My daughter received a dx of epilepsy in December and it progressed quickly from absence to tonic. Mostly at night time. So the fear is real, the what ifs. Which causes a parent not to really get adequate rest. I was told about the Chelsea Hutchison Foundation. When I contacted Julie she was so extremely helpful. Through the foundation we were able to obtain the Sami camera monitor. We are still working out the proper settings but now I know I can rest without total fear. I cannot thank the foundation enough.
I was told about the Chelsea Hutchison Foundation in a support group for parents of kids with seizures. I was staying up through the night to monitor my 13-year-old daughter to ensure she didn't have a seizure while we were asleep. The SAMi monitor was recommended to me. As a low-income family of 5, I didn't have the resources to order it on my own. I reached out to the Chelsea Hutchison Foundation and Julie was super prompt in replying and helping to order the monitor for us. We are currently awaiting for it to arrive, and I feel that I will have much more peace of mind at night once it arrives. This organization is doing a great thing in helping families affected by epilepsy and seizures and I would highly recommend them to anyone needing assistance.
I recently reached out to the Chelsea Hutchinson Foundation for help with finding a monitor to help my 9 year old with his seizures. He was having seizures in his sleep, which was causing me to wake many times during the night to check on him to make sure he was OK. I was recommended the Sami Sleep Activity Monitor. As I am a newly single mom, who recently had a stroke myself, and out of work; I couldn't afford the full price of the monitor. This Foundation helped me cover the cost where my sons insurance wouldn't. They have been instrumental with all questions and help with not only the monitor, but questions with his Epilepsy and his seizures no matter the time of day or night.
Hey there! This is my sweet 6 year old spunky daughter, Abbey but you can call her Abbey-Doo just like we do! Our girl got her diagnosis of Focal Epilepsy with convulsions on May 9, 2024. This past March they gave us a prescription for the EpiMonitor. Thankfully we found this foundation who showed us so much kindness and helped us get the EpiWatch for our sweet Abbey-Doo. Thanks to this foundation we will now have some kind of relief knowing we will be notified of her seizures with the EpiWatch! We are forever grateful for their generosity and kindness they have shown us! Thank you all!
-With Love-
Abbey-Doo & Family
The Chelsea Hutchinson Foundation has been instrumental in giving our daughter the independence and safety to continue to live her life! We are so greatly blessed to be a part of their foundation community. The level of care and advocacy they lead is top notch. Our daughter has received a Sami sleep monitor which has helped her to be safe while sleeping but also grants me her mama the ability to actually get some rest knowing I will be alerted if she were to have a seizure in her sleep. Recently, we have received help with a monitoring watch for during the day - we are so excited about this as Stella is now older and wanting to have slumber parties at friends homes & go do pre teen things like going to the shopping mall with friends etc! This will be possible with her seizure monitoring watch! We are all so thankful and ecstatic for all the work everyone especially Julie puts in at the Chelsea Hutchison Foundation!
The Chelsea Hutchison Foundation was very generous in helping us get the seizure monitoring system my son needed so much for the nocturnal seizures that do not stop on their own. Their staff were responsive, caring and very helpful throughout the entire process! Thank you to the foundation for your gift of life!
We are forever grateful to have such a loving and supportive community through the Chelsea Hutchison Foundation- my daughter Evelyn is 12 and diagnosed in 2020 with Jeavons Syndrome and she only had absence seizures but a few months ago started getting TC seizures (grand mal) upon waking in the morning. She has since then been in my bed until we could figure out a nighttime monitor so she can sleep safely in her own bed again. We decided to go with the Emfit and thanks to Julie, this was made possible. It will be nice to have the reassurance for Evelyn to resume normalcy again. This is a huge blessing for our family.
Our family were blessed to partner with the Chelsea Hutchison Foundation to get my son, Eli, an Emfit bed monitor. Eli has a rare form of intractable medication resistant epilepsy called Dravet syndrome. Everything he goes through is completely unpredictable. This monitor will allow Eli (and me) to sleep peacefully knowing that if he has a seizure in his sleep we will immediately alerted so we can take care of him. SUDEP is a very real possibility with any nocturnal seizure and we are so grateful for foundations that help love on and support families who are fighting every day for their loved ones with epilepsy!
Thank you so much to The Chelsea Hutchison Foundation for suppling us with a monitor for our 5 year old daughter who has epilepsy. I feel so much better putting her to bed at night knowing my phone will alert me if there are changes with her vitals! Our family is so grateful for the support and the community this foundation offers!!
The biggest thank you ever to The Chelsea Hutchinson Foundation. The love and care of this organization is priceless for families such as ours. My daughter has nocturnal seizures but have been unable to capture them as they begin and possibly have missed some completely as well. This organization is giving us the gift of knowledge and being able to capture the moment so will give our family such a relief knowing we can provide the details to her doctor now. If there is any organization to support, it would be this one. Hand down.
A heartfelt thank you to Julie and the CHF. Julie has been responsive to my questions and amazing to work with. Our son was recently diagnosed with epilepsy, and having found the CHF has been comforting. Especially knowing we have resources we can reach out to with questions as we navigate this new life. What the foundation is doing is so appreciated and we can’t thank them enough for their impact on not only my life as a caregiver, but the many lives struggling with epilepsy. Thank you!
Heard of this foundation from another special needs parent that they helped and from Facebook groups. They were so pleasant and kind when communicating. Reading about Chelsea and hearing what the foundation stands for meant a lot. They blessed us with a SAMi monitor for our son and we cannot explain our gratitude. This monitor is already providing us with a sense of relief. We hope one day that we can pay it forward. Thank you SO much. Our little Luca also says thank you.
WOW! I am blown away by the generosity of this incredible organization! THANK YOU for helping keep our little one safe and keep his (and ours) anxiety down. The Chelsea Hutchison Foundation has been great to communicate with and very helpful and made this process smooth and speedy!
My daughter had her first seizure at 2 years old. At least it was the first that I noticed. She suddenly fell asleep and woke up with her left side eye and mouth twitching and excessive drool. After about two minutes she came to and got sick. That was very concerning to me, so I took her to the ER. Where they said they believed it was a seizure and had me follow up with her pediatrician. Fast forward four years later and we've found out she has a genetic mutation that causes developmental delays and epilepsy. Her seizures are still uncontrolled completely by medication and we have started the process to see if she can have epilepsy surgery. The Chelsea Hutchinson foundation helped our family get the SAMi system and we are forever grateful!!!
As I was on my way to work 3 months ago, I luckily witnessed (on our regular baby cam) my then 13-month-old doing a strange movement with her arm. I informed my husband to check on her where he came to find that the left side of her body appeared paralyzed. He promptly called 911 and at the hospital she thankfully regained movement back on her left side. The doctors believed it was from a seizure calling it Todd’s Paralysis. Approximately 3 hours after we were discharged from our 3-day hospital stay I witnessed my baby have a seizure and she was diagnosed with epilepsy. Last month at the park she had her scariest seizure to date lasting 12 minutes continuing at the ER, and she was diagnosed with status epilepticus. My husband and I were so worried we would not catch a seizure in her sleep and started looking into movement monitors for people with epilepsy. Intrigued with the potential of the Sami monitor we were soon disheartened to see the price tag was just too much for us to afford. As I looked through discussions on Sami’s Facebook page, I discovered the Chelsea Hutchison Foundation and was amazed on what they had created out of the tragedy that came from the loss of their beautiful daughter. The Information I have learned from their website and from their Facebook group is invaluable. To top it off, Julie went out of her way to say she would be honored to help my sweet little Elowen get a Sami monitor. The Chelsea Hutchinson Foundation gave us some peace of mind when our world felt like it has just turned upside down – it all means more than any words can say. My husband and I can breathe a little easier as Sami watches over our little Elowen as she sleeps through the night and as she naps through the day. We are extra grateful for this monitor as her first 2 seizures were during her sleep, and we feel more prepared now if we ever need to administer her rescue medication. I want to thank the Chelsea Hutchinson Foundation for what they have created – shining light on epilepsy and helping to keep people safe through their kind hearts and persistent work. Chelsea is truly being honored everyday by her amazing family.
Our world was completely turned upside down when our daughter, at the age of five, experienced her first seizure and was diagnosed with a seizure disorder. Neither of us knew much about epilepsy at that time and had certainly never experiencing watching someone have a seizure. To have that moment be our own child was the most terrifying moment of our lives. We did not have anyone in our immediate or distant circles who had experience with seizure disorders. In short, we felt completely lost. We learned about the Chelsea Hutchinson Foundation through social media. This foundation had been a beacon of light during many countless moments of darkness. They have been a resource for our family linking us with credible research, connecting us with other families in similar situations, and offering emotional, intellectual, and even financial support when it has been needed. To think that everything they do for the community was birthed from their own devastating tragedy is beyond humbling. CHF is truly a remarkable organization.
My son Jayden is 16 years old and started having seizures randomly two years ago.He has focal epilepsy with rapid secondary generalization and currently he’s on three medications.Julie and the Chelsea Hudson foundation is helping bring our family a peace of mind.I spend many nights just watching over him because he has nocturnal seizures sometimes which has us worried about SUDEP often.We are incredibly thankful !
My son has had severe, life threatening epilepsy for over 17 years. Recently he had to have his VNS removed due to infection. His seizures are not well controlled, and my husband and I feel anxious when he's sleeping in the other room that he might have a seizure requiring medication and we will not know. The Chelsea foundation helped us get a bedroom seizure monitor. What a gift peace of mind is! It was such a simple, thoughtful process to get the monitor. We are truly grateful.
The realization of the risk of SUDEP has been daunting since our daughter’s diagnosis of Temporal Lobe Epilepsy this past February. A family member told us about the Chelsea Hutchinson Foundation, and we immediately dove into their websites. Since first communicating with Julie, it has been a source of comfort and ease. The foundation not only provided us with the SAMi Full Kit but also created a supportive community for us to lean on during this challenging journey. Their generosity and the sense of community they offer have been invaluable to us. Thank you for everything you do!
I found Chelsea's foundation through the Dravet Syndrome Support Group. I am still in awe at the support we have received through this amazing foundation/family. Julie (Chelsea's mom) was so kind and walked me through the whole application process to receive assistance with a seizure monitor for my baby who was recently diagnosed. We feel forever indebted to this foundation for the peace of mind it has brought us. My worst fear with my son's diagnosis is SUDEP and the monitor that this foundation is providing for us is going to bring us so much peace and ease our anxiety. I now share Chelsea's story and educate others that Epilepsy is not just a "seizure". Foundations such as these, remind me that although it may feel like my world has been turned upside down, there is still human kindness and I am not alone in this fight. I will forever be grateful. We look forward to one day being able to travel to Chelsea Hutchison foundation events!
Our daughter Viviann was born prematurely and one of her many diagnoses is Epilepsy. We just received her sleep safe bed so she would be in her own room and I was scared to death she would have a seizure and I wouldn’t know. Thai foundation helped me get a Sami monitor so I can have eyes on her and monitor her seizures at all time. It’s such a piece of mind knowing she can have some independence while still seeing she’s safe.
My son is 7 years old and has medication resistant Epilepsy. He is on high doses of 3 seizure medications and has an RNS implant. Despite this, he continues to have seizures. Most of his seizures happen during the night, which is absolutely frightening. The Chelsea Hutchison Foundation has helped us immensely. They have helped us to obtain an Emfit seizure monitor for my son's bed to detect seizures. This monitor can save my son's life, as he is at risk for SUDEP. The Chelsea Hutchison Foundation was very responsive, kind, and helped us seamlessly go through the steps for obtaining the monitor. This foundation is so valuable and has helped so many. What a beautiful way to honor their daughter Chelsea by helping others with Epilepsy.
We are so appreciative of The Chelsea Hutchison Foundation for being an ally in our son’s journey with epilepsy, and for providing financial assistance in the form of a grant to assist with training assistance for our son’s service dog. We are forever grateful for the Foundation’s assistance in helping our son live a better, fuller, more independent life.
Andy was award this amazing trip and our family struggled with still going but we went in Andy’s Memory. He lost him in July 2022 from SUDEP. We knew he was with us while making new amazing memories and connecting with families that became instant friends. The mission of this foundation and what they do for families is absolutely amazing!!! Thank You!!!
Not only did The Chelsea Hutchison Foundation help provide funding for my son's service dog, they also granted us a trip to Disneyland in California. In working with Julie and Doug, I have found more love and support through the Chelsea Hutchison Foundation than one could ever imagine. What they do for families dealing with the beast of Epilepsy is absolutely lifechanging. Through them we have met soooo many supportive families that will be family forever.
I'm not sure I can put into words what this organization has meant to my family and so many others.. It seems they never tire of raising funds and getting them to where they can make a real difference, but more than that they go so far to bring people together and create a sense of community for people with epilepsy and those connected to someone who does. I can say that I am humbled by their continuous efforts and hope that if you are reading this still you will consider jumping in adding a little wind in their sails.
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This foundation has done so much for my family! We are fortunate enough to have gotten to go to Epilepsy Awareness Day at Disneyland through them, and they provided a grant for our beloved service dog Caballine. They have also provided us with a life changing sleep monitor to make sure our girl is safe at night. But aside from all that, they have created a great community of people that we just didn't have access to before running into them. I just can't say enough good things about this foundation!
What a gift this community has been to our family! We have been fundraising for this organization since 2019 and have been the recipients of the most wonderful family trip to Disneyland. Our daughter has epilepsy and through this organization she has gained tremendous amounts of confidence and support. I will forever be grateful for this nonprofit and we will continue to support and share their mission to spread awareness!
My two year old son started having seizures roughly five months ago. Multiple occurred overnight. Another parent recommended we reach out to the Chelsea Hutchison Foundation for help with getting a monitoring system. Julie was very responsive and very helpful. They helped us get a Neebo monitor for my son to give us some extra safety measures! We are so thankful for this gift and it’s given us such peace of mind. We are so thankful!
Chelsea Hutchinson Foundation has been a game changer for us. We received the SAMi3 kit as part of their generosity. We are forever grateful to this Foundation. Julie was so quick to respond and accept our request. My daughter has Doose syndrome with TCs during sleep/wake cycles. SAMi3 kit helps monitor her closely. Thank you for helping us!
I will remain forever grateful for all of the love, kindness, and support the Chelsea Hutchison Foundation has poured into the lives of my daughter Ari and I. My daughter has an extremely rare genetic condition that causes significant developmental and intellectual disability as well as severe intractable epilepsy. It is often so easy to feel alone and isolated from the world when our days often look so drastically different than our friends and family and when days, weeks, or even months are spent in the hospital. In 2019, the Foundation awarded Ari an absolutely incredible trip to Disneyland where she was able to just be a kid and I could just be her mom experiencing all the of the magic together with other families who truly understood the complexities of life with exceptional medical needs. As a single mom, this was an experience I could have only dreamed of being able to provide for her on my own… but they didn’t stop there. Over the years since then, the foundation has also provided practical support through ubereats and DoorDash meals during long hospital stays when I am unable to work and Julie has poured so much love and kindness into our lives through her friendship and moral support through the hardest days and nights. None of us can do this life alone, and I am so grateful to have the Hutchison family in this with us.
