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Ksteele3

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1 reviews

Review for Lymphatic Education & Research Network, New York, NY, USA

Rating: 5 stars  

My 11 year old son has KLA, a very rare complex lymphatic anomaly. The LE&RN organization has been there for us for the community as they raise awareness and allow the patient's voice to stand strong and be heard. I am especially grateful as LE&RN works hard to lobby for the creation of a "National Lymphatic Commission" and recognize just how important "lymphatic disease" research is. They are bringing researchers together/collaborating and establishing a registry and repository essential for our researchers and with the goal of accelerating the research and aiming for a cure. While we may be rare, we do have so much in common with respect to the underlying pathways of lymphedema and cancer. Thank you LE&RN for all that you are doing in raising awareness, advocating for us and spreading the word that LYMPHATIC DISEASE is important. #CureOn

Role:  General Member of the Public