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Lupus Foundation of Northern California

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Nonprofit Overview

Causes: Health, Health Support, Nerve, Muscle & Bone Diseases, Specifically Named Diseases

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.

Target demographics: lupus patients and their families

Geographic areas served: Northern California

Programs: support services, education events, advocacy activity and research.

Community Stories

154 Stories from Volunteers, Donors & Supporters

3

Volunteer

Rating: 5

I have been part of the LFNC for the last 4 years. I was diagnosed 3 years ago and me and my family reached out to the LFNC for some support. We started volunteering at the 5k run each year and the other activities that the LFNC holds each year. My sister and I started helping the Lupus Youth Support Group for those who have lupus from the age of 6 to 17 who need support because they are dealing with Lupus. The LFNC has helped me along the way of my time having Lupus.

evbg

Volunteer

Rating: 5

I facilitate SF Lupus Support, a subchapter of the Lupus Foundation of Northern California (LFNC). The following is an excerpt from a speech I gave at a recent fundraising event for them. I’ve been connected to the LFNC since 1999 when I started attending the San Francisco Lupus Support group meetings. And I later participated in annual Lupus Educator Training programs led by founder and former executive Jo Dewhirst. Back then, the LFNC was called the Bay Area Lupus Foundation. But because of its amazing outreach from Redding and far south to Santa Maria, the name was appropriately changed.

For the LFNC, supporting people living with lupus is the heart of their mission. Within an ethnically and economically diverse population, they do this by providing programs and services that increase the understanding of all who are affected by this disease.
..............

I hope you consider the LFNC as a Great Non-Profit. Without them, all of us affected by lupus wouldn’t receive true, local support that is needed for our unique lupus community in the San Francisco Bay Area and Northern California.
Thanks so very much for your time and for listening!

Previous Stories

Volunteer

Rating: 5

In times of trouble, I’ve turned to the Lupus Foundation of Northern California for knowledge, advice, and comfort through special programs and the San Francisco Lupus Support Group/Sub Chapter, both of which I’ve been able to participate in. They've been given me opportunities to share my story at their conferences, in return I receive plenty of support. I’ve been a member of the Lupus Foundation of Northern California (LFNC) since 1999 (it was formerly known as the Bay Area Lupus Foundation). I’ve been co-facilitator of the San Francisco Sub Chapter for the past 10 years. Since my co-facilitator has moved to Sacramento this year, I now facilitate the support group. Thanks to them I was able to meet other facilitators around Northern California at our state capitol. We were able to share lupus stories and our ideas on how to improve what we do for our support group members.There’s a reason for why things happen—good or bad. I’ve always had a calling in life and that is to educate and spread awareness about lupus. The LFNC gives me the opportunity to fulfill this purpose. I am very thankful for the opportunities they give me!!

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Rgkracht

Volunteer

Rating: 5

I first became involved with the Lupus Foundation of Northern California when I was diagnosed 10 years ago. Maggie was the first caring voice that I connected with and who offered to send reading materials and described the support and education that the non profit agency offered. The LFNC has been in exisence for 41 years supporting not only Northern California but also lupus patients out of state that need a "buddy" assigned to a newly diagnosed patient. They can also tune into video casts from Rheumatoid physicians where there are question ane answer opportunities. I wanted to give back to the agency so I formed my team, " Roberta's Hope For Lupus Research," to raise money for this invaluable non profit with very dedicated volunteers. I also served as a board member for five years because the LFNC has been the main "go to" link for information and support for lupus patients and their families. I will be forever grateful for the immediate support I received from so many staff members, the board and the many dedicated volunteers. We lupus patients and "lupus families" need the Lupus Foundation of Northern California.

Previous Stories

Board Member

Rating: 5

The lupus Foundation does phenomenal work for lupus patients and their families! Their volunteer base is always willing to give whatever is needed to meet the task. I am a lupus warrior and finding the support and friendship within this organization has had a lifting spiritual affect on me which I KNOW helps my lupus. The LFNC works hard to collaborate and partner with the Lupus Research Alliance in increasing lupus awareness and raise money for research. I am so impressed with the degree of community outreach this organization does. The LFNC is the hand that reaches out to us who are in need of support and understanding of our lupus condition.

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2

Volunteer

Rating: 5

In the past several years that I have volunteered with the Lupus Foundation, I have really enjoyed my time and felt that I have contributed to my community because they are very welcoming, and I was able to help in their office. I have volunteered for the Outrun Lupus 5K several times and enjoyed my time there. I also enjoy being able to help out at the office with different tasks while being able to learn a lot more every time I go there.

