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International Association for Hospice and Palliative Care Inc

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Nonprofit Overview

Causes: Health, Health Care

Mission: Millions of patients around the world are diagnosed with life threatening conditions or advanced stages of diseases such as cancer. The vast majority of them do not have access to care, including pain relief. The mission of IAHPC is to collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.We achieve this by:*Facilitating and providing palliative care education and training opportunities for care providers *Acting as an information resource for professionals, health care providers and policy makers *Developing collaborative strategies for hospice and palliative care providers, organizations, institutions and individuals

Results: Through our website we provide a lot of support and information to help those who are starting to develop hospices and palliative care programs, enabling them with the tools and information they need.

Target demographics: advance hospice and palliative care for patients and their families

Direct beneficiaries per year: hundreds of hospice and palliative care workers around the world: 48 workers from 19 countries received scholarships to attend seminars and training sessions; other 60 participated in workshops in Managua on pain treatment, over 80 participated in workshops to develop palliative care curricula for undergraduate medical students in Colombia, provided support and guidance to countries in Africa, Latin America and Eastern Europe, and much more!

Geographic areas served: Throughout the world

Programs: scholarships to hospice and palliative care workers, workshops with physicians and government representatives to improve access to treatment and care, developing awareness campaigns to improve policies and programs so that patients with life limiting illnesses receive the care they need.

Community Stories

73 Stories from Volunteers, Donors & Supporters

Eva A.1

Professional with expertise in this field

Rating: 5

Hello everyone,
I am Yeva Asribabayan, clinical psychologist from Armenia and work to develop palliative care here. I joined IAHPC on January 2017 and was very impressed from the first moment to receive access to my personal page. So many materials! And so many possibilities to contact colleagues from around the world. I was honored to receive IAHPC travel grant to attend at EAPC 15th World Congress in Madrid, Spain. It was a fantastic opportunity to meet colleagues from all corners of the world, learn more about their experience and share my own. Currently, our team is focused on the development of the educational field in palliative care. So, I found many contacts and received interesting feedback about this. And the most impressive part were the meetings with people who have devoted themselves to the development of palliative care, and the possibility to learn from them. Last but not least, I would like to mention very kind and careful attitude toward every scholar, which makes you feel very comfortable and important.
Thank you IAHPC team for giving me so much inspiration!

lmulahussain

Professional with expertise in this field

Rating: 5

The WHO defined palliative care (PC) as: "An approach that improves the quality of life of patient & families facing problems associated with advanced life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other physical, psychosocial and spiritual problems”. And the following are the bases for PC:
1) Provide PC service through an integrated multidisciplinary team consisting of physician and nurse, psychologist, religion scholar, social worker, clinical pharmacist, dietitian, physiotherapist. The team is led by physician. Up-to-date knowledge and expertise in pain management and symptoms relief are the key features of the team.
2) The PC team must have high communication skills and able to professionally handle difficult communication scenarios. The team is expected to thoroughly know about end-of-life care; Being competently able to balance between various ethical principles e.g. autonomy and beneficence.
3) The team is committed to relieving patients and their families from suffer at any stage of their illness.
Obviously, there are gaps in area of PC and shortages of well- trained health/ care providers in Iraq, a war-torn country for the last thirty five years. In spite of some of the initiatives in this regard, still there is long way to pass through in order to better care of our patients who are suffering from an advanced illnesses.
With the support of the IAHPC, I got the opportunity to attend the 5th International Public Health & Palliative care Conference, Sep. 17th – 20th 2017 in Ottawa - Canada and I gained the following:
1. Scientific update in palliative care from the sessions and posters.
2. An opportunity to closely interact with the experts in public health and palliative care who joined this meeting.
3. The knowledge and experience about establishing the palliative care at the primary health care facilities in different nations and how we can apply it in Iraq.
4. Sharing the modest experience that was developed in our country with the colleagues from other nations through conversation and discussion.

1

Professional with expertise in this field

Rating: 5

I've attended to the Public health and palliative care Conference in Canada, it was a great experience where i get a lot of new ideas and knowledge to bring back to my country.
I had also visited some hospitals in another city and attended to the Canada palliative care and hospice conference, and everything was in part because i get the scolarship from the IAHPC.
Thank you very much for making this possible!

1 Bank Tharin P.

Professional with expertise in this field

Rating: 5

I was granted a travelling scholarship from IAHPC to join a conference in Singapore and learnt a lot from there.

Thank you so much for this great opportunity!

Professional with expertise in this field

Rating: 5

Hello, I'm Pati from Georgia, MD, former International Pain Policy Fellowship program fellow. Currently PhD student, studding barriers to opioids availability and accessibility in many respects. Thus attending research program of EAPC Congress was very important for mine future search; The International Association of Hospice & Palliative Cares' Traveling scholarship gave me ability to attend the 15-th world congress and gain new knowledge and skills in Palliative Care and relevant field of search; acquired knowledge will help me to finalize my work , publish the results in international peer reviewed journals to make the voice of suffering in pain, with relevant problems sound-able for decision makers. The IAHPC team was very supportive in all aspects of communication and spreading information.

