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mcirish

259 profile views
1 reviews

Review for Lupus Foundation of Northern California, San Jose, CA, USA

Rating: 4 stars  

Being diagnosed with Lupus was scary. I had heard of it but knew nothing about it. When you have a diagnosis of a chronic disease the symthoms are constantly changing. I needed a resource that had current information as well as support to help me through each step. LF has given me that. I have attended symposiums, read the website, blogged others in my situation. All of this was only available with the help of LFNC. Thank you..

I've personally experienced the results of this organization in...

San Jose, CA. website

If I had to make changes to this organization, I would...

Hope they could present more symposiums in the San Jose area. Education and support.

What I've enjoyed the most about my experience with this nonprofit is...

education and support.

The kinds of staff and volunteers that I met were...

helpful, knowledgable.

If this organization had 10 million bucks, it could...

host more grassworks meetings. Send their magazine to those affected by Lupus for free.

Ways to make it better...

I could have attended a support symposium.

In my opinion, the biggest challenges facing this organization are...

continuing to reach the people who need the help the most.

One thing I'd also say is that...

thank goodness the LF is there for me and my young son.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  General Member of the Public & I received current information and support.