My son's epilepsy shocked us, besides ADHD he didn't have any other health problems and was 8 years old. One day driving home from visiting family he had a seizure in the middle of nowhere, we drove him to the closest ER. Little did I know this would lead to speculation by our primary Pediatrician about falling out of bed the last couple of months, an EEG, a trip to the children's hospital, and being diagnosed with Childhood Epilepsy Centrotemporal Spikes (Benign Rolandic Epilepsy). We were told this is one of the best Epilepsy to have and his seizure should be far apart, however within the first 2 weeks he had 3. Through my googling, we were blessed to stumble upon the Chelsea Hutchison Foundation. I sent an email asking what they would recommend at night for him. They not only suggested the Sami-3 but helped us get one. I feel so blessed by this Foundation.
Julie and Doug have done wonderful things for so many amazing Families. They have always been the kindest and sweetest people I know. The work they do for their community and beyond is so selfless. All in the name of their precious baby girl Chelsea. I would wholeheartedly recommend this Nonprofit to anyone that believes there should be a cure to Epilepsy and Sudep.
I’m so impressed with the diligence and integrity of this nonprofit. CHF has done SO much for people of all ages with epilepsy. I’ve had it for 21 years and spent many years feeling so alone… this foundation brings us together and gives us so much help and hope!
I have given The Chelsea Hutchison Foundation 5 Stars. Something I rarely do. As with most Foundations it gets created by someone affected by the particular cause. In February 2020 our daughter experienced her first Epileptic Seizure. Not having much experience with Epilepsy we were unaware of SUDEP. Over the past 3 Years we have benefited greatly by the awareness that the Chelsey Hutchison Foundation teaches and advocates for, for the prevention of SUDEP. Thanks to the connections formed over the years we have been educated quickly on how to help our Daughter. She is thriving as a contributing member of society. She works along with her Service Dog and is out in the community with her friends as I am writing this message. We have been fortunate to live nearby Julie and Doug who have become very good friends and we enjoy helping with events. Our daughter has even been an advisor to one of her co-workers who’s daughter has been experiencing seizures and she has also reached out to a young man in her age group who has been struggling with their Epilepsy.
When I met Julie and Doug, and became associated with CHF, I was at a point in my epilepsy journey where I didn't know where to turn. My seizures were not controlled, I was in danger of losing my job, very depressed... I had lost a lot of friends and pretty much had no support system. Julie became a friend. She invited me to so many events where I net people who understood!!! REALLY understood what I was going through... people that I could talk to, people that I could be myself around... this foundation changed my life for the better in so many ways... I received a smart watch monitor which made me feel so much more confident. I LOVE going to all of the CHF events... they are my extended, "E" family... love you to the back of the moon...
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The Chelsea Hutchison foundation is A-mazing!!!! This family and foundation has changed my life in so many positive ways... I have learned so much and met so many wonderful, caring people. I am the recipient of a smart watch monitor and a Chelsea's wish winner to Epilepsy Awareness day at Disneyland. Both of these are life changing.... the monitor allows me the freedom to live my life more safely and the wish trip was truly life changing... I made new, lifelong friendships, learned so much and made memories that I will never forget... the loss of Chelsea to SUDEP was unimaginable; Julie and Doug took their grief and turned it into something wonderful to honor their beautiful daughter and help others..
We can't say enough good things about The Chelsea Hutchison Foundation and their founder, Julie Hutchison. We've been working closely with and donating to this Foundation for over 10 years, and time and time again they amaze us with all that they do. We love supporting them because we've seen first hand that every dollar they raise is put to the absolute best possible use for the families in the epilepsy community.
We'd rate this org 6/5 stars if we could. They're that great.
When I was at my wits end with two young children having seizures, this foundation helped me obtain monitors to make our life a bit easier. I cannot thank them enough for the kindness in such a troubling time of our lives. The blessings they give families every day and the support they give the Epilepsy community is outstanding. I’m forever thankful for their support and help given to our family.
Chelsea Hutchison Foundation helps people and families dealing with epilepsy. My adult son was diagnosed with epilepsy at 19, and has spent many years going through tests, medications, and surgeries. We were fortunate to be introduced to CHF early in his epilepsy journey, and have found so much help and support from our wonderful CHF family. My son has been awarded a trip to Epilepsy Awareness Day at Disneyland, and a service dog grant, and the unmeasurable amount of love and help from the Hutchisons. We have developed so many wonderful friendships while volunteering for the foundation for several years. To say we love these people is an understatement.
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We (Epi USA) have had the privilege of partnering with The Chelsea Hutchison Foundation over the past 14 years, watching in astonishment as they have blossomed into this dynamic, "will do" organization that truly cares about and selflessly services the needs of the Epilepsy community. Nothing but action on their part as they unapologetically honor the memory of their daughter, sister, and aunt, 16-year-old Chelsea, through SUDEP awareness and the provision of seizure monitors to families in crisis. CHF also awards grants each year to multiple families for all-expense paid trips to Epilepsy Awareness Day at Disneyland. Talk about a loving gesture that brings so many together into a compassionate and fun environment...families who may otherwise be living very isolated, stressful lives! Amazing and beyond deserving of recognition as a great nonprofit!
We are so incredibly thankful to the Chelsea Hutchison Foundation for our new Sami3! Our sweet daughter Eden has big scary seizures at night. We can rest a little easier knowing the Sami3 is helping keep her safe. The Chelsea Hutchinson Foundation was so responsive and easy to work with. I still can't believe how quick we received the monitor and how gracious the foundation is at providing it. Thank you times a million!!!
My daughter was diagnosed with epilepsy on November 3 ever since then it has been a rocky road. We’ve had many challenges to overcome, especially my daughter. We are very grateful for the Chelsea Hutchison foundation. The foundation is a blessing to our family.
I recently reached out to the Chelsea Hutchinson foundation for help with finding a monitor for my 12 year old son with severe epilepsy. Nighttime is scary, especially knowing that he is having multiple tonic seizures a night in his sleep. There are no fool proof monitors for people with epilepsy. Many are based only on movement/convulsions. So that leaves those that have non-conclusive seizures without options. OR in my son's case, people with complicated movement disorders and baseline tremors with false alarms.
I reached out the the Chelsea Hutchinson Foundation for help in finding something that would ease my fears at night. We discussed a SAMi monitor that detects movement. But after talking CHF and the support at SAMi it was concluded that this was not the monitor for my son . Julia Hutchinson suggested a Neureka monitor and offered to help us get it. I submitted our application and the monitor arrived so fast! Julie Hutchinson was so quick and responsive to my questions. I was so impressed not only with her willingness to help, but with how quickly it all got done. I am beyond appreciative. Just tonight my son had a severe seizure and knowing he has the Neureka monitor on gives a little room to breath. Thank you Chelsea Hutchinson foundation!
This Foundation has been a god send for my family. My son was diagnosed with focal and tonic clonic seizures about 2 years ago. It has been such a hard time as a parent. The Chelsea Hutchison Foundation has helped me get the embrace2 watch so that i can have some peace of mind at night. My son has always slept with me and i will not leave him when he is asleep not even to use the bathroom in case anything happens. This will help me so much to be alert! I appreciate you so so much. Thank you from the bottom of our hearts.
I cannot say enough about how wonderful our experience with the foundation has been thus far. When we reached out to learn more about support options, the response was fast and the process moved very quickly. Thank you Julie and Team. The picture I have attached is our beautiful daughter who struggles with daily seizures. Thank you for supporting her and our family!- The Finch Family
My son was diagnosed epilepsy it definitely has been scary ride. I beyond thankful for the kindness of The Chelsea Hutchison Foundation. I definitely will be passing on the word on the amazing foundation and having people to know and support your foundations.
The Chelsea Hutchison Foundation is such an amazing organization! They do so much to help epilepsy warriors and to raise awareness!
This organization has been life saving to my family. My son suffers from very harsh seizures. We were blessed with a Sami alert, which allows some security for me to leave my son’s side, while he’s asleep. I have also been blessed to volunteer for some of their events. You won’t find a more amazing family, that turned pain into purpose and blesses so many, while keeping their sweet Chelsea’s memory alive. We are so grateful for them.
The difference this foundation makes is staggering. Julie and everyone who volunteers with the foundation works so tirelessly to help epileptics who don’t have access to the tools they provide. I’m always proud to partner with and support the Chelsea Hutchison Foundation.
This foundation is the most dedicated and hard working foundation. Everyone involved is remarkable to work with. Everyone is passionate about the mission the foundation works for. It is so hard in this day in age to find support for anyone surviving with epilepsy, but this group has created a family that so many have found comfort and support in. I will forever support and forever be grateful for what they have done for my family. we are all eager to pay it forward and continue to support them!
We absolutely love the Chelsea Hutchinson foundation! In 2017 our Daughter Sofia was fighting for her life battling hundreds of seizures a day. For the 1st 3 years of her life she could only sleep in our room, so we could monitor and stop and seizures that would arise. Until the Chelsea Hutchinson foundation donated Us a video seizure alert monitor, And that gave us the peace of mind and Sofia the independence to finally be able to sleep in her own room for the first time in her life. The seizure alert monitor has not only saved Sofias life many times but has given us a peace of mind knowing we can sleep a little sounder Knowing Sofia is being monitored all night! Five years later we still use the seizure alert monitor every night!
I have lived with epilepsy for over 20 years, essentially all of my adult life. For many years I didn’t realize how common epilepsy really is. We found the Chelsea Hutchison Foundation several years ago online and we were so impressed by their mission and dedication to the epilepsy community. Julie and Doug have given tirelessly to the cause of educating and providing much-needed resources for families and people living with seizures.
I had a brain surgery 4 years ago and that was my happy ending, as I am no longer living with seizures. But it’s the cause closest to my heart and I’m so thankful for the encouragement we’ve found in CHF.
I was diagnosed with epilepsy 8 years ago but I started having seizures when I was 16 years old they could not find what was causing my seizures I love bingo one day I went to bingo and Chelsea Hutchinson foundation was one of the groups and they help me get a monitor to monitor my seizures to make me feel normal to go places to do things they are the best they help so many people there's no words to explain it but if it wasn't for the Chelsea Hutchinson foundation I would not have a seizure monitor so thank you
The Chelsea Hutchison Foundation has really changed my mom and I's life's so so much I have come a long way since I started volunteering for the Chelsea Hutchison Foundation they are like family and have Met some amazing friends and family
My son has severe autism and he also has epilepsy. His seizures happen mostly when he in bed. I was barely sleeping due to being afraid my son would have a seizure in his sleep and I wouldn’t know it. The Chelsea Hutchinson foundation provided me with an amazing machine that alerts me if he has a seizure while in bed. Thanks to their generosity I was able to sleep and get the rest I needed to care for my son. I was no longer as afraid as I was. I can’t thank them enough!!
Such a great group of people. Helped us get our daughter a service dog, shuffle hop step, to give her some independence a growing girl needs, and a sense of peace for our family with another set of eyes always watching. Thank you Chelsea Hutchinson foundation!
I have personally seen the Chelsea Hutchison Foundation help hundreds of people obtain a seizure monitor, or a seizure response dog, that they so desperately needed. Julie is an Angel on earth and the community is so blessed to have her and all of her volunteers. The world is a better place because of CHF!
We found the Chelsea Foundation following the death of my cousin's son. He had epilepsy and we had no idea that he could die in his sleep until it happened. He was only 17 and it was very devastating. We attended their annual STOMP walk and met the wonderful people who started, support and who run this non-profit. We also learned so much from the organizers and the people in attendance at the walk. The vendors in attendance at their events are amazing. We want to make sure that no other family has to go through what we went through by helping the Chelsea Foundation raise money for seizure dogs and movement monitors. We have met many of the children and family members who have received a seizure dog or movement monitor. They provide awareness for Epilepsy and SUDEP which is so important as we have learned. We attend BINGO sessions, STOMP walks and other events in our area. We love seeing the people who are involved and participate in the events. This is an amazing non-profit organization who is doing so much for the Epilepsy and SUDEP community.
The Chelsea Hutchison Foundation is an outstanding foundation built on love and overwhelming compassion. I am beyond grateful to Julie and the foundation.
Through a grant from the foundation, they assisted me in obtaining a seizure sense and alert dog for my daughter Kaitlyn who suffers from Idiopathic Generalized Epilepsy that is poorly controlled even with medication. Thanks to Julie, my daughters service dog has assisted me in caring for Kaitlyn multiple times when I needed his help. He was spot on with everything he was trained to do.
Thank you Julie and The Chelsea Hutchison Foundation for all you do!
We met this nonprofit shortly after our daughters diagnosis. We received so much kindness, encouragement and love.
They have been lifesaving for my son and daughter
Both have epilepsy, one very very severe. The Sami monitoring system that they provided has been life changing. They also provided anti suffocation pillow for my son. I had two children with epilepsy for years, and no Dr ever mentioned SUDEP, this foundation has opened the epilepsy community up for sharing this knowledge. I am forever grateful to the CHF , Julie & Doug
The Chelsea Hutchison Foundation is one of the best groups of people I have ever had the pleasure of meeting. They were able to help us get the enspire monitor for my daughter. Without this device we have no peace.
I found this wonderful foundation while living in Colorado and my son started having seizures. He’s twice gone into status and has nocturnal seizures, his neurologist told us about SUDEP and that he was a high risk for it and it scared me to my core. Researching epilepsy I stumbled across The Chelsea Hutchison Foundation and thank god I did as otherwise I would have lost my sweet boy. Thanks to this foundation I found out about Emfit monitors and had we not had one to alert us of what was status again with my son face down in his pilllow I would have lost him. I am forever eternally grateful for Julie, Doug and the foundation
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What Julie and Doug do for others is amazing. Through their grief they set up this foundation determined to help prevent others from experincing the same heartache they did. Thru educating others, helping provide grants for monitors and service dogs, and also a loving supportful ear to anyone who needs it. Words can not describe how I feel about this family
The Chelsea Hutchinson Foundation is an amazing, compassionate, supportive organization. We lost a very close friend to SUDEP a few years ago, and The Chelsea Hutchinson Foundation helped that family pick up the pieces of their broken lives. I am forever grateful to them for their love and support for this family we love so dearly. My 21 year old son recently had a seizure. Although he has not been diagnosed epileptic because he's only had the one seizure, we found out he has cortical displasia, which makes him more susceptible to having seizures in the future. Chelsea Hutchinson Foundation provided some invaluable information to our family, including recommendations for monitoring tools, so we can stay on top of things in the future. Thank you for everything you do!
They have helped our family navigate the challenging journey of epilepsy through education and support. On top of that they provided a nighttime monitor which has been valuable on many levels. The integrity and passion in which The Chelsea Hutchison Foundation is priceless.
The Chelsea Hutchinson Foundation is very near to my heart. My son was granted a seizure monitor to keep him safe from SUDEP, and over the last few years I’ve grown to love what this foundation stands for and does for our children, and for our peace of mind. The amount of safety they provide in the form of monitors and seizure dogs is absolutely amazing. Julie is the most amazing woman and is very quick to respond to questions and offer support. Her passion to carry on Chelsea’s legacy only helps strengthen the love you feel from this community. STOMP makes me cry every time!
We will always do what we can to help support Julie and everyone involved with this foundation. Thank you for all that you do! I’m so glad that even though we don’t have seizure control, we can sleep a little easier knowing our sweet boy is being watched over.
