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International Association for Hospice and Palliative Care Inc

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Nonprofit Overview

Causes: Health, Health Care

Mission: Millions of patients around the world are diagnosed with life threatening conditions or advanced stages of diseases such as cancer. The vast majority of them do not have access to care, including pain relief. The mission of IAHPC is to collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.We achieve this by:*Facilitating and providing palliative care education and training opportunities for care providers *Acting as an information resource for professionals, health care providers and policy makers *Developing collaborative strategies for hospice and palliative care providers, organizations, institutions and individuals

Results: Through our website we provide a lot of support and information to help those who are starting to develop hospices and palliative care programs, enabling them with the tools and information they need.

Target demographics: advance hospice and palliative care for patients and their families

Direct beneficiaries per year: hundreds of hospice and palliative care workers around the world: 48 workers from 19 countries received scholarships to attend seminars and training sessions; other 60 participated in workshops in Managua on pain treatment, over 80 participated in workshops to develop palliative care curricula for undergraduate medical students in Colombia, provided support and guidance to countries in Africa, Latin America and Eastern Europe, and much more!

Geographic areas served: Throughout the world

Programs: scholarships to hospice and palliative care workers, workshops with physicians and government representatives to improve access to treatment and care, developing awareness campaigns to improve policies and programs so that patients with life limiting illnesses receive the care they need.

Community Stories

94 Stories from Volunteers, Donors & Supporters

2

Professional with expertise in this field

Rating: 5

IAHPC is a fantastic organization to work with and we are proud to be associated with them for over 10 years. They have supported several of our film projects including on children's palliative care and adult palliative care in dozens of countries worldwide. We have also collaborated with IAHPC to create a series of inspirational short films showcasing their important work in global health. They are so great to work with. Highly recommended!

3

Professional with expertise in this field

Rating: 5

In 2017 two doctors Rita Kabasinskiene and Marija Inesa Poniskaitiene and spiritual assistant Lina Jakele of our Hospital received the grants from IAHPC to participate in the 15th International Congress of Palliative Care in Madrid. We were from one team so we decided to write you together in order to avoid recurrence. We are very thankful to IAHPC for the possibility to participate in the Congress. We have gained a lot of experience in different fields of palliative care.

The development of palliative care in Lithuania continues. We strive to contribute to this through our capabilities. In the Ministry of Health a new Order was prepared to supplement the old one. It expanded the palliative care team to include a psychologist and a nurse assistant; introduced a new term “Hospice” for our country and touched on some other issues. Fentanyl tablets for the treatment of breakthrough oncologic pain registered this year also. These drugs fully reimbursed to oncologic patients. It considerable have changed the quality of life of our patients.

Lina was the first spiritual assistant in palliative care. Thanks to her work, the spiritual mission service at our hospital has expanded significantly. It consists of a chaplain, assistant and quite a large number of volunteers. Lina is the curator of student spiritual nursing practice at our hospital and teaches palliative care at St. Ignatius College in Kaunas. Other organizations were also interested in spiritual help. Jakele became a public instructor after completing Last Aid courses in palliative care, conducted by German lecturers.
Rita and Lina give lectures in training courses on palliative care.

We enjoy that more and more volunteers become involved in Palliative Care. We give them lectures, train them.

Some months ago dr. M. I. Poniskaitiene has stopped working as physician, but she became very active volunteer in our hospital. She visits also some palliative patients at home. She raises constantly her professional qualification, deepens her knowledge in palliative care, popularizes it and participates in palliative care conferences.
Attending of the Congress influenced our work directly and improved our competence as physician, spiritual assistant and researcher.

We wish you all success in your meaningful activity.

Rita Kabasinskiene, Inesa Poniskaitiene, Lina Jakelė

3 Irena Laska

Professional with expertise in this field

Rating: 5

IAHPC membership has had a positive impact for the entire staff and the service we offer. It helps us to increase the number of services and offering them with standards and high quality.
IAHPC had made possible participation of staff members in important international activities such as trainings, conferences, congresses which had enlarged the collaboration network with colleagues from all around the World. In these meetings we had been known with challenges, achievements and future plans for a better PC in the World. These activities have been particular accesses in development of PC in the region and our country.
The periodically newsletters sent to us from IAHPC, had given the valuable important information about everything that is happening in the PC field everywhere. We have used this important information in doing lobbing and advocating campaigns for PC in our country.
We have been lucky having these opportunity, and would like that more professionals working in PC to have facilities to learn more from each other and experts of PC from around the World.
Thank you to IAHPC for all you are doing to develop PC everywhere and to make it possible for every one!

