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Lymphatic Education & Research Network

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Nonprofit Overview

Causes: Health, Medical Research

Mission: Lymphatic Education & Research Network (LE&RN), formerly Lymphatic Research Foundation (LRF), is a nonprofit organization founded in 1998 to fight lymphatic disease and lymphedema through education, research and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Results: LE&RN is at the forefront of raising awareness of lymphatic disease and lymphedema. Founded in 1998 as the Lymphatic Research Foundation, LE&RN provides annual grants to Research Fellows at the world’s leading universities, putting lymphatic diseases on the radar in the medical community, in academia, in government, and with pharmaceutical companies. Through LE&RN’s education programs, such as our popular Medical Symposium Series, medical practitioners, therapists, patients, and family members can benefit from hearing presentations given by the world’s leading lymphatic and lymphedema experts. LE&RN’s Patient Registry and Tissue Bank provides researchers with access to information about those afflicted with these diseases and can provide tissue samples from lymphatic disease patients to further research discoveries in the field. The quarterly journal Lymphatic Research and Biology delivers the latest developments and advancements in lymphatic biology and pathology from the world’s leading biomedical investigators. Through events such as the annual Walk for Lymphedema & Lymphatic Diseases and through advocacy efforts such as fighting for passage of the Lymphedema Treatment Act, LE&RN is building an extensive network of people looking for answers, demanding better treatment options, and, ultimately, finding a cure so that no one will have to suffer with lymphedema and other lymphatic disorders.

Target demographics: fight lymphatic diseases and lymphedema

Direct beneficiaries per year: fund researchers worldwide, and brought our educational symposiums to tens of thousands.

Geographic areas served: the United States and internationally

Programs: research, education and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Community Stories

40 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

LE&RN offers a wealth of information and support globally to all who suffer from lymphatic diseases. As someone who suffers from Lymphedema LE&RN has help me find a doctor to treat my condition.

1

Volunteer

Rating: 5

LE&RN offers a wealth of information and support globally to all who suffer from lymphatic diseases. As someone who suffers from Lymphedema, LE&RN helped me find a doctor to treat my condition.

1

Donor

Rating: 5

I'm so grateful for LE&RN; this non profit keeps us up to date on research and everything possible that can be done to help us with Lymphedema. We can feel confident that we are receiving the best knowledge that is out there about this disease

1 Susan G.2

General Member of the Public

Rating: 5

I have primary lymphedema and struggle to find resources to learn about it. I read about the research being done on low carbohydrate (ketogenic) diet from this site. Within 2 months of trying this diet my limbs were measured and all 4 had decreased by 15-16%. My Lymphedema Dr and his whole team were unaware of the research. Thank you Lymphatic Education and Research website. Best advice I have received so far!

1 katiedarcy

Client Served

Rating: 5

I have Lymphedema and live on the Delaware Shore. lEARN has offered me a sense of community and eased my isolation. I have learned about treatment, and procedures to aleaviate the symptoms. The doctors in my area know very little about this disease and I am so greatful to LEARN for empowering me. I would be hopeless without LEARN. Because of this organization I can control the disease, work full time and participate in my community. I recommend the website to everyone I meet who suffers with Lymphedema, and they are relieved to know they are not alone. It is so important to educate not only the patients but the DOCTORS! More has to be done to treat this disease. Surviving cancer was one thing, but being sentenced to a life with Lymphedema is the harshest reality of my life. It has to be cured, we just need more research.

1

Volunteer

Rating: 5

I have had secondary lymphedema in my right leg for over seven years. The Lymphatic Education & Research Network (LERN) is my go to source for scientific data, community support, updates on the latest in compression and devices, our annual fundraising walk and more. Without LERN , those of us with Lymphedema would be lost. It is a warm and incredible resource and community.

Previous Stories
1

Volunteer

Rating: 5

I developed lymphedema years ago as a result of cancer surgery, lymph node removal and radiation. At first, no one knew what it was and then finally, I was one of the lucky people who had it properly diagnosed. At first I was scared and alone and knew no one else that had lymphedema. And then I was introduced to LE&RN and everything changed. Through this wonderful organization, I met other people who had similar questions and concerns as me. And as I started going to events and lectures, I learned more and more about how to help myself and others. And now every year I attend the annual LE&RN Walk and help to raise money for further research and awareness.

1

Professional with expertise in this field

Rating: 4

Personally and professionally I have been helped immensely by LE&RN.... sharing their research and knowledge is invaluable. It is a salient feature that their commitment in this field to be commended.

