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Saundra

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6 reviews

Review for Epilepsy Association of Central Florida Inc, Orlando, FL, USA

Rating: 5 stars  

The Epilepsy Association of Central Florida has been an exemplary organization for over 50 years. It has serviced clients and supported families, disbursed information and always been above reproach. The organization has had only two executive directors, the founder, Merle Evanchyck now has a scholarship named in her honor for students who have been impacted by epilepsy. Chuck Carmen, the present executive director is as dedicated as Ms. Evanchyck was and carries on. The needs have expanded and the support is challenging but the dedication is strong and the Epilepsy Association of Central Florida continues the good work. Epilepsy U is a reliable source on the web for all who need information. Sincerely, Saundra Gray


Role:  Volunteer
 

Review for Epilepsy Association of Central Florida Inc, Orlando, FL, USA

Rating: 5 stars  

The Epilepsy Association of Central Florida has been helping families impacted by epilepsy for over 50 years. The association has only had two executive directors, founder Merle Evanchyck and current director, Charles (Chuck) Carmen. The dedication of the directors and the loyalty of board members and supporters, demonstrates the confidence people have in the Epilepsy Association of Central Florida. The mission has gone world wide through Epilepsy U, an online information source available to anyone needing information. This organization addresses needs at the source, the patients and families that need help and support. Saundra Gray

Role:  Board Member
 

Review for Epilepsy Association of Central Florida Inc, Orlando, FL, USA

Rating: 5 stars  

This organization is celebrating 50 years of serving clients and families impacted by epilepsy. It started in Merle Evanchyck's kitchen and has now expanded to world wide influence. Merle has celebrated over 90 years and is so pleased with what she started. The world wide influence is through EpilepsyU, an information site and help platform for professionals, patients, families of patients and just the public at large who wish to know more about the disorder.
I have been involved for over 50 years, since I was searching for help when our 15 month old daughter had her first seizure. Little was available then in the way of information or support and the organization helped our family through those rough years. I serve on the board of directors now as a group of dedicated professionals pilot the organization into our next phase with the engine of the internet helping to spread information and hope to the many patients and their families struggle with a difficult and challenging disorder.

If I had to make changes to this organization, I would...

Continue on the course they are on with more funding possibilities.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer
 

Review for Epilepsy Association of Central Florida Inc, Orlando, FL, USA

Rating: 5 stars  

The Epilepsy Association of Central Florida has been helping patients and educating the public for more than 50 years. Last year we celebrated the 90th birthday of our founder Merle Evanchyck and our 50th year in existence. We are going strong and so is Merle.

Our organization is supported by so many dedicated people including the Auto Dealers of Central Florida who are again sponsoring a golf tournament for our benefit. Leonard Williams has been a stalwart supporter for many years through the Wayne Densch Foundation. We are honored by the support of such wonderful and generous people.

If I had to make changes to this organization, I would...

I can see no reason to make changes to something working so well.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer
 

Review for Epilepsy Association of Central Florida Inc, Orlando, FL, USA

Rating: 5 stars  

I have been involved with this organization from the beginning. In the early 60's there was no place to turn for support and little information available. That is when I met Merle Evanchyck who founded the Central Florida movement. It has progressed from her kitchen table to a responsible, dynamic organization that, thanks to our Executive Director, Chuck Carmen, has started far reaching progressive ideas like Epilepsy U, an online place for information and interaction. He also engineered the making of the video,
"Shaken Baby" to educate how dangerous that practice is. With better education we have been able to shed light on this far too common disorder, encourage research, early diagnosis, better treatment, and of course understanding. We have been involved as a family with personal experience but our interest goes beyond personal to understanding that this is a problem that needs to be solved, especially with so many wounded warriors coming home with traumatic brain injury. Peace, Saundra Gray

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Board Member
 

Review for Epilepsy Association of Central Florida Inc, Orlando, FL, USA

Rating: 5 stars  

We have been involved with the Epilepsy Association of Central Florida since the inception. There was no place to turn for advice, support and understanding when our daughter was diagnosed in 1960. Much has changed since then and information is available, but the person to person support is so important for the patient and family when a diagnosis of epilepsy is delivered.
Epilepsy is a complex problem affecting all aspects of life. EACF is a lifeline for many patients and their loved ones. The organization helps save taxpayer funds by managing care, giving patients an opportunity to find the best possible solutions to their disorder.
We look forward to the day a cure is found but until then we applaud the Epilepsy Association of Central Florida for their fine work.

I've personally experienced the results of this organization in...

I have seen many patients helped with their challenges and families given understanding and hope.

If I had to make changes to this organization, I would...

If I could make changes I would expand public knowledge of epilepsy, how common it is, and how more research is needed to find answers to all seizure disorders. Many of our service members will suffer from seizures due to head trauma in the battlefield.

Role:  Board Member & I serve on the board of The Epilepsy Association of Central Florida.