Lorraine Crespo P.

General Member of the Public

Rating: 5

Thank you for sharing your updated research information.

Previous Stories

General Member of the Public

Rating: 4

Thank you for all you do! Your newsletters are filled with very useful informaiton.

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Sara C.3

Client Served

Rating: 5

The LFNC have been amazing!
The patient programs are so helpful and insightful. I love how they are working with support groups all over Northern California, uniting and giving support.
I am so astounded by the thoughtful staff. They are always available with a shoulder to lean on and a kind word.
Thank you LFNC for making a difference

Client Served

Rating: 5

The LFNC has been tremendously helpful in providing medical insight, moral and social support as I deal with lupus. As a newly diagnosed patient, I started attending the monthly young adults support group. While there is an ocean of information online about the disease, the support group is an opportunity to learn mutually through others experiences, and along with the social events that LFNC organize, I’ve started forming supportive friendships. LFNC is a great, well-connected resource, keep up the amazing work!

adutta

Client Served

Rating: 5

It was only via the Lupus Foundation of Northern California(LFNC) that I first met other lupus patients. After being diagnosed, I had too many questions and my rheumatologist endorsed LFNC as a good resource. Once I visited, I was immediately part of a large family of lupus patients, learning from seminars, attending support groups and most importantly no longer feeling alone in my journey with Lupus. The LFNC, albeit small, very efficiently organizes and utilizes it's resources and provides very valuable support to a large, hidden community of lupus patients and their families.

1 ksoto

Client Served

Rating: 5

I was lost when I was first diagnosed with lupus. LFNC has always been here for me. They educated me and armed me for a future I thought I couldn’t navigate before I came to them. They constantly evolve to meet all the needs of the autoimmune community, physical, emotional and wellness. They have saved my life and I’m sure many others with the buddy program and great staff the answer calls and talk us through the newest diagnosis and panic.
I’m proud to be a Lupus Buddy and help Other warriors I’m here because of LFNC support only wish there was more. Kathleen Soto

Previous Stories

Client Served

Rating: 5

Lupus Foundation of No. California has been there for me through my most difficult moments dealing with Lupus. They keep me informed about what is out there for me to help me have a better quality of life. They are there for me when I question if I can fight the fight anymore. Having a chronic illness is a very lonely place but they make sure you are not alone. I think if they had the money they would have a bigger space for a wellness center for services as well. They are committed to service and helping those of us with autoimmune issues. I would be lost without them

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2 cvonraesfeld

Client Served

Rating: 5

With a staff of only three, the LFNC has been an amazing powerhouse within the lupus community. Though focused on the Northern California region, the LFNC impacts lupus patients throughout the United States with their Facebook live chats and nationwide buddy program. As both a patient and a volunteer, the LFNC has been a huge support in my own life. It has given me the opportunity to meet others dealing with lupus and has provided me with resources, education and a sense of community. It has been an amazing organization to volunteer for and participate in, filled with dedicated people who are committed to really helping helping patients, promoting awareness, and advocacy within the lupus community. It is not just an organization. It is a family!


















Previous Stories
3

Client Served

Rating: 5

Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.

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lfnc 10/29/2016

Thank you, Christine! Your hard work for lupus patients everywhere inspires the staff each day.

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Mylene Y.

Volunteer

Rating: 5

LFNC has made great strides and a difference here in Sacramento. Erin and the LFNC team helped spread awareness right here at our State Capitol! In 2016 Senator Moorlach supported SR- 65 which designated the month of May as "California Lupus Awareness Month".
And this year LFNC received support from Assembly Member David Chiu who introduced HR-36 to recognize May as Lupus Awareness Month again! Thank you LFNC for spreading awareness and connecting our communities :)

Volunteer

Rating: 5

When I became an empty nester and considered volunteering, I noticed a flyer in my doctor's office for the LFNC 5k Walk/Run. Since I have Lupus, I thought this would be a perfect place for me to volunteer. As it turns out, I was right. The LFNC has a small staff of welcoming, caring, friendly and comforting individuals. I enjoy volunteering whenever I can when needed.

In my interaction with the other volunteers, I have been able to learn about Lupus and how differently it affects each individual when it comes to medications and illnesses. I have a better understanding of how fortunate I have been in living with Lupus.

