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Pacific Heart Lung & Blood Institute

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Nonprofit Overview

Causes: Unknown

Mission: “The mission of PHLBI is to develop early-stage research into effective treatments for diseases of the heart, lung, and blood including rare cancers such as mesothelioma and thymus cancer. " ” The Pacific Mesothelioma Center, a division of the Pacific, Heart, Lung & Blood Institute, is focused on finding better treatment options for mesothelioma, a devastating cancer caused by exposure to asbestos."

Target demographics: researching better options and treatments for diseases of the chest

Geographic areas served: Los Angeles

Programs: First Connection - connecting newly diagnosed patients to those who have been down the road they are about to embark upon. We also have a dozen students helping us with processing human tissue in our International Tissue Bank. The experience helps them with the unique opportunity to gain real-world experience and fill meaningful roles in medical research at a young age. Support Groups: hosting both caregiver and patient support groups for mesothelioma patients that allows them to ask questions, share stories, and release difficult emotions with people who understand what they are going through. Events: The annual 5K Walk for Mesothelioma where hundreds of patients, family members, and supporters walk to raise money for mesothelioma research and awareness. In addition, there is also the annual Symposium on Malignant Pleural Mesothelioma. where global mesothelioma experts discuss the latest treatment options and research for mesothelioma.

Community Stories

68 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

Being diagnosed with Mesothelioma was like being hit by a bolt of lightning out of the blue. However, I have to count my blessings. First, for Dr. Cameron, head of the thoracic dept. at UCLA, who performed my surgery. Second, for Lein, Dr. Cameron’s nurse practitioner, who is always available to me to answer any questions as the months go by in my recovery. Third, is the PHLBI, the non-profit organization, working closely with Dr. Cameron and Lein to find a cure for this horrible cancer. PHLBI also provides support for patients and caregivers by having monthly conference calls once a month, Lein and Christina facilitate the calls. I have been able to talk to other survivors of Mesothelioma. Being able to talk to other people who have experienced exactly the same thing is invaluable. It’s so easy to feel you are alone in your fight for recovery. PHLBI has filled that hole for me, knowing we’re in this together as a team, Dr. Cameron, Lein, PHLBI, and the patient.

Volunteer

Rating: 5

What an amazing experience i have had volunteering for this organization over the last few years! Each year PHLBI hosts their annual "Walk for Mesothelioma" to raise money for mesothelioma research. i have helped organizing and distributing walk t-shirts to participants. It is always a great deal of fun and I would encourage anyone to volunteer at one of their events!

Client Served

Rating: 5

The entire staff at the Pacific Heart Lung &Blood Institute is caring and dedicated. They are like family. I am so grateful to be in their wonderful care. They go above and beyond and they care about every patient. They have all contributed tremendously to the fact that I am thriving. Being diagnosed with mesothelioma is challenging but they are my angles. I will forever be grateful to Dr. Cameron and the entire team.
Thank You,
Anna Schofield

Donor

Rating: 5

I candidly knew very little about mesothelioma before attending PMC's annual Walk for Mesothelioma. While I was impressed with their mesothelioma research fundraising endeavors, I was even more impressed with how much I learned after attending the walk. They do an excellent job raising awareness about this very unknown disease. At the walk they had information all along the trail detailing how many people are diagnosed each year, the uses of asbestos (the cause of mesothelioma) in household products, and the fact that it is still not universally banned in the U.S. What they are doing is very important because the more people who learn this information and share it with others the more cautious one will be about potential exposure.

Overall, a great cause run by people very passionate about helping mesothelioma patients.

Volunteer

Rating: 5

Amazing scientists and researchers working hard to solve mesothelioma, and cancers of the heart blood, and lungs. Never a doubt that your funds are going to the right charity.

General Member of the Public

Rating: 5

I had such a great time at their Bingo fundraiser at Hamburger Mary's last year!  Such a fun night, they really go above and beyond. And at the end of the day we raised thousands for their cancer research.  Cannot wait to attend this year's Bingo fundraiser!

Donor

Rating: 5

Everyone at this organization collectively work so hard to help raise funding for mesothelioma.  I have attended their annual "Walk for Mesothelioma"" for the last several years and each year I leave inspired by their dedication to their cause. PMC's unMASKing the Cure for Cancer Gala blew me away.  I have never had so much fun and been a part of something so meaningful at the same time.  Getting to hear patients share their stories and the impact that Dr. Cameron has had on extending their lives made such an impact on everyone. It shows just how important it is that we continue to support novel cancer research like the research conducted at The Pacific Mesothelioma Center. Thank you for all that you do!

