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2020 Top-Rated Nonprofit

The Chelsea Hutchison Foundation

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Nonprofit Overview

Causes: Epilepsy, Health

Mission: The Chelsea Hutchison Foundation grants comfort and hope to those affected by epilepsy through providing monitoring resources, vital information, and a safe haven for conversation and community. Our main goal is to raise awareness of SUDEP and to make a positive difference in the lives of individuals and families living with epilepsy. We raise funds to provide education about SUDEP and to provide seizure response dog grants, life-saving movement monitors that help to protect against SUDEP and grant wish trips to Epilepsy Awareness Day and Expo at Disneyland each year. We stay up-to-date on current trends in medical technology in order to be able to provide the most effective devices as they become available. We respect the value and quality of life of every person living with epilepsy. We are dedicated to providing opportunities that allow individuals and families greater independence, increased confidence, ability to enjoy social environments, and community understanding.

Results: As of August of 2019, CHF has provided 124 grants for seizure-response dogs and over 850 life-saving movement monitors for those in need. In addition, we have granted 89 families will all major expense paid wish trips to Epilepsy Awareness Educational Expo and Day at Disneyland.

Target demographics: Anyone who lives with seizures.

Direct beneficiaries per year: 500+

Geographic areas served: We provide to help to all 50 States.

Programs: SUDEP Awareness, Seizure-Response Dog Grants, Emfit Monitors, SAMiAlert Monitors, SmartWatch Monitors.

Community Stories

188 Stories from Volunteers, Donors & Supporters

1 Kim N.4

Client Served

Rating: 5

The Chelsea Hutchison Foundation is a grassroots foundation that was created amidst a tragic event; founders Doug and Julie Hutchison are making sure no other family is blindsided by the occurrence of SUDEP. This foundation has created a large community of support and acceptance for those who are impacted by epilepsy. They work hard in order to provide monetary assistance for seizure detection monitors and seizure alert/response dogs. In addition to providing these life saving interventions, they also provide all expense paid trips to Epilepsy Awareness Day at Disneyland. EADDL is a two day, information and resource packed expo for people and families who are affected by an epilepsy diagnosis. Our family has been absolutely blessed to have had several opportunities to attend various events held by the Chelsea Hutchison Foundation, including being selected for Chelsea’s Wish to attend EADDL 2019.

Tammy Cryer

Client Served

Rating: 5

The Chelsea Hutchison Foundation has been a tremendous blessing to out family. My daughter was a recipient of the 2019 Chelsea's Wish Trip to Epilepsy Awareness Day Disneyland. The foundation really opened our world to an Epilepsy community we didn't know existed. Not only did we meet a great community, we also realized that it was possible for my daughter to obtain a seizure alert/response dog. CHF not only has graciously supplied Brianna with a generous grant to help pay for her service dog, but they also supported us through our fundraising efforts.

I cannot say enough about this foundation. Once you have become a recipient of their blessings, the continue support you. My daughter recently went through Epilepsy surgery and before during and after Julie and Doug showed their support to us. This foundation is not simply a foundation it is a purple family and community!!!

Thank you Julie, Doug and all the Volunteers for everything you do!

1 Isela Gonzalez

Client Served

Rating: 5

My daughter Olivia had her first seizure at 2 months old while in the ICU for a different condition. She was diagnosed with epilepsy at age 3 after having a few more seizures.
We first went to epilepsy awareness day at Disneyland in 2014 and met Julie Hutchinson with the Chelsea Hutchinson foundation. Her helpfulness and kind heart drew us to her. Since that fateful day we have had fundraiser's to help raise funds for other families. We have been fortunate to received a Sami and an Emfit monitors with this foundation's help. They also sent us to epilepsy awareness day at Disneyland in 2015.
I cannot say enough good things about this organization. They helped guide us when we needed help understanding this difficult road. They also educated us in SUDEP. We are forever grateful!

1

Client Served

Rating: 5

The Chelsea Hutchison Foundation is a life raft in the turbulent seas of living with epilepsy; whether you are a caregiver, a sibling, or a person with the diagnosis. The monitors and service dogs that they assist with in acquiring are critical in surviving epilepsy medically, but the community they build amongst the various people living with epilepsy is critical socially and emotionally. My family has benefitted greatly from the passion they bring to helping people in the community, and I'm not sure we'd be where we are without them.

1

Volunteer

Rating: 5

My daughter was 16 when her seizures started they were violent and scary and mostly at night. We didn’t sleep for the first 6 months of her diagnosis and lived in few everyday. I researched and found respud in the Chelsea Hutchison Foundation. I spoke with Julie personally and she shared their mission of providing hope and safety to those effected by Epilepsy. She suggested a night time monitor and watch that have given our family so much peace of mind. My daughter wanted to help other families as well so she began fund raising for CHF. Last year she was chosen to attend Chelsea’s Wish Trip and it was amazing to see so many purple families together for epilepsy education and fun. We consider CHF part of our family and we are forever grateful to their help and knowledge during the most difficult time of our lives. Seize the day!