3

Professional with expertise in this field

Rating: 5

I am grateful to the IAHPC for the scholarship granted me to attend my first Palliative Care conference ( EAPC 2019). with the aid of the scholarship, I was able to overcome the challenge of lack of adequate training and education in my chosen career. I had the opportunity to interact and collaborate with global palliative care providers. Thanks to IAHPC.....…...Oyinloye Oyebukola (Nigeria)

1

Professional with expertise in this field

Rating: 5

An IAHPC grant
helped me to upgrade my skills and knowledge in palliative care.
This translates into better patient care- this is the best way that I can repay this debt.
I have also worked to transfer the learning -teaching and training other doctors and nurses to deliver pall care in other LMIC .
Less than 4 percent Indians have access to palliative care- IAHPC is working hard to “ eat this elephant “

1

Professional with expertise in this field

Rating: 5

I received a scholarship to participate in the EACP 2019. Present my work about uncertainty in palliative care in Colombia South America, I met many colleagues, I learned a lot about palliative care and I will surely apply what I learned in my country. Thanks IAHPC

Sonia Carreño Moreno. Nursing Professor.

1 NataKa

Professional with expertise in this field

Rating: 5

My name is Natalia Carafizi and I'm a specialist in palliative care from Chisinau, the Republic of Moldova.
I am most grateful to the IAHPC for the provided Travel Scholar Fellowship to attend the 16-th World Congress of the European Association for Palliative Care held in Berlin, Germany on May 23 – 25, 2019. It allowed me to present the poster entitled “Initiating the Development of Palliative Care Service in Transnistria”, which describes the activities, related to the development of palliative care through all the regions of Moldova, even those with the existed political and economical particularities.
I also felt very honorable to take part in the pre-Congress PACED session, which first time in the history of the EAPC Congresses took place and aimed the unification of the ex-USSR countries, where the current status of palliative care in each country apart was discussed, alongside with the existed barriers and options to overcome them.
The presented at the Congress scientific information was quite modern, either to be implemented into the daily clinical practice together with colleagues, to be shared with the local National Association for Palliative Care to use for development of further strategies or to be taken into account while improving medical curricula for both medical students and nurses.
I am very grateful to the IAHPC for giving me this wonderful opportunity, without which my attendance of the Congress and the gained experience would have never been possible.

2 Writer

Volunteer

Rating: 5

Awesome experience with IAHPC as I got the traveling scholarship for participation in EAPC 2019. Support of scholarship motivate us to be engaged. Thank you IAHPC

Professional with expertise in this field

Rating: 5

My name is Elizabeth Namukwaya a palliative care physician in Uganda.
Thank you IAHPC for a traveling scholarship that enabled me to attend the European Association for Palliative care Congress in Berlin from the 23rd to 25th May 2019. This was a great experience for me as a palliative care physician and lecturer in Uganda. I was very impressed with a high standard of research at this conference and I came back home very motivated to do more research in palliative care of high quality. I also got a lot of information that I can use to teach medical students and other postgraduate student doctors. I also got information that will help me improve patient care as many of the day to day clinical puzzles I face were answered by research that was presented at the congress and some research findings presented increased my curiosity about different palliative care interventions. I was able to meet many other palliative care providers and researchers from all over the world and to get their contacts for future collaboration. After working so long with patients and teaching students my work had become very routine but this conference sharpened me and I feel revitalized to be a better physician, lecturer and to do more research in palliative care. I am grateful for all the opportunities IAHPC gives us as palliative care providers by enabling us to access several resources including journals with research in palliative care, palliative care books and for supporting palliative care providers to attend educational and research events which open our eyes to how care is given elsewhere and this enables us to evaluate our care in light of the information we get and it enhances our creativity. Thank you IAHPC also for the opportunities to meet other palliative care providers and a chance to meet renowned people in this field who inspire us to be better. Thank you to the great team which organizes all the resources and to the team at IAHPC which we communicate with on email who are very quick to respond and are very professional.