Donor

Rating: 5

PHLBI has a proven track record of excellence in: 1) conducting much-needed research into lung-sparing treatments, and someday a cure, for mesothelioma at its own laboratories under the direction of one of the nation's top mesothelioma specialists, 2) educating doctors about best practices and latest innovations for treating mesothelioma through its annual symposium, 3) providing patient and caregiver support and resources through its nurse practitioner who is available one on one and via web support group meetings, and 4) raising public awareness about mesothelioma and the need for research through its website, social media, and fundraising events including the annual walk, motorcycle rally, casino night, art auctions, etc. which bring affected families and friends together with others to build enthusiasm and dedication to the cause. PHLBI has made a meaningful impact on the lives of many families who turn out to support the institute year after year. It is a truly unique non-profit whose work to benefit mesothelioma sufferers and the public at large has only started to hit its stride!!

Volunteer

Rating: 5

Great researchers, doctors and staff. I've volunteered at their events for 5 years and love the strong community feeling they have. This is definitely a nonprofit that cares!

Previous Stories
1

Volunteer

Rating: 5

I've had the pleasure of volunteering for this non profit for the past 2 years. The fundraisers get better every year and I look forward to the ones to come and watching them grow. Clare is amazing at what she does in the foreground as well as the background. She is very much so involved in the day to day operations as well as vesting a personal interest in the patients and families of those suffering. Victoria also does so much for this organization and it was her passion for this cause that got me to want to join in and make a change. I'm thankful to be associated with this non-profit and can't wait for future events!!!

Connor Y.

Volunteer

Rating: 5

You would be hard pressed to find an organization more dedicated to a goal than this one. They care so much about the people they're trying to help. I've been very fortunate to be able to participate in their big events for about the past 5 years and leave every event feeling like I actually made a difference in the future of medicine and research, and all I was doing was holding a couple of signs up and riding in the back of a little truck placing distance markers along a trail. Those two things seen quite mundane, boring and unenjoyable, but when you get a chance to do it surrounded by the people in this organization, it instantly becomes one of the most fun things you can do. It's an organization with an amazing cause, and even more amazing people who keep the organization running.

Volunteer

Rating: 5

I cannot express enough how wonderful Clare and her team are. They are truly dedicated and have a real passion for helping those in need. I hold her and he team of professionals in the highest regard, and look forward to continue working with them to make this world a better place.

Lisa P.3

Board Member

Rating: 5

I just recently joined the Pacific Heart Lung & Blood Institute (PHLBI) as a board member and I am truly honored in doing so. The team is amazing (Dr. Cameron and UCLA, Clare [Executive Director], the staff, the research team, volunteers), committed to advancing medical research, finding innovative treatments and prevention programs. PHLBI is an internationally known and highly respected non-profit organization. PHLBI organizes a number of different events such as the 5K Walk/Run to fundraise for Mesothelioma research. This is an incredibly compassionate organization that is dedicated to making a life-saving difference. Consider donating or getting involved in this wonderful cause today.

Board Member

Rating: 5

I recently joined PHLBI as a Board Member, and could not be prouder in doing so.

Before I was born, I lost my grandfather (who I'm now named after) to cancer of the lungs. At 21, I suddenly lost my father to a cardiac event. No family should have to endure the strife that comes with these types of diseases, and PHLBI is unique in its approach to helping all parties associated lead fuller lives.

From its remarkable on-site lab, to its direct affiliation with Dr. Cameron and UCLA, to its wonderful internal staff, symposium and more, I selected to affiliate with PHLBI because it is head-and-shoulders above others. The organization completes its own research, enabling it to learn quickly, and disseminate information to help others as soon as possible. That difference can be life-saving.

I encourage others to get involved with this particular nonprofit. It is doing exceptionally important work, but can only do so with the support of others who are dedicated to the cause. Please join us, and help make a life-saving difference.

Matt

1

Volunteer

Rating: 5

I’ve been active in charitable organizations for over 40 years, but I have never been to a fundraising event that was as engaging, energizing and as much fun as the Pacific Heart Lung & Blood Institute’s “5K Walk/Hike for Meso(thelioma)!”

The event took-over a portion of Paramount Ranch, a best kept secret of old Hollywood. It’s now a State Park, but used to be where Paramount Pictures and TV networks shot their Westerns. The back drop of a ghost town, coupled with the beautiful hiking trails of the Santa Monica Mountains, was both peaceful and an inspirational means to honor the donors, many of whom had loved-ones who succumbed to the Mesothelioma, a type of lung cancer that can be caused by exposure to asbestos.

Informational posters regarding Meso lined the hiking path and there was a contest for kids and adults who could recall everything that was posted. A talented Steele Dan tribute band: The $6 Billion Dollar Band performed brilliantly and a gourmet hot lunch with a choice of 2 delicious entrées was catered by Italia’s Deli – a well-known Century City haunt, satiated all our senses.

A short interlude to thank our sponsors, honor our loved-one lost, and those still with us followed by more uplifting music and prizes, silent auction wins…and a “PowerBall” opportunity that I had never seen before…but it was so much fun and got everyone into the spirit of giving to our cause. Best event ever! I can’t wait to bring more friends to the next one.