Stacie B.1

Volunteer

Rating: 5

For many years now I have been volunteering with this incredible foundation. I have watched firsthand the lives they are changing everyday for the families living with epilepsy. The education, support and comfort that is provided by CHF has not only changed lives of those family’s but it has changed mine. They have given me a home to volunteer and help make a difference. I see how hard everyone in the foundation works everyday to spread awareness of SUDEP and fundraise to provide grants for seizure response dogs, Seizure monitoring devices and Chelsea Wish Trips.

Sarah252

Client Served

Rating: 5

My son, Derek has had epilepsy since he was 5 years old. I found the Chlesea Hutchison foundation while doing research about epilepsy. They helped us get a seizure monitor. They provided informational support as well as emotional support too. I learned about the EADADL from them. They have provided us with support in many ways. I am happy when we can donate back and pay it forward because this is a cause close to my heart!

Previous Stories

General Member of the Public

Rating: 5

I have only been a part of this group for about a month,give or take a little but I can already see what great things that are doing. They have share so much information with me. They help kids everywhere. I am so glad to be a part of this awesome group of people! It's such a fantastic cause!

stfreckles2

Volunteer

Rating: 5

My family has been hugely impacted by the Chelsea Hutchison foundation starting a year after their incorporation date. My husband was watching a news story that Julie Hutchison was on, informing listeners about SUDEP (sudden unexplained death in epilepsy). After watching the story, my husband just needed to go see my son, and he found him face down, barely breathing. This news story had saved his life. We have also been blessed with multiple grants for both our children for seizure monitors, a seizure response dog, and a trip to epilepsy awareness day at Disneyland. We have also been blessed to meet many other families who suffer with epilepsy, and we have become a very supportive family. This foundation has the biggest heart, and my family is blessed to be apart of such an amazing foundation.

Previous Stories

Volunteer

Rating: 5

I have been volunteering with this Foundation since 2010. My son is also a grant recipient for a seizure response service dog. Julie and Doug have done so many wonderful things for the epilepsy community- raising awareness, providing support by grants for seizure monitors and seizure response dogs, and setting up a community where we can be open and supportive of all those affected by epilepsy. I can honestly say, thanks to them, my son is currently alive because of the awareness they are spreading. Love them with all my heart and thankful for all that they do.

1

Volunteer

Rating: 5

When we lost our Joseph last year to SUDEP I was completely devastated...how do you lose a child to something you had never heard of? Something you didn’t even know was a monster in the corner of his room while he slept? I felt mad, I felt sad, I felt guilty, and at times I didn’t feel anything. By complete chance, we found CHF right before the STOMP walk last year, which we proudly signed up for! We have used the last several months getting to know the CHF family. What they have done for me and our family goes far beyond words. They have given me a place to speak freely about my loss, about my guilt, and about my anger. They have given me a place to feel safe being sad and vulnerable. They have let me know that I am never alone. Most importantly, they have given me a place to give back and help with their mission to educate and provide resources to ensure that no parent is left with a monster they can’t see!

Client Served

Rating: 5

The Chelsea Hutchison Foundation changed my daughter’s life. Their generous grant helped to pay for a seizure alert service dog for my daughter with epilepsy. The Foundation was compassionate and followed up several times to see how the service dog was doing. This dog has brought immense joy to my daughter, reduces her anxiety about having epilepsy, provides with her with security, and now she had a new best friend. I’ll never be able to thank them enough for all they have done. They are a blessing to the caregivers and people who suffer from epilepsy.

heidi.stevens

Client Served

Rating: 5

Our son had his first twelve seizures the first day of 8th grade....& the meds would quit working with every growth spurt.... side effects of meds were horrific.. seizures continued to 20 minute Gran mals.... 5 years... no answers...5 Neuros...& not one mentioned SUDEP.....& then the good Lord literally led me to heavenly angel Chelsea Hutchison......and our world turned purple with hope, love, support, & education.... a whole purple community was available, across the country with the Chelsea Hutchison Foundation....our son received a sleep monitor & an app for his smart watch which notifies my phone when he has a seizure! And....CHF was instrumental in helping us receive a seizure alert/response dog..... life saving...I say again.... life saving! Our son is in college, with a monitor, app, & miracle service dog...And...who knew we could get anti-suffocation pillows from the UK.... through CHF with a discount! We will raise SUDEP & seizure awareness to END Epilepsy... for CHF..... until my last breath... this purple family & purple community.... we are on our hands & knees with Thanksgiving.....Donate for a seizure dog...tell a story...change a life...Today, I wear Purple ✝️ Truly, Heidi Stevens

Previous Stories

Client Served

Rating: 5

Our son had 12 seizures his first day of 8 th grade. For 5 years, we have been researching........ all the while our son was having more Gran Mals....The meds weren’t working.... the side effects...... horrific....I am a nurse.....& yet I couldn’t find help or answers...... until one nite...I was surfing....searching, as usual...& the good Lord led me to Chelsea......I wrote the ChelseaHutchisonFoundation and Julie Hutchison wrote me back rite away! Since that nite...... our world has changed....Chelsea’s magic has been lifesaving....... lifesaving...... we have received hope, love, conversation, education, and generosity....... beyond our dreams..... life changing..... thank y’all dear, dear Hutchison’s.......I say again..... lifesaving....And....Today, I Wear Purple...

