2023 Top-Rated Nonprofit

Prostate Cancer Research Institute

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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: The Prostate Cancer Research Institute's (PCRI) mission is to improve the quality of men's lives by supporting research and disseminating information that educates and empowers patients, families and the medical community. PCRI accomplishes this by 1)empowering patients with knowledge of the most effective known treatment options that limit the risks of complications and side effects, 2) encouraging physicians to stay medically current and help them access and actively engage with top experts in the field, 3) providing information based upon peer-reviewed medical research, literature, and reputable studies that will enable the patient to knowledgeably participate with his health care team in developing the best individual treatment strategy, 4) providing support and research that can most immediately improve patient outcomes,

Community Stories

58 Stories from Volunteers, Donors & Supporters

peterdcooper Client Served

Rating: 5

11/01/2024

Could not have navigated this daunting journey without them.
Great information/videos guiding one throughout any question, decision one may have.
Their Helpline is wonderful and they are responsive and accurate. Also there is not limit in the exchange of conversations/emails, so one is not left hanging. This ability to reach out and getting a response is huge when things during this journey changes almost consistently.
Highly recommend reaching out!
Many thanks for all the help- PCRI!!

Nurse1960 Professional with expertise in this field

Rating: 5

11/01/2023

As a nurse, I've seen the despair in the eyes of men as they are given the prostate cancer diagnosis. Men are afraid, but they won't ask for help. I've found the one bit of help they will accept is my directing men to the Prostate Cancer Research Institute (PCRI) YouTube channel. This has been an essential part of providing them with valuable resources and information. PCRI's YouTube content offers clear, accessible information that helps men understand and navigate the complexities of prostate cancer.

The channel serves as an indispensable tool in educating and supporting those dealing with this condition. It's been rewarding to see how the videos empower individuals with knowledge, enabling them to make informed decisions about their care.

It's incredibly satisfying to witness the positive impact this resource has on patients' understanding and decision-making processes, guiding them through their prostate cancer journey.

RafaelJavdeno Donor

Rating: 5

11/01/2023

I am both a donor to this organization and a prostate cancer survivor. . It's rewarding to see how the funds I've given are efficiently used to benefit men who are in the middle of this fight.

Witnessing the tangible results of my contributions, by aiding and empowering men, reaffirms the value of my support. Knowing that my donations are doing good, make me feel like I'm helping my fellow man.

Keep up the good work PCRI

Cazman17 Client Served

Rating: 5

11/01/2023

Discovering Prostate Cancer Research Institute (PCRI) a while back really changed my battle with prostate cancer.

Now, with my cancer in remission, I've got to give credit to PCRI for all their help. Their info and support gave me the knowledge to make good decisions about my treatment.

PCRI made a huge difference in my fight, and I'm so thankful for their help. If you're dealing with prostate cancer, seriously, check out PCRI—they're more than just a bunch of facts, they're a crew that really cares and can make a real difference in your journey.

Horselvr27 Client Served

Rating: 5

11/01/2023

As a close friend, witnessing the profound impact of the Prostate Cancer Research Institute (PCRI) on my friend's battle with prostate cancer has been humbling.

PCRI provided the help he really needed. The positive change I saw in him after connecting with PCRI was incredible. My friend was really lost and confused.

Thank you, thank you, thank you to whomever is responsible for your YouTube videos!

Peter7890 Client Served

Rating: 5

11/01/2023

Before finding the Prostate Cancer Research Institute (PCRI), I was lost, angry, and pissed off patient due to my diagnosis and lack of help from the medical establishment. PCRI's information gave me some hope, and enough information that I could discuss my case with my doctors. Most importantly, I learned from PCRI the questions I should be asking, which in turn, led me down the path to optimal treatment.

Your help was given to me when I was in a bad place. Soooo grateful.

JessyBlu Client Served

Rating: 5

11/01/2023

They supported my father during his prostate cancer battle. The information and support were sorely needed. My dad, like many men didn't want to ask for help! Their YouTube videos significantly influenced his care. We are deeply grateful for PCRI's guidance. There is no way we would have been able to get the quality of care for my dad without PCRI.

Thank you PCRI!!

John3court Client Served

Rating: 5

11/01/2023

I apologize, but this is going to be a long and quite detailed review.


The Prostate Cancer Research Institute (PCRI) has been a game-changer in my prostate cancer journey. After feeling dissatisfied with the information I was receiving from my doctors, stumbling upon PCRI's videos on YouTube felt like a blessing.

