My Nonprofit Reviews

My wife and I to our joy found out we were expecting identical twin boys in April, 2018. We were overcome with joy and happiness and started to plan for not one, but 2 little boys. We thought the pregnancy was going smoothly until we were sent for a scan with an MFM doctor who diagnosed us with TTTS and SIUGR. We had no idea about this disease and what it had in store for us. The fact that we were based in Thailand made things even more complicated. I tried to find out as much information as possible about TTTS and SIUGR while we were waiting to see a specialist doctor in Bangkok who we were told would be able to perform surgery to help the TTTS. The next day, after a scan by this doctor we were sent to a waiting room where we were joined 5 minutes later by a team of doctors who said the only surgery they would perform was surgery to terminate our weaker little boy who was a few weeks behind his brother in growth. We didn’t know what to do at that point as while we instinctively did not want to kill our little boy, we were told that his twin will never make it. Furthermore, we were told that my wife, who was around 18 weeks pregnant at the time was about to give birth almost immediately and that both babies would not make it. It is difficult to put into words what happened next because there are simply no words we can use to express our thanks and gratitude that we found an angel in Mary Slaman from The Twin to Twin Transfusion Syndrome Foundation TTTS. There was no professor, no doctor, no hospital and no person who we spoke to (and we spoke to a lot) who had as much experience, as much knowledge, as many resources and a big heart like Mary Slaman. We took all the advice we could from Mary and now, in October, 2018 our babies are side by side in NICU in Bangkok fighting hard but getting there. They were born at 29 weeks and are now 32 weeks old. Mary has been an inspiration to us, always there to answer our questions, always there to provide support, always there to help us get through the darkest of days and we owe so much, just so much to Mary Slaman and The Twin to Twin Transfusion Syndrome Foundation TTTS. We would not be here today and neither would our boys if it were not for all of Mary’s hard work that she puts into The Twin to Twin Transfusion Syndrome Foundation TTTS. Thank-you Mary