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2019 Top-Rated Nonprofit

The Chelsea Hutchison Foundation

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Nonprofit Overview

Causes: Epilepsy, Health

Mission: The Chelsea Hutchison Foundation grants comfort and hope to those affected by epilepsy through providing monitoring resources, vital information, and a safe haven for conversation and community. Our main goal is to raise awareness of SUDEP and to make a positive difference in the lives of individuals and families living with epilepsy. We raise funds to provide education about SUDEP and to provide seizure response dog grants, life-saving movement monitors that help to protect against SUDEP and grant wish trips to Epilepsy Awareness Day and Expo at Disneyland each year. We stay up-to-date on current trends in medical technology in order to be able to provide the most effective devices as they become available. We respect the value and quality of life of every person living with epilepsy. We are dedicated to providing opportunities that allow individuals and families greater independence, increased confidence, ability to enjoy social environments, and community understanding.

Results: As of August of 2019, CHF has provided 124 grants for seizure-response dogs and over 850 life-saving movement monitors for those in need. In addition, we have granted 89 families will all major expense paid wish trips to Epilepsy Awareness Educational Expo and Day at Disneyland.

Target demographics: Anyone who lives with seizures.

Direct beneficiaries per year: 500+

Geographic areas served: We provide to help to all 50 States.

Programs: SUDEP Awareness, Seizure-Response Dog Grants, Emfit Monitors, SAMiAlert Monitors, SmartWatch Monitors.

Community Stories

175 Stories from Volunteers, Donors & Supporters

Cymri V.

Client Served

Rating: 5

Life Saving for my daughter and son.
They provide grants for Epilepsy monitoring and bring awareness for SUDEP. Without our Sami and anti suffocation pillows we would be lost.
Just an amazing foundation.

Client Served

Rating: 5

The Chelsea Hutchison Foundation helped my family when we were going through a very difficult time with intractable seizures, coma, and lots of uncertainty regarding what the future would hold for our little guy if he pulled through. They are amazing people with generous and kind hearts, working to provide comfort to affected families, awareness about epilepsy and sudden unexpected death from epilepsy (SUDEP). They can help with weighted blankets, seizure monitoring devices, funding for seizure support dogs, travel expenses to the Epilepsy Awareness Day at DisneyLand, and many resources for families. They are a fantastic organization doing great work for families affected by epilepsy!

Joy Hulsey C.

Client Served

Rating: 5

This foundation has helped my daughter tremendously. A great source for information and a great community.

Donor

Rating: 5

Wonderful charity that educates and support families and those affected by Epilepsy!

Dana Goodin H.

General Member of the Public

Rating: 5

I have learned so much about epilepsy from this foundation. Things that I have not learned from any of my daughter’s Dr.’s. I am very thankful!

Angela R.3

Client Served

Rating: 5

This foundation is the most compassionate organization I have ever known. Thank you Julie.

Louise18

Client Served

Rating: 5

Julie and Doug have built a very well run and generous foundation in response to the tragic death of their beautiful (inside and out) daughter, Chelsea. My daughter was a teenager when they first began giving out funds for seizure alert dogs. Julie and Doug were very caring and helpful to us in making that happen. We have watched them grow into a much larger organization that still has that warm, personal touch. You cannot help but wish you’d met Chelsea but you can tell that she has an angelic hand in all that they do. I highly recommend this wonderful foundation.

Previous Stories

Client Served

Rating: 5

Julie and Doug helped my daughter get her seizure dog when they were first starting up. They were wonderfully supportive and helpful in the entire process. Since then, I have watched this organization blossom and become a national and even internationally recognized advocate for persons living with epilepsy and to spread awareness of SUDEP. They are people with the highest standards, and I highly recommend them.

Client Served

Rating: 5

This organization is amazing! They are helping us get a monitor for our son with Epilepsy so we can keep him safer at night. They are a kind, generous organization with wonderful people. Thankful for them!

Nicole T.5

Donor

Rating: 5

The Chelsea Hutchinson Foundation is an amazing program with amazing people. They came and gave me support when my daughter was in the hospital. I was so lost about epilepsy and knew nothing about it. We got a snack box from them when she was in the hospital. They also helped when she got out of the hospital. We got an imfit monitor the same day that she was discharged. The amount of love, knowledge, and support they provide makes you feel like your not alone.

