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deer

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1 reviews

Review for Lupus Foundation of Northern California, San Jose, CA, USA

Rating: 5 stars  

After years of strange symptoms that would come and go, I remember sitting in my doctors office being told that "you don't want to have lupus". I was then refered to see a rheumatlolgist, which took a few months to get an appointment. Knowing nothing about lupus I went to the public library and the only book I found was outdated and I read I had only 10 years to live! Somehow I found out that there was a Lupus Foundation ongoing support group in my city. I found out that lupus was not a death sentence and that I could take action to be as healthy as possible. I become more educated about lupus, suppported, and became a member of Lupus Foundation. I continue to receive valuable info from their website that keeps me up to date on research and medication and offers me hope that soon there may more curing medication for people with lupus.

I've personally experienced the results of this organization in...

Because of my involvment with Lupus Foundation, I now have the knowledge/tools to handle what my living with lupus brings me. The articles and support group also helped my family gain an understanding of what I am going through and how they can help me.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Client Served & I received information thru phone counseling, newsletters, website, and support groups.