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Lupus Foundation of Northern California

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Nonprofit Overview

Causes: Health, Health Support, Nerve, Muscle & Bone Diseases, Specifically Named Diseases

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.

Target demographics: lupus patients and their families

Geographic areas served: Northern California

Programs: support services, education events, advocacy activity and research.

Community Stories

150 Stories from Volunteers, Donors & Supporters

3 cvonraesfeld

Client Served

Rating: 5

Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.

Comments ( 1 )

lfnc Thank you, Christine! Your hard work for lupus patients everywhere inspires the staff each day.

Lorraine Crespo P.

General Member of the Public

Rating: 5

Thank you for sharing your updated research information.

Previous Stories

General Member of the Public

Rating: 4

Thank you for all you do! Your newsletters are filled with very useful informaiton.

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Sara C.3

Client Served

Rating: 5

The LFNC have been amazing!
The patient programs are so helpful and insightful. I love how they are working with support groups all over Northern California, uniting and giving support.
I am so astounded by the thoughtful staff. They are always available with a shoulder to lean on and a kind word.
Thank you LFNC for making a difference

Client Served

Rating: 5

The LFNC has been tremendously helpful in providing medical insight, moral and social support as I deal with lupus. As a newly diagnosed patient, I started attending the monthly young adults support group. While there is an ocean of information online about the disease, the support group is an opportunity to learn mutually through others experiences, and along with the social events that LFNC organize, I’ve started forming supportive friendships. LFNC is a great, well-connected resource, keep up the amazing work!

adutta

Client Served

Rating: 5

It was only via the Lupus Foundation of Northern California(LFNC) that I first met other lupus patients. After being diagnosed, I had too many questions and my rheumatologist endorsed LFNC as a good resource. Once I visited, I was immediately part of a large family of lupus patients, learning from seminars, attending support groups and most importantly no longer feeling alone in my journey with Lupus. The LFNC, albeit small, very efficiently organizes and utilizes it's resources and provides very valuable support to a large, hidden community of lupus patients and their families.

1 ksoto

Client Served

Rating: 5

I was lost when I was first diagnosed with lupus. LFNC has always been here for me. They educated me and armed me for a future I thought I couldn’t navigate before I came to them. They constantly evolve to meet all the needs of the autoimmune community, physical, emotional and wellness. They have saved my life and I’m sure many others with the buddy program and great staff the answer calls and talk us through the newest diagnosis and panic.
I’m proud to be a Lupus Buddy and help Other warriors I’m here because of LFNC support only wish there was more. Kathleen Soto

Previous Stories

Client Served

Rating: 5

Lupus Foundation of No. California has been there for me through my most difficult moments dealing with Lupus. They keep me informed about what is out there for me to help me have a better quality of life. They are there for me when I question if I can fight the fight anymore. Having a chronic illness is a very lonely place but they make sure you are not alone. I think if they had the money they would have a bigger space for a wellness center for services as well. They are committed to service and helping those of us with autoimmune issues. I would be lost without them

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1 cvonraesfeld

Client Served

Rating: 5

With a staff of only three, the LFNC has been an amazing powerhouse within the lupus community. Though focused on the Northern California region, the LFNC impacts lupus patients throughout the United States with their Facebook live chats and nationwide buddy program. As both a patient and a volunteer, the LFNC has been a huge support in my own life. It has given me the opportunity to meet others dealing with lupus and has provided me with resources, education and a sense of community. It has been an amazing organization to volunteer for and participate in, filled with dedicated people who are committed to really helping helping patients, promoting awareness, and advocacy within the lupus community. It is not just an organization. It is a family!


















Previous Stories
3

Client Served

Rating: 5

Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.

Comments ( 1 )

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lfnc 10/29/2016

Thank you, Christine! Your hard work for lupus patients everywhere inspires the staff each day.

Read more
Mylene Y.

Volunteer

Rating: 5

LFNC has made great strides and a difference here in Sacramento. Erin and the LFNC team helped spread awareness right here at our State Capitol! In 2016 Senator Moorlach supported SR- 65 which designated the month of May as "California Lupus Awareness Month".
And this year LFNC received support from Assembly Member David Chiu who introduced HR-36 to recognize May as Lupus Awareness Month again! Thank you LFNC for spreading awareness and connecting our communities :)

Volunteer

Rating: 5

When I became an empty nester and considered volunteering, I noticed a flyer in my doctor's office for the LFNC 5k Walk/Run. Since I have Lupus, I thought this would be a perfect place for me to volunteer. As it turns out, I was right. The LFNC has a small staff of welcoming, caring, friendly and comforting individuals. I enjoy volunteering whenever I can when needed.

In my interaction with the other volunteers, I have been able to learn about Lupus and how differently it affects each individual when it comes to medications and illnesses. I have a better understanding of how fortunate I have been in living with Lupus.

I appreciate the LFNC for all the support they provide with outreach classes, seminars and the Buddy Program. I enjoy participating in a few of the fundraising activities they have such as the 5k Run/Walk and the Gala. What a gift it is to have the LFNC in the Bay Area.

Volunteer

Rating: 5

The staff at the Lupus Foundation of Northern California all have a gift of making every encounter personalized. There is an immediate sense of genuine caring for whatever issue they are assisting with which is extremely important when dealing with a disease like lupus. I facilitate a support group in Sacramento and they are always willing to go above and beyond for any needs I have for my support group in general or for the individuals that need help.