I was feeling lost and frustrated with the information I was getting about my diagnosis and treatment options. It seemed like there was always a lack of comprehensive details or the explanations were too technical for me to grasp. That's when I discovered PCRI's YouTube channel.

Their videos were a revelation! They broke down complex medical concepts in a way that was easy for me to understand. These weren't just generic overviews; they delved into specifics and nuances that my doctors hadn't covered. It was like having a knowledgeable friend explain everything in simple terms, which was incredibly empowering.

What impressed me the most was the depth of knowledge and clarity they provided. The videos covered various treatment options, side effects, and practical advice for managing the condition. It was a relief to find information that spoke directly to my concerns and gave me a clearer picture of what to expect.

Thanks to PCRI's YouTube content, I felt more informed and confident when discussing options with my healthcare team. It provided me with the necessary knowledge to ask the right questions and participate more actively in my own care.

The impact of PCRI's YouTube videos on my understanding and decision-making has been immense. I'm truly grateful for the valuable resource they've provided. For anyone else feeling overwhelmed or dissatisfied with the information they're getting, I highly recommend checking out PCRI's YouTube channel. It might just be the answer you've been searching for in your journey with prostate cancer.

DaveSo57 Client Served

Rating: 5

11/01/2023

The PCRI is just awesome! When I was dealing with my diagnosis, they were like a guiding light in a really tough time. Their info about the cancer, treatments, and all that stuff was laid out in a way that even a guy like me, can understand.

Their website and materials are super helpful. Makes you feel like you're part of a big team fighting this thing together.

NancyVHC Client Served

Rating: 5

11/01/2023

I'm grateful beyond words for the PCRI. My husband is a living testament to the impact of their work. The support, knowledge, and hope they provided not only guided us through a difficult phase but also played an instrumental role in my husband's recovery. We owe a debt of gratitude to the PCRI. Thank you!

Zbrian26185 Client Served

Rating: 5

11/01/2023

Today, as a survivor who has navigated this journey with a sense of understanding and control, I owe a significant part of my success in fighting prostate cancer to the indispensable support provided by PCRI. Their dedication to education, support, and advocacy has positively influenced my personal battle with this disease

1

BEPRO Client Served

Rating: 5

10/25/2023

After being referred to the Prostate Cancer Research Institute, all our anxiety, frustration, confusion and ignorance disappeared. With knowledge comes such peace and clarity.
This organization is a one-stop shopping for any man with a Prostate concern.

What could have been a journey into the unknown was transformed into a confidant, well navigated road to good health care decisions- all because this non-profit truly cares!

Would definitely recommend you start here with any concerns or issues.

davidhagerty Client Served

Rating: 5

11/16/2022

I have been listening to many of the videos that so many excellent doctors and presenters have made at PCRI's conferences and they are absolutely superb. So much valuable information that helped me make some decisions about my own cancer treatment approach. I called today with a specific question that I posted and John Shearron from Chicago called me back within a couple hours. His knowledge and suggestions were outstanding and gave me additional ideas to consider for my treatment which none of my doctors have mentioned. Thank you so much John for spending the time you did with me, and for sending me all of the information following our call. I was so impressed that you have volunteered your time and knowledge and are willing to share it with others.
Dave H

lucyfaith01 General Member of the Public

Rating: 5

11/04/2022

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jhb1 Client Served

Rating: 5

11/01/2022

I was diagnosed with prostate cancer and was very worried about keeping my active life style. unfortunately Doctors mission is to cure the cancer. PCRI was willing and able to go through all the different options of treatment with both the plus/minus of each. It was nice and comforting to talk to people who understood how scary it is to be faced with cancer. They took the time in 3 separate calls to talk me through my options as they saw them. A special thanks to Sylvia and Jonathan for answering soo many questions. You all make a difference.

PCman27 Client Served

Rating: 5

10/30/2022

My first experience with PCRI goes back a few years, before the pandemic. I attended one of their conferences in Los Angeles. I didn't know what to expect and I couldn't have guessed the level of care and expertise made available to us, prostate cancer survivors. There were multiple break out sessions, and various experts presenting on different topics in the main ballroom. At that point in my prostate cancer journey, I had not yet been exposed to so much good information, all in one location. I was duly impressed!

