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AndreaG84

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1 reviews

Review for Twin to Twin Transfusion Syndrome Foundation, Bay Village, OH, USA

Rating: 5 stars  

On April 17, 2017, my husband and I gave birth to two beautiful twin girls, Ava Rose and Emma Linn. Sadly, they both passed away a few hours later due to complications from TTTS. A few weeks prior to their passing, my family got in touch with Mary Slaman, the founder of the TTTS Foundation; Mary provided us with much needed education, support, and comfort during an extremely scary and difficult time. After our girls passed, we received a beautiful bereavement care package, filled with informational booklets, TTTS pamphlets, coping resources, mementos, among many other things. It was a wonderful gesture of kindness from someone we had never even met. Over the weeks and months after our girls' passing, Mary often kept in touch with us, offering us support and comfort. The TTTS Facebook page was a source of information and solidarity with other families who had gone through our similar situation.

The TTTS Foundation works tirelessly to inform the public about what exactly TTTS is, and how to help women and families with twins and higher multiples handle TTTS. There are warning signs to pay attention to, and steps to take with your healthcare professionals once you are diagnosed with TTTS that every family should be made aware of. The TTTS Foundation provides critical information on where to go throughout the country if you need specialized medical treatment to help your twins or higher multiples survive. I just wish my husband and I knew about this Foundation sooner.

The TTTS Foundation cares deeply about every single family that gets diagnosed with this disease, and offers so much support in a variety of ways, whether that's through personalized phone calls, social media support, mailed resources, etc. All of these efforts take time and money to fund, which is why they need our support.

I have been invested in this Foundation and would love to see more awareness generated so families with twins or higher multiples can get the help they need, when they need it.

I am attaching some of my photos of the 5K I organized this past April to raise money for the TTTS Foundation. It's called the "Love Blooms 5K" and it was held in my hometown of Melrose, MA. It was a huge success and I hope to be able to continue my fundraising efforts next year for this wonderful organization.

The TTTS Foundation deserves 5 stars and so much more!

Role:  Donor