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Lymphatic Education & Research Network

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Nonprofit Overview

Causes: Health, Medical Research

Mission: Lymphatic Education & Research Network (LE&RN), formerly Lymphatic Research Foundation (LRF), is a nonprofit organization founded in 1998 to fight lymphatic disease and lymphedema through education, research and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Results: LE&RN is at the forefront of raising awareness of lymphatic disease and lymphedema. Founded in 1998 as the Lymphatic Research Foundation, LE&RN provides annual grants to Research Fellows at the world’s leading universities, putting lymphatic diseases on the radar in the medical community, in academia, in government, and with pharmaceutical companies. Through LE&RN’s education programs, such as our popular Medical Symposium Series, medical practitioners, therapists, patients, and family members can benefit from hearing presentations given by the world’s leading lymphatic and lymphedema experts. LE&RN’s Patient Registry and Tissue Bank provides researchers with access to information about those afflicted with these diseases and can provide tissue samples from lymphatic disease patients to further research discoveries in the field. The quarterly journal Lymphatic Research and Biology delivers the latest developments and advancements in lymphatic biology and pathology from the world’s leading biomedical investigators. Through events such as the annual Walk for Lymphedema & Lymphatic Diseases and through advocacy efforts such as fighting for passage of the Lymphedema Treatment Act, LE&RN is building an extensive network of people looking for answers, demanding better treatment options, and, ultimately, finding a cure so that no one will have to suffer with lymphedema and other lymphatic disorders.

Target demographics: fight lymphatic diseases and lymphedema

Direct beneficiaries per year: fund researchers worldwide, and brought our educational symposiums to tens of thousands.

Geographic areas served: the United States and internationally

Programs: research, education and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Community Stories

73 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

Through LE&RN I'm able to advocate for research to hopefully one day find a cure for this disease.

General Member of the Public

Rating: 5

They have given me great research. They have been there for me when i wanted to tell my story.

Barbara H.2

Volunteer

Rating: 5

Having found LE&RN has been very helpful in many ways. Through edcation, spreading awareness, finding others to connect with and research this non-profit has done and continues to help serve the millions who suffer with lymphatic disease.

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1

General Member of the Public

Rating: 5

I am a 6 year cervical cancer survivor that now suffers from lymphedema in my left leg. Finding LE&RN was a blessing for me. Not only did I not feel alone anymore but found a community of people dedicated to helping connect people to doctors and therapist, bringing awareness, finding cures is so important. The website is full of so much valuable information. The 5k walk in California was one of the most up lifting events I have done. Through them I became aware of a clinical drug trial and was lucky enough to be included. Medical research is so important and LE&RN is committed to helping the world find a cure.

Mo B.

General Member of the Public

Rating: 5

I have been afflicted with lymphedema for several years. The insight, education and testimonials are reassuring. I know I am not alone. Keep up the good work!

Sarah B.11

Volunteer

Rating: 5

I'm a volunteer with the California chapter and I've seen this nonprofit play a pivotal role and spreading awareness about this disease and how people can treat it and live with it.

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Client Served

Rating: 5

LE&RN has a wonderful collaborative culture that engages patients, caregivers and providers to work together to educate the world about LE.

Maureen S.5

Client Served

Rating: 5

LE&RN helps patients, medical personnel, congress & anyone else who needs info about lymphedema. This condition ruins lives & very little is available to improve the life of someone who has acquired this condition, often as a result of cancer treatment.

Tara F.1

Professional with expertise in this field

Rating: 5

Appreciative of the outreach and education efforts made by LE&RN on behalf of my patients

Client Served

Rating: 5

As a retired veteran having to deal with lymphedema, I had tried every veteran service organization (VSO) I could with no resolve or help. I then located LERN and the organization has saved my life. I believe in the organizations devotion to its members and its resolve to find cure. My wife and son have become involved and we consider LERN as an extended family.

Volunteer

Rating: 5

LE&RN changed my life. That simple. It brings together a group of people who had no hope, no cure. But now, I feel like we are fighting together to bring awareness and not feel so alone and islotated.