Fast forward a few years and I'm now addicted to their YouTube channel. Binge watching various different topics. I 'm so happy I stumbled upon PCRI. I feel like I've received a graduate level education in prostate cancer treatment.

I support them and hope you will too.

wigtowner Client Served

Rating: 5

10/29/2022

The PCRI is a nonprofit that helps anyone who has to deal with prostate cancer.... whether a patient, caregiver, loved one, etc.

They have a free YouTube channel (very helpful videos), a free helpline (where you can receive individual guidance), a free website (very informative articles and good information) and two conferences (annually). All these "tools" provide well guided assistance when navigating the world of Cancer.

Prior to subjecting oneself to having to follow doctor's advice or choose a treatment plan, Everyone should arm themselves with education and information. Would strongly suggest you visit the Prostate Cancer Research Institute and see first hand what they have to offer.

Bethanyz Client Served

Rating: 5

10/29/2022

My husband was recently diagnosed with prostate cancer. We were both scared and concerned about our future together. Traversing the medical minefield of doctors, medical assistants, insurance and our own fears became exhausting.

My friends husband had prostate cancer a few years ago, so I reached out to her. She too had to endure the medical "minefield" I was currently experiencing, until she found PCRI. I had no idea what PCRI was or if they could help, and being the skeptic I am, wasn't ready to believe they could.

I'm here to say I was wrong. I am so incredibly grateful for the help they provided. I cannot begin to express our thanks to PCRI. They helped educate us, and made us feel empowered to get my husband the best care possible.

1

Coalminer56 Client Served

Rating: 5

10/29/2022

I was diagnosed with prostate cancer a few years ago. Honestly, it scared the heck out of me. I was having a difficult time getting information out of my doctor's office. Because I didn't jump at their first suggestion, to have surgery, they became less interested in providing information I could use to make a decision.

I stumbled upon PCRI's YouTube channel and was blown away by all the information available. After binge watching as many videos as I could comprehend, I called their helpline to get clarification on some of my questions. All I can say is they helped me more than all the highly paid medical professionals and their services were free!

I'm thankful that PCRI is there for guys like me, that didn't know where to turn.

pdouglasc Client Served

Rating: 5

10/29/2022

After having been thrown into the world of prostate cancer, I was so relieved to have found the PCRI. The Helpline was my initial go to which is great because you get to speak to a live person who helps you individually. However, their YouTube videos are phenomenal. You can seach out any specific topic that you need more information on and then in a relaxed setting watch the video and stop and start it over and over again until you understand all that you need to before moving on to a doctors appointment or treatment decision. Having all this education and information made me feel empowered to handle my healthcare in an intelligent manner- secure and confident! Would recommend them to anyone facing this journey in their lives. I was fortunate to be guided in this manner! Peter Douglas

draugh General Member of the Public

Rating: 5

10/29/2022

15 years ago I was first diagnosed with prostate cancer. The PCRI advisor was invaluable. We had two long conversations. There were many options for treatment, and I felt very well informed about all of the options.

None of the treatments are 100% successful. I had a slow recurrence, 5 years ago I had follow-up radiation. Now, after five more years, I may have another recurrence based on rising PSA. Learning this, I was again worried. Yesterday I talked to John S., PCRI advisor. He helped me understand the treatment options for a man in my situation. and again I feel very well informed and encouraged by the options that are now available. John clearly cares, takes his time to answer all questions, and has thorough knowledge.

I am very grateful, and strongly recommend PCRI to anyone with prostate cancer, or to their loved ones.

MAS7 General Member of the Public

Rating: 5

10/28/2022

Receiving a diagnosis of prostate cancer is both frightening and overwhelming to a patient and his family. It’s often difficult to know where to get help or who to talk to get questions answered. PCRI has been an amazing resource to my husband. The PCRI Helpline staff can provide support, answer questions in simple terminology and explain different treatment options that are available. PCRI helps to educate the patient through videos, the helpline, two conferences each year and newsletters. They provide up-to-date information on the latest research in the field. PCRI has empowered my husband to seek answers to his questions and it has provided the needed support that has made a significant difference in his life.

johnarmistead Client Served

Rating: 5

10/28/2022

Their individual, one-on-one, free Helpline was a true gift to me. Received guidance every step of the way after having been thrown into this "scary" world of CANCER!
They do not have an "agenda", as they do not receive payment for promoting one treatment over another, therefore there is no bias. What I received was knowledge to better understand my diagnosis thereby giving me the education I needed to choose the best course of treatment for ME! Truly appreciate all that they do.

rseals40 Client Served

Rating: 5

10/28/2022

I was guided to the institute by a close friend during a time when I was reeling from the news that I had cancer. My complete lack of knowledge in this area added to my stress. I did not know there was a group out there like this.