This group helped my daughter get a seizure monitor! Thank you so very much! It’s such a great organization that helps so many people! Thank you again!
This foundation has provided many resources and a platform to ask questions and share ideas with others going through life with epilepsy. You can clearly see, through the hard work, how many people are impacted by Chelsea’s legacy. We were honored to raise money to help them continue their amazing mission!
What fantastic work The CHF provides to families like mine in the epilepsy community. We are forever grateful for all they do. As a family granted a “wish trip” through the foundation, the opportunity to connect with other families affected by epilepsy was possible because of CHF.
Julie is amazing at running this nonprofit. She has such a huge heart and is always looking for more ways to teach and help people with epilepsy as well as inform about SUDEP. When I needed a monitor, I couldn't drive so Julie drove to my place to give it to me. She is always there with questions. I am proud to support her and this non profit foundation!
I have volunteered for this organization for over 2 years. I have seen the compassion and dedication to the Epilepsy community from it’s founders The Hutchinson Family. They help everyone they possibly can with monitors, grants for service dogs and with providing education on Epilepsy and SUDEP. I had no idea what SUDEP was until I met this kind, courageous family.
The founers of this foundation are some of the most selfless, kind hearted and genuinely caring people I've ever met.
My eldest son was diagnosed with epilepsy at the age of 3. And after finding this foundation, and joining the community they have made, it really made a huge impact on my family. Without question, nor asking for anything in return, we were provided with a motion detection device to help give me peace of mind while my child sleeps in the other room.
We have attended several of the fun events that they put together to raise funds for the foundation. Julie has always made a point to pick us out of the crowd and talks to us like family.
This year the foundation is sending my family to Epilepsy Day at DisneyLand. Getting the chance to experience the most magical place on earth, with those who know what we have been thru, and meeting professionals that deal with Epilepsy every day.
We couldn't ask for a better foundation to support. The money raised is well used for families/individuals who truly need the help. They have made an amazing community. Julie is truly an angel, and I know many others would agree with me. We can't thank you enough!
When my daughter was first diagnosed with epilepsy I was scared to death. Watching your child seize is very traumatic. I started researching online, joined a Facebook group and learned about the Chelsea Hutchison foundation. I reached out to them and received immediate response and shared experiences. They helped me purchase a monitor for my daughter and I am extremely grateful for their support. I highly recommend this foundation.
My 12 year old daughter was diagnosed with epilepsy 3 years ago. It has been a rollercoaster of a ride with 0 to more than 100 seizures a day. I researched epilepsy early on and learned about SUDEP in the process. I’m glad to have learned about it, but it also gave me a lot of fear. She slept with me often and a lot of sleep was lost with her having seizures at any time of the day/night. With the help of the Chelsea Hutchinson Foundation, we were able to get a seizure alert system that has given me so much peace when she sleeps in her own room. I can’t thank Julie and the team enough for bringing a little peace to our home.
Julie was one of the first people I connected with when my daughter was diagnosed with epilepsy. She has been a wealth of knowledge for my family and we were able to purchase an EMFIT for our peace of mind. We have been to many CHF events over the years and have connected with so many more people within the epilepsy community. The community Julie and Doug formed, in memory of Chelsea, is more like a family.
If not for finding the CHF, we may have lost our son. It was because of CHF that we found out about SUDEP, Seizure Alert Service Dogs, Alert Monitors, and EADDL, all of which contributed to the wellbeing of our Son, and saved his life. So, when you ask me what CHF means to us, it’s an unequivocal EVERYTHING! Doug and Julie Hutchison lost their daughter, because no one told them about SUDEP, and they have made it their personal mission to help others from walking that same path. Steady as rocks, and supportive in any way possible, these two have been an inspiration to all of us that are a part of this epilepsy journey; they are amazing people!
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This Foundation is amazing! I found comfort & strength from the first moment I called, and found out about SUDEP from Julie Hutchison. The Foundation has provided us with a SmartWatch, a weighted blanket, a trip to EADDL, led us to a Service Dog Company, and so much more. It is my belief that without the CHF, we wouldn't have our son. I am forever grateful to Doug & Julie Hutchison for everything they've done, and continue to do for those of us in the epilepsy community.
I have been involved with the Chelsea Hutchison Foundation as a supporter and volunteer for about 10 years. The amount of emotional and financial help and support given to those living with epilepsy and their families is truly amazing. I am inspired by the selfless hours spent in support and by the stories of those who have received that support.
My daughter and family received an opportunity of a lifetime that would never have been possible if CHF didn’t sponsor us. Their use of donor dollars is 100% transparent and we were one of the recipients! Amazing foundation!!
Hi my experience with this foundation has been great. My son suffers from seizures and he has been having them at night while sleeping. We have had many sleepless nights, with the help of the Chelsea foundation I was able to get a device that will help with some of the stress of not sleeping. So grateful finding this foundation!
My 11 year old daughter was recently diagnosed with epilepsy. A few days before Christmas she experienced a 6 minute grand mal seizure in her sleep. Within a few weeks the eeg results came back and the neurologist wanted us in his office immediately. Her eeg showed constant seizures. We were told she had a life long form of epilepsy. How do you let your daughter ever sleep alone again knowing she might not wake up? We heard about the Chelsea Hutchison Foundation. Only 1 week after applying for a night time monitor, it arrived at our house. A huge weight was lifted. My daughter has been sleeping in my bed ever since her diagnosis. No parent should ever have to worry about whether or not their child will still be alive in the morning. This organization has blessed me with a tool that will help me get back to living life and possibly save my daughter's life. I'm forever grateful!
I can't use enough words to describe how I feel about this organization; after our 3 year old daughter's sudden and unexpected diagnosis of a rare childhood epilepsy with hard to control seizures, we have gone through the entire emotional spectrum. Scared, anxious, stressed, worried, depressed. When I found the Chelsea Hutchison Foundation I honestly did not think we'd be lucky enough to qualify for a seizure monitor, and assumed we would have to struggle even more with our financial burdens. I emailed the foundation and within hours received a response back with recommendations and an application form for a monitor. I was curious about another monitor and was torn between the two, and not only did they help us with one, but they helped with both! I cannot express how shocked, overjoyed, and overwhelmed with gratitude I was. We are now relieved, can finally breathe and not worry every night about a potential nighttime seizure. We also feel especially assured that we can track our daughter's sleeping and respiratory patterns overnight too.
I was working directly with Julie Hutchison herself, Chelsea's mom and co-founder, and felt instantly that we connected and I have never felt this way about any charity or Foundation. My only wish is that we lived closer to them so that we could physically support their fundraisers and events, and maybe even get to meet the family that has helped us and so many others.
I was 30 weeks pregnant when our 3 year old son started having seizures that quickly progressed to multiple types of seizures. The doctors had an idea of what his diagnosis was but we are still going through testing to confirm it. Medication doesn’t seem to helping much and the seizures happen when we least expect them to. I joined a Facebook group that told me about the Chelsea Hutchinson Foundation. I stopped working to stay home with our newborn and 3 year old so money is tight. We already don’t sleep with a newborn and having a son with uncontrollable seizures didn’t give us much hope for sleep any time soon. The Chelsea Hutchinson Foundation has given us more than we could ever ask for! We were given a donation of a monitor that has helped us keep an eye on our little boy and keep track of his seizures. The foundation has been extremely responsive and helpful when picking the correct monitor. At times I’ve felt so alone, lost, and confused; this family has brought me peace and hope. I know Chelsea would be very proud!
Two years ago we found The Chelsea Hutchison Foundation after losing our 17y/o son to SUDEP; something that we didn’t even know was possible. In those two years our family has grown to love and respect what this foundation stands for and we fully support them in any way we can. They have given us a safe space to land when all we felt was our world crumbling around us. They give us a way to help to make sure that we are doing all we can to prevent another family from suffering such a tragic loss. We are not alone and when you have lost a child that is so important to know; others understand. Our belief in The Chelsea Hutchison Foundation has grown so strong that we are now volunteers and ambassadors, willing to do all we can to ensure this foundation thrives. This Chelsea Hutchison Foundation has turned tragedy to hope and our family will forever be grateful for all they do.
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When we lost our Joseph last year to SUDEP I was completely devastated...how do you lose a child to something you had never heard of? Something you didn’t even know was a monster in the corner of his room while he slept? I felt mad, I felt sad, I felt guilty, and at times I didn’t feel anything. By complete chance, we found CHF right before the STOMP walk last year, which we proudly signed up for! We have used the last several months getting to know the CHF family. What they have done for me and our family goes far beyond words. They have given me a place to speak freely about my loss, about my guilt, and about my anger. They have given me a place to feel safe being sad and vulnerable. They have let me know that I am never alone. Most importantly, they have given me a place to give back and help with their mission to educate and provide resources to ensure that no parent is left with a monster they can’t see!
The best nonprofit EVER! Prior to meeting this family, we were feeling quite alone in our crazy journey. After being awarded a wish trip to Disney and spending time with other families much like us, we feel like we have a brand new family which we can relate to. None of this would have been possible for us without Doug and Julie. Hands down the best people in the world spreading awareness and helping thousands of people keep their children alive by gifting them life saving devices to prevent SUDEP. Our doctor never mentioned a word about this to us. We have two daughters with Epilepsy. Makayla and Tayler are able to sleep in their own beds safely with their Sami monitors. Kudos to the Hutchison family for making this happen. Job well done!
In 2019, our then 4 year old son was diagnosed with Epilepsy after having a severe set of nocturnal seizures. As he went through testing and diagnosis, we learned what it looks like to parent a precious child who has seizures. In particular, the nighttimes became hard. Based on how his seizures work, much of the risk is at night. That made for many sleepless nights for two scared parents.
We found out about the Chelsea Hutchison Foundation after five of the hardest months we have experienced. We were exhausted and uncertain how we would ever find the peace to sleep through the night without fear again.
The foundation provided a SAMI Monitor for us. Essentially a camera that videos our child at night and alarms us when he has movements that look like a potential seizure. The foundation was wonderful to work with, moved quickly, and is a wealth of good information.
Just two weeks ago, the alarm went off in the middle of the night letting us know that he was experiencing a seizure. It has done exactly what it is supposed to and served its purpose time and time again. Thanks to that alarm and the foundation, we have been able to regain some normalcy in the midst of a challenging journey.
The Chelsea Hutchison Foundation is an amazing tribute to all that is right and good in the world. Created by a grieving mother, it's purpose is to ensure no other family has to go through the loss of a member by epilepsy. The entire family works tirelessly to raise funds in order to provide movement monitors, seizure dogs, smart watches, education and support for all families dealing with the devastation of epilepsy. Funds are raised through bingo two times a week, walks, galas and donations. I have had the opportunity to see children grow up and go off to college, a young person become independent, the relief on a mother's face because of the help they received through this foundation.
My daughter was diagnosed with epilepsy. We were so worried about her sleeping and having a seizure. We had her bed moved into our room. We applied for a monitor through the Chelsey Hutchinson Foundation. We heard back quickly from them. They sent us a monitor. It was a blessing. She was able to get her privacy back as we moved her back to her room. I highly recommend the Foundation. They go above and beyond to help.
After 4 years of searching, seeing 5 Specialists….unable to find any answers, watching our sons seizures that started on the first day of 8th grade, increase to 20 minute Gran Mals by his Senior yr of High School, ….. well… we were on our hands & knees….& then our world changed forever…. the Good Lord graced us with the Chelsea Hutchison Foundation….. truly! Our son is a Senior at college currently, with an Emfit monitor for nocturnal seizures, & an Inspyre App for his smart watch, & anti suffocation pillows out of the UK…we didn’t know any of this existed! Out of the 5 Specialists seen before we found our fit… not one ever mentioned SUDEP…& it was clear our son was battling night seizures as well. And…the Chelsea Hutchison Foundation gives Service Seizure Dog grants in addition to offering a purple community of support, love, hope, & passion as they work tirelessly to provide grassroots education & awareness to STOMP out Epilepsy & SUDEP…. Our sons Service Dog has been life saving…. life saving! We didnt know either that the largest Epilepsy Expo is held at Disney…& CHF takes ALOT of families on this magical Disney Wish Trip! We are forever grateful to the Chelsea Hutchison Foundation… .we are still on our hands & knees… giving thanks for this purple flock….wings in our path… Donate for a seizure dog, tell a story… change a life…Today, we wear PURPlE! Thank y’all Hutchisons & Godspeed, truly, Heidi & Rod Stevens ✝️
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Our son had his first twelve seizures the first day of 8th grade....& the meds would quit working with every growth spurt.... side effects of meds were horrific.. seizures continued to 20 minute Gran mals.... 5 years... no answers...5 Neuros...& not one mentioned SUDEP.....& then the good Lord literally led me to heavenly angel Chelsea Hutchison......and our world turned purple with hope, love, support, & education.... a whole purple community was available, across the country with the Chelsea Hutchison Foundation....our son received a sleep monitor & an app for his smart watch which notifies my phone when he has a seizure! And....CHF was instrumental in helping us receive a seizure alert/response dog..... life saving...I say again.... life saving! Our son is in college, with a monitor, app, & miracle service dog...And...who knew we could get anti-suffocation pillows from the UK.... through CHF with a discount! We will raise SUDEP & seizure awareness to END Epilepsy... for CHF..... until my last breath... this purple family & purple community.... we are on our hands & knees with Thanksgiving.....Donate for a seizure dog...tell a story...change a life...Today, I wear Purple ✝️ Truly, Heidi Stevens
I have had the privilege of working with The Chelsea Hutchison Foundation for over ten years. During that time I have witnessed lives not only transformed by finding a community of support they did not know existed, but without a doubt, countless lives saved! When Doug and Julie lost their precious Chelsea to SUDEP (Sudden Unexpected Death in Epilepsy) they were blindsided. The doctors never told them Chelsea could die from her seizures...more importantly they never indicated there were monitors that could alert them, if their precious girl had a seizure in her sleep. Had they made this family aware of the danger and risk...had they simply mentioned there were devices available to alert them to nocturnal seizures, we are certain Chelsea would be with us today. The Hutchison Family made it their mission to raise awareness so other families don't experience the heartbreaking loss they live with daily.
This Foundation provides seizure alert monitors, grants for seizure response dogs, the opportunity for families to attend Epilepsy Awareness Day at Disneyland. Through the Foundation, families connect with other families and those connections provide invaluable support, comfort and hope. The work born from loss, grief, and sorrow honors Chelsea... a beautiful daughter, sister, niece, and friend. And by honoring sweet Chelsea, countless lives in the Epilepsy community have been enlighten, enriched, and yes, saved.
The Chelsea Hutchinson Foundation is amazing and an absolutely blessing
They have helped make possible for my daughter to receive her seizure sense and protect dog, Mowgli
He has been instrumental in alerting us as her seizures continue to worsen and has even needed CPR as she is failing all meds and is being evaluated for neurosurgery
Thank you to Julie and The Chelsea Hutchinson Foundation for our amazing Mowgli! You have given a sense of security to Kaitlyn and the family
The Chelsea Hutchison Foundation does so much good for so many. For Doug and Julie to turn Chelsea’s tragedy into saving lives on a grand scale is such a tremendous gift. Proud to be associated with this organization.
