Love my igaN family. You are supportive, kind hearted, genuinely present and searching for a cure. So happy to be connected to a wonderful foundation. Love participating when I can.
Love to all!
When we first learned that our 27 year old son was diagnosed with IgA, it felt like our world turned upside down. The anxiety we felt about his unexpected illness was extremely stressful.
I’d never even heard of this disease and I desperately needed to learn about it.
I went online and found the IgA Nephropathy Foundation website and I contacted Bonnie Schneider to ask her some of my most worrisome questions. Bonnie, who founded the organization, has done a remarkable job of raising awareness of this lesser known kidney disease and raising money for research in her quest to find a cure for it.
I’m very grateful to her and the support group she has created!
Previous Stories
When my son was diagnosed in his 20's, our family was in shock. Always athletic, not often ill, we were devastated by is diagnosis and ignorant of the condition. No one in our family had had any kidney related problems.
When I went on the internet to research what he was faced with, I found the IgA Nephropathy website. Because this condition isn't one of the most commonly known kidney conditions, it also isn't as well funded or paid attention to.
I am so grateful to Bonnie and her group of active volunteers for raising money for research and a possible cure for this terrible disease.
This non-profit is tremendously efficient. Their board received no compensation and spends so much time raising money for IgA research. While I cannot account for every penny, I have known the team at this charity for many years and they are giving nearly 100% if not fully 100% to the cause. You can rest assured your donations will be put to use for the cause. At their events I have met many of the people with the IgA disease and have always donated blood to the Colombia University research team who is always there partnered with this charity.
This organization is run by an extremely dedicated group of volunteers. The work they are doing is vital to improving the lives of people living with IGAN. They give me hope everyday that one day there will be a cure for my son and all of the others living with this disease. In the meantime I know they are doing everything they can to move the needle of change. Thank you Bonnie and team!
Previous Stories
After my son's diagnosis, I learned about the IGA Nephropathy Foundation of America. I immediately became involved and now the Illinois Area Representative and also a Board Member. The founder, Bonnie Schneider, has accomplished so much in a relatively short time. She's assembled a team of hard working and dedicated volunteers, actively engaged top researchers and institutions, and helps everyone who reaches out navigate this uncertain and daunting road. She gives me hope because I know that she simply will not give up - and she inspires everyone she comes in contact with to share that passion.
The Board and Volunteers of this wonderful organization work tirelessly to raise much needed funds for vital research in order to find a cure for all that suffer from IGAN. I have been impressed by the commitment and passion of Bonnie, Ed, and Lenny as well as all individuals associated with their efforts from the first day I came in contact with this organization.
In 2012 my daughter was diagnosed with IgA Nephropathy. I had no idea what this disease was! I googled and googled and found the IgA Nephropathy Foundation of America. I poured over their website and then sent a donation. From there, Bonnie, the Founder, contacted me. We are working hard to provide resources for other families like us as well as raise money for research. There is still so little known about this disease and every dollar raised by the IgAN Foundation goes toward researching this horrific disease. I encourage anyone affected by IgA to reach out to this Foundation! The Board can put you in touch with others in your area that are also affected which is tremendously helpful when you don't know where to turn. I am both a client served and volunteer.
I was diagnosed with IGA a little over a year ago, and discovered the foundation online.
I wanted to get involved, and reached out to the Director. The foundation is doing an amazing job of spreading awareness, as well as raising funds to find a cure for this disease. Everyone involved with the Foundation are truly outstanding people.
When I was diagnosed with IGAN, I found a support group on Facebook and heard about the Foundation. I connected with them, learned about their efforts toward a cure, and have supported them. We need the good folks at the Foundation working on our behalf to increase research funding. Thanks IGAN Foundation!
After being medically discharged from the Navy for IGANephopathy, this organization helped me understand that I’m not alone in the fight against chronic kidney disease. I have met many wonderful people through this organization and can’t imagine where I’d be without their support.
My son was diagnosed with IgAN seven years ago when he was 8 years old. When he was 10 years old he was diagnosed with HSP in addition to IgAN. It has been a long, difficult road, but this group has been a great source of information! We know that we are not alone because of The Iga Nephropathy Foundation of America!
More than a decade ago, my friends, Ed and Bonnie Schneider shared with me and many others in our closely knit school community that their son, Eddie, was diagnosed with IGAN. From day one, I marveled at the determination of Bonnie and Ed in recruiting volunteers, educating folks about this debilitating disease and spearheading the formation of this non profit organization. The goal is to find a cure through the funding of research. Bonnie has expanded the scope and members of the organization through her tireless efforts in support of Eddie and all those who suffer from this relatively unknown crippling disease. I have been inspired throughout these years by these heart felt efforts and remain committed to the cause for my friends and all those who suffer from IGAN.
Michael S. Skea
Former Board Member and Volunteer
As a volunteer from the beginnings of this wonderful organization, I am extremely proud of its founder and supporting cast. Bonnie Schneider and Lenny Erlanger are truly angels to those suffering with this kidney disease. They have worked tirelessly to put IGA Nephropathy on the map, all over the world. I will continue to volunteer for this cause and hope that more money will be raised for future research to help those suffering.
Louise Dutt
I have been involved with Bonnie and IGAN since day one when her son Eddie was diagnosed over 10 years ago, We started this journey in her living room looking at ways we could raise money and to fund the much needed research on IGNA that was severely lacking. Now here we are 10+ years later and as strong as ever: IGAN is a 5013C charity, we are funding research done by Doctors in Alabama, formed additional IGAN Chapters across the country, and doctors from Columbia Hospital taking blood samples at our Annual walk from research One of the really nice things about this is that thru the internet and social medial the 'word' has gotten out across the country and we have connected with other people who have this disease and are now members of Bonnies 'Family' who are working to achieve our same goals and objectives.
After being diagnosed in 2005 with IGA, I quickly found this great organization and got involved. The people on the board and area reps went out of their way to make me feel like family. I was asked to join the board and to this day I am amazed by the caring nature of all involved with this organization.