The level of professionalism, knowledge and genuine caring that I experienced has been amazing. Tools provided by PCRI allowed me to go into my doctor's office prepared and extremely informed for both diagnostic and treatment options. Suggestions I was able to relay to my doctors dramatically changed my outlook and the course of action for my situation. Forever grateful to Ms Silvia Cooper and the Prostate Cancer Research Institute.

1

chersley Client Served

Rating: 5

04/15/2022

Thanks to Dr Ofua Ofure of the Great Herbal Healing Home for curing me of herpes, indeed am grateful to you Sir, I have had herpes for some couples of years now tried all form of medication to get rid of it, all to no avail, until I read a comment about Dr Ofua Ofure herbal remedy, I decided to give it a try and behold after 21 days of applying his medication am totally free of herpes, no more itching and cold sores, I got tested and it’s now negative, if you wish to get rid of herpes here is the solution for you visit or contact Dr Ofua Ofure on the following
Email: thegreatherbalhealinghome@gmail.com WhatsApp/Call: +2347059497969

spspinella Client Served

Rating: 3

02/12/2022

This is a classic case of a for profit with a non profit arm. Just google the primary speaker in the majority of the youtube videos, etc., and you will quickly realize he offers treatment for prostate cancer. Read the tax returns and you will see that while he is not paid, two of his relatives are the only paid staff for the nonprofit.
There is nothing wrong with this, but it is difficult not to assume that this is an "altruistic" [perhaps] "unbiased" source of information provided by people who are volunteering their time just because they care.
They may still be altruistic, unbiased people, but this nonprofit is surely an effective form of marketing for their medical practice, which is not a nonprofit at all.

Review from Guidestar

thomas_0988 Advisor

Rating: 4

01/17/2022

I've felt very fortunate to have found Molemen Herbs during my years of being diagnosed with prostate cancer. They've been a great source of information and healing help. I saw a number of their patient's testimonies on how they were permanently healed from different diseases with these natural remedies from "Molemen_Herbs" I did more research about them before ordering their products for my prostate cancer, it has been venerable to me to be able to talk to other people like myself about my healing encounter after using these herbs for 21 days as prescribed. Molemen Herbs is a rescue for all diagnosed patients around the world. In addition, they have a YouTube/ Facebook channel with quite a few informational videos that have been immensely helpful. All I can say is that if it wasn't for Molemen Herbs, I wouldn't have had the access to the latest prostate cancer cure knowledge and the peace of mind that comes from not being left in the dark regarding that disease. You can contact through WhatsApp or call +13237766767 to purchase their product. Email: drmolemenspiritualtemple@gmail.com.

1

repjr Client Served

Rating: 5

01/16/2022

PCRI provides the very most up to date tried and true as well as cutting edge Prostate Cancer information — as delivered by world re known experts at multi- day twice a year seminars. Plus it’s webitw is brim full of the recordings of same. And it has live individuals at the 800 number.
This was especially calming for me when diagnosed in 2013.

1

bwom General Member of the Public

Rating: 5

11/30/2021

A most helpful provider of expert level prostate related information.

I have learned a great deal watching/listening to their mini lectures.

Dr Scholz in particular has been a great help in educating & instilling
hope in me, regarding the treatment for my high risk gleason score 9
prostate cancer, now in remission since nov. 2020
I'm now much better equipped to both question and understand my oncologist
when she's talking about my treatment options.

PCRI is totally professional & knowledgeable in their presentation and they deliver it in a way that non-medical people can understand, and for that reason alone they qualify for 6 stars.

Barry Greisman
Toronto Canada
Tuesday Nov. 30/2021

2

LovingPCRI Client Served

Rating: 5

10/16/2021

In 2015, my husband was diagnosed with prostate cancer that had metastasized into the bone. After nine rounds of standard chemotherapy, his PSA began to rise and things were looking bleak. We then heard about the PCRI, and we attended our first convention where we met Dr. Mark Scholz. He immediately placed my husband on "advanced" treatments which has put the cancer in remission with undetectable PSA. The latest bone scan has shown amazing recovery and healing. Thanks to the PCRI, I still have my loving husband.

