The Resource Center has been our lifeline as we navigate our child's Fragile X diagnosis. The Resource Center helps raise funds for a cure, and also, hosts events and outings for Fragile X families. Raising a child with disabilities has been the most difficult challenge of my life, and I am thankful to have found the Resource Center. We need more people to hear about Fragile X, so more funding can go towards finding a cure. We need more awareness so that events and businesses create environments that are welcoming to individuals with Fragile X. The Resource Center is our catalyst towards making this a reality! Please, strongly consider donating to the Resource Center. They directly impact the Fragile X community in a positive way!
Our little family chose to move three hours away so we could live in STL and be a part of the Fragile X Resource Center of Missouri. The group is close knit, provides so much family support, and hosts educational sessions that we just didn't have access to before. Living here and being a part of the group has been a game changer. We've benefitted from their work in the local schools. Our doctors are docs that came recommended because they had experience with individuals living with Fragile X. Our daughter has been able to connect with other siblings who understand her life and how challenging it can be. The FXRCMO provides an awesome level of support, and we have zero regrets uprooting our family to be a part of this community.
This organization is top notch! They provide caring, thoughtful support to families in Missouri who are impacted by Fragile X syndrome. They respond right away and that can make all the difference when a family is confronted by a Fragile X diagnosis. They also work very effectively with other organizations which are dedicated to Fragile X research and advocacy.
I've attended many educational symposiums and fundraising events hosted by the Fragile X Resource Center of Missouri, each one has been incredibly well organized, informative, fun, and provided an opportunity to connect with other families living with Fragile X syndrome. They are a long-established organization with a commitment to supporting their local families and research to help fund effective treatments for Fragile X syndrome. They are an excellent resource for families everywhere.
Our son was diagnosed with Fragile X syndrome when he was 22 months old. We had never heard of Fragile X and had no idea what this meant for him and our family. We found the Fragile X Resource Center of Missouri through Social Media and our first engagement with them was during National Advocacy Day. We were welcomed from day 1 and all of the Board Members were so supportive of our journey. We continue to be very active with this organization and love being able to have a group of friends that truly understand our son and our lives with Fragile X. Great organization!