“You’re the living embodiment of John Wesley's words:
‘Do all the good you can, by all the means you can, in all the ways you can…’
You certainly have done good for me, and I am so thankful.”
Thank you, for your support this past year with my Bladder Cancer battle, you have helped me to be strong on this long tedious road!
If receiving a Bladder Cancer diagnosis, people jump to the internet only to find random, confusing, and frightening information, but no individual help. The "been there/done that" caregivers and survivors at ABLCS welcome you into a friendly environment as a person, providing excellent information, input, and support. Lurkers to the forum often spot others with similar situations, and sensible questions. Many join in to participate. Each one contributes a valuable piece of information that could help others better understand and deal with Bladder Cancer. It's an unfortunate, long term commitment when one joins the "B-C Club". Finding the ABLCS forum provided the communication not found elsewhere. Thanks.
My hospital and my Doctor were not helpful in aiding me to adjust to the bag. Dealing with the issues about the bag were driving me nuts. Several others here were also out of surgery and were Huge help with my problems. Realizing the stress that can come from surgery, I now try to be informative for new folks. It's also important to point out to others that cancer IS NOT terminal.
When I was diagnosed with advanced invasive bladder cancer in 2007, I was fortunate to find the American Bladder Cancer Society. Not only was the site loaded with current information on every aspect of the disease and treatments, but I was also welcomed by a group of others at various stages of their treatment path. I am a grateful survivor thanks in part to the guidance of this website.
This site has kept me from loosing my mind through my seven or eight years of going through surgeries and checkups. they would talk to me and support me in hard times and celibrate the good times. I don't know what I would have done without my friends at ABLCS.
This is the only website that has made me feel so loved and supported, instead of just a place to vent and get info. Best forums and blogs ever! Sail on, ABCLS!
I discovered this site and the ABLCS when I was first diagnosed with bladder cancer and it provided not only a wealth of information and links to resources but also much mutual support from others going through similar experiences.
This organization was founded in 2008 to provide help, hope, and support to members of the bladder cancer community. Each year, more and more people access our website/social networking site to receive information and support for this often overlooked and underserved disease.
The ABLCS website is wonderful! The information shared amongst caregivers and bladder cancer survivors in the forum is helpful and reassuring to those of us who visit the site. My husband, Doug, was diagnosed in May, 2001 and has had 5 re-occurrences. His cancer has remained non-invasive and he has been cancer-free for almost 5 years. Knowing the options that are available should his cancer progress is helpful. Survivors on this site are most willing to share their experiences and encourage others. Having this site available is a true gift.
Found out I had Bladder Cancer in 2006, laser surgery twice, BCG treatment, cancer returned in 2007 more laser surgery...just a whirlwind of emotions, pain, confusion and since it 'wasn't considered one of the more serious cancers' , there wasn't a lot of information. In Dec. 2007 had 12 hrs. of surgery with complete bladder removal, rebuilt my bladder using part of my small intestine "Neo-Bladder", removed my prostrate, removed several masses. Wish there had been a site like this for myself and my family to utilize because we basically had to rely on technical medical documents and other scattered sources. This site is very valuable to those who discover that they have Bladder Cancer. I volunteer at a local hospital with a cancer treatment center/oncology clinic/Women's Breast Heath Center. I wear my survivor's pin and talk freely about my cancer what I had done, and stress the need to do the research on sites like The American Bladder Cancer Society.
This is such a wonderful place to learn all about this cancer, my husband was diagnosed in Dec. 2012, had a radical cystectomy May 2013 , We had no knowledge of this cancer except that it was fast acting in my husband, with this site and information and stories from others I felt much more informed, our regular MD had no information on this as he had never had a patient with this type of cancer before. Our new Doctor at UofC informed us of this site, and what a help it has been.
This site has made my life much easier dealing with cancer. It is often hard to talk to family due to the fact you know they hurt for you. Talking to people with the same issues and getting information recieved has been amazing.. I am a 28 year old female that has survied this with a two year old boy... Trust me!!! Great place... I would love more awareness on bladder cancer out there,
Amazing nonprofit!! Such a great resource for those of us diagnosed, for the families and friends and for the general public to get all the information they need!! If I could give more than a 5 star rating, I surely would!!!
If it is possible I would give the American Bladder Cancer Society a MILLION STARS!!!!!!!!!!!!!!!!!!! My husband, Steve, was diagnosed with Bladder Cancer in July, 2006, his was high grade w/CIS and if it wasn't for this site I would have totally lost it. The information provided was invaluable to us and the forum is beyond fantastic!!! Even though some of the members are going through the unthinkable in regard to Bladder Cancer either with themselves or with family members, they are beyond generous with their knowledge, support and a listening ear. We mainly lurk but I did post my husbands story on the forum in hopes of giving hope to someone who is where we were in terms of grasping what's has happened. Thank God Steve has been cancer free for 7 years now!
The Society has been a wonderful to me. I lost my dad to stage 2 bladder cancer. He went from diagnosed to being gone in about 7 weeks. I was devastated. You hear so much about breast cancer all over the place, it was hard to find information or support about bladder cancer. I didn't feel so alone, here were people who understood, who could give me facts and information. I strongly support them and all they are doing to inform more people
This site is very helpful thank you! I searched high and low for support and eventually found you. I have a lot of questions and fears. My Dad has stageIV bladder cancer and I need this forum to help me understand what he may be going through and what ways I can help. And I need advice on how to deal with my feelings. I'm glad I'm here. I think the forums and Sunday chat. Will help a lot.
After being diagnosed in January 2010 at age 55 with a "rare" form of bladder cancer, a primary bladder adenocarcinoma, I was referred to Vanderbilt where they did a bladder-sparing partial cystectomy. I was fortunate that I met the very strict criteria for that surgical option. Even though I had very supportive family and friends, I had never felt so alone and isolated as those first several months. Until that path report, I had never been to a urologist, never heard any of those "cysto" words like cystoscope and cystectomy. I didn't know anyone with bladder cancer, and kept reading dismal statistics for my type of cancer. I finally found ABLCS eight months later and I feel like it saved my emotional and mental life. Being among "people like me" took away the dark cloud that had hovered over me all that time. I really can't express my appreciation for the acceptance, encouragement, and empathy I received from members of the ABLCS forum. I now volunteer my time as a forum moderator to be there for others as they hear those same words from their own doctors... "you have bladder cancer." We hope by educating as many people as we can reach, bladder cancer can be diagnosed earlier when treatment has the greatest chance of success against this very determined enemy which has the highest recurrence rate of any other cancer. All I can say is, "Thank you, ABLCS for being there for me, and for everyone affected by this devastating disease."
At 53 years of age, and having never had a health issue, I was diagnosed with bladder cancer. Even though I was correctly diagnosed and Professionally treated, I was constantly wondering if I was supposed to be alone during this process. After finding the ABCS website, I was amazed at the amount of information and support they made available to everyone. I was so impressed I became a regular member of the site and wanted to help others get through their illness. This site is a godsend to those who are afraid and in need of information and a shoulder. The people who created and support this site are to be applauded and rewarded for their efforts