I appreciate the LFNC for all the support they provide with outreach classes, seminars and the Buddy Program. I enjoy participating in a few of the fundraising activities they have such as the 5k Run/Walk and the Gala. What a gift it is to have the LFNC in the Bay Area.

Volunteer

Rating: 5

The staff at the Lupus Foundation of Northern California all have a gift of making every encounter personalized. There is an immediate sense of genuine caring for whatever issue they are assisting with which is extremely important when dealing with a disease like lupus. I facilitate a support group in Sacramento and they are always willing to go above and beyond for any needs I have for my support group in general or for the individuals that need help.

1

Volunteer

Rating: 5

The Lupus Foundation of Northern California does such great work for the lupus community. They provide the latest information on lupus research through mini conferences, programs for people living with lupus to connect with each other one on one, and fun fundraisers! Without them, I wouldn't have a lupus support group meeting.

General Member of the Public

Rating: 5

The LFNC is a wonderful organization. I have become more aware of this organization because my niece has lupus. The LFNC has become a huge part of my nieces life: helping her deal with and understand the disease, as well as enabling her to reach out to others and become a support person for others with the disease. I enjoy the yearly Lupus walk. Thanks LFNC for helping raise money to learn more about this disease and for being a great source of information for anyone wanting to learn more about the disease. And thank you for being a source of hope and support for those afflicted with the disease.

1

Donor

Rating: 5

I have a dear friend with lupus whom I've watched struggle daily with this disease that has taken pieces of her, a little at a time. I have supported through the Gala and Lupus walk through the years. She is very involved with this organization because she was able to get information through them to help her process her diagnosis. She wants all people to be able to turn to the LFNC get support for this devastating disease as she has! She is my connection and I see LFNC's importance through her.

1

Board Member

Rating: 5

The Lupus Foundation of Northern California embodies all of the traits a great nonprofit should have. The Executive Director and staff work tirelessly to provide the best support and resources for the community. Funds received by LFNC go directly to aid lupus patients and further research for a cure. Every member of the organization is committed to improving the lives of lupus patients and their families. I'm proud to be associated with such a great organization and help provide a brighter future.

2 Veronica43

General Member of the Public

Rating: 5

The Lupus Foundation of Northern California is a great nonprofit organization! My cousin has had Lupus for over 20 years and this organization has helped her tremendously over the years. This nonprofit helps people in need, they raise money for research, and they raise awareness about Lupus. This organization has also given my cousin a new purpose in life by giving her a job opportunity to work for the organization. I am extremely grateful to them for all they do to help my cousin and the community.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your kind words! We are glad to be here for your cousin.

2

General Member of the Public

Rating: 5

My sister was diagnosed with lupus at about the same time my oldest daughter was born. She was able to last through both good and bad times and still manage to take care of my two daughters. I never fully understood the disease until she became an advocate for the cause. The Lupus Foundation of Northern California has given her a voice for her pain and the pain that others with Lupus go through every day.

Comments ( 1 )

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lfnc 10/29/2016

Thanks for your review! We are so proud to help give a voice to those with lupus.

Debra102

Donor

Rating: 5

My daughter-in-law was diagnosed with Lupus at an early age. LFNC has been a great resource for her and helped me better understand the disease. I have participated in the 5K run/walk and the gala and never cease to be amazed by the dedication of the staff, board members and volunteers of this great organization. They provide a valuable service to the community with their newsletters, networking and research. Hopefully their efforts will lead to eradication of this and many other autoimmune diseases. Keep up the good work LFNC!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your review. We are very glad we were able to help you understand lupus and we are incredibly grateful for your support.

1

Board Member

Rating: 5

Can't say enough about Lupus Foundation of Northern CA (LFNC). An extremely dedicated staff, ED, volunteers, board members and supporters who care deeply about helping Lupus patients and their families. Not knowing a thing about the illness prior to my diagnoses LFNC became my go to place for information, resources, programs and support. They have truly made an impact on the lives of so many patients myself included.

I am thankful for their support on my lupus journey which has lead me back to them. Must say LFNC is GREAT stand out !! Non profit !!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your incredible dedication to the cause and hard work on behalf of everyone with lupus.

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Volunteer

Rating: 5

LFNC provides valuable information and is a great resource for the Lupus community. I am impressed with the kind hearted , dedicated board members and volunteers. Keep doing what your doing!!!Great Job. Thank you for all that you do!.

