My Nonprofit Reviews

The Lymphatic Education & Research Network provides a vast amount of educational material that is so important for patients, since very few medical professionals in the US specialize in lymphedema and lymphatic diseases. LE&RN also is active in working at improving insurance coverage for treatment and compression supplies for lymphedema patients.
I have been a volunteer with the CA Chapter of LE&RN for two years now. With the current Covid pandemic, the services LE&RN provides are more important than ever.

There are so few medical professionals who are experts in the field of lymphatic diseases. There are no medications and micro-surgery is generally considered experimental by insurance companies. The standard of care, massage therapy and compression garments, is often not covered by insurance companies.
What a godsend the Lymphatic Education & Research Network has been. The website content is an amazing resource for the patient. It is encouraging to know that they are bringing awareness to this condition to the government and medical community as well as funding research.
After participating in the 4th annual Run/Walk to Fight Lymphedema & Lymphatic Disease last year, I decided to become a LE&RN volunteer.

I've had lymphedema for nearly 17 years, after surgery for Metastatic Melanoma. From a patient perspective, I take great comfort in knowing that LE&RN is helping research move forward in the quest for effective treatments for lymphedema.
Right now, what I really benefit from is the education side of this organization, with the shining star being the amazing LE&RN website. The Symposium Series alone has a multitude of video presentations by leaders in the field of lymphatic studies. I have utilized the Ask The Expert feature to obtain information about my situation that my primary care doctor is not equipped to answer. And the LE&RN Expo is a great source of information from the various compression manufacturers.
I was happy to participate for the first time in the LE&RN walk in Santa Monica and am a supporting member of this wonderful organization.