1

Client Served

Rating: 5

A fantastic charity saving lives everyday! We reached out to them for a grant to help purchase our sons seizure alert/response dog and they wasted no time in responding and donating to help us reach our goal! We will forever be so grateful for them and admire all of their hard work and dedication to help save lives of those living with epilepsy!

1 Marla M.2

General Member of the Public

Rating: 5

Chelsea Hutchison Foundation has been just what our family needed 4 years ago.
We have become family with many members.
My granddaughter was gifted Chelsea’s wish 3 years ago. We gathered so much information at the expo at Disneyland. We met so many people and have built bonds with each and every one of them.
A couple years later talking with Julie about monitors there was only one available that might work. Granddaughter has non convulsive seizures. But it was out of the UK. With the help of Chelsea Hutchison foundation my granddaughter was able to receive this monitor. This monitor has saved her many time when her pulse rate drops to 0-48. She stops breathing during this time while sleeping.
Doug and Julie are angels on earth where their daughter is watching over them and everyone else.
I could not imagine life without them.
Ohana means family, and family means nobody left behind.
We love you Chelsea, Julie and Doug!

1 Tara L.3

Client Served

Rating: 5

The Chelsea Hutchison Foundation tirelessly works to spread awareness about SUDEP and provide monitors/service dogs for those living with epilepsy to have a sense of normalcy in their life. Our daughter has been the recipient of two different monitors; one that will alert us if she has a seizure during the day and the other while she sleeps. This has been a precious gift that provides us, her parents, a sense of security while allowing our 17 year old more independence. In addition to the life saving devices CHF provides information and understanding for families dealing with this neurological disorder. The impact that CHF has had on our family has been tremendous and ours is only one of the hundreds of families CHF has positively impacted.

1

Client Served

Rating: 5

My son (3) was diagnosed with epilepsy. His seizures happen at night time. We are so grateful to the Chelsea Hutchison Foundation for sponsoring our son to receive a SAMi 3 monitor. We are so grateful for them and the awareness they bring. We sleep much better now knowing we will be alerted if he has a seizure.

1

Donor

Rating: 5

The Chelsea Hutchison Foundation was there when we needed them most providing us with information on the prevention of SUDEP. The work they do for families experiencing Epilepsy is amazing and has given us peace of mind having a monitoring device in our home

1 Carrie H.2

Client Served

Rating: 5

After my daughter was diagnosed with epilepsy and started having seizures in the middle of the night I was terrified, I was barely sleeping. I reached out to the Chelsea Hutchison Foundation who provided my daughter with a seizure monitoring system at no cost to our family. It detects her seizures at night and alerts me so I can sleep soundly unless she needs me! A huge blessing the Chelsea Hutchison foundation is to so many families like mine!

Client Served

Rating: 1

This organization is amazing. They go above and beyond to help as many seizure/epilepsy families as possible. They are a great support system and work so hard to educate about the dangers of epilepsy and SUDEP. I have recommended this organization to everyone i know, and will continue to support them.

1

General Member of the Public

Rating: 5

When my son was recently diagnosed, we didn't know anything about Epilepsy. This foundation helped my family so much with a seizure monitoring device, and lots of information about Epilepsy and Sudep. Thank you Chelsea Hutchison foundation!!!

1

Client Served

Rating: 5

My grandson was chosen to go to Disney by this organization! The founder, Julie has dedicated her life’s mission no parent ever experience the loss of a child like she lost her sweet Julie. So much education is available because of her spreading the word about epilepsy. ! All monies raised go to help support families for children with epilepsy.

1 Les and Annie

General Member of the Public

Rating: 5

I am Canadian and I was the first person outside the USA to receive a "grant in principle" to assist in training my service dog. I did not use it and informed the foundation to pass it on.
The dedication of Doug and Julie Hutchison with all the volunteers in helping people and families impacted by seizure disorders is immeasurable. How does one measure the "peace of mind" and the "quality of life" the foundation has given people and families? I know the Hutchisons has always been there for me.

