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Review for International Association for Hospice and Palliative Care Inc, Houston, TX, USA

Rating: 5 stars  

In the past, I studied to become pediatric intensive care physician. The main purpose of that decision was to fight against dead. Why? Well, with our husband we had two preemies baby in different pregnancies. It was to hard to believed that we can control everything but death. After I finished the felloship when I started to work in pediatric intensive care at the social security hospital. During that time, parents taught me different answers I wasn't expected to learn. It was their way to handle lost, death, their fear and so on. I learned too much and I decided to start a planning step to organize pediatric palliative care for an oncology pediatric hospital. After two years of working hard in this they accepted the propossal and I started to work full time in palliative care since august, 2005. This institution have a great philosophy in the attention of onchologic patients but not other part of the country. So I decided to volunteer in: I volunteer as physician helping in the organization of a hospice por pediatric pallive patients in Guatemala city. Everytime we summit a plan for maintenence of a hospice all say that they give money for health not for hospice. And we continue with this dream. This is a foundation different from the hospital that I work. I volunteer giving conferences to an Association for Palliative Care Patients (Adults) in Guatemala. And also in counceling about the organization of their institution. I volunteer giving lectures in Bioethic, specially related with end of life dilemas to a public University named San Carlos de Guatemala. I volunteer giving my opinion in the redaction of a preliminary law in palliative care for Guatemala hoping that someday we will have a law in palliative care. I've been preparing as volunteer, in the education of the personal who will be enrolled in the hospice in the future. Sometimes I advice people at the end of life care in decision making process. We are working in a Bioethical comittes for UNOP.

I've personally experienced the results of this organization in...

How different physicians, volunteers, have been involved in palliative care in Guatemala. And hospice have been walking in planning the next step that will be equipment for the house and then opening the hospice. Many peolpe are interested in bioethics.

If I had to make changes to this organization, I would...

1) Prepare people with scientific approach specially in making projects for funding. 2) I wold prepare lawyers to fight for the law of palliative care in Guatemala.

What I've enjoyed the most about my experience with this nonprofit is...

To fight against people who son't think that a hospice cannot be done.

The kinds of staff and volunteers that I met were...

Business women.

If this organization had 10 million bucks, it could...

Make three big steps: 1- Prepare people for funding 2- Furniture and getting the equipment for hospice. 3- Projecting to the community with education, publicity in rural areas.

Ways to make it better...

If there will be other people scientific prepared for funding and organizing.

In my opinion, the biggest challenges facing this organization are...

Funding and growing by learning in a scientific way and not just with the heart.

One thing I'd also say is that...

I apprecciate this opportunity to let us share how some countries have just very few invertion in palliative care comparing to others.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  Professional with expertise in this field & I work as physician in pediatric palliative care at Unidad Nacional de Oncologia Pediatrica.