My Nonprofit Reviews

Kmbarton1
Review for Twin to Twin Transfusion Syndrome Foundation, Bay Village, OH, USA
At 16 weeks, in the blink of an eye, my image of a perfect pregnancy vanished before my eyes, when I learned that my baby girls we experiencing a rare condition know as Twin to Twin transfusion syndrome, causing an uneven blood flow between the twins. One twin receives too much blood (recipient) and the other receives too little (donor). If left untreated the recipient twin will experience heart failure and the donor twin will experience renal insufficiency, often leading to fetal demise if left untreated.
After receiving this news, I was devastated and started looking for support groups. I was immediately connected with the TTTS foundation. This wonderful organization
provided so much insight and support during the most difficult time of my life. They also helped me navigate my diagnosis and find the best treatment center. At 23 weeks pregnant I received the laser ablation procedure to correct the inappropriate blood flow between my twins, during the entire process the TTTS foundation served as an amazing sounding board for all my concerns. The surgery was successful and my healthy daughters were born on 4/13/2022.
I will forever be grateful to the TTTS foundation - When my world turned dark, the TTTS foundation turned on a light and guided me to safety. They are truly a great nonprofit
- Kristin