My Nonprofit Reviews

In 1997 while I was on extended business travel I had my first Lupus attack and was taken to John Hopkins Hospital in Baltimore. I was experiencing severe swelling, rashes and massive pain to the point that I could not move on my own. The doctors at the hospital had no idea what I had but treated me and told me to see a doctor specializing in Rheumatology once I was back in the Bay Area. I did and it was as if he was giving me a death sentence by only saying how sorry he was that I had this terrible disease. My husband found out about this organization and bought me a lifetime membership. The information that I found from this organization helped me to learn how to control the symptoms and what to do to live a somewhat normal life again. Through the articles and the comments from other patients I have learned more than I have from any doctor that I have worked with. Lupus still comes to visit me from time to time but I have found that through exercise, eating right and making other changes in my lifestyle that I can keep the "flares" down to a minimum and live with this disease. This organization taught me never to give up and allow Lupus to win. I cannot thank you enough!! You have changed my life forever!!

More Feedback