2

Donor

Rating: 5

A childhood friend of mine has Lupus and has been such an amazing advocate for research and spreading awareness. Because of her, I was introduced to the Lupus Foundation and learned of the amazing work that they do. We have also donated to the organization because we believe so deeply in the cause. Understanding Lupus, or any other chronic disease, is so important to increasing research dollars and to hopefully one day finding a cure. In the meantime, the more we understand, the more we can support others.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your review and for you support!

1

General Member of the Public

Rating: 5

My best friend has lupus and other medical issues and the information and stories enables me to better understand and offer guidance. Not being in the medical profession and not experiencing her daily obstacles learning from professionals and the community has been insightful and a support system for me.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your review! I'm so glad that we have been able to help you understand lupus.

3

Donor

Rating: 5

I have participated in the annual 5k walk/run, in Saratoga, for many years but wasn't really aware of the wonderful supportive role the LFNC does until i was invited to the annual gala in San Jose, by Roberta Kracht. Listening to the speakers talk about their journey through this disease is heart warming and heart breaking at the same time. People with Lupus and their families are so fortunate to have this organization for support and research. Our family thanks you and supports you and is looking forward to the day a cure is found!

Comments ( 1 )

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lfnc 10/24/2016

Thanks so much for your kind comments!

3

Donor

Rating: 5

I became aware of the Lupus Foundation's great work through Roberta, my mother-in-law, as we participated in fundraisers like the 5K run/walk and the annual dinner. Their work is inspiring to so many who lean on the Foundation for strength in the very difficult journey of lupus survivors, and it helps to lighten their very considerable burdens while also supporting critical research. As an aside, their events have given us a wonderful way to bring family and friends together to affirm our love for Roberta, and I know I see that in many other families in the community as well.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your kind words. Your dedication to helping LFNC and the lupus cause is incredible and we appreciate it.

3 sobz03

Volunteer

Rating: 5

Every year, the professionalism, dedication, and hard work exemplified by the LFNC's staff continues to amaze me. It is clear that they care about lupus patients and creating an awareness of this autoimmune conditions in the community at large. They facilitate numerous patient education classes, support group meetings, fundraisers, walks and new programs. One of the newest programs to launch out of the LFNC is the Lupus Buddy Program in which patients are paired together as a personalized support system. The LFNC hosted a Buddy Program celebration with a Qi Gong specialist, a Chinese alliterative medicine specialist, and a therapist. The attendees loved the event! The LFNC is a place of support, trust, and care for many newly diagnosed and seasoned patients when no one else around them understands their disease and their journey with this disease. Thank you, LFNC!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your kind review. Your dedication and hard work on behalf of lupus patients helps us at LFNC to do our job and inspires us each day.

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3

Volunteer

Rating: 5

LFNC is one of the greatest resources for people with lupus and for supporting lupus awareness. They are sweet, kind, caring, and intelligent people. I've never had a bad experience with them, and no matter how much I call them or how busy they are, they are always will to help--patiently in fact. As a volunteer, I know firsthand from testimonies people have felt urged to randomly give me that they regularly make a deep and impacting difference in the lives of lupus patients, their families, and their friends. Great job, and keep up the amazing work, LFNC!

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3

Board Member

Rating: 5

As a child diagnosed with lupus before the internet, my resources for information and support from this disease was very limited. The only local organization I found was the Lupus Foundation of Northern California. It offered me a wealth of knowledge and reduced the isolation that is so common with lupus. I was a client served, then a volunteer in the 90's, a presenter at local events, and now, a board member. I am so proud of this organization and the support that we provide to the local community.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your kind words and your dedication to help other lupus patients.

4

Board Member

Rating: 5

I started volunteering for the LFNC in 1996 after my mother succumbed to this awful disease. To deal with my grief, I turned to the LFNC for support and for help trying to better understand how lupus affects African-Americans. After seventeen years of volunteering at the 5k, Dial-A-Doctor night and other events, I became a board member in 2013. My journey with this organization has been one of the most positive things that I've ever done. I found the support I needed to move on with my life and I'm surrounded with some of the most caring and hard-working staff and board members. Everyone at the LFNC is so dedicated in keeping our organization solvent so we can continue helping lupus patients in the Bay Area, Northern California and across the country. Here's to a life without lupus!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your review! Your dedication to the LFNC and the lupus community is amazing and we greatly appreciate it.

2

Board Member

Rating: 5

This is an amazing local charity that supports lupus patients in Northern California. The staff is so dedicated and caring and they really make a difference in the lives of people challenged by this debilitating disease.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your review and your continued dedication to the Lupus community!