Client Served

Rating: 5

The Chelsea Hutchison foundation is A-mazing!!!! This family and foundation has changed my life in so many positive ways... I have learned so much and met so many wonderful, caring people. I am the recipient of a smart watch monitor and a Chelsea's wish winner to Epilepsy Awareness day at Disneyland. Both of these are life changing.... the monitor allows me the freedom to live my life more safely and the wish trip was truly life changing... I made new, lifelong friendships, learned so much and made memories that I will never forget... the loss of Chelsea to SUDEP was unimaginable; Julie and Doug took their grief and turned it into something wonderful to honor their beautiful daughter and help others..

Previous Stories

Client Served

Rating: 5

Julie, Doug and CHF have done numerous things for me including being a support system. I am the recipient of a grant for a smart watch. They also helped me to attend the STOMP walk last year in Co.

General Member of the Public

Rating: 5

There could not be a more generous and genuinely helpful group of people with amazing hearts for the work they do in the epilepsy community! I personally know people that have been directly granted monitors and wish trips, not to mention that my sister is a recipient of a SAMi monitor, a seizure alert watch, and a wish trip to Epilepsy Awareness Day at Disneyland! This is not a foundation that asks for empty donations that don’t directly impact people with epilepsy. The work they do is visible and so, so important. We love CHF and the amazing things they do!

Cymri V.

Client Served

Rating: 5

Life Saving for my daughter and son.
They provide grants for Epilepsy monitoring and bring awareness for SUDEP. Without our Sami and anti suffocation pillows we would be lost.
Just an amazing foundation.

Client Served

Rating: 5

The Chelsea Hutchison Foundation helped my family when we were going through a very difficult time with intractable seizures, coma, and lots of uncertainty regarding what the future would hold for our little guy if he pulled through. They are amazing people with generous and kind hearts, working to provide comfort to affected families, awareness about epilepsy and sudden unexpected death from epilepsy (SUDEP). They can help with weighted blankets, seizure monitoring devices, funding for seizure support dogs, travel expenses to the Epilepsy Awareness Day at DisneyLand, and many resources for families. They are a fantastic organization doing great work for families affected by epilepsy!

Joy Hulsey C.

Client Served

Rating: 5

This foundation has helped my daughter tremendously. A great source for information and a great community.

Donor

Rating: 5

Wonderful charity that educates and support families and those affected by Epilepsy!

Dana Goodin H.

General Member of the Public

Rating: 5

I have learned so much about epilepsy from this foundation. Things that I have not learned from any of my daughter’s Dr.’s. I am very thankful!

Angela R.3

Client Served

Rating: 5

This foundation is the most compassionate organization I have ever known. Thank you Julie.

Louise18

Client Served

Rating: 5

Julie and Doug have built a very well run and generous foundation in response to the tragic death of their beautiful (inside and out) daughter, Chelsea. My daughter was a teenager when they first began giving out funds for seizure alert dogs. Julie and Doug were very caring and helpful to us in making that happen. We have watched them grow into a much larger organization that still has that warm, personal touch. You cannot help but wish you’d met Chelsea but you can tell that she has an angelic hand in all that they do. I highly recommend this wonderful foundation.

Previous Stories

Client Served

Rating: 5

Julie and Doug helped my daughter get her seizure dog when they were first starting up. They were wonderfully supportive and helpful in the entire process. Since then, I have watched this organization blossom and become a national and even internationally recognized advocate for persons living with epilepsy and to spread awareness of SUDEP. They are people with the highest standards, and I highly recommend them.

Client Served

Rating: 5

This organization is amazing! They are helping us get a monitor for our son with Epilepsy so we can keep him safer at night. They are a kind, generous organization with wonderful people. Thankful for them!

Nicole T.5

Donor

Rating: 5

The Chelsea Hutchinson Foundation is an amazing program with amazing people. They came and gave me support when my daughter was in the hospital. I was so lost about epilepsy and knew nothing about it. We got a snack box from them when she was in the hospital. They also helped when she got out of the hospital. We got an imfit monitor the same day that she was discharged. The amount of love, knowledge, and support they provide makes you feel like your not alone.