Previous Stories

Client Served

Rating: 5

Hello,
I was the first person outside of the U.S.A. to receive a grant in principle from The Chelsea Hutchison Foundation. The grant was to assist in the training of my service dog. I respectfully turned down the offer of the draft as I felt there was a family in need more than myself.
I have been in very close contact with The CHF for over four years and I can say I do not know of any other organization as dedicated to their mission and they are.
Thank you
Les Landry - President - Respect the Service Dog.

Read more
1 Angie D.2

Client Served

Rating: 5

The Chelsea Hutchison Foundation has gifted us with peace of mind that we are so grateful for. We received financial assistance to purchase a monitor to be alerted to night time seizures for our 7 year old daughter.

Working with the foundation was so easy and Julie is amazingly organized and supportive.

1

General Member of the Public

Rating: 5

I can’t say enough of what this organization does for kids with epilepsy. Imagine they send families every year to Disney no cost. Kids die from epilepsy everyday but no one talks about it. They are raising awareness

1 Kimberly H.9

Client Served

Rating: 5

If it weren't for the Chelsea Hutchinson Foundation we wouldn't have got our sons seizure monitor. They are truly amazing!

1 1jackson

Client Served

Rating: 5

I have personally seen the compassion in Julie Hutchison’s eyes as she listens endlessly to heartbreaking epilepsy and SUDEP-related stories. But it doesn’t end there. She makes sure that her foundation helps families in any ways possible. The Chelsea Hutchison Foundation is not a typical non- profit organization. It’s much more and it isn’t top heavy like many non profits, so money raised doesn’t get lost in layers of administration. I’m proud to be a volunteer there and grateful to be a monitor recipient. Thank you Julie and Doug Hutchison. Chelsea would be proud!

Previous Stories
1

General Member of the Public

Rating: 5

The CHF is a well run, honest, helpful, and amazing resource. I would highly recommend them for information, help, and compassionate support.

1 lralford

Client Served

Rating: 5

The Chelsea Hutchison Foundation has give our family so much support. When my daughter was diagnosed with epilepsy they were the ones that answered my emails. Gave me encouragement. They also worked with me to help provide my daughter with an emfit monitor. They gave me and my daughter our sleep back. I’m so grateful for their support and everything they do for people who suffer from epilepsy.

Previous Stories

Client Served

Rating: 5

The Celsea Hutchinson Foundation was there for my daughter when she was diagnosed with epilepsy. Desperate to find something to alert us of a seizure... I reached out to them. They responded that night. Were sympathetic to what my daughter and offered the support we were looking for. I'm so thankful for them.

1 Jennifer357

Volunteer

Rating: 5

I can't say enough about the CHF! When we were at our lowest, and lost as to how to help our son, they pointed us to the help we needed and walked beside us until we found answers. Starting with a listening ear, to finding us a Smart Watch Monitor, to guiding us to a Service Dog Company, then a trip to EADDL, where we found a Specialist, they have been there each step of the way. They work tirelessly in their daughter's honor to help others to not have to experience the same loss that they've been through.

Previous Stories

Client Served

Rating: 5

This Foundation has meant the world to us, and has done so much for so many! They led us to a Service Dog Company, a Smartwatch, Weighted blanket, and EADDL, where we were put in touch with Specialists who helped our son with his Epilepsy. Beyond that, Julie and Doug have been a source of strength and encouragement when things were so dark, when we thought we might lose our son. Only someone who has gone through that loss could be so kind and understanding, and I don’t know what we’d do without them!

Read more
1

Client Served

Rating: 5

They helped provide us with a seizure monitor for my son, when we couldn't afford it. It was such an easy process and we received it immediately. They didn't make it difficult at all.

1 Stacey H.3

General Member of the Public

Rating: 5

This charity puts time, energy, and love into everything it does. They have helped so many families, and brought so much awareness for epilepsy and SUDEP.
They are saving lives.

1 Jennifer Leigh M.

General Member of the Public

Rating: 5

This Foundation is amazing and the founders, the parents of Chelsea are truly amazing. It's beautiful to hear how many people call them their secondary parents because of how much they help. I have epilepsy and Julie has helped keep me safe in so many ways but not only that, she wipes away my tears in frustration and pain as well as my Mother when she talks about me. I will never not support this Foundation as it has changed my life and truly helped me so so much!