Jean-Louis A.

Donor

Rating: 5

This non-profit is to help advance research in pleural mesothelioma, a rare form of lung cancer usually linked to exposure to asbestos. Research is led by Prof. Robert Cameron, a UCLA thoracic surgeon of world renown, who has helped with both care and compassion mesothelioma patients for the last 30 years. Under the expert guidance of its director, Clare Cameron, PHLBI continuously organizes events and fundraisers to help the awareness of mesothelioma. A great non-profit, devoted to a worthy cause.

Client Served

Rating: 5

My father was diagnosed with Mesothelioma in 2016 and was given an estimated year to year and a half to live. This doctor said that the disease was rare and there wasn't much he could offer except palliative measures. I refused to give this and started my own research when I came across Dr. Cameron at UCLA who specializes in mesothelioma. While working to get my father seen by this specialist my mother and I were offered the opportunity to participate in a caregiver support group organized by the PHLBI, which was extremely helpful and often times a source of hope for my family. Sharing experiences and tips on how to care for family members helped us to feel less helpless, knowing that whatever my dad was going through was experienced before by someone else and that there were ways to help him was reassuring. The PHLBI also organizes different events, such as a 5k walk/run/hike to fundraise for mesothelioma research which my family has attended the past 2 years. Getting to see the survivors, fighters and supporters work towards helping find other forms of treatment is truly inspiring. I am thankful for the PHLBI and all the work they do for those suffering from mesothelioma.

Client Served

Rating: 5

Top Rocker Harley-Davidson, in Canoga Park, CA, worked with this organization for The Greatest Escape motorcycle ride to benefit Mesothelioma. The team and organizers for this event were pleasant to work with, enthusiastic about the cause and event, and really brought the community together for a great cause. We had over 200 motorcycle riders attend this event, more than 3/4 of which left out of our dealership. The promoting of the event was great, flyers and artwork for social media done ahead of time, and the team was well organized the day of. This organization has helped out our dealership as well during these last few months, and we look forward to working with them in the future.

Advisor

Rating: 5

It gives me huge gratification to partner with Clare Cameron, Victoria Adams, Stephen Mascoli & the rest of the team at Pacific Center Mesothioma for a 3rd year in a row for their annual fundraiser. We hope to continue the awareness and funding for a serious cause which effects us all in some way. Thanks again to the team.
-Fred Rundall & Newcombs Ranch Family.

1 Joe_H_G

Board Member

Rating: 5

It has been a privilege to recently join as a Board Member of the Pacific Heart Lung & Blood Institute. With a heartfelt commitment to enhancing healthcare delivery, innovations and treatments, I now serve with a nonprofit organization that has aligned goals and research efforts.

Having lost precious family members to Cancer, their Mission is important to me. I am impressed with the passion and dedication of Dr. Cameron, Clare (Executive Director), staff and the research team's efforts to continue finding innovative treatments. With an in-house laboratory that is dedicated to providing highly innovative research, the Institute remains committed to converting these into timely cancer treatments.

2

Volunteer

Rating: 5

Clare and Victoria are wonderful people who have a great team that helped with the Greatest Escape charity ride for mesothelioma. I'll always be happy to help them any way I can.

Volunteer

Rating: 5

We enjoy helping by volunteering at all the motorcycle events to raise money for mesothelioma. It brings us joy to help others in need!!

1

Volunteer

Rating: 5

We have been to the wonderful fundraisers for mesothelioma and the Pacific Heart Lung & Blood Institute has developed and nurtured amazing events. The behind the scenes and watching these amazing care givers, Clare and Victoria Adams and all of their staff is an
incredible team effort and always a success. The organization and leaders that delegate and
market these kind of events is very difficult and a lot of hard work. I can't say enough about this staff and we have been there to witness it. Personally, I have done events but this magnitude of these kind of events takes leadership and organizing. The events are a very upscale with a lot of thought and hard works. Everything is done with class. People get involved because of the management who works so hard putting it on. We salute you Pacific Heart Lung & Blood Institute staff and all of your team!

General Member of the Public

Rating: 5

The mission statement of the Pacific Mesothelioma Center is a simple one despite the deeply inherent complexities of the misson -- build awareness for and spearhead research goals toward prevention of the disease that bears its name. But providing a support group for its victims and their families appears to deliver the most uplifting beat of this nonprofit's march. I've attended several of its key events over the past couple of years, and the smiles of the attendees in the face of the challenges many of them face say all I need to know. The Pacific Meso Center is an organization that at its core embodies a smart and caring spirit about the conquering of a stubborn disease that results from mostly unconcerned behavior and acts. And this is the path they should continue down by maintaining their focus on the people affected and the wisest and most comprehensive ways to treat mesothelioma