1

Client Served

Rating: 5

A fantastic charity saving lives everyday! We reached out to them for a grant to help purchase our sons seizure alert/response dog and they wasted no time in responding and donating to help us reach our goal! We will forever be so grateful for them and admire all of their hard work and dedication to help save lives of those living with epilepsy!

1 Marla M.2

General Member of the Public

Rating: 5

Chelsea Hutchison Foundation has been just what our family needed 4 years ago.
We have become family with many members.
My granddaughter was gifted Chelsea’s wish 3 years ago. We gathered so much information at the expo at Disneyland. We met so many people and have built bonds with each and every one of them.
A couple years later talking with Julie about monitors there was only one available that might work. Granddaughter has non convulsive seizures. But it was out of the UK. With the help of Chelsea Hutchison foundation my granddaughter was able to receive this monitor. This monitor has saved her many time when her pulse rate drops to 0-48. She stops breathing during this time while sleeping.
Doug and Julie are angels on earth where their daughter is watching over them and everyone else.
I could not imagine life without them.
Ohana means family, and family means nobody left behind.
We love you Chelsea, Julie and Doug!

1 Tara L.3

Client Served

Rating: 5

The Chelsea Hutchison Foundation tirelessly works to spread awareness about SUDEP and provide monitors/service dogs for those living with epilepsy to have a sense of normalcy in their life. Our daughter has been the recipient of two different monitors; one that will alert us if she has a seizure during the day and the other while she sleeps. This has been a precious gift that provides us, her parents, a sense of security while allowing our 17 year old more independence. In addition to the life saving devices CHF provides information and understanding for families dealing with this neurological disorder. The impact that CHF has had on our family has been tremendous and ours is only one of the hundreds of families CHF has positively impacted.

1

Client Served

Rating: 5

My son (3) was diagnosed with epilepsy. His seizures happen at night time. We are so grateful to the Chelsea Hutchison Foundation for sponsoring our son to receive a SAMi 3 monitor. We are so grateful for them and the awareness they bring. We sleep much better now knowing we will be alerted if he has a seizure.

1

Donor

Rating: 5

The Chelsea Hutchison Foundation was there when we needed them most providing us with information on the prevention of SUDEP. The work they do for families experiencing Epilepsy is amazing and has given us peace of mind having a monitoring device in our home

1 Carrie H.2

Client Served

Rating: 5

After my daughter was diagnosed with epilepsy and started having seizures in the middle of the night I was terrified, I was barely sleeping. I reached out to the Chelsea Hutchison Foundation who provided my daughter with a seizure monitoring system at no cost to our family. It detects her seizures at night and alerts me so I can sleep soundly unless she needs me! A huge blessing the Chelsea Hutchison foundation is to so many families like mine!

Client Served

Rating: 1

This organization is amazing. They go above and beyond to help as many seizure/epilepsy families as possible. They are a great support system and work so hard to educate about the dangers of epilepsy and SUDEP. I have recommended this organization to everyone i know, and will continue to support them.

1

General Member of the Public

Rating: 5

When my son was recently diagnosed, we didn't know anything about Epilepsy. This foundation helped my family so much with a seizure monitoring device, and lots of information about Epilepsy and Sudep. Thank you Chelsea Hutchison foundation!!!

1

Client Served

Rating: 5

My grandson was chosen to go to Disney by this organization! The founder, Julie has dedicated her life’s mission no parent ever experience the loss of a child like she lost her sweet Julie. So much education is available because of her spreading the word about epilepsy. ! All monies raised go to help support families for children with epilepsy.

1 Les and Annie

General Member of the Public

Rating: 5

I am Canadian and I was the first person outside the USA to receive a "grant in principle" to assist in training my service dog. I did not use it and informed the foundation to pass it on.
The dedication of Doug and Julie Hutchison with all the volunteers in helping people and families impacted by seizure disorders is immeasurable. How does one measure the "peace of mind" and the "quality of life" the foundation has given people and families? I know the Hutchisons has always been there for me.

Previous Stories

Client Served

Rating: 5

Hello,
I was the first person outside of the U.S.A. to receive a grant in principle from The Chelsea Hutchison Foundation. The grant was to assist in the training of my service dog. I respectfully turned down the offer of the draft as I felt there was a family in need more than myself.
I have been in very close contact with The CHF for over four years and I can say I do not know of any other organization as dedicated to their mission and they are.
Thank you
Les Landry - President - Respect the Service Dog.

Read more
1 Angie D.2

Client Served

Rating: 5

The Chelsea Hutchison Foundation has gifted us with peace of mind that we are so grateful for. We received financial assistance to purchase a monitor to be alerted to night time seizures for our 7 year old daughter.

Working with the foundation was so easy and Julie is amazingly organized and supportive.

