My Nonprofit Reviews

I was diagnosed with SLE 33 years ago. At that time the prognosis was very poor. Shortly after being diagnosed and starting prednisone, I became pregnant. In my fifth month of pregnancy I went into full blown eclampsia with grand mal seizures, kidney involvement (spilling 8 grams of protein) and fetal demise. An emergency c-section was performed and after suture removal I suffered wound separation and remained in the hospital for 3 weeks. After all this we were advised not to try another pregnancy. During these past years my lupus has not been in remission and I remain on varying doses of prednisone supplimented with chemotherpy drugs when needed. Lupus has been a true challenge in my life but I am grateful to have a supportive husband and frequent times when my symptoms are mild. I have learned to deal with all this by taking one day at a time and knowing that my condition could be a lot worse. I am grateful to the Lupus Foundation of Northern California for providing information on current studies and treatments and for educatiing the public on this debilitating disease.

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