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Review for Late Onset Tay-Sachs Research Andeducation Foundation, Encino, CA, USA

Rating: 5 stars  

The Late Onset Tay-Sachs charity is an underexposed, yet crucial organization focusing on finding treatments, cures and providing information on genetic diseases. It is built on love and pure dedication in the fight against this debilitating disease and those affected. L.O.T.S. organization is working hard to fund research and clinical trials so we can one day (in the near future) get through the blood brain barrier and find ways to regenerate enzymes for all those that suffer from genetic diseases. There are hundreds of different diseases that will benefit from this medical technology. L.O.T.S. puts on an annual fundraiser with speakers, an amazing silent auction, raffle and brunch to raise money to educate our community and support this significant cause. I am proud to be part of such a noble and significant effort and love that 100% of the proceeds go directly to the cause. This research not only effects those suffering presently, but our future generations. It's work is extraordinary.

I've personally experienced the results of this organization in...

My brother suffers from Late Onset Tay-Sachs disease and has been involved in clinical trials, funded through the organization. Friends and family have been educated on the most innovative medical research and many have been tested for genetic diseases.

If I had to make changes to this organization, I would...

Have more fundraisers and extend the board to further promote this organization.

Role:  Volunteer & I helped bring exposure to the fundraiser, invite guests, find auction items and sell raffle tickets.