My granddaughter and grandson both have epilepsy.
My granddaughter was granted a trip to Disneyland for Epilepsy Days from Chelsea’s Wish which is part of Chelsea Hutchison Foundation. We gained a lot more knowledge that week. And continue learning through them.
A couple of years later my granddaughter was granted a lifesaving seizure alert monitor. We were finally able to get some sleep.
CHF has always been there for the kids
They mean the world to us.
With covid and my granddaughter dance team commitments it is hard for us to do fundraisers. But they never leave us out of the loop.
Love you all at Chelsea Hutchison Foundation
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Chelsea Hutchison Foundation has been just what our family needed 4 years ago.
We have become family with many members.
My granddaughter was gifted Chelsea’s wish 3 years ago. We gathered so much information at the expo at Disneyland. We met so many people and have built bonds with each and every one of them.
A couple years later talking with Julie about monitors there was only one available that might work. Granddaughter has non convulsive seizures. But it was out of the UK. With the help of Chelsea Hutchison foundation my granddaughter was able to receive this monitor. This monitor has saved her many time when her pulse rate drops to 0-48. She stops breathing during this time while sleeping.
Doug and Julie are angels on earth where their daughter is watching over them and everyone else.
I could not imagine life without them.
Ohana means family, and family means nobody left behind.
We love you Chelsea, Julie and Doug!
My daughters’ father passed away from SUDEP almost 10 years ago. The following year we were introduced to The Chelsea Hutchison foundation and have been involved ever since by helping to raise money and bring awareness to the world about Epilepsy and SUDEP. I have been so humbled by the efforts of Julie and Doug Hutchison of turning their loss of daughter Chelsea into such a magnificent organization that has helped so many people living with Epilepsy to bring not only awareness but also some peace of mind to families with service dogs and monitors. I have referred many people I have met with Epilepsy to CHF.
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I have been honored and proud to be a part of The Chelsea Hutchinson Foundation for the 4th year. Telling the story of Chelsea and my daughter's father who also lost his life to SUDEP has been well received and resonates with more people that one may think. For the 3rd year in a row, I have been honored to make a quilt with proceeds, time and materials being donated by various, generous groups and individuals so the quilt can be auctioned or raffled to raise money for such a wonderful cause. It is truly a labor of love to be a part of it all.
Thank you Julie for all your hard work!
CHF has done a great deal for me and my family. I have been granted a SAMI seizure monitor, a trip to Disneyland, and a seizure monitor for my apple watch. All things that help me stay safe for the comfort of me and my family. I also an an ambassador for the foundation. I love working with Julie! If it wasn’t for this foundation I would not be where I am today.
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I have been granted two different types of seizure monitors and it has changed my life. My mom no longer has to constantly check on me to make sure that I had a seizure and passed in my sleep due to SUDEP. Another watch monitor that I received allows me to stay home alone, which my family was never comfortable with. I am in high school so this was a struggle for me personally. CHF has allowed my family so much freedom and comfort. Not to mention that Julie is the sweetest and hardest working person I know. She cares for everyone. I love this foundation. I decided to raise awareness at my own high school about epilepsy and SUDEP during volleyball season and donated all the money raised to CHF because I know how much it will save/change a live. Plus, Julie drove two hours to support the game and my speech.
The Chelsea Hutchison foundation is truly one of a kind. Their organization is truly unmatched. Their advocacy, education, and support is truly needed for many families, patients, and caregivers in the epilepsy world. Without the support of the Chelsea Hutchison foundation many of us would have no where to turn and be lost for help with having epilepsy hit us in the face.
My story is that I take care of a very near and dear friend who has severe intractable epilepsy. The struggles of epilepsy, all that she's been through have been really tough both on her as well as her friends and family. Through the Chelsea Hutchison Foundation I've gotten a lot of resources in managing epilepsy, have attended epilepsy awareness events/fundraisers and have made friends along the way. My dear friend has also won a trip to Disney which is absolutely incredible. Thank you Julie for everything that you do!
Chelsea Hutchison Foundation has been an amazing God-Send to me during me since my diagnosis; Julie Hutchison has helped me keep smiling during the rough times as she does to everyone affiliated in the foundation. From the Stomp walk, to Bingo nights, to me winning a trip to Disneyland which I will be going on next year... this foundation truly is amazing! The others within the Foundation family are amazing and so loving as well. They talk to you as a member of their family (so does Julie!) and we all keep each other safe and loved. If you are looking for love and support, please look at this foundation. Do not look away. Julie is amazing, I wish I could have met Chelsea, but I still keep her in my heart!
The Chelsea Hutchison foundation gave my son a grant for a service dog. My son was 9 when diagnosed with epilepsy and his life drastically changed. With the help of Julie Hutchison from the foundation and others, we were able to raise the funds to get my son a best friend and service dog so that he doesn’t lose his independence. Without this foundation none of it would be possible.
CHF provided a much needed movement monitor to help monitor our daughter for seizures during the night. Mama is sleeping much better knowing that a movement monitor can alarm to alert me to convulsions, especially as we change up seizure meds.
The Chelsea Hutchison Foundation is a grassroots foundation that was created amidst a tragic event; founders Doug and Julie Hutchison are making sure no other family is blindsided by the occurrence of SUDEP. This foundation has created a large community of support and acceptance for those who are impacted by epilepsy. They work hard in order to provide monetary assistance for seizure detection monitors and seizure alert/response dogs. In addition to providing these life saving interventions, they also provide all expense paid trips to Epilepsy Awareness Day at Disneyland. EADDL is a two day, information and resource packed expo for people and families who are affected by an epilepsy diagnosis. Our family has been absolutely blessed to have had several opportunities to attend various events held by the Chelsea Hutchison Foundation, including being selected for Chelsea’s Wish to attend EADDL 2019.
The Chelsea Hutchison Foundation has been a tremendous blessing to out family. My daughter was a recipient of the 2019 Chelsea's Wish Trip to Epilepsy Awareness Day Disneyland. The foundation really opened our world to an Epilepsy community we didn't know existed. Not only did we meet a great community, we also realized that it was possible for my daughter to obtain a seizure alert/response dog. CHF not only has graciously supplied Brianna with a generous grant to help pay for her service dog, but they also supported us through our fundraising efforts.
I cannot say enough about this foundation. Once you have become a recipient of their blessings, the continue support you. My daughter recently went through Epilepsy surgery and before during and after Julie and Doug showed their support to us. This foundation is not simply a foundation it is a purple family and community!!!
Thank you Julie, Doug and all the Volunteers for everything you do!
My daughter Olivia had her first seizure at 2 months old while in the ICU for a different condition. She was diagnosed with epilepsy at age 3 after having a few more seizures.
We first went to epilepsy awareness day at Disneyland in 2014 and met Julie Hutchinson with the Chelsea Hutchinson foundation. Her helpfulness and kind heart drew us to her. Since that fateful day we have had fundraiser's to help raise funds for other families. We have been fortunate to received a Sami and an Emfit monitors with this foundation's help. They also sent us to epilepsy awareness day at Disneyland in 2015.
I cannot say enough good things about this organization. They helped guide us when we needed help understanding this difficult road. They also educated us in SUDEP. We are forever grateful!
The Chelsea Hutchison Foundation is a life raft in the turbulent seas of living with epilepsy; whether you are a caregiver, a sibling, or a person with the diagnosis. The monitors and service dogs that they assist with in acquiring are critical in surviving epilepsy medically, but the community they build amongst the various people living with epilepsy is critical socially and emotionally. My family has benefitted greatly from the passion they bring to helping people in the community, and I'm not sure we'd be where we are without them.
My daughter was 16 when her seizures started they were violent and scary and mostly at night. We didn’t sleep for the first 6 months of her diagnosis and lived in few everyday. I researched and found respud in the Chelsea Hutchison Foundation. I spoke with Julie personally and she shared their mission of providing hope and safety to those effected by Epilepsy. She suggested a night time monitor and watch that have given our family so much peace of mind. My daughter wanted to help other families as well so she began fund raising for CHF. Last year she was chosen to attend Chelsea’s Wish Trip and it was amazing to see so many purple families together for epilepsy education and fun. We consider CHF part of our family and we are forever grateful to their help and knowledge during the most difficult time of our lives. Seize the day!
For many years now I have been volunteering with this incredible foundation. I have watched firsthand the lives they are changing everyday for the families living with epilepsy. The education, support and comfort that is provided by CHF has not only changed lives of those family’s but it has changed mine. They have given me a home to volunteer and help make a difference. I see how hard everyone in the foundation works everyday to spread awareness of SUDEP and fundraise to provide grants for seizure response dogs, Seizure monitoring devices and Chelsea Wish Trips.
My son, Derek has had epilepsy since he was 5 years old. I found the Chlesea Hutchison foundation while doing research about epilepsy. They helped us get a seizure monitor. They provided informational support as well as emotional support too. I learned about the EADADL from them. They have provided us with support in many ways. I am happy when we can donate back and pay it forward because this is a cause close to my heart!
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My family has been hugely impacted by the Chelsea Hutchison foundation starting a year after their incorporation date. My husband was watching a news story that Julie Hutchison was on, informing listeners about SUDEP (sudden unexplained death in epilepsy). After watching the story, my husband just needed to go see my son, and he found him face down, barely breathing. This news story had saved his life. We have also been blessed with multiple grants for both our children for seizure monitors, a seizure response dog, and a trip to epilepsy awareness day at Disneyland. We have also been blessed to meet many other families who suffer with epilepsy, and we have become a very supportive family. This foundation has the biggest heart, and my family is blessed to be apart of such an amazing foundation.
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I have been volunteering with this Foundation since 2010. My son is also a grant recipient for a seizure response service dog. Julie and Doug have done so many wonderful things for the epilepsy community- raising awareness, providing support by grants for seizure monitors and seizure response dogs, and setting up a community where we can be open and supportive of all those affected by epilepsy. I can honestly say, thanks to them, my son is currently alive because of the awareness they are spreading. Love them with all my heart and thankful for all that they do.
The Chelsea Hutchison Foundation changed my daughter’s life. Their generous grant helped to pay for a seizure alert service dog for my daughter with epilepsy. The Foundation was compassionate and followed up several times to see how the service dog was doing. This dog has brought immense joy to my daughter, reduces her anxiety about having epilepsy, provides with her with security, and now she had a new best friend. I’ll never be able to thank them enough for all they have done. They are a blessing to the caregivers and people who suffer from epilepsy.
There could not be a more generous and genuinely helpful group of people with amazing hearts for the work they do in the epilepsy community! I personally know people that have been directly granted monitors and wish trips, not to mention that my sister is a recipient of a SAMi monitor, a seizure alert watch, and a wish trip to Epilepsy Awareness Day at Disneyland! This is not a foundation that asks for empty donations that don’t directly impact people with epilepsy. The work they do is visible and so, so important. We love CHF and the amazing things they do!
Life Saving for my daughter and son.
They provide grants for Epilepsy monitoring and bring awareness for SUDEP. Without our Sami and anti suffocation pillows we would be lost.
Just an amazing foundation.
The Chelsea Hutchison Foundation helped my family when we were going through a very difficult time with intractable seizures, coma, and lots of uncertainty regarding what the future would hold for our little guy if he pulled through. They are amazing people with generous and kind hearts, working to provide comfort to affected families, awareness about epilepsy and sudden unexpected death from epilepsy (SUDEP). They can help with weighted blankets, seizure monitoring devices, funding for seizure support dogs, travel expenses to the Epilepsy Awareness Day at DisneyLand, and many resources for families. They are a fantastic organization doing great work for families affected by epilepsy!
This foundation has helped my daughter tremendously. A great source for information and a great community.
I have learned so much about epilepsy from this foundation. Things that I have not learned from any of my daughter’s Dr.’s. I am very thankful!
Julie and Doug have built a very well run and generous foundation in response to the tragic death of their beautiful (inside and out) daughter, Chelsea. My daughter was a teenager when they first began giving out funds for seizure alert dogs. Julie and Doug were very caring and helpful to us in making that happen. We have watched them grow into a much larger organization that still has that warm, personal touch. You cannot help but wish you’d met Chelsea but you can tell that she has an angelic hand in all that they do. I highly recommend this wonderful foundation.
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Julie and Doug helped my daughter get her seizure dog when they were first starting up. They were wonderfully supportive and helpful in the entire process. Since then, I have watched this organization blossom and become a national and even internationally recognized advocate for persons living with epilepsy and to spread awareness of SUDEP. They are people with the highest standards, and I highly recommend them.
This organization is amazing! They are helping us get a monitor for our son with Epilepsy so we can keep him safer at night. They are a kind, generous organization with wonderful people. Thankful for them!
The Chelsea Hutchinson Foundation is an amazing program with amazing people. They came and gave me support when my daughter was in the hospital. I was so lost about epilepsy and knew nothing about it. We got a snack box from them when she was in the hospital. They also helped when she got out of the hospital. We got an imfit monitor the same day that she was discharged. The amount of love, knowledge, and support they provide makes you feel like your not alone.
A fantastic charity saving lives everyday! We reached out to them for a grant to help purchase our sons seizure alert/response dog and they wasted no time in responding and donating to help us reach our goal! We will forever be so grateful for them and admire all of their hard work and dedication to help save lives of those living with epilepsy!
The Chelsea Hutchison Foundation tirelessly works to spread awareness about SUDEP and provide monitors/service dogs for those living with epilepsy to have a sense of normalcy in their life. Our daughter has been the recipient of two different monitors; one that will alert us if she has a seizure during the day and the other while she sleeps. This has been a precious gift that provides us, her parents, a sense of security while allowing our 17 year old more independence. In addition to the life saving devices CHF provides information and understanding for families dealing with this neurological disorder. The impact that CHF has had on our family has been tremendous and ours is only one of the hundreds of families CHF has positively impacted.
My son (3) was diagnosed with epilepsy. His seizures happen at night time. We are so grateful to the Chelsea Hutchison Foundation for sponsoring our son to receive a SAMi 3 monitor. We are so grateful for them and the awareness they bring. We sleep much better now knowing we will be alerted if he has a seizure.
The Chelsea Hutchison Foundation was there when we needed them most providing us with information on the prevention of SUDEP. The work they do for families experiencing Epilepsy is amazing and has given us peace of mind having a monitoring device in our home
After my daughter was diagnosed with epilepsy and started having seizures in the middle of the night I was terrified, I was barely sleeping. I reached out to the Chelsea Hutchison Foundation who provided my daughter with a seizure monitoring system at no cost to our family. It detects her seizures at night and alerts me so I can sleep soundly unless she needs me! A huge blessing the Chelsea Hutchison foundation is to so many families like mine!
This organization is amazing. They go above and beyond to help as many seizure/epilepsy families as possible. They are a great support system and work so hard to educate about the dangers of epilepsy and SUDEP. I have recommended this organization to everyone i know, and will continue to support them.
When my son was recently diagnosed, we didn't know anything about Epilepsy. This foundation helped my family so much with a seizure monitoring device, and lots of information about Epilepsy and Sudep. Thank you Chelsea Hutchison foundation!!!
