My Nonprofit Reviews

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2 reviews

Review for Prostate Cancer Research Institute, Los Angeles, CA, USA

Rating: 4 stars  

I called their hotline in 2006 and spoke with Harry (now deceased) who stressed how young men with prostate cancer need to get their surgery done soon with a Dr who has done more than 150 DaVinci robotic prostatectomies.
At age 43, my disease turned out to be Gleason 3+3 stage 2C with lymphatic vessel involvement and a PSA of 3.9. After immediate surgery, the PSA was under 0.01 for 2 years. The cancer is back now with a PSA of 0.013, but I am told my low Gleason 3+3 means my cancer is unlikely to metastasize or kill me.
My surgeon said I would have died at age 45 (I am now 49) if I had not had treatment.

How would you describe the help you got from this organization?


How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?


Role:  Client Served

Review for Malecare, New York, NY, USA

Rating: 5 stars  

Great way to help other young men with prostate cancer and find new insights in reducing side effects of surgery.

I've personally experienced the results of this organization in...

Helping young men under 50 get PSA testing and the prostate cancer treated while it is curable before it is stage 3.

If I had to make changes to this organization, I would...

Lobby for FDA & healthcare reform

What I've enjoyed the most about my experience with this nonprofit is...

Sharing research.

If this organization had 10 million bucks, it could...

Raise awareness for testing PSA (and better tests when FDA approves them), Fund research & lobby congress.

Ways to make it better...

We got more active in banning BisPhenol A and other cancer causing substances.

When was your last experience with this nonprofit?


Role:  Volunteer & I respond to queries from newly diagnosed yonger men (under 50).