Professional with expertise in this field

Rating: 4

Palliative care in Albania is still a developing field that has to face great challenges.
This service is offering only by NGO’s.
The new units created by Ministry of Health at the Regional Hospitals do not have the right access and capacity to offer this service with quality and standards.
The palliative care is offered only for cancer patient and thus the chronically ill in advanced stages, suffer with pain and untreated symptoms.
Despite the information offered by PC teams, doctors and nurses are still reluctant to use the opioids to alleviate the pain; they have lack of skills in evaluation and treatment of pain.
Palliative care is not part of curricula at University of Medicine, there are only a few basic lectures in oncology subject.
The family physicians do not specialized in Palliative Care, even they are in continuous contact with this category of patients.
To face these challenges you need to have positive experiences, support and knowledge.
I have participated in a lot of activities about PC, including this Congress, that have helped me to enlarge my knowledge and professional competence in such e specific field.
This congress was very particular and worthwhile about the information that we share, for the networks we created with friends, colleagues and leaders of PC all around the world, for the discussions about our future challenges and for commitment toward this unique kind of care.
The presentations and information offered through posters and oral presentations by experts and colleagues has inspired and motivated me to continue my dedicated work in PC and to give my impute in spread and development of this service across my country.
All the sessions that I have followed have had valuable information for evaluation and management of pain and physical symptoms, the use of analgesics /opioids especially in pediatric ages.
I have realized the importance of education of healthcare professionals in PC and the various ways to find and attend educational sessions, the future plans of EAPC and also the importance of personal impute of every healthcare professional in enlargement and development of PC in his/her own country.
I also appreciated the friendly conversations with colleagues and experts of PC and the sharing of our experiences and values. This kind of communication sound very encouraging and inspiring for me because I realized that weall have to face the same challenges and to have the same commitment to be:” A voice, a vision; Palliative Care everywhere and for everyone”.
I want that all this experience to influence my work and to improve my competence like nurse and trainer in PC.
The participation in the EAPC congress was a privilege, a pleasure and a wonderful experience and I owe a debt of thanks to IAHPC for the traveling scholarship that they offered to me.

2

Professional with expertise in this field

Rating: 5

I would like to thank the IAHPC for their traveling scholarship. This had enabled me to attend the 3rd International Children's Palliative Care Network Conference in Durban, South Africa on May 3rd 2018. This 4-day conference was a great opportunity for networking. Listening to and exchanging experiences with people in the same field from different parts of the world had widened my perspective on how to further develop palliative care for children within my institution and in Malaysia. The plenaries and breakout sessions have given me many ideas on paediatric palliative care research that can be carried in Malaysia. Improving research in palliative care would be my priority after the conference. Thank you again, IAHPC!

1

Professional with expertise in this field

Rating: 5

I want to express my gratitude for the scholarship and to assure you that the benefit of this is enourmous for those who cannot afford to pay for such a conference, but also for those from developed countries who can learn from people from poor resource countries who manage to develop services with limited resources.
This bursary allowed me to participate in the ICPCN Annual Board meeting where we established the Strategic Plan of Developement for the next 3 years, and did discuss other current organisational issues..
Also i could attend the ICPCN Conference where I did find out news in different area of PPC from prestigious lecturers. This information will help me in my practice in the care of about 160 children needing PC and I will share the news with our staff.
Another gain was the network with international community of professionals and establishing links which can be helpful for supporting each other with difficult cases, with advocacy, research, etc. I did strengthen the links with colleagues from all over the world.
I was honored that the study which we did in Hospice Casa Sperantei Brasov was accepted as an oral presentation in the section Service Delivery. So we shared from our experience which services are most needed and more efficient. The study was very welcomed and was followed by discussions in the session moderated by Joan Marston (South Africa) and Sat Jassal (UK).
In order to disseminate the knowledge received in the Conference, I will send the information from the book of abstracts to the people from our national and regional network of PPC and I will include the up-to-date information in the courses for doctors, nurses and other professionals, courses which I teach in Romania and in the surrounding countries

The process of applying for scholarship was clear and Genevieve Napier managed very well the selection process and she was always ready to assist me with my questions.
So a big thank you to IAHPC for this bursary, and I hope you will continue the good work!



3

Professional with expertise in this field

Rating: 4

The world over, children needs palliative care help to achieve improved quality lives. The burden is even bigger in Sub Saharan Africa and unless something is done to help this region, its children suffer and die with pain. I learnt that with proper education and care resources, many children can live a pain free life and their families and communities live better without guilty feelings too, the 'what ifs' or 'if maybe we had done this'

2 mmindeguia

Professional with expertise in this field

Rating: 5

I am deeply grateful to IAHPC for giving me a travelling scholarship to attend the 3rd ICPCN conference in Durban, South Africa.

This scholarship allowed me to present the workshop: “Accompanying the suffering stranger”. An aware exploration of the existing genuine tie between the health worker and the patient.

