Mission: The organization is dedicated to improving the diagnosis and treatment of lupus, supporting individuals and families affected by the disease, increasing awareness of lupus among health professionals and the public, and finding the cure.
Results: 19 new Support Volunteers trained in 2010; added daily telephone support services; presented the St. Louis 2010 Lupus Educational Conferences, which had 300% increased attendance rate over previous years; Added monthly lupus webchats and teleconferences to our services; Merged Kansas City and Missouri Chapters to form the “Heartland Chapter,” as of Dec. 2009; Administrative expenses at 6% in FY 08-09.
Target demographics: women ages 15-44, men with lupus, caregivers, friends and family members of those living with lupus
Direct beneficiaries per year: 8,500+
Geographic areas served: State of Missouri, eastern Kansas, southern Illinois
Programs: The foundation provides counselors and information to increase the public's awareness of the lupus disease. The foundation also funds research, educates and supports lupus patients and their families.
Donor & Volunteer Advisory
This organization's nonprofit status may have been revoked or it may have merged with another
organization or ceased operations.
I was diagnosed with Lupus after the birth of my child at the age of 22. It was tough at first. At the age of 67 I still need more sleep than the average person.
Lupus opened many doors that I never could have imagine.
After the birth of my 3rd child I became involved with others who had lupus. The years that followed were wonderful. I still take prednisone, and cytoxin drugs as I have for the last 34.
I firmly believe that the longer one has lupus the better one gets. This is due to the fact that one is able to know what triggers flares and deal with it right away.
I was told ten years ago that I had Lupus and have found their webpage and news letters to be very informative. I have found out things about the dangers in everyday life that can be bad for us with lupus. There are important articals from doctor's, test labs etc to give trial testing if ones would like to do the trials. They are in the process of doing a bike ride. It is a wonderful non profit organized that needs the help of the States to sponsor.
