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meeklesmom

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2 reviews

Review for The Iga Nephropathy Foundation Of America Inc, Wall, NJ, USA

Rating: 5 stars  

When we first learned that our 27 year old son was diagnosed with IgA, it felt like our world turned upside down. The anxiety we felt about his unexpected illness was extremely stressful.
I’d never even heard of this disease and I desperately needed to learn about it.
I went online and found the IgA Nephropathy Foundation website and I contacted Bonnie Schneider to ask her some of my most worrisome questions. Bonnie, who founded the organization, has done a remarkable job of raising awareness of this lesser known kidney disease and raising money for research in her quest to find a cure for it.
I’m very grateful to her and the support group she has created!

Role:  General Member of the Public
 

Review for The Iga Nephropathy Foundation Of America Inc, Wall, NJ, USA

Rating: 4 stars  

When my son was diagnosed in his 20's, our family was in shock. Always athletic, not often ill, we were devastated by is diagnosis and ignorant of the condition. No one in our family had had any kidney related problems.
When I went on the internet to research what he was faced with, I found the IgA Nephropathy website. Because this condition isn't one of the most commonly known kidney conditions, it also isn't as well funded or paid attention to.
I am so grateful to Bonnie and her group of active volunteers for raising money for research and a possible cure for this terrible disease.

Role:  Client Served