My Nonprofit Reviews

hspeicher
Review for Neuroendocrine Cancer Awareness Network Inc, Fort Mill, SC, USA
Over 20 years ago I was diagnosed with Gastrinoma, a form of Neuroendocrine (NET) cancer and I came to know MaryAnn and Bob at the same time as they were just starting to advocate, educate and provide opportunity for peer support. They have taken their local New York efforts national (even international) since then, creating an incredibly valuable network aimed at educating and providing peer-support for those with NET and their caregivers; educating physicians and other healthcare providers; and advocating on behalf of the NET patients community including providing structure and support for local support groups allowing them to have their own educational programming, running a national conference for patients, caregivers and physicians, promoting communication among physicians and other health-related industries, and promoting research for these under-researched forms of cancer. I have seen them grow their efforts over the years and am very impressed, and GRATEFUL. The work of NCAN truly has helped to change the course of NET and people's lives. - Thank you!