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2

Board Member

Rating: 5

LFNC has a dedicated team of volunteers that are committed to helping patients with lupus. They provide vital local services that the larger lupus organizations cannot provide.

Review from Guidestar

1 kgm14

Board Member

Rating: 5

My sister contacted LFNC over 20 years ago while living and working in SF and newly diagnosed. She's has had a journey and along the way LFNC has provided support and I'm so proud of of my sister. She now lives well with Lupus. Together we support and advocate for Lupus patients and are part of the amazing and dedicated Board and staff at LFNC. LFNC, thank you and keep up the great work for the Lupus community! I can't say enough about the dedication and commitment of LFNC!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your words and your long-time advocacy for the lupus community!

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1

Volunteer

Rating: 5

Very grateful for all the work that LFNC does for Lupus patients and their families over the years! A terrific group of dedicated, caring, committed staff and volunteers that provide education and support through their conferences, fundraisers/walk/run, and meetings. LFNC - truly provides support for patients, caregivers and the whole Lupus community. Keep up the great job! Thank you.

2 jremley

Board Member

Rating: 5

My wife and I have been involved with LFNC since 1994, shortly after my wife was diagnosed. It's amazing what the staff and volunteers do to support lupus patients and family members during good and bad times. The educational courses, opportunity to participate in research, lupus buddy program, as well as community fundraisers all make the LFNC a great non-profit. I don't know where my wife and I would have gone after she was diagnosed to get answers and support services regarding life with lupus. A big THANK YOU LFNC!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your kind words. LFNC wouldn't be here without you and we appreciate all that you do/have done.

1

Volunteer

Rating: 4

I've been volunteering for the foundation a few years. Staff are wonderful to work with. Before I started to volunteer, I didn't know anything about Lupus. The foundation is doing great work to support Lupus patient as well as promoting awareness. As a volunteer, I always have a great time helping out at the office or at the event. I also met other volunteers and they're so wonderful to work with.

Volunteer

Rating: 5

The LFNC helped me to form a great support network. The staff is very helpful and effective in guiding patients to the right resources. The positive experience motivated me to take up volunteer roles at the LFNC after starting as a patient.

Volunteer

Rating: 5


The Lupus Foundation of Northern California has three staff: the Executive Director, the Communications Director and the Outreach Director. But each staff has made adjustments to ably and satisfactorily perform the tasks needed in the office as well as in the implementation of the various programs designed to bring awareness to the people about lupus and help lupus patients.

The Lupus Foundation of Northern California utilize and coordinate the volunteerism spirit of the community from the lupus patients themselves, volunteers who want to be a part of the program and professionals who share their expertise to help alleviate the conditions of the lupus patients. The Foundation is performing its fair share in bridging the gap... between lives with and without lupus far exceeding expectations.

Volunteer

Rating: 5

Good people for a good cause. I've volunteered now at three fundraising events with the Lupus Foundation of Northern California. These events serve not just to raise money but awareness of lupus. That many of the staffers have lupus or have someone close who does makes it that much more deeply personal.

I've met some great people in the foundation. Everyone is cheerful and very accommodating! I feel that my efforts here are towards a worthy cause.

Client Served

Rating: 5

When I was diagnosed with Lupus I felt lost. I found on the internet that Lupus Foundation of Northern California was giving educational class about the disease for new patients and families and I went to learn more about Lupus. I left that day with knowledge that was so important to my health and helped my family to get information and also support. Their support group has helped me tremendously to find strategies to cope, make new friends too. I hope that they can help many others the way they helped me.

3 Setareh B.

Client Served

Rating: 5

This non profit has been so helpful and inspirational to my life. They have provided support and guidance to dealing with a very difficult illness. I have not only benefitted from their services but have chosen to become a volunteer because I believe in their cause so much. I'm thankful for the benefit they have provided to my life and the lives of so many others!

Volunteer

Rating: 5

I've been volunteering for a couple years now. It feels good to help others with the same disease my mother has. The community are always welcoming. We need to stay strong together to overcome this battle.

1

Volunteer

Rating: 5

I thoroughly enjoy being a volunteer for the LFNC. The staff welcomes you to be part of the "LFNC Family" and the other volunteers feel like family as well. Having Lupus, myself, I appreciate the effort to bring awareness to the community about this disease.

