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saraanne

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1 reviews

Review for American Bladder Cancer Society Inc, Dalton, MA, USA

Rating: 5 stars  

I came to this site, totally confused and upset because I had just been diagnosed with bladder cancer. It is supposedly a disease of smoking males, and I am a non-smoking female! I was absolultely panicked. The web site of the American Bladder Cancer Society has a wealth of vetted information available. However, the most valuable, to me, is the almost immediate help available from volunteers/members when you have issues or questions. Both via an email link and, especially the Forum, other members who have "been there -- done that" are ready to share their experiences and (non-medical) advice. I am now 2.5 years from diagnosis and am a volunteer myself. I participate on the Forum and have spoken to numerous people on the telephone. They are confused and very worried. I, and other members of the ABCS, are able to help them calm down and assess their situation, and realize that there IS hope and excellent treatment options are available. One of the most valuable services we provide is a comprehensive list of cancer centers and hospitals which specialize in the treatment of bladder cancer. I don't know what I would have done after my initial diagnosis without this wonderful group of caring volunteers.

I've personally experienced the results of this organization in...

Please see my detailed, and perhaps incoherent, discussion above.

What I've enjoyed the most about my experience with this nonprofit is...

The ready friendship with others in "the same boat" that I found here

The kinds of staff and volunteers that I met were...

All are absolutely wonderful. AND they are all volunteers..except for our tech guy who was hired to set up and maintain our web site.

If this organization had 10 million bucks, it could...

I don't think we need 10 million bucks. Just a few thousand would enable us to enhance our efforts and expand our outreach tremendously.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Volunteer & I found information which greatly helped me seek the correct treatment for my bladder cancer.