2

Volunteer

Rating: 4

I am a palliative care nurse in Cameroon, who wanted to be more efficient in providing palliative and supportive care to people plaqued by life-limiting conditions. Conducting an online research for training programs on the topic landed me in IAHPC where I immediately contacted them.
I later signed up membership and have subsequently benefited enormously. Inhabitants of my community with life limiting health conditions of cancer, AIDS, diabetes and others now receive better care and support.
This gives me a deep sense of gratitude to IAHPC, self satisfaction of attaining my career dream and above all, my joy is complete knowing that I can be counted upon in my community among those who contribute to a better world especially for the dying.

Professional with expertise in this field

Rating: 3

I am a nurse in Armenia and I got to know about IAHPC when I was looking for sponsorship for participation in Advanced European Bioethics Course "Suffering, Death and Palliative Care" in RadboudUniversity Medical Center, Netherlands. I joined IAHPC and was provided with a travel scholarship to attend it in February this year. I am very grateful for the work done by IAHPC in trying to promote hospice and palliative care throughout the world and especially the support given to developing countries. I believe that by empowering as many health workers as possible in palliative care and in relatedfields even with limited resources we can go far in providing quality of life to patients with life threatening and life limiting conditions. I currently work at ICU and together with my team try to provide a holistic approach in our care of the patients. I hope that IAHPC continues to get necessary support in-order to continue this worthy goal.

Respectfully,
Maria Aleksandrova.

Professional with expertise in this field

Rating: 4

In October 2016, the IAHPC conducted a training workshop in Barbados. I am a pharmacist and I represented my country as the Chief Pharmacist for Belize. It was my first point of contact with this organization. The workshop was well organized, and a wealth of information was shared in the short time there. This is due to the exceptional organization done by the coordinating team.

I walked away from the workshop determine to ensure that our palliative care patients access the necessary pain management medications whiles ensuring that the concern for these medications to be diverted into the illicit channels are maintained in the balance. Since my return , I, along with the palliative care group for Belize, met with the Texas Palliative care group, in which we planned the 2017 training session in which a section will be allocated to the re-sensitization of the Pharmacists to the care and management of these patients.

At this October 2016 workshop, the love for these patients by those involved in their care was felt. The recognition of our reliance and dependence on God for all we do,was clearly demonstrated. I want to thanks IAHPC for inviting me and I pledge to do all that I can in my country to the advancement of their care, by ensuring access to these medications.

2

Professional with expertise in this field

Rating: 4

IAHPC is playing a crucial role in the building of palliative care network across the globe.
The vision was clearly noticed in the Barbados conference.

The existing Data presented and the needed future plans for the carricom islands among the participants was very note worthy.

Even though the sustained development will face plenty of challenges we can work together with IAHPC and fellow members in achieving the target.

We indeed have started working in a small way towards the goal.
An initial contact with higher administrative members have been sought.

we certainly would like to follow the initiatives taken by Dr Dingle from Jamaica.
in Obtaining QOL and adequate pain management as the primary goal.

On behalf of the my colleagues from Trinidad and Tobago i would like to extend the gratitude to whole staff IAHPC and special regards to Genevieve Napier, Dr katherine,
Dr Liliana De lima, Dr lukas Radbruch and Senior editors .

Regards

Dr Shashi Ramesh
Consultant Oncologist
Trinidad &Tobago

2

Professional with expertise in this field

Rating: 5

This year IAHPC sponsored a conference in Barbados that was for invited guests of 11 Caribbean countries. It sought to have us understand the barriers to opioid availability in our countries and develop SMART action plans. Opioid availability is important for patients with severe chronic pain and is the gold standard.

The conference was well organized, filled with knowledgeable speakers and kept us interested throughout. The shared experiences were invaluable and the mentorship provided was key to rounding off this great venture.

It was a pleasure to have attended this conference. IAHPC did a great job.

3

Professional with expertise in this field

Rating: 5

IAHPC plays a huge part in promoting clinicians resilience through sponsoring attendance at relevant conferences. I am Head of Counselling and Support Services at Island Hospice in Zimbabwe. Research we conducted into Resilience in our field of work a few years ago showed that - Resilience is boosted by networking with colleagues in the field, and ongoing education to increase both competence and confidence. Thank you IAHPC for sponsoring my attendance and presentations at the APCA conference August 2016.This conference was energizing and reaffirming in meeting so many diverse yet connected specialists in the field of palliative care.

2

Professional with expertise in this field

Rating: 3

I am a doctor in Zimbabwe, and I got to know about IAHPC when I was looking for sponsorship to do a diploma in Palliative medicine with University of Cape town. I joined IAHPC and was given a travel scholarship to attend the second contact week at UCT in June this year. I am very grateful for the work done by IAHPC in trying to promote hospice and palliative care throughout especially the support given to developing countries. I believe that by empowering as many health workers as possible in in palliative care in our setting even with limited resources we can go far in providing quality of life to patients with life threatening and life limiting conditions. I am currently working at a cancer centre and together with my team try to provide a holistic approach in our care of the patients. I hope that IAHPC continues to get the much needed support in-order to continue with this worthy cause.