1 Terry100

Client Served

Rating: 5

After my Beautiful, Young and Healthy daughter in Law was diagnosed, K..... was so unknowledgeable in that field, they just give her a death sentence! They made her and her family feel so helpless, scare and demoralized!
A day later when we find PHLBI, Lien (Pract. Nurse) PHLNI, would ALWAYS call on her, each time Cindy had a concern she would call Lien, ( NOT K.....) Cindy felled in good hands, they were not given up on her, there is Hope and Treatments out there, and they were the right people to do so !!!!
Being given a Death Sentence is hard to take, mostly when you are way too young to accept it! Some people are not really to give up, and PHLBI give Cindy the hope that she needed to make her feel that those last months, may not be her last, unlike K.....!!!!
That is PRICELESS!
The monthly Support Caregiver conference is very helpful, we exchange ideal and recipes and I got some good ones to make her life better.
Thank you ALL at PHLBI for your devotion and support!
A special Thanks to Lien, that I feel went behind and above the line of duty! Cindy always find comfort after speaking to you!
We all need to raised awareness on that terrible practically undetectable and incurable cancer! Keep up the good work PHLBI!

3

General Member of the Public

Rating: 5

Recently I attended the 5K Mesothelioma hike at the Paramount Ranch in Agoura Hills. The setting was beautiful, a set location of a western town with a backdrop of mountains that seemed to protect this magical place of a time gone by. The Pacific Heart Ling & Blood Institute thought of everything that could make the day perfect for all who attended while at the same time making sure that all of those who lost their battle with mesothelioma were remembered. I found myself walking for those I did not know personally but whom I felt deeply connected to, knowing that each step I took was honoring those who can't be there and those who are just beginning their fight with this devastating disease. What a great event for such a worthwhile cause.

2 Alexa M.

Board Member

Rating: 5

As a newly appointed board member, I have been truly impressed by the Pacific Heart, Lung and Blood Institute. While PHLBI is best known internationally for its innovative research into mesothelioma, it is equally as innovative in other disease areas.

The organization has outstanding staff who are not only extremely compassionate and professional, they also possess can-do attitudes.

The recent 5K Walk/Hike for Mesothelioma was an outstanding event that exemplifies the organization's commitment more than just research. The event was more than just a fundraiser, it was a gathering of patients, families and supporters who learned from and supported each other.

There were people at the event who are currently suffering from mesothelioma, and there were families and friends there who lost someone to the disease. In fact, I was so inspired by the group that I donated onsite to the PHLBI tissue bank.

1

Donor

Rating: 5

As a mesothelioma patient looking for answers for this devastating disease I am very encouraged by the work at this center and the progress being made in the research lab. I had the opportunity to tour the lab when I attended the PMC Holiday Open House and learn about the exciting research being conducted with mesenchymal stem cells in conjunction with immunotherapy. I learned a great deal and was truly impressed with all of the work and the expertise of the research staff.
In addition, the nurse practitioner Lien , on top of being a mesothelioma expert is very helpful and a great sounding board for questions. I am proud to be a donor and supporter of this organization and recommend anyone looking to support mesothelioma research to look no further than the Pacific Mesothelioma Center.

1

Board Member

Rating: 5

As the Board Chair, I cannot say enough great things about the PHLBI team. Created from the vision of one iconic and deeply devoted surgeon, PHLBI has grown into an internationally known and respected research organization finding new treatments for rare heart, lung and blood diseases like mesothelioma. The secret sauce to this very special nonprofit is the people: Their outreach to patients, support to families, and their cutting-edge research program for mesenchymal stem cell-based treatments--It's the passion, spirit and humility of these fine individuals dedicated to their work everyday that makes PHLBI ones one the finest nonprofits in the nation.

1 lwilcox

General Member of the Public

Rating: 5

Once in a while you run across a virtuoso in the medical field who is all about quality of life and not simply enamored with capital and a surgery job. Dr. Robert Cameron has become the expert in mesothelioma (in hospitals and for the Legal biz) and was kind enough to find creative solutions to my very large fibrous tumor that was pressing on my lung and heart and attached to my diaphram. Other chest surgeons that I went to wanted to remove the turmor and possibly the lung. Dr. Cameron saved my lung and my life and I continue to enjoy a quality of life because of him. I will continue to help Dr. Cameron and his Executive Director, Clare Cameron in every way possible. If you have medothelioma and want the latest and greatest....Dr. Cameron is your solution without a doubt. He is kind, sensitive, intellectual, and a superb surgeon. Everyone should support the Pacific Heart, Lung, and Blood Institute and their research.

1

Volunteer

Rating: 5

I was a volunteer for The Pacific Mesothelioma Center's The Greatest Escape motorcycle ride fundraiser. I had a wonderful experience and had very pleasant interactions with the PHLBI staff and other volunteers. It is evident that everyone there was dedicated to putting on a great event in order to support an amazing cause. I was very impressed with how organized the event was, which can be attributed to the staff's attention to detail. They clearly devoted a lot of time and heart into making sure the event ran smoothly and was fun for everyone, including the volunteers.