2

CarePCRI Client Served

Rating: 5

10/16/2021

The work that PCRI does is over and beyond our greatest expectations. As a caregiver, I feel much more confident communicating with my husband’s team of doctors and feel like I can stay on top of the current educational resources, so that my husband can receive the best quality care relating to his disease. Thank you for your time. Thank you for your continued dedication, working tirelessly to provide support to all of us caregivers and patients who are living with this disease and may feel as though there is no light at the end of the tunnel.

2

peterkafka General Member of the Public

Rating: 5

10/15/2021

I first encountered Prostate Cancer Research Institute (PCRI) at my initial visit to my medical oncologist in 2014. Like many first diagnosed with cancer, I was a proverbial deer caught in the headlights, ignorant, scared to death and desperately looking for sound advice. A month after that initial doctor visit, I made a 2,500-mile return visit to Los Angeles to attend an annual PCRI conference for prostate cancer patients that quickly changed the trajectory of my life.

Doctors who are equally concerned about educating their patients as well as treating them, where have I ever encountered such passionate and dedicated medical professionals? The mission of PCRI is to encourage men like myself to take ownership of my disease and understand the myriad of treatment options that lie before us. PCRI has made me a partner in this journey rather than just a dumb and suffering patient seeking treatment or a cure.

I would that more medical professionals follow the example of PCRI and dedicate their lives to educating as well as treating their patients. PCRI has inspired me to become a passionate advocate for myself and other men. Staying up to date with the latest medical advances and changes and in this disease has become my own mission. I don’t know how many men I have met who have been equally inspired by the doors that PCRI has opened for them regarding management of their disease, but probably hundreds if not thousands. PCRI continues to make a big difference in my life and the lives of many men worldwide.

2

johnshe Client Served

Rating: 5

10/14/2021

I've feel very fortunate to have found PCRI.org They've been a great source of information and help. I attended a number of their conferences and in doing so have been able to meet other men in my same situation. It's been invaluable to me to be able to talk to other men like myself. PCRI's Help Line is also another godsend. In addition they have a YouTube channel with quite a few informational videos that have been immensely helpful. All I can say is that if it wasn't for PCRi, I wouldn't have had the access to the latest prostate cancer knowledge and the peace of mind that comes from not being left in the dark regarding my disease.

1

bobalderman21 Client Served

Rating: 5

10/14/2021

My name is Bob Alderman. I am a stage four terminal bone cancer patient. I’ve had prostate cancer for 16 years. I have an amazing oncologist, Dr Sandy Liu at UCLA. My cancer got very aggressive. So did we. We hit it pretty hard, and after radiation, and chemo I had a radiation drip. Zoviga from Bayer. It was a six month treatment, and during that time I was in contact with Bayer. I pitched a lifestyle/wellness show, and they decided to help. They work through PCRI. I was put in contact with Alex. I wasn't expecting what I got. I got young progressive thinking people, with the same passion I have to help patients get through this horrible time. It’s hard for cancer patients to talk to “civilians”, but the whole PCRI crew is so in tune with what the disease is, it’s like hanging out with people you’ve know a very long time. I am very thankful for that. As far as doing business with them, they are way above board professionally. I am looking foreword to many more years working with Alex, and crew.

barmalalschafer Professional with expertise in this field

Rating: 5

10/14/2021

My name is Larry Barman and I am a prostate cancer survivor of 19 years. I still have prostate cancer and have manage my disease successfully by becoming informed and leaning about prostate cancer from several important sources including the Prostate Forum of Orange County and the Prostate Cancer Research Institute: These organizations have provided me with information, such as new medicines in treating prostate cancer and in advanced imaging technologies in detectingo prostate cancer early. Also, most importantly has been a means to introduce me to doctors that been instrumental in managing my disease. Since 2004, I have attended most PCRI conventions have benefited greatly from the medical information provided me.

Larry Barman
Board of Director and Past President/CE0
949-280-6882

jvcopeland Client Served

Rating: 5

10/14/2021

I credit PCRI with the fact that I have avoided aggressive and invasive responses to the very low-level prostate issues that I have experienced. The organization does a fantastic job of informing and empowering men at all stages of the disease and their partners/caregivers.

schwah Client Served

Rating: 5

10/14/2021

PCRI has been an incredible gift for me. I have stage 4 Prostate cancer and I want to understand in detail all the options. Everything I want to know and even things I didn’t know I wanted to know, can be found on this site. Keep up the great work!!

