My Nonprofit Reviews

My son, Logan was diagnosed with juvenile myoclonic epilepsy almost two years ago. Before his first seizure he was a sophomore in high school, on the varsity wrestling team, very outgoing, with dreams of becoming a chef. His neurologist said " no more wresting, and no more cooking". This news crushed him. He got depressed and lost interest in many things and felt he was all alone. He was soon placed on home'school because of the seizures.. I reached out to the Chelsea Hutchison Foundation for support. I applied for the trip to Disneyland for the Epilepsy Awareness Days. To our joy he was one of the chosen for the trip. While on the trip met so many kids with the same disease as him. He smiled for the first time, his depression was less and asked if he could try going back to school, because he now felt not alone. He went almost 6 months without a seizure. So I agreed he could go back to school. Julie from this foundation told me about the smart monitor watches and they gifted him with a watch. This gave me peace of mind knowing when and where he would be if he had a seizure. In January of 2018 he went back to school but, the stress of school caused him to have 9 seizures within a week, which caused temporary hearing loss from so many. He immediately went back to home-school. His smart watch notified me, his brother and grandfather of every seizure and we were able to respond quicker to him. I truly believe had we not had the support of Julie and the Foundation my son would still be in a state of depression and I would have no way to know when Logan has a seizure. The CHF is an amazing organization that helps thousands by their efforts. They bring so much awareness, education and hope to so many.