Volunteer

Rating: 5

LFNC gave me the opportunity to start an internship with them and through this I was able to discover all the wonderful things they do. With a small staff and the help of clients and volunteers they are able to reach out to the community and make every single one of them feel welcome. Everyday their tremendous effort is seen and they make sure they make every one feels like family. The time I have spend as an intern with them has been marvelous and I am very thankful they gave me the opportunity to work with them.

Thank you LFNC for making a difference in our community!

2

Volunteer

Rating: 5

LUPUS foundation of Northern California is a great non-profit organization. It offers very informative conferences, seminars to educate people on LUPUS. It also provides many helpful programs such as LUPUS support groups and 5K running etc. Just as its mission, this organization provides a center and resource and hope for people who are suffering with LUPUS, which I vote the highest 5 stars for nonprofit organization.

2

Volunteer

Rating: 5

I have volunteered at LFNC since I retired nearly 7 years ago. It has been and continues to be an amazing trip. I have watched the organization grow and change as the world around it grows and changes. However, its mission and goals remain consistent. It continues to promote lupus awareness, to educate and provide information to patients, their families and caregivers through conferences, education classes and electronic newsletters. It also continues to support external research through fund raising activities like the 5K Run/Walk or the Gala. Volunteering 7 years ago most often meant filing, folding, stuffing, and mailings. Now, it is much more likely I will be asked to work on the computer, entering and editing data and researching. There are many fun activities to be done. In addition, I have had the opportunity to meet many wonderful people, staff, board members, lupus patients and their families, as well as other volunteers. I look forward to many more years of helping out at this great nonprofit organization.

Volunteer

Rating: 5

I have volunteered at LFNC for about two years in the office and with their 5K run/walks and they were all very wonder experiences. The staff is friendly and kind to the volunteers and dedicated to Lupus patients and families. I have met many nice people and made some good friends volunteering at the organization.

Monica59

Volunteer

Rating: 5

I Volunteered LFNC for the 5K run/walk it was a very nice experience. All of the volunteers of this organization are so kind. Met lots of wonderful people all coming together for great cause.

Volunteer

Rating: 5

I contacted LFNC many years ago when my lupus journey first began. LFNC was extremely helpful then and continues to be a strong organization that has definitely exceeded my expectations. Dedicated, caring, kind group of individuals who care deeply about helping lupus patient and their families. Can't say enough how it has helped me and continues to do so.

SandraLopez

Volunteer

Rating: 5

Lupus foundation of Northern California became a great help to me when I was first diagnosed with SLE Lupus 9 years ago. Through my rheumatologists office visits I found a flyer of the Alameda subchapter support group. I make it a priority to make all the monthly meetings, because they are encouraging and the group members have become like family. Through the years of attending this support group and going to educational class/seminars the LFNC hosts locally, I am now leading their Youth Support Groiup the Hangout once a month. Its a privilege and honor to be able to volunteer and help the foundation to continue reaching out to our community and instilling hope in the lives of those of us affected with this illness day in and day out. Their dedication and love the staff outpours to us is amazing.

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Volunteer

Rating: 5

Lupus Foundation of Northern California has been a great resource of information for me. They send out very informative information weekly in their news letters that are helpful and give updates on events that are coming up, giving you the opportunity to volunteer as well. When I go visit the office they always make me feel like family. They have now given me the opportunity to lead one of their Youth Support Groups and its been a great experience. The conferences that they set up for lupus patients are also very good, I have attended two of them and every time I learn something new even after having lupus for 7 years.

Review from Guidestar

lupus

Volunteer

Rating: 5

I have been a volunteer for the LFNC for approximately 27 years. I first became involved when I was newly diagnosed and was seeking information and support. The organization was there to meet my educational and emotional needs. The administration is very supportive and encourages members to become involved, therefore I used my professional experience as a registered nurse to help teach classes, lead support groups and volunteer in other capacities. This nonprofit really stands out in its mission to raise awareness of lupus, support those who suffer from lupus and their families, support legislation to increase funding for research, and directly supply funding for lupus research. For this reason, LFNC should be one of the top great nonprofits in the country.

Previous Stories

Volunteer

Rating: 5

The Lupus Foundation of Northern California has been a part of my life for the past 15 years. First, as a newly diagnosed client seeking information and support. The organization provided literature, videos and classes. I also found support in one of their subchapter support groups. I met others suffering the same issues and made friends for life. As I became familiar with the chronic nature of the disease, I decided to give back by becoming a volunteer. I utilized my background as a nurse to assist as a spokesperson, teacher and coleader of a support group. During this time I earned how many people have been served by this great nonprofit.

