learned first hand from doctors, researches, survivors and bereaved about this disease.

The Mesothelioma Applied Research Foundation has had an incredibly profound impact on my life. I'm forever grateful for everything they do!

2

Client Served

Rating: 5

The Mesolthelioma Applied Research Foundation is nothing short of wonderful in dealing with patients dealing with this disease and their caregivers. They are ALWAYS available to answer questions and are in the know on everything about this disease, whether it is related to doctors, drugs, clinical trials, etc.. I would, without a doubt, direct anybody facing this disease their way.

2 jadewebmaster

Donor

Rating: 5

I have several friends who are either battling mesothelioma, have a loved one who is (or who died from it), or are health care providers to meso patients. From them, I have learned that the Meso Foundation is the kind of nonprofit all others should strive to emulate! Its leaders are eminently ethical and professional in their operation of the foundation and stewardship of its funds -- and they provide absolutely priceless support to meso patients and caregivers. More than one of my friends have told me the Meso Foundation is the first place that gave them hope for effective treatment of their cancer, rather than just bad news. The Foundation stays on top of -- and helps fund -- the latest treatments for mesothelioma, and connects patients and families with expert doctors and nurses who are using these treatments. As a result, my friends who have the disease are alive today! The Meso Foundation also does a wonderful job of bringing patients and caregivers together in their yearly Symposium...and one of the truly healing and bonding experiences that has developed at this event is a band! They call themselves the Meso Fighters Band, and I wrote a blog post about them here. Please forgive the shameless plug...only including the link because it is absolutely an example of what makes the Meso Foundation, and all associated with it, exceptional: http://www.jcsmusicsbest.blogspot.com/2015/08/we-will-rock-you-meso-fighters-band.html

2 Robin82

Client Served

Rating: 5

In the fall of 2007 my fiancee Brian was diagnosed with mesothelioma. Needless to say were were devastated. This being a rare cancer, we knew we had to seek out a Dr and hospital who dealt with this cancer on a regular basis to give Brian his best chance of survival.
I had read about Mesothelioma Applied Research Foundation (MARF) in a nursing journal only 1 month prior to Brian's diagnosis. I did not realize at the time how serendipitous that was. I found that article and contacted them. I spoke with the nurse practitioner, Mary, who ultimately helped guide us all the way through the 2 years of treatment with where to find resources and physicians, advice for chemotherapy related issues, and even just listening a time or 2. I believe in my heart that Brian would not have had those 2 years had it not been for this organization and their expertise, guidance, and knowledge of leading experts in this field. Thank you so much for all you do.

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Rating: 5

My fiancee Brian Holton was diagnosed with pleural mesothelioma in October of 2006. As one might imagine, we were devastated and did not know where to turn as the oncologist Brian had initially seen had no idea what to do with him. It took him 4 weeks to get around to ordering a biopsy for Brian. Fortunately one of my co-workers had seen a current article about mesothelioma in a medical journal and the Mesothelioma Applied Research Foundation (MARF) was featured in this article. It had contact information for Mary Hesdorffer RN, NP and I contacted her straight away.

Mary called me back the next day and spoke to me at length about mesothelioma and what our next steps should be. She put us in touch with the experts at New York-Presbyterian Hospital where there were doctors and nurses who dealt with this rare cancer on a regular basis. Over the next several months of chemotherapy Brian's tumor shrunk by 60%. However within that first year Brian's health insurance no longer allowed him to seek treatment out of state and again Mary Hesdorffer, through MARF, assisted us in finding a capable doctor. Also through MARF I was able to connect with other patients and caregivers going through the same thing we were which was a blessing for us.

As Brian's cancer progressed the local oncologist ran out of options for Brian. I got in touch with MARF, and Mary again put us in touch with a researcher at the National Cancer Institute, a division of the National Institute of Health, who specialized in mesothelioma. We went for treatment for several months until finally Brian succumbed to mesothelioma in 2008.

I believe that the two additional years Brian survived after his diagnosis, and they were good/happy years for us, was possible because of the expertise and help of this wonderful organization.