1

General Member of the Public

Rating: 5

I can’t say enough of what this organization does for kids with epilepsy. Imagine they send families every year to Disney no cost. Kids die from epilepsy everyday but no one talks about it. They are raising awareness

1 Kimberly H.9

Client Served

Rating: 5

If it weren't for the Chelsea Hutchinson Foundation we wouldn't have got our sons seizure monitor. They are truly amazing!

1 1jackson

Client Served

Rating: 5

I have personally seen the compassion in Julie Hutchison’s eyes as she listens endlessly to heartbreaking epilepsy and SUDEP-related stories. But it doesn’t end there. She makes sure that her foundation helps families in any ways possible. The Chelsea Hutchison Foundation is not a typical non- profit organization. It’s much more and it isn’t top heavy like many non profits, so money raised doesn’t get lost in layers of administration. I’m proud to be a volunteer there and grateful to be a monitor recipient. Thank you Julie and Doug Hutchison. Chelsea would be proud!

Previous Stories
1

General Member of the Public

Rating: 5

The CHF is a well run, honest, helpful, and amazing resource. I would highly recommend them for information, help, and compassionate support.

1 lralford

Client Served

Rating: 5

The Chelsea Hutchison Foundation has give our family so much support. When my daughter was diagnosed with epilepsy they were the ones that answered my emails. Gave me encouragement. They also worked with me to help provide my daughter with an emfit monitor. They gave me and my daughter our sleep back. I’m so grateful for their support and everything they do for people who suffer from epilepsy.

Previous Stories

Client Served

Rating: 5

The Celsea Hutchinson Foundation was there for my daughter when she was diagnosed with epilepsy. Desperate to find something to alert us of a seizure... I reached out to them. They responded that night. Were sympathetic to what my daughter and offered the support we were looking for. I'm so thankful for them.

1 Jennifer357

Volunteer

Rating: 5

I can't say enough about the CHF! When we were at our lowest, and lost as to how to help our son, they pointed us to the help we needed and walked beside us until we found answers. Starting with a listening ear, to finding us a Smart Watch Monitor, to guiding us to a Service Dog Company, then a trip to EADDL, where we found a Specialist, they have been there each step of the way. They work tirelessly in their daughter's honor to help others to not have to experience the same loss that they've been through.

Previous Stories

Client Served

Rating: 5

This Foundation has meant the world to us, and has done so much for so many! They led us to a Service Dog Company, a Smartwatch, Weighted blanket, and EADDL, where we were put in touch with Specialists who helped our son with his Epilepsy. Beyond that, Julie and Doug have been a source of strength and encouragement when things were so dark, when we thought we might lose our son. Only someone who has gone through that loss could be so kind and understanding, and I don’t know what we’d do without them!

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1

Client Served

Rating: 5

They helped provide us with a seizure monitor for my son, when we couldn't afford it. It was such an easy process and we received it immediately. They didn't make it difficult at all.

1 Stacey H.3

General Member of the Public

Rating: 5

This charity puts time, energy, and love into everything it does. They have helped so many families, and brought so much awareness for epilepsy and SUDEP.
They are saving lives.

1 Jennifer Leigh M.

General Member of the Public

Rating: 5

This Foundation is amazing and the founders, the parents of Chelsea are truly amazing. It's beautiful to hear how many people call them their secondary parents because of how much they help. I have epilepsy and Julie has helped keep me safe in so many ways but not only that, she wipes away my tears in frustration and pain as well as my Mother when she talks about me. I will never not support this Foundation as it has changed my life and truly helped me so so much!

1 Kara M.4

Client Served

Rating: 5

We are so blessed by the Chelsea Huchison Foundation! They provided our 10 year old daughter a Seizure Monitoring System that has been a blessing to our family. We have an added peace of mind and can give her more freedom because of this system. I love how they are honoring the wonderful life of their daughter by helping others. I am very thankful for them and all they do to help others struggling with Epilepsy.

Previous Stories

General Member of the Public

Rating: 5

This charity is such a wonderful way to honor their daughter’s memory. Friendly and helpful people who are truly making a difference in the world!

1

Client Served

Rating: 5

This organization is beyond amazing! It started with asking about a used monitor to receiving a new one with a special pillow! We then began to fundraiser as we wanted to spread the word. The peace of mind we have from this monitor is God sent. We then became lucky winners of Chelsea’s Wish and were granted a special trip to Eadl! The information we learned was priceless!! The friendships will be lifelong! They treat us like family and we are beyond grateful!! We will continue to support this amazing foundation. This family took a loss and have helped so many others hopefully never have to experience that heartbreak. We love this foundation!!!

1

General Member of the Public

Rating: 5

When my son was at his worst for his seizures, the Chelsea Hutchison Foundation was a breath of fresh air! It was while we were in the hospital for his uncontrolled seizures that Julie let me know my son had been approved for a Sami monitor. I can’t tell you how after 5 weeks of being in the hospital and a 4 1/2 hr drive home to see the Sami monitor already at our house waiting to be installed felt to us. It was the best welcome home gift ever! This foundation took a huge amount of stress and worry off our shoulders and we will never forget their help in fighting this family with Lennox Gastaut Syndrome (LGS, Epilepsy)!

