My Nonprofit Reviews

alexism4
Review for Pacific Heart Lung & Blood Institute, Los Angeles, CA, USA
My father was diagnosed with Mesothelioma in 2016 and was given an estimated year to year and a half to live. This doctor said that the disease was rare and there wasn't much he could offer except palliative measures. I refused to give this and started my own research when I came across Dr. Cameron at UCLA who specializes in mesothelioma. While working to get my father seen by this specialist my mother and I were offered the opportunity to participate in a caregiver support group organized by the PHLBI, which was extremely helpful and often times a source of hope for my family. Sharing experiences and tips on how to care for family members helped us to feel less helpless, knowing that whatever my dad was going through was experienced before by someone else and that there were ways to help him was reassuring. The PHLBI also organizes different events, such as a 5k walk/run/hike to fundraise for mesothelioma research which my family has attended the past 2 years. Getting to see the survivors, fighters and supporters work towards helping find other forms of treatment is truly inspiring. I am thankful for the PHLBI and all the work they do for those suffering from mesothelioma.