1

Volunteer

Rating: 5

The Lupus Foundation of Northern California does such great work for the lupus community. They provide the latest information on lupus research through mini conferences, programs for people living with lupus to connect with each other one on one, and fun fundraisers! Without them, I wouldn't have a lupus support group meeting.

Board Member

Rating: 5

The lupus Foundation does phenomenal work for lupus patients and their families! Their volunteer base is always willing to give whatever is needed to meet the task. I am a lupus warrior and finding the support and friendship within this organization has had a lifting spiritual affect on me which I KNOW helps my lupus. The LFNC works hard to collaborate and partner with the Lupus Research Alliance in increasing lupus awareness and raise money for research. I am so impressed with the degree of community outreach this organization does. The LFNC is the hand that reaches out to us who are in need of support and understanding of our lupus condition.

Previous Stories

Client Served

Rating: 5

It was wonderful to have a connection and a place to call for resources when I was diagnosed five years ago. My physician didn't give me any information or links to begin educating myself on the disease. My emails from the LFNC kept me up to date with research and resources. I was very grateful and participated in their 5k by organizing a team. The LFNC is vital to our community!

General Member of the Public

Rating: 5

The LFNC is a wonderful organization. I have become more aware of this organization because my niece has lupus. The LFNC has become a huge part of my nieces life: helping her deal with and understand the disease, as well as enabling her to reach out to others and become a support person for others with the disease. I enjoy the yearly Lupus walk. Thanks LFNC for helping raise money to learn more about this disease and for being a great source of information for anyone wanting to learn more about the disease. And thank you for being a source of hope and support for those afflicted with the disease.

1

Donor

Rating: 5

I have a dear friend with lupus whom I've watched struggle daily with this disease that has taken pieces of her, a little at a time. I have supported through the Gala and Lupus walk through the years. She is very involved with this organization because she was able to get information through them to help her process her diagnosis. She wants all people to be able to turn to the LFNC get support for this devastating disease as she has! She is my connection and I see LFNC's importance through her.

1

Board Member

Rating: 5

The Lupus Foundation of Northern California embodies all of the traits a great nonprofit should have. The Executive Director and staff work tirelessly to provide the best support and resources for the community. Funds received by LFNC go directly to aid lupus patients and further research for a cure. Every member of the organization is committed to improving the lives of lupus patients and their families. I'm proud to be associated with such a great organization and help provide a brighter future.

2 Veronica43

General Member of the Public

Rating: 5

The Lupus Foundation of Northern California is a great nonprofit organization! My cousin has had Lupus for over 20 years and this organization has helped her tremendously over the years. This nonprofit helps people in need, they raise money for research, and they raise awareness about Lupus. This organization has also given my cousin a new purpose in life by giving her a job opportunity to work for the organization. I am extremely grateful to them for all they do to help my cousin and the community.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your kind words! We are glad to be here for your cousin.

2

General Member of the Public

Rating: 5

My sister was diagnosed with lupus at about the same time my oldest daughter was born. She was able to last through both good and bad times and still manage to take care of my two daughters. I never fully understood the disease until she became an advocate for the cause. The Lupus Foundation of Northern California has given her a voice for her pain and the pain that others with Lupus go through every day.

Comments ( 1 )

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lfnc 10/29/2016

Thanks for your review! We are so proud to help give a voice to those with lupus.

Debra102

Donor

Rating: 5

My daughter-in-law was diagnosed with Lupus at an early age. LFNC has been a great resource for her and helped me better understand the disease. I have participated in the 5K run/walk and the gala and never cease to be amazed by the dedication of the staff, board members and volunteers of this great organization. They provide a valuable service to the community with their newsletters, networking and research. Hopefully their efforts will lead to eradication of this and many other autoimmune diseases. Keep up the good work LFNC!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your review. We are very glad we were able to help you understand lupus and we are incredibly grateful for your support.

1

Board Member

Rating: 5

Can't say enough about Lupus Foundation of Northern CA (LFNC). An extremely dedicated staff, ED, volunteers, board members and supporters who care deeply about helping Lupus patients and their families. Not knowing a thing about the illness prior to my diagnoses LFNC became my go to place for information, resources, programs and support. They have truly made an impact on the lives of so many patients myself included.

I am thankful for their support on my lupus journey which has lead me back to them. Must say LFNC is GREAT stand out !! Non profit !!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your incredible dedication to the cause and hard work on behalf of everyone with lupus.

Previous Stories

Volunteer

Rating: 5

LFNC provides valuable information and is a great resource for the Lupus community. I am impressed with the kind hearted , dedicated board members and volunteers. Keep doing what your doing!!!Great Job. Thank you for all that you do!.

2

Donor

Rating: 5

A childhood friend of mine has Lupus and has been such an amazing advocate for research and spreading awareness. Because of her, I was introduced to the Lupus Foundation and learned of the amazing work that they do. We have also donated to the organization because we believe so deeply in the cause. Understanding Lupus, or any other chronic disease, is so important to increasing research dollars and to hopefully one day finding a cure. In the meantime, the more we understand, the more we can support others.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your review and for you support!

1

General Member of the Public

Rating: 5

My best friend has lupus and other medical issues and the information and stories enables me to better understand and offer guidance. Not being in the medical profession and not experiencing her daily obstacles learning from professionals and the community has been insightful and a support system for me.

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your review! I'm so glad that we have been able to help you understand lupus.