1 Michelle C.8

Client Served

Rating: 5

Wonderful non-profit! Julie and Doug are great people. My son won a trip in 2018 and he experienced so many new things while we were there. We went to the epilepsy expo in Disneyland and also learned a great deal while we were there. I feel it is also fantastic that they honor those families, including their own, who have lost loved ones due to SUDEP, by extending their Disneyland/expo trip drawing to families in honor of their loved ones.

The foundation also helps with monitors and service dogs as well for those with epilepsy, which I have no direct experience with but see many faces of those who have been helped

1 Emily B.5

Client Served

Rating: 5

Our family has been greatly blessed by the Chelsea Hutchison Foundation. After reading about Chelsea and how her memory continues to live through her parent's love for her and their advocacy for Epilepsy and SUDEP, I learned that CHF could possibly help protect our daughter through their assistance in providing our family with a seizure monitor. Julie made the process so simple and we are so grateful for the donations and fundraisers that make it possible for families like ours to rest easier at night.
Our daughter has also been chosen to attend EADDL this November and we are so thankful for this amazing opportunity. The Chelsea Hutchison Foundation has been life-changing for my daughter and our family.

1

Volunteer

Rating: 5

I have been granted two different types of seizure monitors and it has changed my life. My mom no longer has to constantly check on me to make sure that I had a seizure and passed in my sleep due to SUDEP. Another watch monitor that I received allows me to stay home alone, which my family was never comfortable with. I am in high school so this was a struggle for me personally. CHF has allowed my family so much freedom and comfort. Not to mention that Julie is the sweetest and hardest working person I know. She cares for everyone. I love this foundation. I decided to raise awareness at my own high school about epilepsy and SUDEP during volleyball season and donated all the money raised to CHF because I know how much it will save/change a live. Plus, Julie drove two hours to support the game and my speech.

1

Client Served

Rating: 5

I have a daughter who has something called dravet syndrome. She has seizures all day long into the night. To say I did not sleep is an understatement. The constant worry of what if she has a seizure during her sleep left me petrified. Then I found the Chelsea Hutchinson foundation and our life has not been the same. They were some of the most kind people I've ever dealt with. I mean complete strangers are reaching out and asking for something for nothing and yet they literally were so happy to help. We were able to get an extremely nice seizure alert system called Sami through them. Since I had to quit my job to stay home and take care of my daughter we would have never been able to afford this on our own. The sami has saved my daughter countless times with notifying me of seizures in the night. I have my baby girl today because of the amazing selfless work this foundation does. To be able to help others after going through such loss of their own is inspiring and makes the world that we live in a truly better place.

1 Geneniess

Client Served

Rating: 5

This foundation has done so much for my family! We are fortunate enough to have gotten to go to Epilepsy Awareness Day at Disneyland through them, and they provided a grant for our beloved service dog Caballine. They have also provided us with a life changing sleep monitor to make sure our girl is safe at night. But aside from all that, they have created a great community of people that we just didn't have access to before running into them. I just can't say enough good things about this foundation!

1 KathrynLosea

Client Served

Rating: 5

I am a smart watch monitor recipient and Chelsea's wish winner to epilepsy Awareness day at Disneyland... I can't say enough great things about this family and foundation.. I have not just gained some freedom with my monitor, but I have gained lifelong friendships; so much education about epilepsy and SUDEP.
I have found a safe haven of friends to talk with about a subject that not a lot understand... at CHF Everyone understands... they are caring and compassionate...

Previous Stories

Client Served

Rating: 5

I met Julie online several years ago, then in person at my first STOMP walk 4 years ago. I am the recipient of a smart watch monitor and last year was awarded one of the wish trips to EADDL.

1 Nikki S.3

Client Served

Rating: 5

The foundation is amazing!!!! They helped get my daughter a monitor for her seizures. I am forever grateful for all they do for everyone!!!!

Rebecca Lynn H.

Volunteer

Rating: 5

Use this link to register in advance so my family and I are aware of how many people are going to be attending the walk this year.

https://events.com/…/west-virginia---stomp-out-epilepsy-and…

Here's my story of how I became apart of the Chelsea Hutchison Foundation Team.

In 2012, I attended my first Chelsea Hutchison STOMP in Winchester, VA at the Wellness Center near the hospital. I was 14 years old at the time and I was so inspired and so happy to see all these people support such a wonderful cause. A disorder that I thought I was alone with for years. But that year made me realize that I'm not alone. There are others other there whom have the same disorder as me and they are doing something to help support the cause.