My grandson was chosen to go to Disney by this organization! The founder, Julie has dedicated her life’s mission no parent ever experience the loss of a child like she lost her sweet Julie. So much education is available because of her spreading the word about epilepsy. ! All monies raised go to help support families for children with epilepsy.
I am Canadian and I was the first person outside the USA to receive a "grant in principle" to assist in training my service dog. I did not use it and informed the foundation to pass it on.
The dedication of Doug and Julie Hutchison with all the volunteers in helping people and families impacted by seizure disorders is immeasurable. How does one measure the "peace of mind" and the "quality of life" the foundation has given people and families? I know the Hutchisons has always been there for me.
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Hello,
I was the first person outside of the U.S.A. to receive a grant in principle from The Chelsea Hutchison Foundation. The grant was to assist in the training of my service dog. I respectfully turned down the offer of the draft as I felt there was a family in need more than myself.
I have been in very close contact with The CHF for over four years and I can say I do not know of any other organization as dedicated to their mission and they are.
Thank you
Les Landry - President - Respect the Service Dog.
The Chelsea Hutchison Foundation has gifted us with peace of mind that we are so grateful for. We received financial assistance to purchase a monitor to be alerted to night time seizures for our 7 year old daughter.
Working with the foundation was so easy and Julie is amazingly organized and supportive.
I can’t say enough of what this organization does for kids with epilepsy. Imagine they send families every year to Disney no cost. Kids die from epilepsy everyday but no one talks about it. They are raising awareness
If it weren't for the Chelsea Hutchinson Foundation we wouldn't have got our sons seizure monitor. They are truly amazing!
I have personally seen the compassion in Julie Hutchison’s eyes as she listens endlessly to heartbreaking epilepsy and SUDEP-related stories. But it doesn’t end there. She makes sure that her foundation helps families in any ways possible. The Chelsea Hutchison Foundation is not a typical non- profit organization. It’s much more and it isn’t top heavy like many non profits, so money raised doesn’t get lost in layers of administration. I’m proud to be a volunteer there and grateful to be a monitor recipient. Thank you Julie and Doug Hutchison. Chelsea would be proud!
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The Chelsea Hutchison Foundation has give our family so much support. When my daughter was diagnosed with epilepsy they were the ones that answered my emails. Gave me encouragement. They also worked with me to help provide my daughter with an emfit monitor. They gave me and my daughter our sleep back. I’m so grateful for their support and everything they do for people who suffer from epilepsy.
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The Celsea Hutchinson Foundation was there for my daughter when she was diagnosed with epilepsy. Desperate to find something to alert us of a seizure... I reached out to them. They responded that night. Were sympathetic to what my daughter and offered the support we were looking for. I'm so thankful for them.
They helped provide us with a seizure monitor for my son, when we couldn't afford it. It was such an easy process and we received it immediately. They didn't make it difficult at all.
This charity puts time, energy, and love into everything it does. They have helped so many families, and brought so much awareness for epilepsy and SUDEP.
They are saving lives.
This Foundation is amazing and the founders, the parents of Chelsea are truly amazing. It's beautiful to hear how many people call them their secondary parents because of how much they help. I have epilepsy and Julie has helped keep me safe in so many ways but not only that, she wipes away my tears in frustration and pain as well as my Mother when she talks about me. I will never not support this Foundation as it has changed my life and truly helped me so so much!
We are so blessed by the Chelsea Huchison Foundation! They provided our 10 year old daughter a Seizure Monitoring System that has been a blessing to our family. We have an added peace of mind and can give her more freedom because of this system. I love how they are honoring the wonderful life of their daughter by helping others. I am very thankful for them and all they do to help others struggling with Epilepsy.
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This organization is beyond amazing! It started with asking about a used monitor to receiving a new one with a special pillow! We then began to fundraiser as we wanted to spread the word. The peace of mind we have from this monitor is God sent. We then became lucky winners of Chelsea’s Wish and were granted a special trip to Eadl! The information we learned was priceless!! The friendships will be lifelong! They treat us like family and we are beyond grateful!! We will continue to support this amazing foundation. This family took a loss and have helped so many others hopefully never have to experience that heartbreak. We love this foundation!!!
When my son was at his worst for his seizures, the Chelsea Hutchison Foundation was a breath of fresh air! It was while we were in the hospital for his uncontrolled seizures that Julie let me know my son had been approved for a Sami monitor. I can’t tell you how after 5 weeks of being in the hospital and a 4 1/2 hr drive home to see the Sami monitor already at our house waiting to be installed felt to us. It was the best welcome home gift ever! This foundation took a huge amount of stress and worry off our shoulders and we will never forget their help in fighting this family with Lennox Gastaut Syndrome (LGS, Epilepsy)!
Wonderful non-profit! Julie and Doug are great people. My son won a trip in 2018 and he experienced so many new things while we were there. We went to the epilepsy expo in Disneyland and also learned a great deal while we were there. I feel it is also fantastic that they honor those families, including their own, who have lost loved ones due to SUDEP, by extending their Disneyland/expo trip drawing to families in honor of their loved ones.
The foundation also helps with monitors and service dogs as well for those with epilepsy, which I have no direct experience with but see many faces of those who have been helped
Our family has been greatly blessed by the Chelsea Hutchison Foundation. After reading about Chelsea and how her memory continues to live through her parent's love for her and their advocacy for Epilepsy and SUDEP, I learned that CHF could possibly help protect our daughter through their assistance in providing our family with a seizure monitor. Julie made the process so simple and we are so grateful for the donations and fundraisers that make it possible for families like ours to rest easier at night.
Our daughter has also been chosen to attend EADDL this November and we are so thankful for this amazing opportunity. The Chelsea Hutchison Foundation has been life-changing for my daughter and our family.
I have a daughter who has something called dravet syndrome. She has seizures all day long into the night. To say I did not sleep is an understatement. The constant worry of what if she has a seizure during her sleep left me petrified. Then I found the Chelsea Hutchinson foundation and our life has not been the same. They were some of the most kind people I've ever dealt with. I mean complete strangers are reaching out and asking for something for nothing and yet they literally were so happy to help. We were able to get an extremely nice seizure alert system called Sami through them. Since I had to quit my job to stay home and take care of my daughter we would have never been able to afford this on our own. The sami has saved my daughter countless times with notifying me of seizures in the night. I have my baby girl today because of the amazing selfless work this foundation does. To be able to help others after going through such loss of their own is inspiring and makes the world that we live in a truly better place.
I am a smart watch monitor recipient and Chelsea's wish winner to epilepsy Awareness day at Disneyland... I can't say enough great things about this family and foundation.. I have not just gained some freedom with my monitor, but I have gained lifelong friendships; so much education about epilepsy and SUDEP.
I have found a safe haven of friends to talk with about a subject that not a lot understand... at CHF Everyone understands... they are caring and compassionate...
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The foundation is amazing!!!! They helped get my daughter a monitor for her seizures. I am forever grateful for all they do for everyone!!!!
Use this link to register in advance so my family and I are aware of how many people are going to be attending the walk this year.
https://events.com/…/west-virginia---stomp-out-epilepsy-and…
Here's my story of how I became apart of the Chelsea Hutchison Foundation Team.
In 2012, I attended my first Chelsea Hutchison STOMP in Winchester, VA at the Wellness Center near the hospital. I was 14 years old at the time and I was so inspired and so happy to see all these people support such a wonderful cause. A disorder that I thought I was alone with for years. But that year made me realize that I'm not alone. There are others other there whom have the same disorder as me and they are doing something to help support the cause.
In 2013, I was granted a smartwatch from the foundation. It has helped me so much over the years living with Epilepsy and I pray every day that each and every day will get better. That same year, I wrote a song called, "Purple Flame" that came to be the song that Julie Henckel Hutchison wanted to play at all the walks. At first it started to be just a poem that I had wrote in my lyric journal. Then my mom stumbled across the song and had asked Daryl Gene Dunsmore to help write the music for it. He did and I got to record that song that same year. I was only 15 years old. My very first "stage" performance was in Winchester, VA at the 2nd Annual Chelsea Hutchison STOMP. During that performance I saw the audience in tears because that song has touched so many hearts because they knew or know or love someone whom has epilepsy.
(Fact: That song is still being played at all the Chelsea Hutchison STOMPs to this day.)
In 2014, I attended the 3rd Annual Chelsea Hutchsion STOMP in Winchester, VA. My second year singing my song and my first year selling merchandise. Yes, I created my own "Purple Flame" t-shirts to help raise money for the foundation.
(Fact: I still have those shirts for sale at this year's STOMP. If you attend you can purchase a shirt to help support Epilepsy and SUDEP.)
In 2015, I attended the 4th Annual Chelsea Hutchison STOMP in Winchester, VA. My third year singing my song, second year selling merchandise, and first year starting to write a book about my life with Epilepsy. Still unsure of what I would title the book, but it's still a work-in-progress.
(Fact: I am still writing that book to this day.)
In 2016, my mom and I start working together to start a Chelsea Hutchison STOMP in West Virginia. But until that happens I attend the STOMP in Winchester, VA. My fourth year singing my song, third year selling merchandise, second year writing my book, and first year starting up a STOMP in West Virginia.
In 2017, the Chelsea Hutchison STOMP finally came to West Virginia. It was held September 23rd, 2017 at Baker Park at 1 p.m. I was 19 years old when I hosted my first STOMP. It was hard for me to talk about somethings because I have such a soft heart and I understand what those people with Epilepsy are going through because I'm in their shoes.
But I can't talk about 2018 yet, because the walk hasn't started yet. This year I hope you all can attend and help be apart of my story and my journey.
XOXO - Rebecca Lynn
The Chelsea Hutchison Foundation has been the BIGGEST blessing to us. My twelve year old perfectly otherwise healthy boy had a grand mal seizure in his sleep on April 22nd, resulting in a hospital stay and a trip to Children’s Mercy, where we were diagnosed with definite epilepsy. His EEG showed signs of both focal and generalized seizures so they are unable to pinpoint which kind of epilepsy he has, but we do know the majority of his seizures will occur in his sleep. I reached out and without hesitation, the Chelsea Hutchison Foundation provided us with an EMFIT monitor to monitor Brayden while he sleeps. They are amazing. Being a nurse I love being able to give back and help care for people’s loved ones, but I hope some day I can look back and say I made half the difference in someone’s life as the CHF has made for our family. Thank you again.
This Foundation is near and dear to my heart. The work and good they do is immeasurable and so needed in our community.
This amazing foundation has helped us more then words can describe!! They purchased a seizure detection smart watch and subscription for us. It may not take away my husband's scary seizures but this watch has helped give us a piece of mind when we are away from him. We are from Ohio and reached out to a local epilepsy foundation here- that we had supported for years. With no response. :( The Chelsea hutchison foundation responded to us right away!! For this we are forever grateful!!! They are Awesome caring people! We will forever support this foundation and share it with everyone!! Thanks from the bottom of pur hearts!
The Shepherd family
This is such a positive, caring place. Providing parents such peace of mind. I was so touched to read Chelsea's story and see what they are doing for people. I will always be a part of this and encourage awareness. Really special people with big hearts!! Thank you for all you do
I have epilepsy really bad and this foundation donated me a seizure watch. I can now track my seizures better and show my dr.
The Chelsea Hutchison Foundation serves individuals, families and communities affected by epilepsy by raising Awareness of the common yet little-known condition SUDEP (Sudden Unexpected Death in Epilepsy), by providing support and equipment for prevention of this occurrence, and by creating a safe space and raising awareness within the greater community. The Chelsea Hutchison Foundation grants comfort and hope to those affected by epilepsy through providing monitoring resources, vital information, and a safe haven for conversation and community.
I am an individual who is sixty-one (61) years old and I have had to deal with the challenges of epilepsy for over thirty (30) years now. I have been very lucky to know and be in touch with this great organization for many years, now. One of my favorite events, that occurs in the month of November each year, that I truly enjoy seeing them is at: "Epilepsy Awareness Day at Disneyland (www.epilepsyawarenessday.org)". The work that they do there truly helps me and so many other people.
They also provide grants for seizure-response dogs and epilepsy monitors for those in need, they educate the public about SUDEP (Sudden Unexpected Death in Epilepsy), and they provide support to those who have been affected by SUDEP. The Chelsea Hutchison Foundation exists to raise awareness about a truly important subject: SUDEP, in an effort to grant comfort, hope, and positivity to individuals and families living with epilepsy.
I can truly say that the "Chelsea Hutchison Foundation" is devoted to helping all those living with epilepsy to live with dignity. I am truly gratefule for the wonderful work that they do each and every day.
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The "Chelsea Hutchison Foundation (CHF)" is a Colorado based non-profit corporation formed by "Julie and Doug Hutchison" to provide help and support to individuals, particularly children and young adults, who have epilepsy. They raise important awareness of the common yet little known condition called: "SUDEP" (Sudden Unexpected Death in Epilepsy), by providing support and equipment to assist the prevention of this occurring, and by creating a safe space and raising awareness within the greater community. Funds raised by this Foundation provide grants for "seizure-response dogs" and epilepsy monitors for those in need, educate the public about "SUDEP", and provide support to those who have been affected by "SUDEP". Thanks to "Chelsea Hutchison Foundation", there are so many more people making a big difference in the lives of those who struggle with "seizures" and "epilepsy". They are a very special grass roots, volunteer-based "Foundation" that is committed to getting support and relief into the hands of those who need it. I fully support this wonderful organization and the truly important work that they do, each and every day.
As the parent of a son that has passed from SUDEP, my experience with the Foundation is a little different. They give me the ability to support others through shared information, experience and kindness. There's nothing better when you are having troubles than to speak to someone who knows what you're going through. Knowing that they are saving lives, supporting families and making a true difference in the fight against epilepsy is a salve to my broken soul. I have recommended them to countless parents seeking information and support.
Amazing foundation and Mama who started it. Absolutely changed my family’s life and actively saving my son’s life!
Reached out to foundation, after being told by 4 year old LGS son’s Neurologist that he needed one right away and I heard back from Julie IMMEDIATELY! She told me she’s be honored to help my baby! Within 2 DAYS, I had it!
Thank you so much for providing this life-saving tool for us. There’s already so much I can’t do to protect him. Yet, you’ve given me this amazing tool! I cannot imagine what Julie went through, but what’s she done to honor her daughter is saving so many other Mama’s babies. I am beyond grateful and humbled ❤️
My son, Logan was diagnosed with juvenile myoclonic epilepsy almost two years ago. Before his first seizure he was a sophomore in high school, on the varsity wrestling team, very outgoing, with dreams of becoming a chef. His neurologist said " no more wresting, and no more cooking". This news crushed him. He got depressed and lost interest in many things and felt he was all alone. He was soon placed on home'school because of the seizures.. I reached out to the Chelsea Hutchison Foundation for support. I applied for the trip to Disneyland for the Epilepsy Awareness Days. To our joy he was one of the chosen for the trip. While on the trip met so many kids with the same disease as him. He smiled for the first time, his depression was less and asked if he could try going back to school, because he now felt not alone. He went almost 6 months without a seizure. So I agreed he could go back to school. Julie from this foundation told me about the smart monitor watches and they gifted him with a watch. This gave me peace of mind knowing when and where he would be if he had a seizure. In January of 2018 he went back to school but, the stress of school caused him to have 9 seizures within a week, which caused temporary hearing loss from so many. He immediately went back to home-school. His smart watch notified me, his brother and grandfather of every seizure and we were able to respond quicker to him. I truly believe had we not had the support of Julie and the Foundation my son would still be in a state of depression and I would have no way to know when Logan has a seizure. The CHF is an amazing organization that helps thousands by their efforts. They bring so much awareness, education and hope to so many.
