My dad was diagnosed with Mesathemioma in July 2014. This foundation helped a lot. I know my dad must talk them since he had curemeso magnet. I got involved when I decided to do my own charity event for them. My dad past away from mesothelioma 2 months ago and this nonprofit has been so supportive
What a great source for information and support. Everyone associated with it wants to help find a cure and help you and your family.
Most amazing foundation truely dedicated to research.
My mother was diagnosed with Mesothelioma in 2014. The Meso Foundation served so many roles for us over the last two years -- expert knowledge of doctors, trials, treatments, caregiving, and side effects. Mary's straightforward, compassionate conversations and friendship during Mom's end of life this summer during my time of need was invaluable and much appreciated.
I attended the October 7, 2016 Mesothelioma Symposium in Chicago as the 'caregiver' of a patient, my husband. I arrived alone, a bit apprehensive not knowing what to expect. The group was very welcoming, it was wonderful to realize there were many other patients and families struggling with the same disease and issues.
The agenda and experts were stellar, the Q & A portions moved right along, the lunch provided was outstanding.
I learned about the Facebook group, and now have additional resources to use in the future, because that's the one thing there is available to us, a FUTURE!
I would recommend the Mesothelioma Applied Research Foundation to anyone with an interest in the disease, as a parent, caregiver, or clinician.
I was diagnosed in 2009 and I have been on a long journey where the infomation on Mesothelioma is so swamped with bad news. I found MARF and although in the US and Im in the UK it was great to find other people in the same boat as myself. I found so much infomation and great to read about trials that although in the US soon came to the UK. We are all one family and we share so much.
I share the site and infomation with our Mesowarriors UK Groups on Social Media so a huge thankyou for all the hard work xx
I cannot thank the staff at MARF enough. When my father was diagnosed with mesothelioma, we had no one to turn to at the hospital. No one was answering questions, no one was giving us resources. Then, we found MARF. My father only lived two months after his diagnosis but without the help of MARF, those two months would have been more chaotic and uncomfortable than I could ever have imagined. Thank you for being there and thank you for you support. Here is a photo of our family at our first Miles for Meso this summer, two months after my dad passed away.
I've spent over 30 years in litigation arising from asbestos. In those years, this group stands alone - by far - as the top group advocating for scientific research and providing educational, emotional and financial support for patients and their caregivers. No other group has - or will have - the knowledge, compassion and tenacity of Mary, Melinda and the entire team.
MARF is the only place to go for Mesothelioma information. The money goes to research to help understand this very rare form of cancer. God Bless them and the work they do!
I stumbled upon this foundation in my research for patient assistance when my husband was diagnosed with Mesothelioma a year ago. The foundation provides both financial and educational assistance for patients and their loved ones. Their executive director, Mary Hesdorffer, RN is incredibly knowledgeable and helpful in advising and educating patients about the different clinical trials available for treatment of Mesothelioma. She is dedicated to helping patients getting the help they need and has been incredible helpful to us. I highly recommend this foundation.
The Mesothelioma Applied Research Foundation brings together patients, physicians, policymakers, caregivers, researchers, the bereaved, donors, and activists in a community whose goals are the alleviation of suffering in current patients, the advancement of medical knowledge that can move us toward new treatments and perhaps a cure, the increase of awareness about the disease and the ubiquitous nature of its cause (asbestos), the constant and sophisticated support for the families who support the patients, and the necessary political advocacy to further funding to accomplish all of the former. It is a non-profit, alone in its field. The professionals running the Foundation are tireless, selfless, and indispensable.
I, like so many of my peers, am alive in no small part because of how these people live their lives.
Meso Foundation has been awesome support to my family. My husband was diagnosed with Meso in 2014 and has undergone several types of treatments. The volunteers and staff at the foundation have been helpful in directing us to other options as well as supporting us emotionally through connecting us to others who have been through this.
Mesothelioma Applied Research Foundation Inc Is THE organization that drives awareness, fund raising for research, and life saving guidance for and about the deadly asbestos- caused cancer- mesothelioma. The Foundations symposia are the resource for both scientists and patients and their families. This is truly a life changing organization. It has made it possible for me to continue to live with hope.
Mary Hesdorfer and the entire group have provided tremendous help and support to me as a mesothelioma patient. This support has potentially saved my life and has helped me look into every treatment option, including very current advances in research.
Cure Meso helped me understand my second "Moms" condition. It helped me understand the complexities of this disease and helped me feel connected with others who were going through the same. It helped spread the word about Meso by ordering and wearing the "curemeso" blue braclets. More awareness needs to be made an more research needs to be done and MARF is doing just that. Forever grateful for this nonprofit!!!
Did wonders for my friend who has now been free of the disease for 9 years. The research grants, patient and caregiver support, and wealth of information is second to none along with the small staff that keeps it's wheels oiled looking for better treatments and a cure.
A great resource and support for mesothelioma patients and their families.
The Mesothelioma Research Foundation was an incredible source of hope and knowledge for me when I was diagnosed in 2007. They helped my husband get me to the right doctors and gave us support and the ability to interact with others who were going through the same situation. Over the last 8 years I have been able to use their wealth of knowledge to help me whenever I have questions or concerns. They have created a community for patients and caregivers that is essential when dealing with this disease.
The Meso Foundation and its dedicated staff gave our family courage when we needed it the most - to help us through our son Adam's peritoneal mesothelioma, and to help Adam see that he was not alone with this awful illness. Every penny given to the Foundation has resulted in better treatments and hope for thousands of patients and their families. Survival rates are up, and the network supported by the Foundation allows patients and family members to access medical experts and promising treatments, and allows researchers to move forward. Thank you, Meso Foundation.
The Meso Foundation is one of a kind, literally. This wonderful non-profit serves many needs of the meso patients and their caregivers. From travel grants to the latest medical trials and research, our meso journey would not have been the same without this wonderful group of knowledgeable, compassionate people.