1

Client Served

Rating: 5

Dr. Cameron gave me hope when there was none. Because of him, and his incredible experience and skills as a surgeon, I am here four years later and able to give this review. hank you Dr. Cameron for the many years that you have put into heling others with Mesothelioma. It paid off for me. So you can imagine how easy it was for me to donate my tissue and specimen to the Pacific Mesothelioma's International Tissue Bank for his research. I pray that one day soon, he will find a cure for this dreaded disease. I encourage everyone to become a Research Associate, just like me, by donating your specimen/tissue to The Pacific Mesothelioma's research program. It is so easy and you can help make a difference.
Thank you
Kay Simmons-Gilpatric

3

Client Served

Rating: 5

The people at the Pacific Heart, Lung and Blood Institute have helped us through this difficult time. Having been diagnosed with Mesothelioma about 10 months ago, the search began for cause, answers, treatment and most of all, hope. Dr, Cameron, Lien, Clare, Christina, the researchers and interns work tirelessly to provide patients with all of this. Beyond the expert medical care, the emotional support for patients and family is invaluable and heart warming. Their research provided us with answers and treatment. Roger is improving daily and hopes to regain the quality of life he once enjoyed. We no longer feel helpless as these people have guided us through the maze of information, provided support and care and continue to update the treatment plan as more research provides more answers and more positive outcomes.

1

General Member of the Public

Rating: 5

Pacific Meso Center are "THE" vital vessel Titan that are actively taking on this horrific form of cancer. As a musician and filmmaker, it has been such a heartfelt journey to witness from the sidelines. We are so proud to be affiliated with this organization, that is so full of perseverance, passion, empathy and love. Dr. Cameron, Victoria Adams, Clare Cameron and the rest of the team are modern day Saints. They are people I have seen on a personal level that have proven that miracles do happen, and that there are still people that care. - Drewin B. Young of The Walking Phoenixes & Red Mutts

General Member of the Public

Rating: 5

After my husband passed away in 2011 from Mesothelioma, I decided that I needed to find a nonprofit that was dedicated to finding a cure for this "ghost" cancer. I call it "ghost" cancer because I never heard of it until my husband was diagnosed, and the TV commercials showed up.

We researched this form of asbestos related cancer, and found that there were only around 5 specialists in the U.S. Dr. Cameron is one of them. My husband was not treated by Dr. Cameron. At the time we lived in Northern California, and he felt it was too far to travel.

After the passing of my husband, I prayed and researched on the internet for a non-profit that was dedicated to cutting edge research and the development of additional modalities that would make a difference. I wanted to make a difference and support them.

This non-profit not only does research to extend a patients life, but are working towards finding ways of early detection and prevention.

The staff are dedicated to the cause, and the people lives they touch.

There is hope for others who suffer from this deadly cancer, but on going research is needed and on going funding.

One day their research and breakthroughs may save your loved one.

I decided two years ago to monetarily support this organization on a yearly basis during the 5K run/walk Mesothelioma fundraising event. They are making a difference in the fight. With them there is hope for those already diagnosed, and for those who do not even know they have this silent killer growing inside of them.

I believe a cure will be found, and that the use of products containing asbestos in the United States will some day be eradicated.

Regards,
Rosemary Stirdivant

1

General Member of the Public

Rating: 5

I was introduced to this organization when I attended its 5K Walk for Mesothelioma last month. I did not know much about this disease before the walk but felt very informed upon leaving it. The people running the event had information cards along the walk about mesothelioma and there was even a quiz at the end that tested everyone’s retention. The speeches were touching, the music and opportunity drawing engaging, and the food delicious. Everyone from The Pacific Mesothelioma Center was warm, friendly, and helpful. I was inspired by this cause and the work this organization does to support it. Count me in for the next fundraiser!

2

Volunteer

Rating: 5

I have had such a good experience with the staff and fellow volunteers at PHLBI. They really dedicate their time and heart to making sure each event in memorable and fun for everyone involved. I am impressed and hopeful about the work they do outside of their fundraising as they have their own laboratory working toward treatments and an eventual cure for mesothelioma. I wish them all the best and look forward to volunteering again!

3

Board Member

Rating: 5

The Pacific Heart Lung & Blood Institute is a 5-star organization that uses every nickel raised to investigate novel potential treatments for mesothelioma. Its dedicated staff work tirelessly to improve potential outcomes of these patients who suffer from asbestos-induced lung cancer. The research is led by Dr. Robert Cameron, a noted thoracic surgeon at UCLA, who has the clinical experience and scientific knowledge to make significant advances in the field. This Institute makes it possible for him to conduct groundbreaking research on a very tight budget. The team at the Institute is truly interdisciplinary including cancer biologists, molecular biologists, bioengineers, pathologists, oncologists, and surgeons. The cooperation between these specialists provides the leadership necessary to conduct the pioneering work of the Institute.