My sweet girl had her first seizure at 3 years old, little did I know that it was going to catapult me into a life of sleepless nights and a ton of uncertainty. We received a Dog Grant from CHF and our boy has changed our lives. We also were winners of a trip to Disneyland, where we made life-long friendships! I have an incredible support system with these other parents and she made friends that she’s not afraid to be herself with! This foundation has opened doors for us and given us so much comfort.
This foundation brings much needed awareness about SUDEP to families caring for loved ones with epilepsy. They also provide essential monitoring devices to assist families in caring for their loved one. There is no replacement for the peace of mind these life saving devices provide. Wonderful organization.
The Chelsea Hutchinson foundation has helped many families and children that suffer from seizures in honor of her own daughter. My daughter has dravet syndrome and we have found a lot of support from other families united from this organization.
How do you start to explain the amazing experience this non-profit provides? I love the fact that this is a small but passion driven foundation. Every bit of the founders, board and volunteers goes into this work. Not one person takes a salary, every minute, every dollar goes to helping those in need. The community that this group creates is life changing. I do not have a family member that has epilepsy but the education I have received is astounding and knowing each minute worked and each dollar donated is literally going to save a life is priceless! Julie (the founder) is truly an inspiration!
The Chelsea Hutchison foundation helped get my adult daughter the desperately needed seizure alert service dog she so badly needed. I cannot thank them enough. They truly help save lives.
This is an amazing organization! My daughter has non-stop seizures at night. This organization provided seizure monitors to my daughter so we can monitor her at night. We were also granted a trip to Disneyland for Epilepsy Awareness Day last year. To say that this was life changing is an understatement. These guys are completely amazing.
I call CHF the 'little engine that could.' They are local to the Denver area, and started out of their place of grief after losing their own daughter to SUDEP. How they could be strong enough to help anyone after losing a child, is beyond me, but they did!
When I found myself terrified that I would lose my son to Epilepsy, it was Julie Hutchison that helped me find the info, Dr.'s, alert monitors, & even a Service Dog Company to help keep my youngest son safe. I truly believe that had it not been for her help, that I would have lost him! It's still a daily battle for him, and I live in constant fear of what could happen, but am ever grateful for the SmartWatch, the trip to EADDL, and the shoulder to lean on when I was at the end of my rope. The Hutchison's are amazing people, and have changed our lives forever. Thank you seems so very inadequate for all they have done!
This foundation assisted my son with an Emfit monitor that alerted us to two seizures that he had that would have likely cost him his life as he was sleeping face down at the time. They also assisted my son with fundraising efforts for a seizure alert service dog. Far beyond their help, they have offered our family genuine love, tenderness and caring keeping in touch with us throughout the years far beyond their gift of help. They have been true treasures in our life in every sense of those words. When things are hard they offer us conditional support, words of encouragement and unconditional understanding when times are rough. They celebrate our joys and acknowledge all that comes along with parenting a child with special needs. The Chelsea Hutchinson Foundation is every ounce an incredible blessing to all the lives and families that they touch.
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Sometimes when you feel that all hope is lost, God sends you special people who enter your lives to remind you that you are loved and true help exists. Our son Noah suffered a global brain injury at birth and as a result is unable to sit, walk, talk, crawl or self-feed. We explored obtaining a service dog for him to assist him with mobility, stability and seizure response. Without even batting an eye, Julie was there for us sending us the gift of a grant to help provide Noah with a service dog, and she also gave us an Emfit monitor (something we didn't even know existed until she told us about it). A monitor that could detect if Noah had a seizure in the night so we could get to him right away to give him assistance. Out of of the tremendous great pain of losing her daughter Julie has turned her grief towards helping others in any way that she can. She has been our angel more than once. She is so genuine and has the biggest heart. We love her dearly for all that she has done for our family and countless of other families in the community.
Several years ago my daughter, Jordan, was awarded a free trip to Disneyland from the CHF. It was a total surprise and a blessing of a lifetime. Jordan has Dravet Syndrome and has battled seizures her entire life. We are a one income family and I never could have afforded a trip like this on my own having Doug and Julie with us was both helpful and so comforting! God bless and multiply the good work you are doing!
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Fighting epilepsy every day is hard--watching your child suffer from seizures. The only thing more difficult is watching your children die from a seizures and working hard to do good to others and keeping their legacy ALIVE! Doug and Julie do just that and honor their daughter, Chelsea, by helping other families fighting the same fight they did. So thankful for organizations like The Chelsea Hutchison Foundation!! Here's to the good people in life!!!
CHF is incredible! Truly the most giving and caring nonprofit I have ever known. My 6yr old has a seizure response service dog & best friend because of CHF. I cannot begin to express my gratitude for CHF! They are truly a blessing to our family and to so many families I personally know in our Epilepsy community.
This foundation is the hardest working most awesome foundation. They may be small but they are mighty determined. Not only by Providing movement monitors, smart watches and seizure response dogs, they work tirelessly to create a whole community that is available for support and comfort. They raise funds to send families to epilepsy awareness day and as a recipient pf this trip we can say it is totally life changing. The familes and friends we made will be for a lifetime.
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The Chelsea Hutchinson Foundation has been a blessing in many ways to our family! The fantastic SAMi Motion monitor the provided us with has been life changing for my whole family, not just our daughter Halle. Living in a small town Epilepsy and sudep are basically unheard of. Having a new community to reach out to and have the kind of support for my child and for myself has been amazing. Julie has inspired us to educate people, and do what we ca to give back to those just like us!
At the time, my 18 month old son had started having seizures with no explanation. They were occurring multiple times throughout the night & it was terrifying & impossible to sleep at night. Someone from the community mentioned the Chelsea Hutchison Foundation & possibly getting a monitor for his bed. After sending in information - it wasn't long before we received the Emfit monitor for him. It has alerted us numerous times of a seizure occurring & we couldn't be more grateful. He is now 2.5 & the monitor has been such a great relief for night time. Julie is absolutely amazing & dedicates a tremendous amount of time into the foundation & we are SO thankful!!!!
CHF has been a God send to our family. We now have peace of mind at night. We have two sons with epilepsy, ages 24 and 18. The Sami Alert we were granted has not only educated others about recognizing seizure symptoms and first aid, it has also saved our son on more than one occasion. The video recording educated our friends, family AND his teachers. It also aided his doctor to see exactly how his seizure started and progressed. I have since referred CHF to several other families in need. We believe in it so much that friends chose CHF AS THEIR CHOSEN CHARITY for their recent lemonade stand. My son's swim team also held a swim-a-thon to raise $ for CHF. Top notch much needed group that helps families directly.
My daughter began having seizures at age 11. For two years I struggled with balancing my career and her health. I ended up leaving my well paying job for one that was more flexible allowing time to care for her. I felt alone and financially strained. I couldn't sleep at night due to her seizures and fear of SUDEP. After finding Thr Chelsea Hutchinson Foundation and my daughter being a granted a monitor our lives have changed. We can now sleep at night with less anxiety. I have an incredible support group through CHF. At any time day or night there is always someone through the community available for support. We are blessed to have found a foundation as wonderful as CHF. We love the Hutchinson Family and their mission. I can't even imagine how many people have been saved by their good work. My daughter and my family are grateful to have them in our lives.
The Chelsea Hutchison Foundation is an amazing group of people. I am 34 years old and have had uncontrolled epilepsy for the past 14 years. I have been on many many different medications and 2 VNS surgeries. I have been on the ketogenic diet but still have many seizures each day. I finally agreed to get a seizure response dog but was unable to afford the enormous price tag. That's where the Chelsea Hutchison Foundation stepped in to help. I have now had Brody for over a month and not only is he responding but alerting as well. I could not ask for more. When I was at my lowest they stepped in and offered help. Thank you a million times over.
Julie helped me get a Sami monitor for my son who was having 100's of seizures a day. She is a very sweet lady who clearly has a heart to help people.
They helped me get a seizure monitor. It gives me amazing piece of mind and allowed me to sleep for the first time in years.
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Update on Chastity Medina we knew she was having lots of Sezures so we was blessed with a Sami cam through The Chelsea Hutchison foundation thank you .We did not know untill the Sami that Chastity was having multiples every night right around the same time odd I don't know but we saw 20 Sezures in 1 night we are traveling 3 hours to University of Miami to see A Nuro .
If it wasn't for CHF I wouldn't be able to get the information that I needed to obtain my service dog.
It all started be a simple comment I made to one of CHF posts that was shared on Facebook.
CHF has been amazing to work with, I honestly can't say enough great thing about them.
The Chelsea Hutchison Foundation is wonderful! As a single mom with a 7 year old daughter that has been battling seizures since birth, the seizure movement monitor is priceless to my daughter's safety and independence. Thank you CHF! What you do is amazing!
My experience with the Chelsea Hutchison foundation started years ago. I turned to them as a resource for information about epilepsy and how it impacts education. They were an excellent resource, providing information on tools to help my son succeed academically. They have provided tools to help, as well as information and support in helping my son get his education.
Recently, my family had the opportunity to participate in Epilepsy Awareness Day in Disney Land. What a life changing experience! We were surrounded by people who made us feel like a part of something. Everyone was warm, wonderful and very kind. We immediately formed friendships that I hope will last a lifetime as a result of that opportunity. I can only say that the Chelsea Hutchison Foundation is truly an organization devoted to helping those with epilepsy to live with dignity. They are there for their families, loved ones and caregivers as well.
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As the single parent of four boys, even the barest of necessities are often seen as a luxury. My son has epilepsy, and faces many challenges as a result. I have always wanted to take my kids to Disney, but my income, coupled with concerns my child's health, made it a far off dream. I am a member of the Chelsea Hutchison Foundation's online community, and saw that they were offering an opportunity to attend Epilepsy Awareness Day in Disneyland. I contacted the foundation, shared with them my son's story, and my desire for him to meet others like him who understand his condition, and perhaps make a friend. To my utter disbelief, they awarded my family with the opportunity to participate in E Awareness day in Disneyland! They are REAL people, helping REAL people. I am so thankful for their dedication to the E community. They are an inspiration
After finding out about CHF and receiving a life saving monitor for my son I realized how amazing CHF is. They provide piece of mind and support for families in need. They raise awareness of epilepsy and sudep. I have started helping them raise awareness and realize how many people just don't understand epilepsy and how many people do not know about these life saving monitors. Thank you for for all you do, you are amazing behind words.
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I give the Chelsea Hutchison Foundation a 5+ star. This foundation helps so many families get seizure monitors and seizure response dogs. Julie and Doug are caring generous people that want to do as much as they can to prevent SUDEP and make people aware of SUDEP and epilepsy. They provided my son with a seizure monitor and I can not express how grateful I am. Before we go the monitor I did not sleep in fear my son would have a seizure and I would miss it. I can now get some sleep knowing the alarm will let me know if he has a seizure. The emotional support from the foundation and other families that are part of the foundation is also wonderful. It is nice to have people to talk to , ask questions and get support from that also are affected by epilepsy. I wish I lived closer to Julie and Doug so I was able to volunteer more. I am more than thankful that I found this foundation. Thank you for all you do for the many many families you reach out to!!!! And I don't want to forget the mention how quickly Julie responds to emails or facebook questions and gets monitors out right away after receiving the application.
Chelsea Hutchison Foundation is a very caring and helpful organization. They don't stop in pursuing their mission. Their tireless energy enables them to keep going as they focus on helping as many as they can. Through a family member, they found out that I have epilepsy. They immediately embraced me and educated me on many things that the medical society neglects to address. The foundation helped me to obtain a Smart Watch monitor that has been helpful in living with my condition.
Chelsea Hutchison Foundation has helped so many families to achieve a greater peace in the midst of the greatest chaos and feel a sense of belonging when stigma is at the highest. We have greatly benefited from being a part of the CHF family. Chelsea Hutchison Foundation is the best non-profit I have ever worked with. Both my Epilepsy Warrior Boys have received a SAMi monitor, this has been life changing for our family!
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The Chelsea Hutchison Foundation is one of the best supportive organizations for Parents who have children with seizure disorders. The offer a great supportive community filled with information, advice and sharing of experience with other parents that outshines any other. The members have have provided much needed advice and support in times of distress, comfort and love in times of overwhelming stress. That would be enough to have me recommend The Chelsea Hutchison Foundation to any parent who has a child suffering from Epilepsy. They go above and beyond by fundraising and reaching out to Parents to help them obtain Seizure Monitors and Service Dogs, which is life changing. I could never thank them enough for the SAMi Monitors they provided for my Epilepsy Warrior Boys. The peace they have given me is priceless!
The Chelsea Hutchison Foundation, Julie and Doug have made a great impact on our life. By providing a sleep moment monitor for my son, it has given my son more independence. They are dedicated to raising awareness . Through the foundation we were given the opportunity to go disneyland during the epilepsy awareness day. We meet so many people and now have life long friends all thanks to Julie and Doug.
The Luna Family
Indiana
The Chelsea Hutchinson Foundation is a wonderful organization. I live in Indiana and found out about the organization through reading other families positive experiences on social media. My husband and I were ecstatic and felt a great peace of mind knowing The Chelsea Hutchinson Foundation can provide us with a SAMi monitor for our son who has Dravet Syndrome. We are beyond grateful!
This organization helped fund our SAMi alert system for my daughter with intractable epilepsy. We couldn't afford a system like this without this wonderful organization! After getting the system I was able to notify her doctor she was having hour long seizures during her sleep. Without this system we would have never known! Thanks so much Chelsea foundation!
The Chelsea Hutchison Foundation has been wonderful with helping on advice for our son Logan (9). They also were amazing with working a way for us to receive a SAMi video monitor. This has been an extreme help, not only did they assist with our costs involved, but more importantly helped with peace of mind and as parents we are able to sleep better at night, in the event Logan has a seizure. We are greatful for their assistance in memory of their daughter. Thankful for all they do!
This is a family-based foundation that was created after the loss of a beautiful girl (their daughter) named Chelsea. They have made it their mission and Chelsea's legacy to ensure no more lives are lost to SUDEP. During the time when I had recently given up my full-time employment (and bread-winner role in my household which made the medical bills that much more overwhelming) to care for our infant daughter with epilepsy, The Chelsea Hutchison Foundation subsidized the cost of Emfit, a movement monitor to detect seizures during my daughter's sleep. This not only took away from some financial stress, but provided an invaluable gift of peace of mind so I was able to sleep at night once again.
Julie is a selfless, empathetic, determined woman. She is my epilepsy hero.
Great organization!! Live the passion they have to bring awareness to others. The world is a better place because of CHF!
What an absolute amazing foundation! With the Sami cam we received we are blessed! This foundation served as many things including supplying life saving devices/resources. Helping families in many ways to learn more about epilepsy and even help with sending them to a once in a life time (for some) trip to epilepsy days at Disney! I can't say thank you ENOUGH.
