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1 reviews

Review for PAN Foundation, Washington, DC, USA

Rating: 5 stars  

At age 63 I was diagnosed with a rare MPN called essential thrombocythemia when i had routine labs and my platelets over 1 million. After struggling taking hydroxyurea for four years with chronic bronchitis and painful mouth ulcers, I joined a support group and learned about pegasys interferon alpha 2a treatment. If it wasnt for being accepted into PANs program, I wouldn't be able to afford this transforming treatment. Not only have I not been sick in spite of compromised immune system, but my regular labs are nearly all in normal range. Thanks to PAN and peg interferon, my platelets also have returned to normal range for the first time. At my age, now 69, I cant imagine dealing with the challenges of my disease without the support of the wonderful helpful people at PAN!

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