My Nonprofit Reviews

Thanks to Preston March for Energy my 5 year old son Massiah can now safely enjoy riding a bicycle. Without this organization this simple yet joyful activity wouldn't be possible safety wise due to him being dx with Tuberous Sclerosis Complex, epilepsy, stage 1 kidney disease; in addition to ADHD and Autism Spectrum Disorder. We are extremely honored to have been chosen by Preston's March for Energy for an adaptive bike. Thank you again so much.

Finding out that my son had Tuberous Sclerosis Complex was one of the most difficult and heart wrenching days of my life. The Tuberous Sclerosis Alliance became an educational resource for me to gain knowledge about the NOW UNCURABLE condition. It also gave me the realization that no two stories are the same and my son DIDN'T have a death sentence over his life. The TSC Alliance also gave me a information on where to network and gain the support from other moms also fighting this battle with and for their children. I'm internally grateful for all that the Tuberous Sclerosis Alliance has done for families and people like my son whom fight this condition everyday of their lives.