3 सिंघई

Client Served

Rating: 5

I got a chance to visit my first ever International research meet. Thanks to IAHPC Travel grant, which supported my visit and registration in conference. The whole process from application for grant to receiving of grant was very smooth and transparent. Attendance at this conference helped me making new contacts in Palliative care, awareness with research ideas of western world. I would definitely thank IAHPC for this.

2

Client Served

Rating: 5

When my husband was diagnosed with lung cancer, we were told by the medical staff that he was incurable and could not offer any treatment and referred him to hospicecare. We were devastated and thought this was denying him care. I found IAHPC through the web, called and talked to a staff member who listened to me, clarified what hospice care is, gave us information about hospices in my area and provided ongoing support. It seem very little, but it meant the world to us.

2

Professional with expertise in this field

Rating: 5

I cannot imagine that there is a nonprofit anywhere in the world whose work is more important than that of the International Association for Hospice and Palliative Care (IAHPC). Under the ingenious, tireless leadership of Liliana de Lima, IAHPC is reponsible for bringing pain relief and comfort to dying patients in developing countries around the world. The IAHPC is the leading organization in the world promoting palliative care in poor countries. They have made it possible for countless clinicians from poor countries to gain the knowledge and skill necessary to treat distressing symptoms in dying patients. In addition, the IAHPC organized and implemented a rigorous project that resulted in a list of essential medicines for palliative care that has set the standard for palliative care around the world. IAHPC also published the first and still the most important handbook on palliative care for the poor. Finally, the IAHPC website is the single best source of palliative care training materials, guidelines, and other documents in the world. Without the IAHPC, the field of palliative medicine would not be nearly as advanced as it is, and tens of thousands of poor people with life-threatening illnesses would not have had their suffering relieved. I strongly recommend the IAHPC for prestigious health award.

1

Professional with expertise in this field

Rating: 5

I was invited by IAHPC to participate in a process to develop a list of Essential Medicines in Palliative Care. The resulting list includes all those medications that are needed to treat the most common symptoms in patients with life limiting conditions and diseases. I was able to participate in an online survey and then in a face to face meeting organized by IAHPC where the List of Essential Medicines was finalized and approved. This list has served me and my country well: it was used as the model to develop the medicines policies for the national palliative care program.

1 FrankDFerris

Board Member

Rating: 5

IAHPC is a key partner in the international advocacy and education process to build global palliative care capacity. As a participant in this process, I have found the services offered by IAHPC, partcularly the International Travel Scholarships to be invaluable to bring members together; the resouces at the IAHPC website to be easily accessible and very useful to many of the people I am working with; and now the access to palliative care journals to be a key resouces, as physicians and nurses in most countries do not have easy access to literature or educational resources.I hope IAHPC will dramatically increase its reach and membership in the coming year.

1

General Member of the Public

Rating: 4

I am originally from Eastern Europe and when I saw how IAHPC was supporting nurses and doctors from Russia I decided to donate. I am not a health care professional but I enjoy reading their newsletter and learning about their efforts in many countries of the world.

10

Professional with expertise in this field

Rating: 4

When I returned to my native Jamaica in 2002, after spending 12 years in the UK, working in Oncology and Palliative Medicine, I found that I was pretty much alone in promoting palliative care in Jamaica at the time. I then discovered the IAHPC which seemed to represent the "little people". This organization provides support, information, education and scholarships for health professionals principally from the developing world. I was a lucky recipient of such a scholarship in November last year when the award enabled me to attend an important educational meeting in Houston. The IAHPC is a champion for those of us in the developing world trying to advance hospice and palliative care in challenging circumstances.

5

Professional with expertise in this field

Rating: 5

We started with the Palliative Care Program 5 years ago, when nobody in our Institution had heart about Palliative Care before. At the beginning we hadn´t patients and therefore it was really difficult to get financial resources to support the Program, and at that moment the International Association of Hospice and Palliative Care (IAHPC) played a key role giving as the possibility to receive 3 years of financial support as a Faculty Development Program. At the beginning we were only one physician and one psychologist. Today we are four physicians, three nurses and two psychologist, and we work together with kinesiologist, members of the pastoral and of the psyquiatry department. But IAHPC is not only a source of funding, it’s also a great source of inspiration and education for all the professionals who are working in the palliative care field around the world. Personally, the opportunity to have been supported to attend international palliative care meetings and to know Liliana de Lima and Eduardo Bruera, was fundamental to believe in the spirit of Palliative Care represented by the IAHPC, a discipline which work to improve the quality of life of patients with advanced life-threatening conditions and their families. In our world it’s not easy to find Institution really moved by such altruistic motivations.