Steve Schwartz

1

Bud-V Client Served

Rating: 5

10/14/2021

I met Mark Scholz, founder of PCRI just AFTER I had a Prostatectomy for PCa. (Too bad it wasn't before). That was in 2006 and he has helped me every step of the way to reverse a slowly rising PSA following the surgery. I have seen him every 3-6 months ever since and continue to this day as he knows exactly what to do for each of his many patients to achieve their best possible outcome. After getting a special CT/PET scan at his direction and seeing an expert radiologist for just 5 treatments, again at his direction, my PSA is currently

1

bobik Volunteer

Rating: 4

10/13/2021

PCRI uses a classification system to delineate the various stages of prostate cancer that are mutually exclusive and unambiguous. Communications about the descriptions and treatment options are via straight forward, concise videos available on the PCRI website or YouTube Channel. The videos make the descriptions easy to absorb and understand.

theeseer Advisor

Rating: 3

10/13/2021

I was a friend of Dr. Strum. I was and remain an independent researcher. This began after I lost my Father to Prostate Cancer, my Brother had Prostate cancer but recovered. I am an expert in over-the-counter vitamins and herbs and was asked to join the Life Extention company in Florida where Dr. Strum was on staff. I do this pro bono and demand that anyone that I help with information must go to an Oncologist and only use my information as a basis for discussion. My gift today for you is:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4278877/ Include Curcumin in equal Amounts. Plus 5mg Boron

PCLou Volunteer

Rating: 5

08/25/2020

I was diagnosed in 2002 with prostate cancer and began treatment in 2003. At the urging of my oncologist and my local support person I began to attend the annual PCRI conferences where I learned more about prostate cancer and it's treatments. PCRI has been keeping up to date with their ability to provide up-to-date information via DVDs and printed material and over the years has evolved to include You-Tube and Website information. I have been impressed with the ability of the principals to provide the most current information about diagnosis, treatment, and the drugs available for this disease. I help other men undergoing the prostate cancer journey and recommend that they make full use of the information the PCRI supplies.

Gene D S. Volunteer

Rating: 5

07/16/2020

I have been attending PCRI conferences for 4 years in LA and have learned a tremendous amount about my PCa. I have learned the good the bad and the ugly and this has given me the information to make a very informed decision on how I should treat or not treat my PCa.
Everyone one in this group helps PCa patients and their families on their PCa Journey.

MM652 Advisor

Rating: 5

11/06/2019

Having benefited from prostate cancer support groups since first diagnosed in 2001, I would highly suggest that if diagnosed you find a support group-and quickly! Volunteering my time to support groups over the past 18 years, it is clear to me that men who avail themselves of the resources these groups provide feel more empowered, less overwhelmed and have better long term results, including a better quality of life. Currently, I lead a metastatic support group in Chicago. In addition, I have been fortunate to have met the staff of and volunteered with the PCRI. Their goal of helping educate men so that they will have a better outcome is in sync with my beliefs. Their twice yearly conferences (March & September) are terrific resources for men, their partners and caregivers. The speakers and presenters are top notch in their respective fields. I have seen men come to the conferences scared to death, looking like the proverbial deer in the headlights, and leave empowered with knowledge and a plan of attack for their cancer. In addition, new contacts/friends are made enabling conversations with others who understand the fears and hopes someone on this path encounters. PCRI is a wonderful resource for high quality, up to date, unbiased information. The PCRI is the first place one should visit once diagnosed with prostate cancer. Arming yourself with the information necessary to make the right decision/choices for you is what PCRI can help you do and they do it best.

bevnich Professional with expertise in this field

Rating: 5

11/06/2019

As an oncology clinical nurse specialist and prostate cancer support group leader for 27 years I have observed the fine work that PCRI does to help men with prostate cancer. Their annual patient conference is an outstanding educational event providing top notch education in a caring, compassionate environment. PCRI is a wonderful resource.

Wolfdog Client Served

Rating: 5

11/05/2019

On three occasions I have attended PCRI's fall conference. In mind, it is the best patient conference in the country-medically sound, up to date and patient focused. I facilitate two prostate cancer support groups in Chicago, and a number of our members have also attended the conference one or more times. We always bring good information back from the conference, and I have used the conference videos in my group.