1

Volunteer

Rating: 5

There are so few medical professionals who are experts in the field of lymphatic diseases. There are no medications and micro-surgery is generally considered experimental by insurance companies. The standard of care, massage therapy and compression garments, is often not covered by insurance companies.
What a godsend the Lymphatic Education & Research Network has been. The website content is an amazing resource for the patient. It is encouraging to know that they are bringing awareness to this condition to the government and medical community as well as funding research.
After participating in the 4th annual Run/Walk to Fight Lymphedema & Lymphatic Disease last year, I decided to become a LE&RN volunteer.

Previous Stories
1

Client Served

Rating: 4

I've had lymphedema for nearly 17 years, after surgery for Metastatic Melanoma. From a patient perspective, I take great comfort in knowing that LE&RN is helping research move forward in the quest for effective treatments for lymphedema.
Right now, what I really benefit from is the education side of this organization, with the shining star being the amazing LE&RN website. The Symposium Series alone has a multitude of video presentations by leaders in the field of lymphatic studies. I have utilized the Ask The Expert feature to obtain information about my situation that my primary care doctor is not equipped to answer. And the LE&RN Expo is a great source of information from the various compression manufacturers.
I was happy to participate for the first time in the LE&RN walk in Santa Monica and am a supporting member of this wonderful organization.

1 Diane L.7

General Member of the Public

Rating: 5

The education and research done by Lymphedema Education and Research is amazing for those of us with Lymphedema!

1

Professional with expertise in this field

Rating: 5

Fantastic group to work with. They are doing great things to spread awareness of lymphedema. - American Society of Breast Surgeons Foundation

1

Client Served

Rating: 5

My pt therapists are so knowledgeable. They receive great training and think outside of the box to get my legs under control.

1

Advisor

Rating: 5

LE&RN helps to put my disease on the map in a world that is still shockingly unaware. In the US 10M people suffer from lymphedema, most of them like me, as a result of surviving cancer. Imagine the irony that so much attention is directed at saving lives and then so little is done to make life worth living. Lymphedema is not a rare disease although it can feel awfully lonely out there. It is through LE&RN that all of us can know better. There is a great deal of awareness work to be done on all levels and around the world. Please support LE&RN and pay it forward. Signed M. Driessen

1

Professional with expertise in this field

Rating: 5

This non profit does an excellent job in advocating lymphedema worldwide.

1 lisaann1212

Donor

Rating: 5

LE&RN Had the information I needed to realize I had Lymphedema. They were my starting point so I could tell my doctors what I needed because my doctors were clueless.

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Volunteer

Rating: 5

This group helped me uncover what disease I truly had after years of misdiagnoses. Without the resources this group makes available, I may still be searching for answers.

1

Volunteer

Rating: 5

LE&RN is the only hope for a cure for our 10 year old, born with primary Lymphedema. You will not find a more dedicated organization in the world of Lymphatic Disease.

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3

Volunteer

Rating: 5

LE&RN is our saving grace. They are the hope in this grim diagnosis. Advocacy, research and ultimately a cure while providing support-this is LE&RN. They give us strength to, in her words, "kick lymphedema's butt"

1 Jessica F.6

Client Served

Rating: 5

LE&RN was crucial in the discovery of my diagnosis of Lymphedema and then in gathering information for the management of it. The research and resources from this organization are imperative to those of us living with Lymphedema.

1

Client Served

Rating: 5

LE&RN has made a tremendous difference in my life. Not only is it the single best resource for information and research about Lymphedema, but it has connected me with many others who suffer from this disease. Thank you!

1

Professional with expertise in this field

Rating: 5

I was graduated of faculty of medicine.after that ,I specialized in vascular surgery field.there are many patients suffer from lymphedema for many years without hope.After searching and contact health professionals ,I can say we could defeat this disease soon.What I am trying to do is gathering experience all over the world to help lymphie people in my country and global wise