1 Martin10

General Member of the Public

Rating: 5

I have been involved with this wonderful group for the past 2 years. I am very grateful for all that they do and continue to do. They do wonderful things for people diagnosed with mesothelioma and continue to look for cures to this horrible disease. PHLBI, Thank you so much for being there for us. Martin Gonzalez

2

Client Served

Rating: 5

PHLBI is an incredible resource for Mesothelioma patients and their families. Dr. Cameron and his research team truly bring hope to those in a hopeless situation. There have been many groundbreaking discoveries in regard to Meso treatments. PHLBI holds different fundraising events for Meso research, which gives a voice to voiceless. These events help victims and their families feel like they are not alone in their fight against the disease. Many people are unaware of the devastating effects of Mesothelioma and this nonprofit truly helps educate people about this cancer. Furthermore, it advocates for veterans to get the treatment they deserve after a Mesothelioma diagnosis. This truly is a great organization that deserves an immense amount of recognition for the great work it does not only for patients, but also their families.

1

Volunteer

Rating: 5

The people that are involved with this organization are so incredible & loving. I truly feel honored I get to help volunteer and be a part of them helping to pay it forward!

Volunteer

Rating: 1

i do not know enough about the organization to comment about it.....do they have a cure for mesothelioma that gets into lymph node...? no chemotherapy stuff...that stuff does not work, its been out in the market for ten years! That's the best that is out there?! it's like throwing a rock at a tank....that is what i hear....

Comments ( 1 )

profile

pacificmesoctr 10/21/2015

I would really suggest that you find out more about our organization, as you appear not to know anything about us. Please visit our website at www.phlbi.org. Currently there is no cure for mesothelioma, but at PHLBI we are working on immunotherapy approaches which will have their effect all throughout the body including in lymph nodes. Please contact us directly if you have any questions regarding this.

2

Donor

Rating: 5

This is a wonderful nonprofit! We donate every year because they are accomplishing such great things for individuals of all ages!!! Pacific Heart Lung & Blood Institute is very professionally run & easy to work with, too! Sincerely, Paula Sell Sacks

2

Donor

Rating: 5

The work that PHLBI does is critical in assisting patients and family members that are currently battling Mesothelioma or have been through the fight. Dr. Robert Cameron and his team were instrumental in my father's fight against Meso. The compassion and dedication towards the patients that have been stricken with this disease was just amazing!! Dr. Cameron and his team not only helped my father cope throughout his treatments and surgery but were all there for each of my family members with any answers to questions we had as well as lending an ear or a shoulder when we needed them. We were truly blessed to have been introduced to PHLBI during the toughest time of our lives. From the moment that our family walked through the doors of PHLBI, we were treated like family and they truly cared about our feelings and many questions and concerns that my Dad had. Although my father lost his fight with Meso in 2012 we are still very active in participating and supporting the Pacific Meso Center because of how my Dad and our entire family was treated. 2011-2012 was such a time of devastation in our family but we were comforted and supported by amazing human beings and for that we are truly grateful for Dr. Cameron for his continued dedication towards early detection and a cure for Meso.

2

Volunteer

Rating: 5

Being a Meso surviver has opened my eyes and humbled me, Just by this organizations compassion and commitment to a cause, They go above and beyond the norm. And a note on Dr. Cameron, what can you say about a dr. that restores your life, hes the best and I thought I was dedicated to a cause, he wrote the book.
Thank You Victor Jasniy

1

Client Served

Rating: 5

As a mesothelioma patient I am very grateful to have been treated so successfully and with so much care by their doctors. I now not only appreciate their continued maintenance/care to control recurrence but also appreciate Clare's wonderful support. I wish them success with their immunotherapy research to control this dreadful disease.

3

Client Served

Rating: 5

My husband was diagnosed with mesothelioma on 07/03/2014 (our youngest birthday), in Anchorage, Alaska. We were told he had only six months to live with chemotherapy and three months without any treatment. We searched on the internet and were very lucky to find Dr. Robert B. Cameron's website. After some difficulties, we finally got an appointment. Then we met Miss Clare Cameron; what a wonderful lady! Through her we were able to get airplane tickets, thanks to Angel Flights, for his first appointment and again for the trip for his surgery. Dr. Cameron did a wonderful job on his lung. Mike (my husband) had to have radiations after the surgery. Miss Clare found us a place to stay for almost four months while he was on treatment. We are about to find out if the treatment worked or not; it has been nine months since we were told there was nothing anybody could do for him. He is 71 years old and he is already thinking about going back to work in the near future. This has been a miracle thanks to our Lord and to Dr. Cameron's hands. Regardless of the news we get this evening, the Lord has given all of us, his family, another opportunity to show Mike how much we love him and all the reasons in the world why it is not his time yet. We are full of hope. THANK YOU Miss Clare for all your help and your very kind words when we thought there was no help. God bless you and give you many more years to live so you can keep on helping people.