Daka Professional with expertise in this field

Rating: 5

10/30/2019

The Prostate Cancer Research Institute (PCRI) is an extremely excellent source of information for men with prostate cancer and for their loved ones. Their annual conference which is held in September of each year draws approximately 800 attendees who are able to hear and interact with top physicians and other professionals in the areas of urology, radiology, pathology, nutrition, genetics, diagnosis, side-effect and many other fields. The presentations are given in lay language so The complexities of the science is easily understood by attendees. Also, there is a chance to meet others from around the U.S. and several other countries who are going through decisions, treatment and side-effects. related to prostate cancer.

My wife, Kathie, and I first attended the conference in 2003 and were amazed at how comprehensive the meeting was. I was diagnosed and treated two years prior to that time and since I had been a cancer researcher for 35 years, I felt that we should attend to gather knowledge on new treatments being developed so that we could share the information with people in our Us TOO International support group in Columbus, Ohio where we live. Since that meeting, we have gone back each year for a total of 14 years and always find new information and make new connections with others.

If each man, who is diagnosed and his spouse/caregiver could attend just one time, they would hear information that could help them in making decisions on how their disease is treated.

pkafka Client Served

Rating: 5

10/25/2019

In August of 2014 I thought I was flying 2,500 miles to see a doctor to be treated for prostate cancer. Little did I know that I was embarking on an educational adventure and a new career as an advocate for men with this disease. PCRI has been an incredible inspiration to me. I have attended six annual conferences now and leave each year wondering why there aren't such conferences for patients with many other serious diseases. In my opinion, this is how medicine should be practiced - exposing patients to all the experts and information they need to make informed decisions about their health and well being. What a standard and example PCRI sets for the medical community.

prostateguy Volunteer

Rating: 5

10/23/2019

Newly diagnosed in 2004, I soon found the PCRI web site and used it extensively to learn about my disease. I met Dr. Scholz and was recruited to volunteer on the PCRI free call in help line. Dr. Scholz devoted countless unpaid hours managing the PCRI and training the Help Line staff so that we could give patients accurate information without offering medical advice. He was always available to us when we did not know the answer for a Helpline caller.

The PCRI continues its long history of providing men with prostate cancer with the latest and best information about their disease. They publish a quarterly newsletter, available for free, that outlines the latest information and research.

A fantastic prostate cancer conference for men with prostate cancer is organized twice a year. PCRI brings in highly experienced and up-to-date doctors to speak about the latest research and prostate cancer best practice.

I am very grateful for all the assistance they have provided to me and to thousands of other men dealing with prostate cancer.

Nathan Roundy
email prostateguy@gmail.com

Aakfak Client Served

Rating: 5

10/21/2019

How can I say what PCRI has meant to me without sounding like a shill? I guess I could say; "It saved my life". But that would be rather dramatic and perhaps over the top. But PCRI and the doctors and professionals I have encountered and learned from, as well as the many patients I have met at the annual conferences with whom I continue to share experience and camaraderie with, have empowered and inspired me to advocate for other men dealing with prostate cancer. PCRI has given me the tools and "know how" to manage my own disease and guide my journey. Rather than feeling like prostate cancer has stripped me of my manhood and left me to the mercy of doctors, PCRI has encouraged me to join a powerful team of physicians, researchers, and patients who are constantly expanding the treatment and management options before us. PCRI is empowerment!

Peter Kafka

Neal B. Board Member

Rating: 5

10/21/2019

I handle outreach and relations with other nonprofit groups for the Prostate Forum of Orange County, Calif. I've worked with Alex and her staff many times in the last year. We depend on PCRI for accurate and timely research data and help with building our non-profit prostate cancer support group. Alex and her staff are prompt, friendly and hard working. I look forward to working with them again, soon.

Slatts Volunteer

Rating: 5

10/21/2019

I have been going to PCRI conferences for 4 years and this last one was the best of all.
We had 4 speakers talking about Active Surveillance (AS) and I helped with two to them. There is a sea change happening for men on (AS). Very hard working group of people helping patients with good information.

wemara Volunteer

Rating: 5

10/20/2019

PCRI has been a guiding light for me and innumerable other men navigating AS. Without their annual conferences i wouldhave been lost...

loureimer Advisor

Rating: 5

10/18/2019

I was diagnosed with prostate cancer in 2002. Soon after, advisors in the local prostate cancer support group made me aware of the information available through PCRI and their associated doctors. PCRI provided me with current information for the diagnosis and treatment of prostate cancer that I was able to use in my understanding of my condition. The information presented on their website and at their conferences is up-to-date and extremely helpful for prostate cancer patients and their practitioners. As a principal senior member of our local New Mexico support group I frequently use PCRI information when helping patients and recommend they attend PCRI conferences.