Review from Guidestar

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Volunteer

Rating: 5

I have volunteered at many non-profits, but LFNC stands out among them because of the dedication of the staff and how much they care about supporting lupus patients and their families and friends. In addition to providing important information, LFNC does an incredible job advocating on their behalf, to get them the support and resources that are needed at the state and national level.

Previous Stories

Volunteer

Rating: 5

I've always been impressed with the dedication of the staff and volunteers at LFNC. They do an incredible job of educating and supporting individuals with this very severe and confusing disease, as well as helping families and friends understand and support those who have it. In addition, their advocacy work is truly admirable.

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Client Served

Rating: 5

I am a parent of a young lupus patient. LFNC is an invaluable resource for our family. It provides excellent information, education and support. And, even more valuable is it's consistent messaging that, through research and sharing of knowledge, there is hope lupus will become a curable disease.

Volunteer

Rating: 5

I have volunteered for LFNC for almost twenty years in Sonoma County. I love the people I've met in our support groups. We have made a queen-size butterfly quilt as a fundraiser and made more than $1,000 by selling tickets. The members of the support group are very encouraging to each other.

Volunteer

Rating: 5

I started off getting involved in LFNC as a Lupus patient and soon fell in love with the organization. All the effort and these amazing people put into helping people who felt so hopeless and alone when they were first faced with their diagnosis is obvious the second you meet them. There seems to be a very warm welcoming energy about the foundation and all the people there. I felt right at home only after a few visits. Then before I knew it I was volunteering because I wanted to be a part of what they did in making a difference in people's lives. I am so grateful to have found this organization. It was a huge resource of support that helped me get back on my feet and get my life back.

Previous Stories

Volunteer

Rating: 5

I first came across LFNC when I was diagnosed with Systemic Connective Tissue disorder. I was going through a very rough time in my life and this organization became a second family. One that understands and is supportive in every way possible. They helped encourage me to never give up hope on battling this horrible and confusing disease. With the support from them and from my family and friends I have been in remission for about 6 months now. I have been volunteering at LFNC all through out my battle with SCTD/Lupus and have even spoken at a meeting regarding my remission and my journey in how I got there. LFNC has done so much for me I can't say enough. I fully support them the way they have supported me. I recommend this organization to anyone who wants to be a part of an amazing cause.

Review from Guidestar

Volunteer

Rating: 5

I was at my annual lupus exam when I first learned about the Lupus Foundation of Northern California. There was a poster seeking participants for their 5K run that caught my interest. I had been looking into becoming a volunteer with some organization and decided the LFNC would be one of a personal interest to me.

The staff for the LFNC welcomed me with open arms and made me feel like I was part of the LFNC family. I have enjoyed working with many volunteers in our efforts to fundraise and help raise awareness about Lupus.

I look forward to many years as a volunteer and I hope that many others will come forward and join the LFNC organization.

Volunteer

Rating: 5

I am a Senior in high school and my best friend and my great aunt are both Lupus patients. In knowing the effects of this disease on an individual, my mother and I searched for a place that we could volunteer at that would help us understand the disease more. We also just really wanted to show our support to all the strong Lupus patients. We received an e-mail that asked if we help send out newsletters and we immediately responded. A few days later, we came in and were greeted with warm smiles as we were introduced to all the other volunteers. All the people in the office were very passionate about what they were doing, whether it was labeling envelopes, folding papers, and even making calls for donations. The warm feeling I felt when I was volunteering, made me want to return to help out at another time. Since then, I have volunteered several times and have gotten close to the staff and other volunteers. I believe that this nonprofit organization does a wonderful job in spreading and supporting Lupus awareness and is a perfect place to seek help and information about this disease.

Donor

Rating: 5

Lupus Foundation is a great organization. I've participated in the 5k walk to support my mother-in-law. and thought the run was a very good experience. I plan to come back next year to be a part of it again. I may even try jogging.

Lydia H.

General Member of the Public

Rating: 5

I joined this to support my mother in law as well as all the other victims of lupus. It was a great experience and I believe participating in this helped to promote the awareness of this auto-immune disease and to get more people to help contribute for a good cause.

General Member of the Public

Rating: 5

I always wanted to do a run to support something and the Lupus Foundation made my very first experience really memorable. Everyone was just so dedicated and nice, and the event itself was a blast! I had lots of fun and also became more aware of what Lupus is at the same time.