1

General Member of the Public

Rating: 5

After breast cancer and a lumpectomy, I developed lymphedema in my right arm. No one told me after the breast cancer surgery about lymphedema. Only after my arm swelled and I went to a physical therapist did I learn not to lift more than 5 lbs. Some of my pots and pans weigh more than that! When I heard Kathy Bates talk about her lymphedema, and the orgaanizaton LEARN, I joined immediately. LEARN has given me hope for a better quality of life, living with the lymphedema. Their research on options to take care of lymphedema, especially transplanting lymph nodes from different areas of the body. LEARN is dedicated to raise the public awareness of this dreaded disease. More research needs to be done to find a cure. LEARN is on the cutting edge of research and helping to raises the awareness of the medical field. I don't think doctors know that much about lymphedema. I have been hospitalized for six days, twice in a year and a half from cellulitis in my arm. I had peeled an orange with my fingers and one finger became sore. Sure enough, it caused cellulitus. I feel confident that LEARN will find a cure, and educate patients as well as the medical field and lead the way in finding other options.

1

Professional with expertise in this field

Rating: 5

As a lymphedema and wound therapist I rely on LE&RN to get updated information to keep abreast of any of new developments in patient care. I also know that it is a site that I can send curious patients to where they will get tried-and-true information about their diagnosis that will help in their compliance and adherence to care. Other sites may give anecdotal info but here I can trust what is on the site as best practice. Thanks for making my job easier and my patients healthier.

1

Volunteer

Rating: 5

It's a great nonprofit, that helps educate about the lymphoderma.

1 Fleur N.

General Member of the Public

Rating: 5

LE&RN are passionate and committed to raising awareness of Lymphedema and providing a network of support to sufferers. Their work is also vital in raising funds for research and a potential cure. This is a great non profit!

1 Becca K.

Volunteer

Rating: 5

LE&RN has helped so many people! The Lymphedema and Lymphatic Disease community are getting the attention they need to fight LE and LD. I am so proud to be a part of this organization. Stay strong and fight on!

Previous Stories
1

Volunteer

Rating: 5

LE&RN has opened the eyes of the world. Lymphedema and lymphatic diseases are more common than anyone would like to believe. Their dedication to Education and research is phenomenal. So many changes in the lymphatic community have happened over ther years because of the research this organization helps fund. As a Lymphedema patient, I can honestly say they were a lighthouse in the midst of a storm. Thank you LE&RN!!!

1

Professional with expertise in this field

Rating: 5

I am a Newly certified CLT in Saskatchewan, Canada . I requested to join this support group to help me design a lymphedema clinic in Saskatchewan. I wanted to hear the stories of those affected with lymphedema so I can create a clinic that helps lymphedema suffers in my province. Saskatchewan does not have a support group and after seeing the support and education this group provides its members I would love to try and create a support group similar to this one on Canada. .I give this non profit group a gold star! I learn so much about the daily struggles , finding a CLT or knowledgeable doctor, compression questions and just the overall support each member provides to one another, its amazing!Lymph Strong is the best..

1 Ellen W.1

Client Served

Rating: 5

LEARN does an excellent job spreading knowledge about lymphedema. This organization is working on getting The Lymphedema act passed. This would help lymphedema patients obtain insurance for lymphedema treatment.

1

Donor

Rating: 5

LE&RN has changed my life with its support and cutting-edge research and information. This organization gives me hope for a cure for Lymphedema. I have had this disease for 23 years. I have been a supporting member for almost 2 years.

1 Keri Therese N.

Volunteer

Rating: 5

I Love IT! They are so Supportive and knowledgeable about Lymphedema!

1 Lisa A.2

Donor

Rating: 5

LE&RN was there when I realized my unexplained swelling was not going away but my doctor was not taking me seriously. With LE&RN's great information and assistance, I was able to advocate for myself and get the treatment I needed. The staff is wonderful and kind, and the organization as a whole is helpful and necessary. Love LE&RN!

1

Volunteer

Rating: 5

LE&RN is our saving grace. They are the hope in this grim diagnosis. Advocacy, research and ultimately a cure while providing support-this is LE&RN. They give us strength to, in her words, "kick lymphedema's butt"

1

Client Served

Rating: 5

My only hope for a cure is Lymphatic Education & Research Network. They are going to change my future
~Emma Detlefsen
Youth Ambassador

1

Volunteer

Rating: 5

This group helped me uncover what disease I truly had after years of misdiagnoses. Without the resources this group makes available, I may still be searching for answers.