WalnutGangOC Client Served

Rating: 5

10/18/2019

PCRI - What a great staff of people. Hi I am Larry Gerber with the Walnut Gang (a Prostate Support Group in Fountain Valley, California). This group is dedicated to helping newly diagnosed men, supporting them with up to date information, and supporting them after their procedures.
PCRI is one of OUR most important contributor of information ( w/ a booklet - Prostate Cancer Staging Guide and other material). They also provide a staff of very professional people that can speak to all phases of treating Prostate Cancer. They also have a website - pcri.org - that contains links, videos, and other up to date information on or about Prostate Cancer.
Twice a year PCRI conducts conferences ( Midyear - 1 day in March and and the 3 day in usually in Sept.) These conferences bring together great speakers and up to date information in the world of Treatment of newly diagnosed and reoccurring metastatic Prostate Cancer. There is time to question the speaker personally and to see vendors that support the world of Prostate Cancer.
As a Support Group - PCRI - play a large part of our meetings with topics that come up about Prostate Cancer. Topic about subjects that are contained in the Prostate Cancer Staging Guide. the Hows and Where for the proper treatment that YOU decide on, Questions to ask doctors , all written in layman terms. On the website you have contact numbers that can handle your questions.

1

JimJimJimJim General Member of the Public

Rating: 5

10/18/2019

PCRI is invaluable to thousands of men with prostate cancer and the people who care for them.
There is no better source for prostate cancer information in the world.
Their YouTube videos are empowering for men and those who are on this journey with them.
The prostate cancer patient conferences in Los Angeles bring together the best medical people in the world to interact with patients and carers.
I cannot recommend them highly enough.
JimJimJimJim

1

Joel General Member of the Public

Rating: 5

10/17/2019

I am both an 18 year prostate cancer thriver and an advocate. I have had the great pleasure of working hand-in-hand with PCRI for over 10 years.

I am a regular attender of their annual LA conference and have consistently found that their programs and conference agenda have been excellent. They are patient oriented and teach men and their caregivers about prostate cancer and how to make better medical decisions.

They empower men and their caregivers with education, humor and an opportunity to meet and learn from 100's of other prostate cancer thrivers.

Unlike many other prostate cancer non-profits they "play well in the sand box" with other non-profits. Clearly, their primary orientation is towards supporting the men with prostate cancer. At the last LA conference I mentioned that my non-profit Cancer ABCs (www.CancerABCs.org) was going to be running a screening program in Harlem and that we were struggling to raise the capital needed for the program. Later that day their Executive Director handed me an envelope with a very generous donation to support our program.

They are tops, care first about patients and are an important and well respected resource for men who have been diagnosed with prostate cancer and their caregivers.

1

sloopy Client Served

Rating: 5

10/10/2019

When my father was diagnosed with prostate cancer, was almost impossible to ascertain what treatment plan was truly one tailored specifically for him. We wanted that because my mom had died from cancer and we learned that without that individual/specific treatment, you become a statistic and your chances of truly having a cure or an effective treatment is close to zero.
With the help/guidance/assistance PCRI gives each individual "FOR FREE" (with no horse in the race so as to have skewed opinion), each patient will definitely receive the correct path to follow.
CANNOT recommend PCRI more wholeheartedly-truly more than worth the call!!!

tetech

tetech Client Served

Rating: 4

01/01/2013

I called their hotline in 2006 and spoke with Harry (now deceased) who stressed how young men with prostate cancer need to get their surgery done soon with a Dr who has done more than 150 DaVinci robotic prostatectomies.
At age 43, my disease turned out to be Gleason 3+3 stage 2C with lymphatic vessel involvement and a PSA of 3.9. After immediate surgery, the PSA was under 0.01 for 2 years. The cancer is back now with a PSA of 0.013, but I am told my low Gleason 3+3 means my cancer is unlikely to metastasize or kill me.
My surgeon said I would have died at age 45 (I am now 49) if I had not had treatment.

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