My Nonprofit Reviews

Our little family chose to move three hours away so we could live in STL and be a part of the Fragile X Resource Center of Missouri. The group is close knit, provides so much family support, and hosts educational sessions that we just didn't have access to before. Living here and being a part of the group has been a game changer. We've benefitted from their work in the local schools. Our doctors are docs that came recommended because they had experience with individuals living with Fragile X. Our daughter has been able to connect with other siblings who understand her life and how challenging it can be. The FXRCMO provides an awesome level of support, and we have zero regrets uprooting our family to be a part of this community.

FRAXA has given our family so much hope. We've reached out to their leadership for advice about medications and research trials. We are enrolling our teenage son in one and really excited about the potential. FRAXA helped designed this trial and funded its early phases. If they hadn't built relationships and expertise like they have, we wouldn't have access to groundbreaking studies like this one. We are so excited.