I only found out about CHF a short time ago... But can already tell that it's an AMAZING resource of information and help! We have adopted a little girl with a severe seizure disorder (hundreds of petites a day along with multiple grand mals a day), cerebral palsy, autism, fetal alcohol syndrome and ADHD. Our greatest concerns are here seizures. I have not been able to find a good resource of information and support until stumbling across The Chelsea Hutchison Foundation. I have learned so much! And finally glad to feel like I'm NOT ALONE! Most of her GM's happen while she is asleep... So I have found out about special devices to look into that can help put me at ease. Thank You for EVERYTHING You Do for Every Child & Parent that you have touched!!!
April
I cant thank Julie enough for all the blessed things they do for others to share the word of SUDEP and to help prevent SUDEP. Thank you so much and god bless this family for all there couragous things they do.
I can't thank The Chelsea Hutchison Foundation enough for their help with getting a SAMI Alert system for my son. Now I have peace of mind tucking my son into bed each night knowing I can keep a very close watch on him and catch seizures that otherwise would have gone missed. Julie is such an inspiration to myself and so many others for all that she has done to help others and spread SUDEP awareness.........thank you from the bottom of my heart for all you do!!
We have registered to win Disney trips for the last two years, but haven't won. That's ok though. I am so glad that it led me to the Chelsea Hutchison Foundation and all of their wonderful resources. There is a ton of information thrown at parents of epileptic children and it's often tough to sort through. These guys have made the journey a little easier. Thanks for that!
I read about the foundation in my Doose syndrome group. They were offering a chance to win a trip to Disneyland. Not only after requesting an application were they quick but the coordinator was very professional. After applying there was fallow up and confirmation of my entry. I did not win, however the winners were notified right away. And there selection of the winners were great. A big thank you to the foundation and a congratulations to the winners of tje Disneyland trip. I hope in the future to get more get more involved with the foundation. From all of Facebook's faundation page there are so many families who have been help. Hopefully our family can take a trip to LA for the epilepsy awareness month and join and contribute this year.
Without their help and may others my son and I wouldn't have been able to get our service dogs. They mean the world to us. They are not only an amazing non-profit organization but are also and amazing family. We love them greatly!!!
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Julie and Doug are not only my friends but have helped us get my 6yr old sons service dog. We have lots in common and can't express how much these two wonderful people mean to my family. They educate, support and go above and beyond to provide the most recent information and the highest quality of services. I believe they were sent to us through our children and will rejoice every exciting moment with them!!!
I truly feel The Chelsea Hutchinson Foundation is heaven-sent. From my experience they promote education, awareness & helpful resourses for anyone dealing with epilepsy & provide a much needed voice for SUDEP. I've gained so much crucial knowledge in my fight to make sure my little girl makes it through all the ups & downs of this condition. I feel like I finally have someone or someplace that truly understands my fears & supports decisions that as a mother are my responsibility. This is a great organization & I cannot say enough wonderful things about it.
We are new to the foundation and all that is being accomplished because of these great people. With that being said - they have been the most understanding, down to earth and generous people! I commend them for all that they do each day for anyone living with epilepsy! It's no doubt they are making a difference!
The Chelsea Hutchison Foundation sets the standard in non profit. Doug and Julie Hutchison have turned a personal tragedy into thousands of miracles for other families living with Epilepsy and seizure disorders. This organization goes so far above and beyond what is expected, that the benefits cannot be measured. They touch and change lives every single day. The information, connections, assistance and compassion they provide to everyone who reaches out to them for help can only be described as miraculous.
I've been so fortunate to have known Doug and Julie Hutchison for a number of years. I have watched them grapple with their own grief at having lost their precious Chelsea to SUDEP, and as they found a way to put their grief into action by establishing and building The Chelsea Hutchison Foundation. It is a lifeline to so many, helping to educate others and working with them to find ways to manage their illness. They are changing lives, providing grants for service dogs, monitors and an open forum for information sharing and support. Julie is selfless and CHF is a God-send to so many...
Julie and Doug have gone above and beyond what a nonprofit embodies. They are amazing wonderful people with hearts of Gold!
I have worked with the Chelsea Hutchison Foundation for over 2 years. Not only am I always amazed at the incredible work that they do in helping families in need of assistance in obtaining dogs and monitors, but the heartfelt manner in which they deal with people gives those affected by Epilepsy so much comfort. I do recommend them to anyone I know.
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I work very closely with Julie of the Chelsea Hutchison Foundation and am blown away over and over again at her ability to be a help to so many people with Epilepsy on so many levels, making monitors and service dogs available to people and providing a space for support. The foundation is personable and definitely deserves more that 5 stars.
Amazing charity, spreading not only awareness but a beautiful legacy of love of their daughter, helping people with epilepsy understand and conquer the terrible side effects of the disease
What an outstanding organization this is! The Chelsea Hutchison Foundation not only provides grants for seizure-response dogs, but also provides awareness, an online forum for people with epilepsy (and caregivers), and seizure-detecting devices, but it also offers a safe place to fall when you need it the most.
I have never met such a dedicated family going the extra mile everyday to help the legacy of their child live on. The amount of good they have done for other families is truly amazing.
I could never thank the Chelsea Hutchinson foundation enough!! Without them I had no strength. They let me know things would be ok, they donated a sleep monitor for my little girl to give me at least a little bit of peace at night!! They showed me I was not the only parent going through this nightmare. They will forever hold a special spot in my heart!! This foundation led me to my daughters seizure response dog company we are now working with and I am ever so great flu for them all!!
The Chelsea Hutchison Foundation is a saving grace for those individuals and families living with the numerous issues surrounding epilepsy. They were founded from pure love and offer that to others who are in need. It helps make days easier knowing you are not alone and that there is support and help available. Thank you doesn't even express the proper amount of gratitude others have for CHF. I will forever stay connected.
I can never be more thankful for the Chelsea Hutchinson Foundation & all they do to help those in need! The Hutchinson family I thank the Lord for having in my life. I have Epilepsy, so to see how they help others, uplifts & inspires me. They are a blessing to us all!!!
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I am writing this review as both a volunteer for the Chelsea's Epilepsy for SUDEP Awareness Walk that I had in my town, and a friend to the Hutchinson family. I'm so extremely blessed to hear stories when Julie has spoken and spread awareness about her beautiful, smart, loving, courageous daughter Chelsea. I can't thank Julie and Doug enough for what they do, and funds they raise. I myself battle Epilepsy, so to have them in my life I thank the Lord above. They love helping Epilepsy patients and I get to see and read it all the time on the Chelsea Hutchinson Foundation. They are so strong and I love them with all my heart!!!
The company I work for, Emfit, has proudly partnered with The Chelsea Hutchison Foundation for several years now and we are able to see firsthand what a difference this organization makes in the often very chaotic and unpredictable lives of those living with Epilepsy. The Hutchisons go above and beyond providing families with grants for seizure dogs and movement monitors, and work tirelessly with those affected by seizures - connecting families with other families living the experience through their inspiring CHF Walks, amazing fundraisers, and the CHF Facebook page and group. I think some may forget that CHF is an all-volunteer organization and everything they put together is done in their spare time BEFORE and AFTER working their day jobs. That's pure dedication done with love and in honor of their beautiful daughter, Chelsea. The impact CHF has made in the Epilepsy community is incredible and The Hutchisons are a true inspiration!
I love this foundation. I don't have epilepsy in my life, but am inspired to help Julie and Doug. To be able take the loss of Chelsea and create something that makes a difference in the daily lives and safety of those who have epilepsy, is beyond my comprehension. They work so hard to prevent deaths caused by seizures. I support this foundation heart and soul.
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I don't have epilepsy in my world directly, but have come to know many who do. Julie and Doug are 2 of those people. I am inspired daily by their effort to spare others from what they have been through and to do something amazing in Chelsea's name. I feel like I know Chelsea because they share her so candidly, and their ability to do that leaves me speechless, breathless and so wanting to help. I love that their approach is so personal...that we see the faces of the people who are being helped...that we learn a little about what life is like for them. It's quite special, and very touching. We love this foundation for what they do and for the heart they do it with. I volunteer to help when I am able, and feel so thankful to have found a foundation and people who inspire me!
Chelsea Hutchinson Foundation has been a breath of fresh air for my family and I.
Our three year old was diagnosed with Doose Syndrome this year. The word "Epilepsy" was never a mention in our home because we never thought we would have to worry about it. Since the diagnosis, I have felt lost in trying to learn more about this syndrome. I have been able to contact the owners of the Chelsea Hutchinson Foundation and get support, information and they even helped us to get the SAMI Alert system so we could have some peace during the night hours. Julie is an angel here on earth, doing work, despite her tragic loss of her daughter. The Chelsea Hutchinson foundation has been a true blessing for us and as they continue their work, they will continue to be a blessing for us and for other families in need.
I donated to this wonderful foundation and am thrilled to do it again!!I can't think of a better cause and am now trying to help a family in need of residence in AZ so their daughter can go to the Mayo clinic!!! This foundation is wonderful at keeping us all updated and current on all the seizure issues, Joe and I are proud to be a part!
My son Andreher w was, diagnosed with epilepsy at 3 years old. His seizures happened at night during sleep and scared us due to andrews frequent wandering and leaving the house. We were at our wits end on how to keep him safe while we slept. We also were clueless to what sudep was as well. Then after many nights awake searching for some type of help answers and what not I came across the Chelsea Hutchinson foundation. It was like a breath of fresh air for me someone out there felt my pain and new what I was going through I messaged julie she was so warm and full of compassion. She was able to let me know what sudep was and without her I probably never would have heard of it considering doctors failed to mention this to us. She gave me tips on how to keep Andrew safe and offered me something I went 2 years without SLEEP! She offered to ship us a monitor that would help detect events during the night! I could not believe it!!!! It gave our family peace at night. I am so thankful beyond words for julie and all the foundation does they are amazing! They also offered help in finding a seizure alert dog as well. This foundation is nothing but wonderful.
I found out about the Chelsea Hutchison Foundation through an online search. I hadn't got a good nights sleep in almost two years since my son was diagnosed with epilepsy at 6 months old. They are providing me with a life changing seizure monitoring device that I would not be able to purchase myself. This will allow me to sleep rest assured that my son isn't having a seizure and it will alarm me if he does. It will be wonderful to know my son is okay alone in his crib and I can monitor him with this device all thanks to this wonderful foundation. They truly care about families dealing with epilepsy.
I found out about Sudep in November 2013. My daughter was 23 years old. How after 23 years had I not heard about Sudep? I am internet savvy, & I am on top of all my daughter's illness-but not the one that could take her life. I found this organization through research online. I reached out right away, and Julie responded immediately. Sent me information, and then sent me a form for an Emfit. We received the Emfit a few weeks later. Julie also helped me in the research for a seizure response dog organization to help us. This organization is clearly top notch. Julie and her husband are saving lifes everyday. I can't thank them enough for the help and knowledge they have provided for our family!
My 3-year-old has cerebral palsy and epilepsy. Through the epilepsy foundation of Western PA I got referred to the Chelsea Hutchison's foundation. After a quick email to Julie all of my dreams came true. She provided me with a seizure monitor so I could sleep at night and not be so scared that my three-year-old would have a seizure while she was sleeping and I would not be with her. Julie and her foundation are wonderful!!
This foundation provides support, advise and financial aid to those suffering from epilepsy and their families, as well as families of victims of SUDEP (Sudden Unexpected Death from Epilepsy). The foundation was started by Chelsea's parents after she passed away from SUDEP. The family and foundation also advocates for SUDEP awareness. As a parent of a child with epilepsy I can tell you that we were unaware of the dangers of SUDEP, or the advances made in epilepsy treatment and support. The Chelsea Hutchison Foundation also provides grants for EMFIT and SAMi alert monitors and epilepsy service dogs. Julie has provided support and grants to those in the epilepsy community regardless of age, place of residence, etc. They have truly taken their heartache, and turned it into a beacon of support for so many who feel lost and alone. They have been there for our family since day one of our epilepsy journey.
Epilepsy came out of no where and shattered our world in Dec 2013. We struggled with about 16k in medical debt and reached out to 1 other foundation and they never responded. We reached out the the Chelsea Hutchison Foundation to get a monitor for our son and within a month of applying we had not only a response but a monitor in hand. I love this organization and everything they stand for. We since have started volunteering for the STOMP walk and we pay in forward when we can in honor of CHF. They have given my 4 yr old son, my husband and I sleep. we can all sleep with less fear of SUDEP. We cant thank them enough!
I have been able to find the Chelsea Hutchinson foundation and I am overwhelmed not only by how they helped me with a very necessary monitor for my child's severe condition but they have gone through an unimaginable tragedy with the loss of there child. When I reached out to them they were so understanding and kind. I was shocked how quickly they responded and helped by donating a certain device that can catch a seizure that my daughter was so in need of. Regarding my child's condition and the foundations that I have known for years never have I found a foundation so truly empathetic and understanding. They are a foundation that many should know of and help regarding the way they are doing everything they can for family's who's child suffers from epilepsy and possible SUDSEP. There are not enough words of thanks to give for the strength and help they give to so many.
Michelle Reed
As a volunteer for Domesti-PUPS we have partnered and participated in many of the great things the Chelsea Hutchison Foundation has done. I personally have referred individuals/families who are affected by Epilepsy. This foundation does so much not only to help families by assisting them in receiving watches, service dogs and many other tools that help to notify families when their loved one has had a seizure. I have also been a part of their fundraisers and have seen first hand where families can come together, network with others going through the same thing and find a wealth of information on new technologies, medicines, etc. that they did not know about. Wonderful organization with so much heart!
Hello-I am writing this review as both a Volunteer for the Chelsea Hutchison Foundation and as a friend of the family. I have seen what goes into the organization both behind the scenes and preparing for the fundraising events sponsored by the organization. At the very heart of this organization are Chelsea's parents - Julie and Doug. Their goal is to make sure every single person who is in anyway affected by epilepsy or knows someone who may be affected is aware of SUDEP (sudden unexpected death from epilepsy). It is what took their precious Chelsea from them even though none of the many doctors that treated Chelsea ever told them about SUDEP. In addition to educating people about SUDEP, the Foundation raises funds for grants for seizure alert dogs and seizure alert monitors. To date, the Foundation has provided grants for more than 100 monitors and more than 50 seizure alert dogs. Seizure alert dogs do just that - they are trained to alert their person that a seizure is coming, giving that person time to get to a safe place. Family members who lay awake at night listening to every sound in case their loved one has a seizure are allowed to get that much needed sleep knowing that if a seizure occurs, the monitor granted to them by the Foundation will alert and wake them. This Foundation is not only changing lives, it is saving lives!
When you are lost in a diagnosis for your child, friends and family tend to fall away... They just do not know what to say or do to help. Insurance companies can seem heartless, and their requirements insurmountable!
To find an organization such as the Chelsea Hutchison Foundation, that gently offers not only help with monitoring equipment, but with knowledge is beyond words of appreciation! The community that this organization has built, all in the ever present memory of their own precious child, is miraculous.
It is a community that we, as parents of children with seizure disorders need.
To be able to share in one another's struggle in the way family is supposed to. Thank you for helping all of us feel a part of Chelsea's life, and for being so concerned, genuinely concerned, for the lives of our children!