1

Board Member

Rating: 5

I have had the honor of serving as Board Chairman of PHBLI for the past three years. Our dedicated staff and volunteers have made incredible progress in the treatment of mesothelioma, as well as research into new diagnostic and therapeutic strategies. In particular, I am gratified that defense industry and military veterans who contracted mesothelioma in defense of our country are receiving the care that they deserve through PHBLI's efforts.

1

Volunteer

Rating: 5

Review from: Vincent Leinen- Volunteer host staff member
Subject: Review of two fundraiser events hosted by Clare Cameron Executive Director Pacific Meso Center at Pacific Heart, Lung, Blood Institute
Refer to: www.PacificMesoCenter.org www.phlbi.org

Fundraiser Dates:
August 3, 2014 The Greatest Escape Motorcycle Ride, Paramount Ranch, Agoura, CA
October 12, 2014 5K Walk/Hike, Paramount Ranch, Agoura, CA

Event Host Staff: The host staff led by Clare Cameron were professional, prompt, courteous, knowledgeable, efficient, and always went ‘above & beyond’ to ensure a very positive fundraiser experience for all involved! They receive my 5 out of 5 star rating with 5 being the highest rating and exhibits a great example for all fundraising staff personnel to emulate!
Events: The two fundraiser events were staged at the legendary Paramount Ranch, Agoura Hills which provided a very scenic, peaceful and enjoyable atmosphere. The events were fun, rewarding and well organized with a positive buzz! The high quality music and large portions of delicious food was well received by the patrons.
Bottom line: Thru these two fundraiser events hosted by Clare and the host staff from Pacific Meso Center at Pacific Heart, Lung, Blood Institute were wonderful events in which a ‘great time was had by all’, while generating worthy funds to make a difference and the world a better place.

2

Board Member

Rating: 5

PHBLI is a highly respected nonprofit in the Los Angeles area. PHLBI conducts medical research to find treatments for rare diseases and cancers, such as mesothelioma. At the Mesothelioma Center, researchers are focused on finding minimally invasive therapies to treat this devastating disease. The dedicated staff of PHLBI work with families of someone who has been diagnosed with mesothelioma. The devoted team provides emotional support while helping the patient to get the best treatment available. Loved ones express lifelong gratitude and appreciation for PHLBI's compassion in helping patients and families and for PHBLI's important scientific research on life-saving treatments.

Review from Guidestar

6

Client Served

Rating: 5

Nothing can convey the horror that I felt when they discovered a large tumor in my left lung and I was diagnosed with mesothelioma. The more I read about the disease, the more hopeless I felt. Nearly all doctors recommended removing the lung, then radiation, then chemo, and the survival rate past twenty-four months was negligible. I am still young, and have a career that I love which is very physical; I need both my lungs to keep working and I need to keep working for the health insurance to cover all the medical bills ahead. When I discovered that there was one place that could spare my lung and deal with my disease as chronic but TREATABLE, it gave me hope where there had been none. This nonprofit has helped me find a way to possibly beat this disease by giving me the time to be here for a cure---a cure that they are working toward. They deserve funding and attention paid to the work they do: saving the lives of others like me.

1

Volunteer

Rating: 5

This is the second event I have attended and worked on with this organization, and they are wonderful people. The events are well-organized and just a pleasure to be a part of.

4

Volunteer

Rating: 5

I have been involved with PHLB few times now.Clare and her team have the charisma and the talent to touch everybody involved with them.
Dr Cameron needs a team like this one to pursue his so needed research.

2 Louis V.

Donor

Rating: 5

I first got involved with PHLB in mid summer of 2013. Their communication on their first ever Motorcycle charity ride was outstanding. Their ability to provide answers to my questions was fantastic. On the day of event, It went well and was very organized. They also were very helpful in making me understand this disease "Mesothelioma" and just how it effected both the general population as well as the industries that have a higher exposure to it. I was so impressed with Clare Cameron and her staff that not only did I participate ib the next years event, I volunteered as a consultant to help organize the 2nd "Greatest Escape ride"

2 Kourtni M.

Donor

Rating: 5

PHLI is an amazing non profit, with amazing people! My father passed away from mesothelioma in February of 2013 although Dr.Cameron did not treat my father I wish he would have! I Found PHLI after his passing. I have since then researched this organization and learned so much. The people that run this non profit are truly incredible loving people who truly care! Clare Cameron is one that has touched me emensly and inspired me to develop my own non profit and help in this fight to find a cure and raise awareness. She has treated me with such respect and is always available to answer any and all questions! This organization goes upove and beyond to help others. I am so greatful to be a donor and be a apart of this wonderful non profit!

