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lisaduke

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1 reviews

Review for Mesothelioma Applied Research Foundation Inc, Washington, DC, USA

Rating: 5 stars  

My grandfather and his best friend died of meso, an asbestos related cancer. It is relatively common in places with large military populations. But the general public understands little about this disease and people have few places to turn to for good information on treatment options and a community of fellow warriors. This fine organization provides guidance for people with this lethal disease and funds research, organizes conferences, puts together support groups, lobbies for a patient registry and other much-needed services. Without MARF, thousands of people would struggle alone with a fatal disease that is understood by few doctors, let alone lay people. I have attended their conferences to learn about the advances in the war against meso and am astonished that the director of the foundation, Mary Hesdorffer, personally fields calls from patients desperate for information and support. I can’t say enough good things about MARF.

Role:  Donor