Incredible organization that truly helps people. The money is being used wisely towards research and finding a cure for Mesothelioma. As a 11 year survivor I can tell you that this is the greatest resource that I have found. The staff is fantastic and the group of people are so helpful. I only wish I had known about them sooner. This is a very wise investment of donation money. They are the real deal!
I am concerned about the reoccurrence of my Peritoneal Mesothelioma. Mesothelioma Applied Research Foundation has been an invaluable resource to me. They quickly pointed me to the right doctor and helped me set up the appointment. During the time when I am stressed and concerned, the Foundation has been a lifesaver and made this a much easier process for me. I sure wish I would have known about them when I was first diagnosed 10 years ago. My husband and I spend hours researching my cancer and who to see. They have the answers patients are looking for and gladly help though this stressful time. I am cannot say enough about their willingness to help. Thank you!
I learned about MARF 6 1/2 years ago soon after my diagnosis. My friend requested the free books and information after seeing the advertisement on television. She brought me the books and information, which answered many of the questions stirring in our minds. It gave a number to call for contact with a nurse practitioner well schooled in the latest treatments and where to find them. She put me in touch with someone who had been treated and willing to share her personal story with me. It was a great way to learn that there was hope for me and others. The nurse also confirmed for me that the cancer center I was considering was appropriate for treating Mesothelioma. I have enjoyed the educational conferences where you are able to learn the latest stats of treatments and guidance to additional new methods. You are able to meet physicians and nurses from different treatment centers you may have considered visiting. I love knowing that I can call the nurse practitioner who will give me unbiased information , and points me in the direction of choices.
This is the most amazing non-profit for mesothelioma research and patient support. There are not a lot of treatments available for this rare cancer. Because it is so rare, those with the disease (like me) need as much support as possible. Those working for the foundation have literally helped save my life. I’m forever indebted and grateful.
Mary Hesdorfer and the entire group have provided tremendous help and support to me as a mesothelioma patient. This support has potentially saved my life and has helped me look into every treatment option, including very current advances in research.
My grandfather and his best friend died of meso, an asbestos related cancer. It is relatively common in places with large military populations. But the general public understands little about this disease and people have few places to turn to for good information on treatment options and a community of fellow warriors. This fine organization provides guidance for people with this lethal disease and funds research, organizes conferences, puts together support groups, lobbies for a patient registry and other much-needed services. Without MARF, thousands of people would struggle alone with a fatal disease that is understood by few doctors, let alone lay people. I have attended their conferences to learn about the advances in the war against meso and am astonished that the director of the foundation, Mary Hesdorffer, personally fields calls from patients desperate for information and support. I can’t say enough good things about MARF.
Until I found the Mesothelioma Applied Research Foundation, I was floundering in a sea of misinformation skewed by legal ads all jumbled into pages and pages of internet search results, it was so overwhelming to me at the very time when I was desperate for information, support and education.. I was broken from the news that my husband was now a victim of this deadly disease. This foundation provided me the guidance in getting him the best care, the education I needed to pick the right providers, it put me in touch with survivors and caregivers and gave me a safe place to express my fears and concerns, the ability to ask all of the questions as a caregiver so I could be my best ..and understand from both ends of the spectrum what this disease process does to a family, and to the loved ones we are watching fight for their lives. I can't speak highly enough of how invaluable an advocate Mary Hesdorfer is for all of us affected by this horrific disease, from her clinical excellence in practice to knowledge of treatment options and clinical trials, to being a friend who is there for you when you're falling apart and can't find your way through the maze of medical care. Thank you Mary, for your dedication, the creation of this foundation, and what you have accomplished in getting awareness and improved treatment for those fighting Meso. By advocating for us in the fight for funding for improved treatment.. We would be lost without Mesothelioma Applied Research Foundation and the resources is has provided for us personally and for everyone In the battle of survival against Mesothelioma. Blayne Minogue, Suffern NY
This nonprofit does so much for people with mesothelioma, both patients and caregivers. They are so patient-focused and offer endless treatment resources and support groups. All of the information shared with this group is private (they don't resell your name, etc.). It's all about the patients here, which is so wonderful. The caring individuals associated with this foundation give people support, hope and roadmap for a bright future. I donate regularly as I know my money is going to a great place and will be used to help patients and fund research for a cure.