In 2013, I was granted a smartwatch from the foundation. It has helped me so much over the years living with Epilepsy and I pray every day that each and every day will get better. That same year, I wrote a song called, "Purple Flame" that came to be the song that Julie Henckel Hutchison wanted to play at all the walks. At first it started to be just a poem that I had wrote in my lyric journal. Then my mom stumbled across the song and had asked Daryl Gene Dunsmore to help write the music for it. He did and I got to record that song that same year. I was only 15 years old. My very first "stage" performance was in Winchester, VA at the 2nd Annual Chelsea Hutchison STOMP. During that performance I saw the audience in tears because that song has touched so many hearts because they knew or know or love someone whom has epilepsy.

(Fact: That song is still being played at all the Chelsea Hutchison STOMPs to this day.)

In 2014, I attended the 3rd Annual Chelsea Hutchsion STOMP in Winchester, VA. My second year singing my song and my first year selling merchandise. Yes, I created my own "Purple Flame" t-shirts to help raise money for the foundation.

(Fact: I still have those shirts for sale at this year's STOMP. If you attend you can purchase a shirt to help support Epilepsy and SUDEP.)

In 2015, I attended the 4th Annual Chelsea Hutchison STOMP in Winchester, VA. My third year singing my song, second year selling merchandise, and first year starting to write a book about my life with Epilepsy. Still unsure of what I would title the book, but it's still a work-in-progress.

(Fact: I am still writing that book to this day.)

In 2016, my mom and I start working together to start a Chelsea Hutchison STOMP in West Virginia. But until that happens I attend the STOMP in Winchester, VA. My fourth year singing my song, third year selling merchandise, second year writing my book, and first year starting up a STOMP in West Virginia.

In 2017, the Chelsea Hutchison STOMP finally came to West Virginia. It was held September 23rd, 2017 at Baker Park at 1 p.m. I was 19 years old when I hosted my first STOMP. It was hard for me to talk about somethings because I have such a soft heart and I understand what those people with Epilepsy are going through because I'm in their shoes.

But I can't talk about 2018 yet, because the walk hasn't started yet. This year I hope you all can attend and help be apart of my story and my journey.

XOXO - Rebecca Lynn

Rachel D.2

Client Served

Rating: 5

The Chelsea Hutchison Foundation has been the BIGGEST blessing to us. My twelve year old perfectly otherwise healthy boy had a grand mal seizure in his sleep on April 22nd, resulting in a hospital stay and a trip to Children’s Mercy, where we were diagnosed with definite epilepsy. His EEG showed signs of both focal and generalized seizures so they are unable to pinpoint which kind of epilepsy he has, but we do know the majority of his seizures will occur in his sleep. I reached out and without hesitation, the Chelsea Hutchison Foundation provided us with an EMFIT monitor to monitor Brayden while he sleeps. They are amazing. Being a nurse I love being able to give back and help care for people’s loved ones, but I hope some day I can look back and say I made half the difference in someone’s life as the CHF has made for our family. Thank you again.

Dana N.2

Donor

Rating: 5

This Foundation is near and dear to my heart. The work and good they do is immeasurable and so needed in our community.

Breigh T.

Client Served

Rating: 5

This amazing foundation has helped us more then words can describe!! They purchased a seizure detection smart watch and subscription for us. It may not take away my husband's scary seizures but this watch has helped give us a piece of mind when we are away from him. We are from Ohio and reached out to a local epilepsy foundation here- that we had supported for years. With no response. :( The Chelsea hutchison foundation responded to us right away!! For this we are forever grateful!!! They are Awesome caring people! We will forever support this foundation and share it with everyone!! Thanks from the bottom of pur hearts!
The Shepherd family

Jennifer Clark O.

Client Served

Rating: 5

This is such a positive, caring place. Providing parents such peace of mind. I was so touched to read Chelsea's story and see what they are doing for people. I will always be a part of this and encourage awareness. Really special people with big hearts!! Thank you for all you do

Clorise W.

Client Served

Rating: 5

I have epilepsy really bad and this foundation donated me a seizure watch. I can now track my seizures better and show my dr.

Edward C.

General Member of the Public

Rating: 5

The Chelsea Hutchison Foundation serves individuals, families and communities affected by epilepsy by raising Awareness of the common yet little-known condition SUDEP (Sudden Unexpected Death in Epilepsy), by providing support and equipment for prevention of this occurrence, and by creating a safe space and raising awareness within the greater community. The Chelsea Hutchison Foundation grants comfort and hope to those affected by epilepsy through providing monitoring resources, vital information, and a safe haven for conversation and community.

I am an individual who is sixty-one (61) years old and I have had to deal with the challenges of epilepsy for over thirty (30) years now. I have been very lucky to know and be in touch with this great organization for many years, now. One of my favorite events, that occurs in the month of November each year, that I truly enjoy seeing them is at: "Epilepsy Awareness Day at Disneyland (www.epilepsyawarenessday.org)". The work that they do there truly helps me and so many other people.