1 Kara M.4

Client Served

Rating: 5

We are so blessed by the Chelsea Huchison Foundation! They provided our 10 year old daughter a Seizure Monitoring System that has been a blessing to our family. We have an added peace of mind and can give her more freedom because of this system. I love how they are honoring the wonderful life of their daughter by helping others. I am very thankful for them and all they do to help others struggling with Epilepsy.

Previous Stories

General Member of the Public

Rating: 5

This charity is such a wonderful way to honor their daughter’s memory. Friendly and helpful people who are truly making a difference in the world!

1

Client Served

Rating: 5

This organization is beyond amazing! It started with asking about a used monitor to receiving a new one with a special pillow! We then began to fundraiser as we wanted to spread the word. The peace of mind we have from this monitor is God sent. We then became lucky winners of Chelsea’s Wish and were granted a special trip to Eadl! The information we learned was priceless!! The friendships will be lifelong! They treat us like family and we are beyond grateful!! We will continue to support this amazing foundation. This family took a loss and have helped so many others hopefully never have to experience that heartbreak. We love this foundation!!!

1

General Member of the Public

Rating: 5

When my son was at his worst for his seizures, the Chelsea Hutchison Foundation was a breath of fresh air! It was while we were in the hospital for his uncontrolled seizures that Julie let me know my son had been approved for a Sami monitor. I can’t tell you how after 5 weeks of being in the hospital and a 4 1/2 hr drive home to see the Sami monitor already at our house waiting to be installed felt to us. It was the best welcome home gift ever! This foundation took a huge amount of stress and worry off our shoulders and we will never forget their help in fighting this family with Lennox Gastaut Syndrome (LGS, Epilepsy)!

1 Michelle C.8

Client Served

Rating: 5

Wonderful non-profit! Julie and Doug are great people. My son won a trip in 2018 and he experienced so many new things while we were there. We went to the epilepsy expo in Disneyland and also learned a great deal while we were there. I feel it is also fantastic that they honor those families, including their own, who have lost loved ones due to SUDEP, by extending their Disneyland/expo trip drawing to families in honor of their loved ones.

The foundation also helps with monitors and service dogs as well for those with epilepsy, which I have no direct experience with but see many faces of those who have been helped

1 Emily B.5

Client Served

Rating: 5

Our family has been greatly blessed by the Chelsea Hutchison Foundation. After reading about Chelsea and how her memory continues to live through her parent's love for her and their advocacy for Epilepsy and SUDEP, I learned that CHF could possibly help protect our daughter through their assistance in providing our family with a seizure monitor. Julie made the process so simple and we are so grateful for the donations and fundraisers that make it possible for families like ours to rest easier at night.
Our daughter has also been chosen to attend EADDL this November and we are so thankful for this amazing opportunity. The Chelsea Hutchison Foundation has been life-changing for my daughter and our family.

1

Volunteer

Rating: 5

I have been granted two different types of seizure monitors and it has changed my life. My mom no longer has to constantly check on me to make sure that I had a seizure and passed in my sleep due to SUDEP. Another watch monitor that I received allows me to stay home alone, which my family was never comfortable with. I am in high school so this was a struggle for me personally. CHF has allowed my family so much freedom and comfort. Not to mention that Julie is the sweetest and hardest working person I know. She cares for everyone. I love this foundation. I decided to raise awareness at my own high school about epilepsy and SUDEP during volleyball season and donated all the money raised to CHF because I know how much it will save/change a live. Plus, Julie drove two hours to support the game and my speech.

1

Client Served

Rating: 5

I have a daughter who has something called dravet syndrome. She has seizures all day long into the night. To say I did not sleep is an understatement. The constant worry of what if she has a seizure during her sleep left me petrified. Then I found the Chelsea Hutchinson foundation and our life has not been the same. They were some of the most kind people I've ever dealt with. I mean complete strangers are reaching out and asking for something for nothing and yet they literally were so happy to help. We were able to get an extremely nice seizure alert system called Sami through them. Since I had to quit my job to stay home and take care of my daughter we would have never been able to afford this on our own. The sami has saved my daughter countless times with notifying me of seizures in the night. I have my baby girl today because of the amazing selfless work this foundation does. To be able to help others after going through such loss of their own is inspiring and makes the world that we live in a truly better place.