Mary and the entire team at MARF were monumental is helping my daughter find doctors and get support in order to travel to these doctors. Although she lost her battle almost two years ago at age 27, we still support MARF. Together we will find a cure! #curemeso
Diagnosed in 2010 with stage 4 mesothelioma, I faced a precarious and unknown future. The Mesothelioma Foundation provided me with guidance to physicians, centers, and treatment modalities of experience and excellence.
No other organization has the depth of knowledge coupled with the passion to support patients, their families, and critical research in the mesothelioma field.
I, and many of my peers, are alive; credit to MARF.
I have been associated with the Foundation for almost five years. I've been to their symposiums, done fundraisers, participated on their facebook groups and mentored other patients. The staff and board of this Foundation is top notch in my book. They keep things personal with all patients. We can call, meet with them or corrrespond by phone and email. Really a dedicated and caring group of people in my book. They have ceryainly helped me and I can say that I know many more patients who owe their lives to this organization. Bob Brittingham, 302-381-1292, firstname.lastname@example.org . Meso patient.
This is a fantastic organisation that is committed to finding a cure for mesothelioma ..In addition it provides support for patients and their families.They are a fantastic source of the most upto date information on treatment methods and ways of managing symptoms
I am so grateful this organisation exists it gives us hope for the future.
My dad was diagnosed with Mesathemioma in July 2014. This foundation helped a lot. I know my dad must talk them since he had curemeso magnet. I got involved when I decided to do my own charity event for them. My dad past away from mesothelioma 2 months ago and this nonprofit has been so supportive
What a great source for information and support. Everyone associated with it wants to help find a cure and help you and your family.
Most amazing foundation truely dedicated to research.
My mother was diagnosed with Mesothelioma in 2014. The Meso Foundation served so many roles for us over the last two years -- expert knowledge of doctors, trials, treatments, caregiving, and side effects. Mary's straightforward, compassionate conversations and friendship during Mom's end of life this summer during my time of need was invaluable and much appreciated.
I attended the October 7, 2016 Mesothelioma Symposium in Chicago as the 'caregiver' of a patient, my husband. I arrived alone, a bit apprehensive not knowing what to expect. The group was very welcoming, it was wonderful to realize there were many other patients and families struggling with the same disease and issues.
The agenda and experts were stellar, the Q & A portions moved right along, the lunch provided was outstanding.
I learned about the Facebook group, and now have additional resources to use in the future, because that's the one thing there is available to us, a FUTURE!
I would recommend the Mesothelioma Applied Research Foundation to anyone with an interest in the disease, as a parent, caregiver, or clinician.
I was diagnosed in 2009 and I have been on a long journey where the infomation on Mesothelioma is so swamped with bad news. I found MARF and although in the US and Im in the UK it was great to find other people in the same boat as myself. I found so much infomation and great to read about trials that although in the US soon came to the UK. We are all one family and we share so much.
I share the site and infomation with our Mesowarriors UK Groups on Social Media so a huge thankyou for all the hard work xx
I cannot thank the staff at MARF enough. When my father was diagnosed with mesothelioma, we had no one to turn to at the hospital. No one was answering questions, no one was giving us resources. Then, we found MARF. My father only lived two months after his diagnosis but without the help of MARF, those two months would have been more chaotic and uncomfortable than I could ever have imagined. Thank you for being there and thank you for you support. Here is a photo of our family at our first Miles for Meso this summer, two months after my dad passed away.
I've spent over 30 years in litigation arising from asbestos. In those years, this group stands alone - by far - as the top group advocating for scientific research and providing educational, emotional and financial support for patients and their caregivers. No other group has - or will have - the knowledge, compassion and tenacity of Mary, Melinda and the entire team.
MARF is the only place to go for Mesothelioma information. The money goes to research to help understand this very rare form of cancer. God Bless them and the work they do!
I stumbled upon this foundation in my research for patient assistance when my husband was diagnosed with Mesothelioma a year ago. The foundation provides both financial and educational assistance for patients and their loved ones. Their executive director, Mary Hesdorffer, RN is incredibly knowledgeable and helpful in advising and educating patients about the different clinical trials available for treatment of Mesothelioma. She is dedicated to helping patients getting the help they need and has been incredible helpful to us. I highly recommend this foundation.