Client Served

Rating: 4

Lupus can be a very confusing disease. LFNC puts on regular "mini-conferences" which bring together knowledgeable speakers with relevant information. The ones 'Ive attended on the latest developments in the treatment of Lupus have allowed me to be an informed partner in discussions with my doctors.

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Client Served

Rating: 4

Lupus is a confusing, often isolating disease. It can manifest in so many ways, that even the best intentioned literature seems irrelevant or contrary to whatever the latest word from one's own doctor. LFNC not only sends out frequent announcements of new information, along with links to the full explanation of the announcement, but also sponsors frequent classes with a variety of experts who first talk, then take questions. They hold these classes in a variety of Northern California locales, maximizing the opportunity to attend for people who might not be able to make it to the main office in San Jose. Over the past couple of years, I've had at least 3 links to relevant information or an actual seminar come up just as I was realizing I needed more information on an issue.

Client Served

Rating: 5

Lupus of No. Calif. has helped me greatly over the past 11 years since being diagnosed with lupus and other autoimmune diseases. I live in the country and having the latest info. at my fingertips has been so reassuring. I have used their library and enjoy their newsletters. They have helped me with strategies for coping. I appreciate them being my advocate.

Volunteer

Rating: 5

I first came to learn about the Lupus Foundation when a co-worker of mine revealed that he had lupus. I didn't know what lupus was, so I searched the Internet and found the Foundation's website. I learned a lot of information about this disease through them. That year, I also started participating in their 5K Run and Walk to help spread awareness about lupus and to do what little I can to help raise funds for lupus research. I hope there would be more resources like the Lupus Foundation all over the country.

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Donor

Rating: 5

For two years in a row now, I have been asked by a friend with lupus to join her team for the 5K Run and Walk for Lupus in Saratoga, California. It was my pleasure to support my friend and donate some money to the Foundation. I was very impressed with their annual event. This year's event was even better than the last -- very well-organized and there was something for everyone: from snacks to free t-shirts, goodies, good information and great entertainment! Volunteers were very helpful and the crowd was just very friendly and passionate about the cause!

Client Served

Rating: 5

I have Lupus. The LFNC keeps me updated with very helpful research information, educational classes, and and lifestyle tips for keeping my self healthy.

Chrissy D.

Client Served

Rating: 5

I decided to classify myself as a client served as I am living with lupus and other autoimmune diseases and the LFNC has been a helpful advocate for this never-ending fight. I consider myself and all lupus fighters, warriors, and I thank LFNC for providing us the tools (or weapons) to fight effectively while trying to continue our contributions to society. Thank you so much! Please keep it up! I'll be walking again next year. This time under team Craftego. My new handmade craft shop, because I will never give in to this... lupus.

General Member of the Public

Rating: 5

Attended a few of their seminars to gain knowledge regarding Lupus. I gained so much information and gained valuable knowledge about the Lupus disease, the organization . The people, staff, medical personnel ,who volunteered their time in the local, San Jose chapter are so generously helpful to anyone, Is one of the organizations that deserve , truly one of the best .

Client Served

Rating: 5

Having Lupus can be very isolating. Healthy people often don't understand how someone who looks okay can be suffering pain and fatigue. The information and support I get from this organization helps me in so, so many ways from: Up to date medical research information; Tips on day to day living; inspirational stories from other patients; as well as a caring voice on the other end of the phone. The Lupus Foundation of Northern California is my partner in achieving a healthier life.

Jennifer Jenna T.

General Member of the Public

Rating: 5

Although I no longer belong to a regular lupus support group nor do I attend functions, I do try to keep informed by reading the LFNC newsletter and searching for online info about SLE. In July 2012 I saw a workshop being held in San Francisco ttitled "Lupup Self Management/Holistic Nutritional Approaches for Lupus". At 48 years of age and having been diagnosed with SLE in high school, I have come across all sorts of info on these topics and they are pretty much the same--stay positive, avoid nightshade foods, sun screen, sun screen. For some reason, though, I decided to sign up and attend anyway. In a word AWESOME ! The attendees--all of whom were strangers to me--were friendly and welcoming, the speakers were knowledgeable and very personable, there was tasty, healthy food, and it was free. I was--and still am--experiencing a flare-up and was planning on staying home but I am so glad that I attended. A significant amount of the information I heard was new and definitely inspiring. That outing actually made me feel better. Thanks LFNC for making programs like this available and for changing my mind about support group meetings.