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babzzzthefirst

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1 reviews

Review for Lupus Foundation Of America - Heartland Chapter Inc, St Louis, MO, USA

Rating: 4 stars  

I was diagnosed with Lupus after the birth of my child at the age of 22. It was tough at first. At the age of 67 I still need more sleep than the average person. Lupus opened many doors that I never could have imagine. After the birth of my 3rd child I became involved with others who had lupus. The years that followed were wonderful. I still take prednisone, and cytoxin drugs as I have for the last 34. I firmly believe that the longer one has lupus the better one gets. This is due to the fact that one is able to know what triggers flares and deal with it right away.

I've personally experienced the results of this organization in...

It has been a long time since I have been involved with the Chapter. What it did was opened doors in my life that never would have occurred to me.

If I had to make changes to this organization, I would...

All sounds and seems great. I really am impressed in the Chapter and its growth.

What I've enjoyed the most about my experience with this nonprofit is...

Being able to develop areas where people with lupus could get up to date and correct and fund important local research.

The kinds of staff and volunteers that I met were...

Some were good and some were not

If this organization had 10 million bucks, it could...

help fund Nationally chosen research grants

Ways to make it better...

we could have attracted Board Member that had wide connections.

In my opinion, the biggest challenges facing this organization are...

Not having been involved in many years I can't respond to the question.

One thing I'd also say is that...

Keep doing what you are.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

Role:  Volunteer & Developed the MO. Chapter, as well as the National Foundation. Served on two NIH Boards. nt. I also started the first Government Relations Committee. Served on the NIAMS C.