They also provide grants for seizure-response dogs and epilepsy monitors for those in need, they educate the public about SUDEP (Sudden Unexpected Death in Epilepsy), and they provide support to those who have been affected by SUDEP. The Chelsea Hutchison Foundation exists to raise awareness about a truly important subject: SUDEP, in an effort to grant comfort, hope, and positivity to individuals and families living with epilepsy.

I can truly say that the "Chelsea Hutchison Foundation" is devoted to helping all those living with epilepsy to live with dignity. I am truly gratefule for the wonderful work that they do each and every day.

Previous Stories
1

General Member of the Public

Rating: 5

The "Chelsea Hutchison Foundation (CHF)" is a Colorado based non-profit corporation formed by "Julie and Doug Hutchison" to provide help and support to individuals, particularly children and young adults, who have epilepsy. They raise important awareness of the common yet little known condition called: "SUDEP" (Sudden Unexpected Death in Epilepsy), by providing support and equipment to assist the prevention of this occurring, and by creating a safe space and raising awareness within the greater community. Funds raised by this Foundation provide grants for "seizure-response dogs" and epilepsy monitors for those in need, educate the public about "SUDEP", and provide support to those who have been affected by "SUDEP". Thanks to "Chelsea Hutchison Foundation", there are so many more people making a big difference in the lives of those who struggle with "seizures" and "epilepsy". They are a very special grass roots, volunteer-based "Foundation" that is committed to getting support and relief into the hands of those who need it. I fully support this wonderful organization and the truly important work that they do, each and every day.

Sherry Smith M.

Donor

Rating: 5

As the parent of a son that has passed from SUDEP, my experience with the Foundation is a little different. They give me the ability to support others through shared information, experience and kindness. There's nothing better when you are having troubles than to speak to someone who knows what you're going through. Knowing that they are saving lives, supporting families and making a true difference in the fight against epilepsy is a salve to my broken soul. I have recommended them to countless parents seeking information and support.

Volunteer

Rating: 5

I really enjoy working with Julie and Doug. They are both so thoughtful and caring people.

Sara H.2

Client Served

Rating: 5

Amazing foundation and Mama who started it. Absolutely changed my family’s life and actively saving my son’s life!
Reached out to foundation, after being told by 4 year old LGS son’s Neurologist that he needed one right away and I heard back from Julie IMMEDIATELY! She told me she’s be honored to help my baby! Within 2 DAYS, I had it!
Thank you so much for providing this life-saving tool for us. There’s already so much I can’t do to protect him. Yet, you’ve given me this amazing tool! I cannot imagine what Julie went through, but what’s she done to honor her daughter is saving so many other Mama’s babies. I am beyond grateful and humbled ❤️

Volunteer

Rating: 5

I volunteer for the Chelsea Hutchison Foundation, and my son has received support from it. I have seen first-hand how hard the foundation works to support people and families with epilepsy, and to raise awareness for SUDEP. This is a wonderful organization.

Client Served

Rating: 5

My son, Logan was diagnosed with juvenile myoclonic epilepsy almost two years ago. Before his first seizure he was a sophomore in high school, on the varsity wrestling team, very outgoing, with dreams of becoming a chef. His neurologist said " no more wresting, and no more cooking". This news crushed him. He got depressed and lost interest in many things and felt he was all alone. He was soon placed on home'school because of the seizures.. I reached out to the Chelsea Hutchison Foundation for support. I applied for the trip to Disneyland for the Epilepsy Awareness Days. To our joy he was one of the chosen for the trip. While on the trip met so many kids with the same disease as him. He smiled for the first time, his depression was less and asked if he could try going back to school, because he now felt not alone. He went almost 6 months without a seizure. So I agreed he could go back to school. Julie from this foundation told me about the smart monitor watches and they gifted him with a watch. This gave me peace of mind knowing when and where he would be if he had a seizure. In January of 2018 he went back to school but, the stress of school caused him to have 9 seizures within a week, which caused temporary hearing loss from so many. He immediately went back to home-school. His smart watch notified me, his brother and grandfather of every seizure and we were able to respond quicker to him. I truly believe had we not had the support of Julie and the Foundation my son would still be in a state of depression and I would have no way to know when Logan has a seizure. The CHF is an amazing organization that helps thousands by their efforts. They bring so much awareness, education and hope to so many.

Ashley R.2

Client Served

Rating: 5

My sweet girl had her first seizure at 3 years old, little did I know that it was going to catapult me into a life of sleepless nights and a ton of uncertainty. We received a Dog Grant from CHF and our boy has changed our lives. We also were winners of a trip to Disneyland, where we made life-long friendships! I have an incredible support system with these other parents and she made friends that she’s not afraid to be herself with! This foundation has opened doors for us and given us so much comfort.