This experience has turned into a great professional development. And it has allowed me to create new ties to continue growing into a global network with the objective of providing the highest standards of care to those patients with life-limiting illnesses and their families.

Martín I. Mindeguía.
Physician specializing in Paediatrics & Palliative Care – Gestalt Psychotherapist.
Buenos Aires, Argentina.

2 RALTE

Client Served

Rating: 5

I am Dr.Lalchhanhima Ralte, a public health/palliative care physician from Mizoram, NorthEast India. I am a member of IAHPC since 2012 and through their scholarship program i have been given the opportunity twice to attend Palliative Care Conferences - Palliative care world congress in Montreal Canada 2012 and quite recently World research congress of the European association for Palliative care in Bern Switzerland 2018. These are conferences that palliative care physicians like me wants to attend annually for updates but impossible due to the huge financial costs involved. Those of us from developing countries are hugely indebted to IAHPC for giving us the opportunity to learn from the best, network with like minded colleagues from different parts of the work, enhance our skills and knowledge. Thank you IAHPC and donors, who have made it possible for Doctors like me, living in a small remote place in the Northeast corner of India, who without IAHPC, would have never had all these opportunities!

1

Professional with expertise in this field

Rating: 5

I am so thankful to IAHPC for the traveling scholarship to attend the 3rd ICPCN Conference 2018 in Durban, South Africa. I’m palliative care physician with no experience in children’s field. Being present in ICPCN Conference thought me children’s palliative care is not downsizing medications dosages. Although as a clinician expected to learn more about symptoms’ assessment and management. The conference was especially concentrated on inspiring audiences from different countries for "stepping out of their comfort zones" and being more active in children’s palliative care. Through the conference, I met people from different specialties who work for children and had a chance learning a lot from their amazing experiences. I have also heard for the first time about ICPCN website and decided to translate online courses for children’s palliative care to Farsi for encouraging Iranian nurses and physicians for working in this new field. Thanks again to IAHPC for making my journey easy.
Kind regards,
Mamak Tahmasebi, MD

Piyush Gupta

Professional with expertise in this field

Rating: 5

I am highly impressed with the functioning of IAHPC which is trying to address a very noble cause of relieving the sufferings of the terminally ill patients of Cancer & other chronic illnesses; that too Globally. The Scholarships provided to the palliative care professionals helps in exchange of knowledge facilitating the transfer of the best practices throughout the World.
My best wishes to IAHPC inall future endeavours.
Keep up the Good work.

1 Vilma T.

Professional with expertise in this field

Rating: 5

My name is Vilma Tripodoro, I am palliative care physician and researcher in Argentina. I would like to thanks the IAHPC because I went to the EAPC RESEARCH CONGRESS, in Bern. It was my first time in an European Research Congress and it was a great opportunity to share my work with colleagues and to be in contact with researchers from Europe and beyond. In addition, Bern is an amazing city and I enjoyed a lot. Thank you very much IAHPC for this travelling schollarship!

1 Diane S.4

Professional with expertise in this field

Rating: 5

I am so thankful to IAHPC for the traveling scholarship to attend the ALCP Congress 2018 in Santiago, Chile.

During the congress, I met people from all over Latin America working in Palliative care. It was amazing to share stories of our challenges and victories in the process of developing effective programs in our own countries. I was encouraged by the dynamic speakers who shared real life experiences, addressing the humanistic approach to handling the challenges of dealing on a daily basis with terminal illness, especially in Pediatric care. I left the conference with renewed strength to face the challenges, equipped with new tools to teach and advance education, and with lots of new ideas to implement.

Working diligently for years to open a Hospice facility in my country, I was able to visit a facility and spend invaluable time getting to know the administrators and staff that run a local hospice, Clinica Familia, in Chile. They openly shared their knowledge and experiences with me, and I now have new insights on how to make my vision a reality.

Diane D. Sabado, Dominican Republic

1 julianasuarezc

Professional with expertise in this field

Rating: 5

Dear all, I am Juliana Suarez from Colombia, a psychologist who is finishing the second year in the Specialization of Palliative Care.
Thanks to the support of the IAHPC scholarship I had the opportunity to present my degree project in the IX Latin American Congress of Palliative Care. I could understand in a greater depth the challenges in Latin America in the palliative field.
At the same time, I met several scholarship holders from the IAHPC from different countries and we had the opportunity to discuss thoughts and opinions about the practice of Palliative Care in each country.
Thanks to IAHPC for giving me this wonderful opportunity full of learning and experiences.