Dee
We met the Hutchison's after they lost their daughter, Chelsea at 16 to SUDEP a year after we lost our Donna, age 41 in "08. The work the Chelsea Hutchison Foundation does to help those children, young adults and adults living with Epilepsy is nothing short of a miracle. All funds raised goes to helping families with grants for em-fit monitors, seizure response dogs and other. They bring such joy to families struggling. There is comfort and compassion for those who have also suffered a SUDEP loss. Having met Doug and Julie in April at their benefit for the Foundation, they are two of the most generous and personable people you could ever meet. They will always help people with their questions and get them information should they need it in their state. We came from NY just to meet these two dynamic people who have turned the most horrible of losses into something great and positive as a tribute to their daughter, and it has spread from coast to coast and getting around the world. Their fundraising knows no boundaries and all suggestions are greatly appreciated. So for our family a friendship has been forged and it it's a wonderful one. They are our friends for life.
The Chelsea Hutchison Foundation is absolutely amazing. Julie and Doug are continuously striving to not only educate the Epilepsy Community, and Healthcare community about the very real threat that SUDEP(Sudden Unexplained Death in Epilepsy Patients) poses, so that others will not have to bear the loss of their loved ones, like their sweet Chelsea. They have provided not only service animals for people with Epilepsy, but EMFIT monitors andSmartWatches. This organization has touched so many lives and with it's success, will continue to touch many more lives in the present and future.
The Chealsea Hutchison Foundation provided the funds for Patches, my husband Robert's service dog. It is completely mindboggling how these dogs alert to an oncoming seizure. Patches kept Robert from crossing a busy street when he was going into a wandering seizure. I can now sleep at night without having to worry quite so much about nocturnal seizures, because Patches alerts before they happen.
The Chelsea Hutchison Foundation provides not just help to those in need, they also provide life-saving medical services and peace of mind. With the grants they provide, families who live with epilepsy can find comfort at all hours of the day with the addition of a new member of the family: A Seizure Dog. The education they provide about SUDEP, is invaluable. Too often overlooked in a Doctor's office, SUDEP takes more lives every year than breast cancer. Thank you Chelsea Hutchison Foundation for helping shine a light on what it takes to live, really LIVE with epilepsy!
ChelseasLegacy 10/07/2013
Thank you so much!
No one in my family has epilepsy, and I am thankful for that; but I know Julie Hitchison and am in awe of what she has done in memory of her daughter. Through Chelsea Hutchison's Foundation, I donated enough to provide a monitor for a child; and I know this made a difference. I wouldn't have known about this or how to do this without this foundation. Many thanks, Julie.
ChelseasLegacy 10/07/2013
My daughter was diagnosed with epilepsy at 16 months. After that our worlds came to a screetching hault when I found her blue and in responsive in her crib. Luckily with diastat and medical help we got her back. She was 18 months at the time, insurance wouldn't pay for a monitor so I didn't sleep for 2 1/2 years for more than 5 minutes at a time so I could check on her. We finally got an oxygen monitor bit she had to sleep with me so I could hear when it went off. At 4 she started complaining about having to sleep with me and so I started doing research and found the Chelsea hutchinson foundation and with their help we received a service dog that alerts me when her oxygen monitor goes off and has alerted to 6 seizures! Chelsea hutchinson foundation gave my little girl the independence that she wanted and needs and the piece of mind I need knowing she is safe. There's not enough kind words in the world I can say about this foundation!
Our daughter was diagnosed with epilepsy at just 10 months old. Our world was all of a sudden filled with fear and uncertainty. We had many sleepless nights worrying that she would have a seizure and we wouldn't even know. I was told about the Chelsea Hutchison Foundation, and we reached out the them for help. Without hesitation we were blessed with the Emfit monitor that we were so longing to have for Lily! The Chelsea Hutchison Foundation is a true blessing in our lives, and the lives of so many! There are no words great enough to express our gratitude and love we have for the Chelsea Hutchison Foundation!
We met Miss Julie not so long ago, maybe a month or two? The Chelsea Hutchison Foundation and Miss Julie have been handing out relief in so many ways.
I have a 5 year old epileptic son and they were able to grant us a Sami Alert System that we could not have afforded otherwise. Not only am I now able to show the neurologists exactly what I mean by "chills". Now I can rest a little easier.
Previous to that I was checking on him every 5 minutes or not sleeping at all! I am a firm believer in the need to be in constant attendance to all seizures of any form. I support CHF 100% in any and all endeavors they should choose to attend to.
We have been a part of this foundation for a very short time. During this time I've referred others to them and they have received monitors for their child's epilepsy. We are in the process of applying for a grant to help pay a portion of my daughter's seizure response dog. I've had the pleasure of meeting the founder and her love and concern for others does so much for those who feel alone. I can not say enough awesomeness about this foundation.
We are getting a service dog for our six year old daughter with help from Chelsea Hutchison Foundation. We thought about it for quite awhile, but after finding this foundation and learning about the various options for getting a service dog we went forward with the process. We are forever grateful to CHF for helping with the funding and look forward to getting our trained service dog through Noelle's Dogs four Hope next summer!
I learned about the Chelsea Hutchison Foundation approximately 18 months ago when my wife conducted an on-line search for our old friends Julie and Doug. We were very fortunate to have been friends of the family and unfortunately lost contact with them after moving to Virginia. We knew Chelsea and other members of the Hutchison's family while living in Highlands Ranch, Colorado.
When my wife discovered a link on the internet for Julie, she also found the story about Chelsea passing from Epilepsy SUDEP. She immediately told me about rediscovering Julie but also the sad story about their beautiful and caring daughter, Ms. chelsea.
Upon learning more about her passing and about Epilepsy SUDEP, we asked Julie what we could do in Winchester to bring SUDEP awareness and to raise funds for the CHF. She told us about the 5K planned for Sept 2012 in Colorado and if we wanted to do one in Winchester.
We accepted the request and within four months of the initial discussion we hosted our first 5K and experienced the success of hosting over 150 participants and volunteers at the event. We raised a significant amount of money and greatly raised the awareness of Epilepsy SUDEP in this community. We brought participants from WV, PA, MD and other parts of VA to Winchester. TV and radio stations interviewed Julie and other families that experienced the curse of SUDEP. Two local newspapers wrote articles about our event and the importance of the work CHF was doing in VA and throughout the U.S.
Since the first walk, we established the Winchester Chapter of the CHF and with the outstanding support of Doug and Julie, we encouraged the city of Winchester to honor CHF with a special proclamation for the outstanding services that CHF provided to local families, hosted a movie fundraiser, recently hosted the 2nd Annual 5K, encouraged high schools students to develop projects and partnered with local service organizations.
All the work we have done during the last eighteen months demonstrates the outstanding support provided by CHF to encourage individuals like myself and my wife to reach out and spread the words and provide funds to families with Epilepsy. The love and care generated by this Foundation has radiated throughout the country and brought seizure response trained dogs, Emfit Monitors and Smart Watches to many individuals and families. This is a very caring Foundation and we are very grateful for being a member of the extended family of volunteers assisting them.
The Chelsea Hutchinson Foundation has helped us a bunch! My daughter has seizures at night and Julie helped us get a emfit monitor for her. It gives us a peace of mind knowing that we all can get a good nights sleep without worrying about our baby. The Chelsea Hutchinson Foundation is heaven sent!! Wonderful people!!
I found the Chelsea Hutchison Foundation when I my daughter was diagnosed with seizures a couple of years ago. Julie was able to provide a lot of information that I had never known to ask my daughter's doctor about. When ever I have a question she is quick to respond. We were provided with an Emfit Monitor to help monitor my daughters seizures and this has literally been a life saver. I do not know what I would have done without the information that they provided to me.
The Chelsea Hutchison Foundation is the best foundation.. My daughter was diagnosis with epilepsy when she was 7 years old.. and she is now 15 years old .. I am telling you as a mom when your child has epilepsy you do not sleep well at nites.. I would get up all hours of the nites to check on my daughter. Last year we came cross chelsea hutchison foundation my daugther in there walk the year of 2012.. They have been there us and has help us.. this year my daughter was grant a smartwatch from the chelsea hutchison foundation and now I can sleep of the nite ... It feels good to be able to get a really good nite sleep.. The chelsea Hutchison foundation this the best Foundation out there .. they are so careing and when i need someone to talk to juile is alway there to talk to.. we Love You Juile...
The Chelsea Hutckison foundation helped my daughter with a grant for a service dog ! They have helped my family in so many ways by giving my daughter more independence in her life . They are a wonderful company and have helped so many families like mine
Found this agency online and simply contacted them with the hopes that they would point me in the right direction( I was looking for information on Smart-Monitors). They got back to me immediately and rather than point me in the right direction they took care of me themselves. Answered all my questions and within a few months even provided me with a Smart-Monitor! It was truly a dream come true. They have become a friendly support system that I can check in with regularly. Amazing people doing really amazing things.
I found CHF through a group on FaceBook over a year ago. Our precious son has had seizures since he was 7 days old (now 5). The foundation has granted him both an EmFit Monitor and a SmartWatch Monitor. The CHF doesn't question 'how bad' the situation is or what your insurance will not cover or what your personal income it. They base it on you asking for it. That's all, they want every person out there with seizures to be properly prepared so they don't have to lose a loved one to SUDEP. For the second year in a row I was honored to walk with the CHF Walk for SUDEP in Virginia while family also walked in CO. I was emotionally overwhelmed by the stories of generosity of the CHF. They care. A lot.
Very new to all of this, My daughter was newly diagnosis with generalized epilepsy, I ran across the Chelsea Hutchison Foundation as I was looking for support, education, Sine becoming friends with Julie she has help in ways she will never know! Wonderful woman! God bless her every day! We learn so much from the foundation and the SUPPORT is out of this world! has help in many time! All the education, love helping hand and listing ears! CAN NOT thank them enough! I will do what ever I can to help support this Foundation and anyone who becomes apart of it!! THANK YOU from the bottom of my heart
Brenda Lincoln
The CHF is the most client/community focused organization I have ever been involved with. When Julie learned that my son couldn't sleep alone due to his fear of having a seizure through the night she worked diligently to obtain a sleep monitor. This allowed everyone in the house to finally get to sleep through the night. When it was time for Brandon to go off to college, Julie once again helped our family by obtaining the newest technology available ( Smart Monitor) so we could stay connected with Brandon. The CHF has given us peace of mind and support as we maneuver through this challenge. More importantly they have given Brandon independence and self confidence.
The Chelsea Hutchison Foundation & our paths were destined to cross... Julie & Doug are genuine, caring people that have a way of treating all those they come in contact with like members of the family. Their time, dedication, & passion for their work have impacted the lives of so very many people. Our family included. We truly admire CHF & everything they do to spread epilepsy/SUDEP awareness. They embody their mission statement to “grant comfort and hope” by providing a countless # of seizure-response dogs & movement monitors to those in need. Their everlasting love has kept their daughter, Chelsea’s legacy alive!
We had the pleasure of being introduced to Julie and the Chelsea Hutchison Foundation this year. This Foundation helps to raise Epilepsy Awareness and SUDEP. I know personally that this is not just your everyday Nonprofit. They have helped many of our clients here at M&R Pet Academy, LLC by providing them with grants for a Seizure Response Dog. They help in many ways to get those in need of assistance by providing them the sources and resources they might need. The Chelsea Hutchison Foundation goes above and beyond to help as many people as they can as they strive to become one of the biggest Foundations and Nonprofits in America. We love working with the Chelsea Hutchison Foundation and it really has been a pleasure to know Julie from the Chelsea Hutchison Foundation.
I cannot say enough about Julie and Doug Hutchison and the Chelsea Hutchison Foundation. They have done so much for so many including my daughte. They gave her an Emfit Monitor when she needed it the most. There have been tines when I wouldn't know what all of us would do without what they do in educating people about SUDEP and how we can protect our kids.
The Chelsea Hutchison Foundation is one of the finest organizations out there. They have helped our family several times. Doug and Julie run this organization from the heart and are wonderful people!
My son Brendan is severely disabled and has uncontrolled epilepsy. He is at high risk for SUDEP. The Chelsea Hutchison Foundation provided my son with an Emfit seizure alarm for his mattress at no charge and with no delay. They continue to be a wonderful support via their social media group page and local events. I cannot recommend CHF any higher! They are absolutely wonderful!!
We truly believe that Chelsea had her hand in connecting us to Julie!! Julie is an absolute hero in our book, and is now a part of our family. We met Julie the very first time at the first Chelsea Hutchison walk, and have been to each walk since. Julie provided a grant for my daughters seizure alert dog, as well as a grant for an Emfit monitor. The hard work, and dedication of this amazing organization is simply remarkable!! We are truly blessed to be a part of such an amazing "family!"
CHF is wonderful! Julie is a true hero for all that she does for adults and children with epilepsy! It's been difficult to give up my independence because my seizures have increased. Talking with Julie about a service dog and beginning the process of raising funds has given me the confidence to tell others about my illness. It's a honor to be a part of such a great organization! Thank you CHF for your support! God bless! Diana Joy
CHF is an amazing legacy. With their wisdom and grief this family offers support, resources and grants for Emfit monitors and service dogs. They are not just changing lives but saving lives.
Chelsea Hutchison Foundation is near and dear to my heart. They helped my grandson get a seizure response dog. I'm always amazed at their dedication and commitment to the Epilepsy community. They work many long and hard hours to raise money to be able to provide grants for emfit monitors, smart watches and seizure response dogs. Quite honestly, Julie and Doug have a special place in our hearts. They are our charity of choice and we volunteer to help them when we possible.
This is a wonderful organization! Finding this organization has been a blessing in the lives of my family, specifically my 11 year old daughter who has epilepsy. We met Julie Hutchison last summer and she is so kind, generous and strong as she dedicates her life to helping prevent others from losing their loved ones as she has lost hers. We are so grateful for the CHF and know that prayers were answered when we were directed to them!
CHF provides critical services to the epilepsy community such as grants for emfit monitors, smart watches and seizure alert dogs. These are all very important in helping people say alert to seizures and to avoiding the risks of SUDEP. But most importantly, Julie and Doug Hutchison have fostered a warm, welcoming community where people can find the support they need in dealing with the challenges of epilepsy!!
I am so very greatful for this organization and it means the world to me and my family. We were trying to figure out how to pay for an Emfit Monitor for my son, and through the Chelsea Hutchinson Foundation, and Julie and Doug we were able to receive one. I know that this monitor has helped us in many ways, especially in being alerted to when my son is seizing at night. It has given us some needed peace and comfort in having him in his own room and us in our room. I can never ever say Thank you enough for their help, and generosity to us. They have become memebers of our extended family. We love them dearly.
This organization is so wonderful and Julie is incredible we were desperately trying to figure out how we would pay for a seizure alert dog for our son that is when I found Chelsea Hutchinson Foundation online I emailed our son's story to Julie, Julie emailed back the sweetest email and offered to help. I continue to be amazed at how many lives she has saved thought this wonderful organization. Julie also had buttons and magnets made for us with our son's picture on them that we were able to use for fundraising. This agency does so much to help our kids and spread awareness in our community.
ChelseasLegacy 10/07/2013
Thank you Amber!!! You and Robert (and Patches) are very important to us!