1

Volunteer

Rating: 5

I have watched this organization grow each year over the past 3 years in which I have been involved.
Clare runs an ever expanding number of fund raising events each year which appear to be doubling in
participents and money raised for this worthy cause. Keep up the great work!
Silverbilly

1

General Member of the Public

Rating: 5

The enthusiasm for what they do at the Pacific Meso Center is impressive. There is a passion to help people there, and a feeling that they truly care for those they are helping. From top to bottom, it's almost a family-type atmosphere with everyone pulling together. It's an all-for-one, one-for-all mentality that makes you believe in what they do. To hear a patient say he was treated like family gives you hope when you walk in the door.
Tim

1

Volunteer

Rating: 5

Wow, what a great organization! Executive Director Clare Cameron, along with Victoria Adams, and Olga are the backbone of this small non-profit group. Each year they put together such fantastic events to raise money to find a cure for Mesothelioma. They work endlessly to raise public awareness of this deadly disease. As a volunteer on some of their events, I gladly offer my time as they make it fun, informative, and bring people together from all walks of life.

2

Professional with expertise in this field

Rating: 5

It has been my pleasure to be involved with a small nonprofit with such large and specific goals of finding better treatments for mesothelioma. The Executive Director, Clare has so much experience in this field from her many successful years at LLS that she brings with her. Clare launched all of the programs and events and I was happy to be by her side helping all of the way. I have had the pleasure of watching the money raised actually going directly to the programs they support without waste. Literally every dollar is used to help the people who have this horrible disease. If there is anyone in the world that can break into this disease and one day find a cure - it is the Pacific Meso Center with great advisers and surgeons like Dr. Cameron. Worthy Cause indeed.

1

Volunteer

Rating: 5

I am absolutely amazed at the hardwork and incredible fundraiser events that Clare and Victoria have put together over the past years. So wonderful to work with and absolutely the most professional fundraiser that I have been too. A great organization and helping others with mesothelioma is certainly a much needed research. The fundraiser also includes so many wonderful raffle items and entertainment - they do it all! Linda & Bill Dempsey Young of Chatsworth

1

Client Served

Rating: 5

As someone with MESO., I personally am thankful for the nonprofit organization that is helping fund research of the horrible life changing disease. Diaginosed five years age, I am still here and thankful for every moment. I wish I could do more, but please continue to give support to this great research with hopes to end the loss of lives. We live a great distance away, but travel every 90 days to see Dr. Cameron and his clinic staff to see how much longer I will have. Claire has been a ray of sunshine every time we see Her. I donate as much as possible, but Medicare has kept much of the financial settlements so we would give more if we could. Thanks to everyone who supports MESO research. Reed G. Grgich, Colorado Springs, CO. USA.

1

Volunteer

Rating: 5

The is an organization unlike any other! I have volunteered a few years, it just keeps getting better!!!

1

Volunteer

Rating: 5

My Mom passed away from Mesothelioma. I was thrilled when I met Clare, and Victoria and found out about the fund raising they where doing to fight this horrible disease. I will do all I can to help out at any fund raisung event in the future. The best part about working with Clare and Victoria is that they where well organized, and it was fun. I'm looking forward to the next fund raising event.
David Blonsky

2 Rebecca127

Volunteer

Rating: 5

I have volunteered for a few PHLBI events. Having volunteered for many, many organizations for the past 25 years, I can say that PHLBI is one of the best organizations to volunteer for--there is just so much heart in everything they do! Unlike those experiences you have when you know you are just a number on a volunteer list, PHLBI really stands out by personalizing their communication with you, making it a point to know your name, and showing sincere appreciation for your contribution that would turn the head of even Dale Carnegie. This is the type of treatment you want as a volunteer--knowing that you aren't just disposable free labor invited out to do the work the employees don't want to do. Nope, with PHLBI, you are invited to help them do the work they are doing right alongside you. As a volunteer, you are treated just like a donor or sponsor--a relationship is being cultivated with care for the long run. What else can you ask for? To me, that kind of attention is worth far more than a rough cotton t-shirt!

2

Client Served

Rating: 5

When my wife was diagnosed with Mesothelioma, we were at a loss as to which direction to go. We searched all possible avenues and eventually sought the alternative approach. After a couple of years, things turned for the worse and it did not look as though my wife would make it. We desperately sought the counsel of Dr. Cameron at PHLBI in Santa Monica, CA. Through Claire and all the rest of the helpful and caring staff there, we were able to travel there for consultation very quickly. Unfortunately my wife's condition did not allow her to be treated due to the level of decline she had endured. Although we were not able to receive treatment, we were treated with utmost professional care and follow up communications. I can say that this has been one of the most positive stops along this road to recovery we have travelled. I can not recommend anyone higher than PHLBI. Blessings to all in your recovery.
William